Log in

I forgot my password

Latest topics
» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


A sort of success story and then not

Go down

A sort of success story and then not

Post  Graceface on Sun Sep 11, 2016 9:09 pm

Hey everyone
Hi
So before I start I should explain that my vagina and I do not get along, like all of us here it's the 'problem' area. I've had Vaginismus and vulvudynia since I was 24 and it seemed I couldn't have sex at all. Anyway low and behold I met a new partner at 31 I might add, so there's been a big gap of not doing anything sexual and we managed to have sex on two separate occasions. I was so happy to actually feel normal for once. I'm sure many of us can relate, it was literally so lovely, I could have cried. I just thought that was it for me....and then we actually managed to do something everyone else takes for granted!
Everything was fine at first because we used organic lubricant and condoms but after 2 weeks I've developed awful thrush that just won't clear. It's making me really depressed. Surely it would have developed sooner if it was realated to me having sex? Anyone have any ideas?

Graceface

Posts : 5
Join date : 2016-09-11

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  emalita on Sun Sep 11, 2016 10:43 pm

Hi,

Are you completely sure it's thrush? A test at the doctor's office came back positive?

The reason I ask is that a lot of women with vulvovaginal issues think they have an incurable yeast infection when that's not the case, and yeast creams will just make the issue worse.

I hope you find relief soon sunny

emalita

Posts : 236
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 12:58 am

Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

Graceface

Posts : 5
Join date : 2016-09-11

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  emalita on Mon Sep 12, 2016 2:05 am

Unfortunately just because something looks or feels like thrush, it doesn't mean that it is thrush, but if you're convinced it is, I would highly recommend only using the anti yeast/thrush pill for treatment and not creams/vaginal products. They are horribly irritating, and many of us, including myself, have had lasting pain from the creams.

Vulvodynia is different for everyone. Depending on your symptoms, it could be anything from a product sensitivity (e.g. condoms, soap, lube, laundry detergent, shampoo, etc.) to overactive nerves. Even if some women have similar symptoms, the cause could vary greatly.

What are your specific symptoms (internal burning, vulvar itching, vulvar swelling, etc.)?
Are they worse at any particular time (e.g. penetration, urination, before your period, etc.)?
What have you tried so far to find relief either vaginally, on the vulva, or orally?
What have you actually been tested for (e.g. BV, yeast, STDs, etc.)?

I'm not a doctor, but my best advice is to stop everything, especially if you are still using vaginal treatments. I've found that I've made the most significant progress when I stopped adding irritating products to my vulva and vagina.

emalita

Posts : 236
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 8:09 am

Hi
Wow thanks so much for trying to help, it's very kind of you. Yeah, I think I'm going to wait and see what the swab results are, the DR said she was reluctant to put me through anything else until she gets the results of those back. To be honest, I've had this for a long time now (probably always had it) and so it hadn't flared for a long time. There is a bit of soreness inside my vagina but mostly its external it itching and soreness...including just this weekend my inner thighs :-/ ....I don't think it was the penetration that made it flare because it about 2 weeks later that this started and afterwards I was sore (I could tell something had been inside)but then it settled down. I do feel better since taking the second oral pill. Thanks for the advice about the cream - I'll stop using that.

Graceface

Posts : 5
Join date : 2016-09-11

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  Coop on Mon Sep 12, 2016 5:23 pm

Graceface wrote:Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

I have had a gp carry out a swab and tell me she was so sure I had thrush she wasn't even going to send it off, and yet it came back negative - it seems to be a symptom for some of us, that we get a thrush-like discharge. I would stop treatment until you get your results, or only take an oral thrush treatment.

Silly as it sounds, but could you be allergic to his shower gel or hand soap? Maybe ask him to use bbrands you know you're alright with?

Coop

Posts : 11
Join date : 2016-08-28

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 6:03 pm

Coop wrote:
Graceface wrote:Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

I have had a gp carry out a swab and tell me she was so sure I had thrush she wasn't even going to send it off, and yet it came back negative - it seems to be a symptom for some of us, that we get a thrush-like discharge. I would stop treatment until you get your results, or only take an oral thrush treatment.

Silly as it sounds, but could you be allergic to his shower gel or hand soap? Maybe ask him to use bbrands you know you're alright with?

Hello Smile

That is very interesting as I've been sure I've had thrush before and have it come back negative, but that was with a self test, so I assumed I'd done it wrong...Hmmm, maybe it is that then? I am also super stressed out with other stuff at the moment and so I'm going to wait and see what the test said but maybe it's all causing a massive flare up Sad Sad Rolling Eyes

Yeah, I guess I could be, anything is worth a shot isn't it...I'm doing the Candida diet again now...ie: no sugar at all and hardly anything you can eat (not even peas!! - peas?!) so going to see if that helps....

Graceface

Posts : 5
Join date : 2016-09-11

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  emalita on Mon Sep 12, 2016 6:17 pm

I know how horribly stressful this can all be. Try to be kind to yourself while healing. Sometimes we just need to get out of our own way to find lasting relief. I know that my issue was extremely exacerbated because of the treatments my doctor and I threw at it.

Soaking in a nice warm epsom salt bath can help provide temporary relief, but avoid the scented epsom salts!

emalita

Posts : 236
Join date : 2016-03-29
Location : USA

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  Coop on Tue Sep 13, 2016 6:44 am

Graceface wrote:

That is very interesting as I've been sure I've had thrush before and have it come back negative, but that was with a self test, so I assumed I'd done it wrong...Hmmm, maybe it is that then? I am also super stressed out with other stuff at the moment and so I'm going to wait and see what the test said but maybe it's all causing a massive flare up  Sad Sad Rolling Eyes

Yeah, I guess I could be, anything is worth a shot isn't it...I'm doing the Candida diet again now...ie: no sugar at all and hardly anything you can eat (not even peas!! - peas?!) so going to see if that helps....

The interesting bit was that about 4 years later, I went to a new gynae, she also said I had thrush and told me to use a treatment, only for the test to come back negative again.... I don't think there is harm in a candida diet or the epsom salt suggestion - there are no chemicals to cause any side-effect!

Coop

Posts : 11
Join date : 2016-08-28

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  WaahwaahUK on Wed Sep 14, 2016 6:45 pm

I would agree on being very cautious using thrush creams! I had various ointments thrown at me which all exacerbated the problem! If in doubt, take the oral thrush pill, and then be gentle with yourself. I'm sure mine was never thrush and my skin reacted so badly to the creams.

WaahwaahUK

Posts : 117
Join date : 2015-07-31

View user profile

Back to top Go down

Re: A sort of success story and then not

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum