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» Just Diagnosed with Vulvadynia
Today at 1:57 am by angelique2016

» Vulvadynia
Yesterday at 7:45 am by mary jane

» Constant pain, I want to die.
Sat Jul 22, 2017 9:41 pm by Meggiemay

» What is Vulvodynia?
Sat Jul 22, 2017 9:21 pm by mary jane

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

Just Diagnosed with Vulvadynia

Tue Aug 02, 2016 9:11 pm by CherryTree23

Well, I was just diagnosed today, yay...my symptoms are just burning pain in vaginal opening. This all came about after taking Bactrim, Monistat, Clindomycin and Diflucan. This doctor was extremely confident I have Vulvadynia. Also told me my vaginal skin isn't red. Yes, it is, mine isn't typically electric red. He prescribed Ampytripline (sp) said, I have a very mild case, and worse case …

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Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

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anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

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Dermatologist in Melbourne Australia Cured my Vulvodynia

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Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  angelique on Tue Feb 01, 2011 6:30 am

A Dermatologist in Melbourne Australia cured my Vulvodynia, below are the details I hope it helps some of you, as this illness is so debilitating and painful, I nearly went out of my mind with pain.

Contact your doctor and have him organise a referral to a specialist Dermatologist that should be able to help you, if your in Victoria contact, Josephine Yeatman, Dermatologist, 154 Grimshaw St, Greensborough, VIC, 3088, Australia, t: (03) 8418 0193, you will need a referral and also it will take a while to get in to see any Dermatologist.


Ask your Doctor about ADVANTAN FATTY OINTMENT in the meantime and see if he will prescribe it for you, then start applying this to the Vulva area ONLY at NIGHT when going to bed, this is very important, use sparingly, this is even more important as it can thin the skin with prolonged use and you don’t want that part of your body thinning do you now.
I used ALLEGRON, 10ml, also prescribed by the Dermatologist, one at night, or half a tablet at night only, this will desensitise the nerve endings and give you pain relief, I was amazed when I went to the Pharmacist for this medication and he asked me is it for pain relief, even though this medication is an anti-depressant, it is widely used for pain relief, the dosage is extremely low, so even if you are feeling a little down with this whole situation, it might help you feel better over all.
Use lubricants. If you’re sexually active, apply lubricants before and while engaging in sexual intercourse.
Look for triggers and avoid them. The triggers that can make vulvar pain worse tend to be different for each woman. Your observations of what causes you pain are important and then tell your doctor or dermatologist
Use only white, unbleached toilet paper and 100 percent cotton sanitary products.
I couldn’t use tampons I had to use pads, as it was to painful to insert tampons
I also only wore cotton panties, this lets the skin breath and didnt wear panties when I went to bed again to let the skin breath and heal with the medication

It took about three months to completely heal, however I did start to notice quite a significant decrease in pain within a week, I also found once it was healed I had to do pelvic floor exercises as the muscles had also weakened, I have been cured for 5 years now, had Vulvodynia for about 5 months, went around and around from doctor to doctor, to gyno to gyno, to Oncologist and then finally the dermatologist, just think of this illness as being a skin condition rather than a gyno problem, and that is why the dermatologist cured my Vulvodynia.

Dont’s

Don’t use Monistat or Canestan creams or other thrush treatments, if your doctor has examined you and your tests prove you dont have thrush then you will only make the Vulvodynia worse, the thrush creams irritate this area terribly and will prolong healing of the skin
Don’t take Keflex or other urinary tract tablets, if you have been tested and no bladder infections show up then no point wasting your money, the urinary tract is irritated because of the damaged skin and swelling, this will ease as the Advantan Fatty Ointment starts to work on healing the skin
Avoid hot baths. Spending time in a hot tub may lead to even further major discomfort and it will prolong health of the vulva skin
Avoid excessive hygiene. Don’t wash or scrub the affected area harshly or too often can increase even more irritation. Instead, use plain water to gently clean your vulva and pat the area dry.
If you are now using Advantan Fatty Ointment don’t wash it all off in the shower, try to keep some there during the day, however DO NOT reapply more as it will make the skin rub to much and trigger things off again, this ointment can only be used when you are resting and a sleep at night
Don’t use to much of Advantan Fatty Ointment you must use it sparingly and a very small amount goes a long way, once it comes in contact with the warm skin of the vagina it instantly melts down and it covers a lot of area, you may like to use a cotton wool bud to apply the ointment if you are very sore
Avoid riding bikes or horses until you are feeling better, exercising will be very difficult, I could barely even sit let alone walk around.


