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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


A sort of success story and then not

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A sort of success story and then not

Post  Graceface on Sun Sep 11, 2016 9:09 pm

Hey everyone
Hi
So before I start I should explain that my vagina and I do not get along, like all of us here it's the 'problem' area. I've had Vaginismus and vulvudynia since I was 24 and it seemed I couldn't have sex at all. Anyway low and behold I met a new partner at 31 I might add, so there's been a big gap of not doing anything sexual and we managed to have sex on two separate occasions. I was so happy to actually feel normal for once. I'm sure many of us can relate, it was literally so lovely, I could have cried. I just thought that was it for me....and then we actually managed to do something everyone else takes for granted!
Everything was fine at first because we used organic lubricant and condoms but after 2 weeks I've developed awful thrush that just won't clear. It's making me really depressed. Surely it would have developed sooner if it was realated to me having sex? Anyone have any ideas?

Graceface

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Re: A sort of success story and then not

Post  emalita on Sun Sep 11, 2016 10:43 pm

Hi,

Are you completely sure it's thrush? A test at the doctor's office came back positive?

The reason I ask is that a lot of women with vulvovaginal issues think they have an incurable yeast infection when that's not the case, and yeast creams will just make the issue worse.

I hope you find relief soon sunny

emalita

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Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 12:58 am

Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

Graceface

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Re: A sort of success story and then not

Post  emalita on Mon Sep 12, 2016 2:05 am

Unfortunately just because something looks or feels like thrush, it doesn't mean that it is thrush, but if you're convinced it is, I would highly recommend only using the anti yeast/thrush pill for treatment and not creams/vaginal products. They are horribly irritating, and many of us, including myself, have had lasting pain from the creams.

Vulvodynia is different for everyone. Depending on your symptoms, it could be anything from a product sensitivity (e.g. condoms, soap, lube, laundry detergent, shampoo, etc.) to overactive nerves. Even if some women have similar symptoms, the cause could vary greatly.

What are your specific symptoms (internal burning, vulvar itching, vulvar swelling, etc.)?
Are they worse at any particular time (e.g. penetration, urination, before your period, etc.)?
What have you tried so far to find relief either vaginally, on the vulva, or orally?
What have you actually been tested for (e.g. BV, yeast, STDs, etc.)?

I'm not a doctor, but my best advice is to stop everything, especially if you are still using vaginal treatments. I've found that I've made the most significant progress when I stopped adding irritating products to my vulva and vagina.

emalita

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Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 8:09 am

Hi
Wow thanks so much for trying to help, it's very kind of you. Yeah, I think I'm going to wait and see what the swab results are, the DR said she was reluctant to put me through anything else until she gets the results of those back. To be honest, I've had this for a long time now (probably always had it) and so it hadn't flared for a long time. There is a bit of soreness inside my vagina but mostly its external it itching and soreness...including just this weekend my inner thighs :-/ ....I don't think it was the penetration that made it flare because it about 2 weeks later that this started and afterwards I was sore (I could tell something had been inside)but then it settled down. I do feel better since taking the second oral pill. Thanks for the advice about the cream - I'll stop using that.

Graceface

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Re: A sort of success story and then not

Post  Coop on Mon Sep 12, 2016 5:23 pm

Graceface wrote:Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

I have had a gp carry out a swab and tell me she was so sure I had thrush she wasn't even going to send it off, and yet it came back negative - it seems to be a symptom for some of us, that we get a thrush-like discharge. I would stop treatment until you get your results, or only take an oral thrush treatment.

Silly as it sounds, but could you be allergic to his shower gel or hand soap? Maybe ask him to use bbrands you know you're alright with?

Coop

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Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 6:03 pm

Coop wrote:
Graceface wrote:Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

I have had a gp carry out a swab and tell me she was so sure I had thrush she wasn't even going to send it off, and yet it came back negative - it seems to be a symptom for some of us, that we get a thrush-like discharge. I would stop treatment until you get your results, or only take an oral thrush treatment.

Silly as it sounds, but could you be allergic to his shower gel or hand soap? Maybe ask him to use bbrands you know you're alright with?

Hello Smile

That is very interesting as I've been sure I've had thrush before and have it come back negative, but that was with a self test, so I assumed I'd done it wrong...Hmmm, maybe it is that then? I am also super stressed out with other stuff at the moment and so I'm going to wait and see what the test said but maybe it's all causing a massive flare up Sad Sad Rolling Eyes

Yeah, I guess I could be, anything is worth a shot isn't it...I'm doing the Candida diet again now...ie: no sugar at all and hardly anything you can eat (not even peas!! - peas?!) so going to see if that helps....

Graceface

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Re: A sort of success story and then not

Post  emalita on Mon Sep 12, 2016 6:17 pm

I know how horribly stressful this can all be. Try to be kind to yourself while healing. Sometimes we just need to get out of our own way to find lasting relief. I know that my issue was extremely exacerbated because of the treatments my doctor and I threw at it.

Soaking in a nice warm epsom salt bath can help provide temporary relief, but avoid the scented epsom salts!

emalita

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Re: A sort of success story and then not

Post  Coop on Tue Sep 13, 2016 6:44 am

Graceface wrote:

That is very interesting as I've been sure I've had thrush before and have it come back negative, but that was with a self test, so I assumed I'd done it wrong...Hmmm, maybe it is that then? I am also super stressed out with other stuff at the moment and so I'm going to wait and see what the test said but maybe it's all causing a massive flare up  Sad Sad Rolling Eyes

Yeah, I guess I could be, anything is worth a shot isn't it...I'm doing the Candida diet again now...ie: no sugar at all and hardly anything you can eat (not even peas!! - peas?!) so going to see if that helps....

The interesting bit was that about 4 years later, I went to a new gynae, she also said I had thrush and told me to use a treatment, only for the test to come back negative again.... I don't think there is harm in a candida diet or the epsom salt suggestion - there are no chemicals to cause any side-effect!

Coop

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Re: A sort of success story and then not

Post  WaahwaahUK on Wed Sep 14, 2016 6:45 pm

I would agree on being very cautious using thrush creams! I had various ointments thrown at me which all exacerbated the problem! If in doubt, take the oral thrush pill, and then be gentle with yourself. I'm sure mine was never thrush and my skin reacted so badly to the creams.

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Re: A sort of success story and then not

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