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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


POSSIBLE CURE 4 EVERYONE

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POSSIBLE CURE 4 EVERYONE

Post  EverythingIsDifferentNow on Mon Sep 05, 2016 4:32 pm

Vulvodynia may not be as complicated as you think. It may not be nerve damage (which is actually unlikely and unusual) but a more common factor that may affect 90% of everyone's cases. That is ------ pH imbalance! Think about it. Where is that BURN coming from? Why is there a burn in the first place? Why does it resemble a burn-like feeling? Acidityyyyy! Girl, you've turned into a jalapeno pepper from the inside out. literally.

I used to have vulvodynia. Hands down, one of the worst things I've ever experienced in my life. Not only did it take a physical toll on me, but mentally and emotionally as well. I mean I couldn't enjoy a damn thing. I've done SO MUCH research, I'm basically an expert now. What I realized might have been what caused my vulvodynia was so simple. I used to have coffee everyday (with no water before or after drinking it), and LOTS of spinach. Why does this matter, you ask? Oxalate and acidity levels. High doses of oxalate or oxalate buildup can cause vulvodynia, and this may cause an unbalanced pH level in your system (*cough* especially ur vagina). Plus, the caffeine just added to the burn. So then I tried all kinds of diet. Gluten free, low oxalate, blah blah blah, and so many creams that seemed okay at first but just ended up making my pH level more off balance. So, first things first.

THIS IS WHAT REALLY HELPED. SKIP THE SURGERIES AND CREAMS. THEY'RE NOT THE REAL CURE. CURE THE NATURAL WAY. REVERSE THE PROCESS.
-*************Calcium citrate pills (you can get them at CVS or Wallgreens)
-Multi-vitamin pills (get that vitamin c, girly)
-Lower back exercises
-Skipping the caffeine everyday & the high oxalate foods

(but if you take the calcium citrate pills and return back to normal, you can eat normally -- even high oxalate foods w/o the irritating burn. Just don't overdose or make it a daily thing.)

So, it's been a year now and counting. I'm super fine. 100% normal. Note, however, this will take time. The reason you have vulvodynia, most likely, is because it was built up over time and then BAM. It hit you and you woke up with the worst burn ever. You need to be patient and you will very likely see a difference in 2 weeks, maybe even less.

ALSO, LADIES. A SIDE NOTE FOR ANY FREQUENT UTI-PRONE SUFFERERS *aka me*, nature's the best medicine!
SKIP THE ANTIBIOTICS. I HAVEN'T HAD A UTI IN MONTHS.
-Uva Ursi is a natural plant that can take away your UTI in a few days (sometimes as short as less than 24 hrs)(Amazon)
-D-Mannose is an all natural sugar that binds to the bad bacteria in your bladder and kidneys, and flushes them away. Takes about 24-72 hrs to clear. Usually 24 hrs, though. (Amazon)
-Add a garlic clove or two, smash it up or poke holes, and put in glass with a little bit of hot water, let sit for 5 minutes, and drink! Kills only bad bacteria and even antibiotic-resistant bacteria! Woo! (BE CAREFUL W/ GARLIC. VERY POWERFUL. Don't eat raw very often because it may irritate your bladder by burning it a bit. This can take a day or two to heal if done so.)

BEST OF LUCK, LADIES. I WAS SEVERELY DEPRESSED OVER THIS AND BECAME DISHEARTENED WHEN I HEARD THERE WAS NO CURE, BUT THE CURE IS REAL AND OUT THERE FOR EVERYONE. EVERYONE'S BUILT DIFFERENT, BUT DON'T GIVE UP HOPE. sunny sunny sunny

EverythingIsDifferentNow

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Re: POSSIBLE CURE 4 EVERYONE

Post  Coop on Wed Sep 07, 2016 6:43 am

This sounds like it makes sense. I'm allergic to milk, and I often go off dairy for a while to help my eczema. Although I eat calcium containing veg, probably not often enough to provide the RDA I should have. I may try taking a supplement for a few months just to see.

Coop

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Re: POSSIBLE CURE 4 EVERYONE

Post  mary jane on Thu Jun 08, 2017 12:26 pm

It makes sense if you suffer from burning and everyone with this symptom can try diet changes, however not everyone has burning
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Re: POSSIBLE CURE 4 EVERYONE

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