Last edited by angelique on Tue Feb 01, 2011 10:54 am; edited 2 times in total
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  tweety on Tue Feb 01, 2011 10:14 am

Hi Angelique,

Thanks for posting this up. I just wanted to know, did the dermatologist notice anything usual specifically with your skin? Like redness?

Cheers,

Sue

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Dermatologist in Melbourne Cured my Vulvodynia

Post  angelique on Tue Feb 01, 2011 10:37 am

Hi Sue,

Yes the dermatologist could see that it was very red and very sore to touch, the doctors and gyno's couldn't distinguish between the normal color of the skin and the redness, but the dermatologist could, obviously she had seen it before many times, she knew exactly what it was as soon as she looked there. I told her that the Oncologist gave me some ointment Ecolan (a type of steriod) I think it was anyway it burnt like all hell and just made things worse, as soon as I told her this, she said I have a much better Ointment that wont burn and will heal the skin, and she was right it worked very well, got some good relief within a week, but it did take three months or so to heal properly. Advantan Fatty Ointment.

I hope this information will help you, I do believe that only a few Dermatologist will look at this area of the body, when I spoke to the Oncologist about going to see the dermatologist, he said she was about the only one that would deal with women's issues in Melbourne. Thank God for her, I don't think I would have been able to continue, the pain was so excruciating.


Last edited by angelique on Tue Feb 01, 2011 10:59 am; edited 2 times in total
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  angelique on Tue Feb 01, 2011 11:26 am

Advantan Fatty Ointment is only available in a few countries, it is not distributed in the UK, it is available in Australia, America, Canada and a few other places I believe.



Last edited by angelique on Wed Feb 02, 2011 12:24 am; edited 1 time in total
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  Sarah001 on Tue Feb 01, 2011 1:17 pm

For all the UK girls it seems that ointment isn't available here but it's a steroid ointment so probably not suitable for most of us anyway. I'm wondering angelique how the oncologist fits into your treatment? Did you have radiotherapy or something like that? I see a vulvar dermatologist and she's firmly against steroids on the area but I'm glad it worked for you. I think most of the ladies on here have dropped all chemicals, use cotton pads and underwear etc so it's not the solution for everyone but obviously helps some people. Nice to hear about a success story even if us UK ladies won't be able to try the ointment anyway! Rolling Eyes
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  angelique on Wed Feb 02, 2011 12:15 am

It is very disappointing that all the girls in the UK are not able to try this medication, even though it is a type of steriod, if it worked then wouldn't you use it, because it definately worked for me, and I am just announcing that it is out there, there is some help for this illness. Anyway as for your question about the Oncologist, the doctors thought perhaps I had cancer in this area, so off I went to get looked at, he was an Oncologist/Gynaecologist that dealt with women's issues in particular with cancer, I didn't have radio therapy, he looked over the area, could see it was very red, irritated and had tiny splits in the skin, he was the one that recommended seeing the Dermatologist.

I can only hope that someone is interested enough in what I have written and takes the time to speak to a Dermatologist about the Ointment and Anti-depressant, maybe if it worked for them to they might post back on here, it just seems after going to several forum places and other websites and placing this information on it, no one is interested, or even tries the Ointment, it just makes me shake my head.
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  angelique on Wed Feb 02, 2011 12:19 am

Sarah, I note your comment re: "steroid ointment so probably not suitable for most of us anyway" Why is the ointment not suitable for most of you?
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  Sebby (Admin) on Wed Feb 02, 2011 9:13 am


Im having to come off Citalopram (SSRI antidepressant) for anxiety in order to be presribed an antidepressant such as Ami otherwise I could be doped up too much!

I have another med for anxiety and getting therapy so hopefully I can cope with the withdrawal from the cit

Then at least I can look to trying the antidepressant fpr pain

As for the steriod cream im not suprised we cant get it in the uk..I was interested in looking at Gabapentin cream (an anticonvulsant med that calms down nerves) but looks like this is difficult to get hold of in the uk. Really I think the Uk are bloody backward when It comes to Vulvodynia Treatment

Some women find steriods aggraivate the condition. I havnt found this I just found they didnt work but I was only prescribed a low dose cream anyway.

