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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


A sort of success story and then not

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A sort of success story and then not

Post  Graceface on Sun Sep 11, 2016 9:09 pm

Hey everyone
Hi
So before I start I should explain that my vagina and I do not get along, like all of us here it's the 'problem' area. I've had Vaginismus and vulvudynia since I was 24 and it seemed I couldn't have sex at all. Anyway low and behold I met a new partner at 31 I might add, so there's been a big gap of not doing anything sexual and we managed to have sex on two separate occasions. I was so happy to actually feel normal for once. I'm sure many of us can relate, it was literally so lovely, I could have cried. I just thought that was it for me....and then we actually managed to do something everyone else takes for granted!
Everything was fine at first because we used organic lubricant and condoms but after 2 weeks I've developed awful thrush that just won't clear. It's making me really depressed. Surely it would have developed sooner if it was realated to me having sex? Anyone have any ideas?

Graceface

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Re: A sort of success story and then not

Post  emalita on Sun Sep 11, 2016 10:43 pm

Hi,

Are you completely sure it's thrush? A test at the doctor's office came back positive?

The reason I ask is that a lot of women with vulvovaginal issues think they have an incurable yeast infection when that's not the case, and yeast creams will just make the issue worse.

I hope you find relief soon sunny

emalita

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Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 12:58 am

Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

Graceface

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Re: A sort of success story and then not

Post  emalita on Mon Sep 12, 2016 2:05 am

Unfortunately just because something looks or feels like thrush, it doesn't mean that it is thrush, but if you're convinced it is, I would highly recommend only using the anti yeast/thrush pill for treatment and not creams/vaginal products. They are horribly irritating, and many of us, including myself, have had lasting pain from the creams.

Vulvodynia is different for everyone. Depending on your symptoms, it could be anything from a product sensitivity (e.g. condoms, soap, lube, laundry detergent, shampoo, etc.) to overactive nerves. Even if some women have similar symptoms, the cause could vary greatly.

What are your specific symptoms (internal burning, vulvar itching, vulvar swelling, etc.)?
Are they worse at any particular time (e.g. penetration, urination, before your period, etc.)?
What have you tried so far to find relief either vaginally, on the vulva, or orally?
What have you actually been tested for (e.g. BV, yeast, STDs, etc.)?

I'm not a doctor, but my best advice is to stop everything, especially if you are still using vaginal treatments. I've found that I've made the most significant progress when I stopped adding irritating products to my vulva and vagina.

emalita

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Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 8:09 am

Hi
Wow thanks so much for trying to help, it's very kind of you. Yeah, I think I'm going to wait and see what the swab results are, the DR said she was reluctant to put me through anything else until she gets the results of those back. To be honest, I've had this for a long time now (probably always had it) and so it hadn't flared for a long time. There is a bit of soreness inside my vagina but mostly its external it itching and soreness...including just this weekend my inner thighs :-/ ....I don't think it was the penetration that made it flare because it about 2 weeks later that this started and afterwards I was sore (I could tell something had been inside)but then it settled down. I do feel better since taking the second oral pill. Thanks for the advice about the cream - I'll stop using that.

Graceface

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Re: A sort of success story and then not

Post  Coop on Mon Sep 12, 2016 5:23 pm

Graceface wrote:Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

I have had a gp carry out a swab and tell me she was so sure I had thrush she wasn't even going to send it off, and yet it came back negative - it seems to be a symptom for some of us, that we get a thrush-like discharge. I would stop treatment until you get your results, or only take an oral thrush treatment.

Silly as it sounds, but could you be allergic to his shower gel or hand soap? Maybe ask him to use bbrands you know you're alright with?

Coop

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Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 6:03 pm

Coop wrote:
Graceface wrote:Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

I have had a gp carry out a swab and tell me she was so sure I had thrush she wasn't even going to send it off, and yet it came back negative - it seems to be a symptom for some of us, that we get a thrush-like discharge. I would stop treatment until you get your results, or only take an oral thrush treatment.

Silly as it sounds, but could you be allergic to his shower gel or hand soap? Maybe ask him to use bbrands you know you're alright with?

Hello Smile

That is very interesting as I've been sure I've had thrush before and have it come back negative, but that was with a self test, so I assumed I'd done it wrong...Hmmm, maybe it is that then? I am also super stressed out with other stuff at the moment and so I'm going to wait and see what the test said but maybe it's all causing a massive flare up Sad Sad Rolling Eyes

Yeah, I guess I could be, anything is worth a shot isn't it...I'm doing the Candida diet again now...ie: no sugar at all and hardly anything you can eat (not even peas!! - peas?!) so going to see if that helps....

Graceface

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Re: A sort of success story and then not

Post  emalita on Mon Sep 12, 2016 6:17 pm

I know how horribly stressful this can all be. Try to be kind to yourself while healing. Sometimes we just need to get out of our own way to find lasting relief. I know that my issue was extremely exacerbated because of the treatments my doctor and I threw at it.

Soaking in a nice warm epsom salt bath can help provide temporary relief, but avoid the scented epsom salts!

emalita

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Re: A sort of success story and then not

Post  Coop on Tue Sep 13, 2016 6:44 am

Graceface wrote:

That is very interesting as I've been sure I've had thrush before and have it come back negative, but that was with a self test, so I assumed I'd done it wrong...Hmmm, maybe it is that then? I am also super stressed out with other stuff at the moment and so I'm going to wait and see what the test said but maybe it's all causing a massive flare up  Sad Sad Rolling Eyes

Yeah, I guess I could be, anything is worth a shot isn't it...I'm doing the Candida diet again now...ie: no sugar at all and hardly anything you can eat (not even peas!! - peas?!) so going to see if that helps....

The interesting bit was that about 4 years later, I went to a new gynae, she also said I had thrush and told me to use a treatment, only for the test to come back negative again.... I don't think there is harm in a candida diet or the epsom salt suggestion - there are no chemicals to cause any side-effect!

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Re: A sort of success story and then not

Post  WaahwaahUK on Wed Sep 14, 2016 6:45 pm

I would agree on being very cautious using thrush creams! I had various ointments thrown at me which all exacerbated the problem! If in doubt, take the oral thrush pill, and then be gentle with yourself. I'm sure mine was never thrush and my skin reacted so badly to the creams.

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Re: A sort of success story and then not

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