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» Finally found a place for me...
Today at 4:08 am by mtsp

» UK Vulvodynia Clinics
Yesterday at 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

» There is hope after all!!
Wed May 16, 2018 2:50 am by Cbrimer28

» Getting to the point of wanting to End Everything ADVICE NEEDED
Mon May 14, 2018 6:49 pm by fairlight10

» Looking for advice!
Thu May 10, 2018 8:50 pm by KB365

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


POSSIBLE CURE 4 EVERYONE

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POSSIBLE CURE 4 EVERYONE

Post  EverythingIsDifferentNow on Mon Sep 05, 2016 4:32 pm

Vulvodynia may not be as complicated as you think. It may not be nerve damage (which is actually unlikely and unusual) but a more common factor that may affect 90% of everyone's cases. That is ------ pH imbalance! Think about it. Where is that BURN coming from? Why is there a burn in the first place? Why does it resemble a burn-like feeling? Acidityyyyy! Girl, you've turned into a jalapeno pepper from the inside out. literally.

I used to have vulvodynia. Hands down, one of the worst things I've ever experienced in my life. Not only did it take a physical toll on me, but mentally and emotionally as well. I mean I couldn't enjoy a damn thing. I've done SO MUCH research, I'm basically an expert now. What I realized might have been what caused my vulvodynia was so simple. I used to have coffee everyday (with no water before or after drinking it), and LOTS of spinach. Why does this matter, you ask? Oxalate and acidity levels. High doses of oxalate or oxalate buildup can cause vulvodynia, and this may cause an unbalanced pH level in your system (*cough* especially ur vagina). Plus, the caffeine just added to the burn. So then I tried all kinds of diet. Gluten free, low oxalate, blah blah blah, and so many creams that seemed okay at first but just ended up making my pH level more off balance. So, first things first.

THIS IS WHAT REALLY HELPED. SKIP THE SURGERIES AND CREAMS. THEY'RE NOT THE REAL CURE. CURE THE NATURAL WAY. REVERSE THE PROCESS.
-*************Calcium citrate pills (you can get them at CVS or Wallgreens)
-Multi-vitamin pills (get that vitamin c, girly)
-Lower back exercises
-Skipping the caffeine everyday & the high oxalate foods

(but if you take the calcium citrate pills and return back to normal, you can eat normally -- even high oxalate foods w/o the irritating burn. Just don't overdose or make it a daily thing.)

So, it's been a year now and counting. I'm super fine. 100% normal. Note, however, this will take time. The reason you have vulvodynia, most likely, is because it was built up over time and then BAM. It hit you and you woke up with the worst burn ever. You need to be patient and you will very likely see a difference in 2 weeks, maybe even less.

ALSO, LADIES. A SIDE NOTE FOR ANY FREQUENT UTI-PRONE SUFFERERS *aka me*, nature's the best medicine!
SKIP THE ANTIBIOTICS. I HAVEN'T HAD A UTI IN MONTHS.
-Uva Ursi is a natural plant that can take away your UTI in a few days (sometimes as short as less than 24 hrs)(Amazon)
-D-Mannose is an all natural sugar that binds to the bad bacteria in your bladder and kidneys, and flushes them away. Takes about 24-72 hrs to clear. Usually 24 hrs, though. (Amazon)
-Add a garlic clove or two, smash it up or poke holes, and put in glass with a little bit of hot water, let sit for 5 minutes, and drink! Kills only bad bacteria and even antibiotic-resistant bacteria! Woo! (BE CAREFUL W/ GARLIC. VERY POWERFUL. Don't eat raw very often because it may irritate your bladder by burning it a bit. This can take a day or two to heal if done so.)

BEST OF LUCK, LADIES. I WAS SEVERELY DEPRESSED OVER THIS AND BECAME DISHEARTENED WHEN I HEARD THERE WAS NO CURE, BUT THE CURE IS REAL AND OUT THERE FOR EVERYONE. EVERYONE'S BUILT DIFFERENT, BUT DON'T GIVE UP HOPE. sunny sunny sunny

EverythingIsDifferentNow

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Re: POSSIBLE CURE 4 EVERYONE

Post  Coop on Wed Sep 07, 2016 6:43 am

This sounds like it makes sense. I'm allergic to milk, and I often go off dairy for a while to help my eczema. Although I eat calcium containing veg, probably not often enough to provide the RDA I should have. I may try taking a supplement for a few months just to see.

Coop

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Re: POSSIBLE CURE 4 EVERYONE

Post  mary jane on Thu Jun 08, 2017 12:26 pm

It makes sense if you suffer from burning and everyone with this symptom can try diet changes, however not everyone has burning
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Re: POSSIBLE CURE 4 EVERYONE

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