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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  Sarah001 on Wed Feb 02, 2011 10:10 am

The reason a steroid ointment wouldn't help alot of us is partly because most of us have tried them as a first line of treatment with no success and secondly if they don't work they can just thin the skin so it's as Sebby said it can make things worse. There are some women who do recover with steroid creams etc but the majority don't which is probably why most women don't react much to the information, most of them have probably already tried that route. Of course if steroid creams worked we'd all be rushing for them but I can't speak for everyone on here but I personally tried 3 different ones in the first few months and none of them made a bit of difference except one burnt a layer of skin off and made things alot worse. Again as Sebby said we seem to have less options for creams etc here in the UK, I too tried to get hold of topical gabapentin but we just don't have it here. However any women who live elsewhere who haven't tried the steroid cream/ointment route could give your method a go.

I take anti-depressants too but they don't help much with the pain in my case. We're all a bit different how we respond to things so don't get offended if people don't jump to try another steroid ointment, it's probably just that they've already been down that road several times with no improvement. It's great it worked for you though, it's very lucky that it made a difference.
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More help available in Melbourne

Post  Bee on Fri Feb 11, 2011 11:35 am

For anyone else in Melbourne, see if you can get your GP to refer you to the Vulval clinic at the Women's Hospital. They're really organised there, they treat women with Voluvodynia all the time. It can take a few months of waiting to get in to see the Vulvual Dermotologist at first, but then they put you onto the specialist physio and there's a whole program to follow. (never even knew there were physios for this kind of thing!)

I've only just started the treatment program so it's early days, but the fact they have a clinic especially for this condition makes me feel a lot less alone. The first physio appointment is actually a group session - an odd concept at first! But it's just like a lesson with the phsyio who teaches the group about the condition, and by the end you're laughing along with each other and feeling so much better because you're not the only one - and from then on you have individual appointments a few weeks apart. And the best thing is that all the consultations are free and completely covered by Medicare.

Still early days for me, but I'm using the dilators and other exercises from the phsyio so at least I feel like I'm making some progress, unlike all the years I suffered in silence.

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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  Sebby (Admin) on Fri Feb 11, 2011 8:11 pm


Hey Bee and welcome to the forum Smile

How you getting on with the dilators? I'm struggling to be honest..had a flare up, then came of period, then another flare up i'm scared to start back using them

Only just started so am on the thinest one and the next size up even looks scary! lol

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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  noni on Sat Feb 12, 2011 12:27 am

Just a question....do dilators strengthen the pelvic muscles? Or is it just to treat vaginismus?

Thanks Smile
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  Bee on Sat Feb 12, 2011 5:44 am

Ah, the dilators... got through the first one without a problem so thought 'hey, this is fine!' and then have hit a bit of a wall with the second one. Having a few days' break at the moment because I was getting tense about the very idea of it let alone trying to use it Smile But I shall persist! Don't like the look of the third and fourth ones, but trying not to think about them yet...

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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  Sebby (Admin) on Sat Feb 12, 2011 8:20 pm


Yeah I can use the first one..I get pain but its bearable. I have vaginismus too mainly cos Im so scared of the pain I tense up!

Gonna practise a bit more with the first and then try the second...even if I only manage a little bit in I guess its all progress :/

Oh and the forth one can bugger off!! that way to big lol
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  noni on Sun Feb 13, 2011 4:51 am

You guys make it sound sooo scary !!!....the real willies are even scarier!!! affraid
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  Remi88 on Tue Mar 22, 2011 10:52 am

Just stumbled upon this post in my desperate research. I am 23 years old, and for the last month I have seen 3 gynaecologists and have had no diagnosis or results for the vulva pain I have been experiencing. Just guessing games, suspected HPV, antibiotics, steriod cream, estrogen cream, total change in diet and no change. There is just redness and inflamation, no other symptoms which seems to rule out most conditions. Although it seems like early days compared to what you went through, it has been an extremely stressful time, the fact that there is no urgency and it takes weeks at a time to get in to see specialists. I am also in a new relationship, which adds pressure and is awkward to explain. All of my test results are fine, they cannot find any sign of infection or STD/STI, and although i do find solace in this information, there is no explanation for this pain...perhaps until now. I have a referral to the vulval clinic at the Royal Womans Hospital, but I will also most certainly contact the dermatologist you recommend. Thank you for posting this information, you may have put me on the path to happiness.

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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  Sebby (Admin) on Tue Mar 22, 2011 8:06 pm


Hi Remi

Good luck with your dermo treatment! With regards to your new relationship, do not put pressure on yourself to have intercourse just yet. Explain that as you are seeking treatment it may take time to get better so try to enjoy other aspects of sex..known as foreplay but also known as outercourse!

A Good book is 'Let Me Count The Ways' by Marty Klien and Riki Robbins

Take Care
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No More Pain!!

Post  Remi88 on Sat Jul 16, 2011 11:28 am

Thank you so very much for posting this information. If I had not come across it, I would most likely still be suffering. I was able to contact the dermatologist you recommended and after being on medication for a few months my pain has completely gone! I was prescribed, and still taking Endep25 (amitriptyline hydrochloride) which is an anti depressant drug. My life is coming back together and my relationship is better than ever. My boyfriend is currently in Vietnam and I will be meeting him over there very soon for a much needed holiday Smile
Thanks again x

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In need of answers

Post  Natalie Mitchell on Sun Apr 15, 2012 9:13 am

Hey All,
My name is Natalie and I have been suffering with Vulvodynia for almost a year now. I have been to three gynaecologists time after time and had a biopsy done with the results being Lichen Sclerosis. They have given me Steroid cream to cure it and nothing would work until I saw a dermatologist called Josephine Yeatman in Greensborough on Friday the 13/4/12 she told me i was suffering from this. I was so relieved in a way because LS is horrible and incurable. I have been given Fatty Ointment for night time and Endep 10 anti-depressants to take nightly. I am a bit unsure with the fatty ointment, most of my pain is inside, is this cream only for external use? And has anyone done all these steps and actually been cured? I cannot have sex without a huge amount of pain and I also get pain from tampons.

This has ruined me as a person, and to see there is hope I am finally excited.
Any advice would be muchly appreciated.
Thank You

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hopeful

Post  ophir on Tue May 29, 2012 8:37 am

Hi Natalie
I also went to see Josephine Yeatman yesterday as a result of reading this forum. I had to wait 7 weeks for my appointment!
I've also read a really good guide on vulval conditions by Gayle Fischer called 'vulval problems: a self help guide' - google it and it states that steroid ointment can be applied inside the vagina. If in doubt I'd call Dr Yeatman.
I've been on Advantan Fatty for 3 months, I requested it from the GP before I saw Dr Yeatman and had lots of improvement but trouble tapering it off. She has prescribed Diprosone OV for a few days until it clears. Hopefully it'll work.

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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  tinkerbelle2 on Fri Nov 14, 2014 12:18 pm

ZARLI if you still come on these boards i thought this may be helpful to you as you're an Aussie I love you
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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  zarli on Mon Nov 17, 2014 9:04 am

Thank you Tinks, yes have tried this in the past fid not help me. Mine is nerve related. Thank you so muvh for thinking of me. I hope you are going well xx

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Re: Dermatologist in Melbourne Australia Cured my Vulvodynia

Post  sailor_moon on Sat Nov 22, 2014 12:32 am

Dr Gayle Fischer is a f*ckwit. I travelled 6 hours and waited 3 months to see her, and when I finally did, she told me to keep using steriod cream, for 3 months which made me worse!Then when I told her it made me worse and that I really believe thw issue is hormonal and coming from the inside out, she told me that there was nothing she could do, to not contact her again and that I need councilling and antidepressants. 

After finding my wonderful new doctor, he said he has had multiple women  complain to him about her, they got treated the same way I did. And turns out I have a multitude of severe hormone problems as well as suspected endometriosis. 

If steriod cream ect is not working, chances are that the problem is coming from the inside, not just a skin surface problem. If you really want to know if it is a skin issue/condition,  get a biopsy. I have had 2, both of which showed nothing but inflammation. Biopsies are nowhere near as painful as you think, I'd rather the pain of a biopsy than the discomfort of V on a bad day. At least it rules out skin issues.
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