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» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

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» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

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What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

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Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


A sort of success story and then not

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A sort of success story and then not

Post  Graceface on Sun Sep 11, 2016 9:09 pm

Hey everyone
Hi
So before I start I should explain that my vagina and I do not get along, like all of us here it's the 'problem' area. I've had Vaginismus and vulvudynia since I was 24 and it seemed I couldn't have sex at all. Anyway low and behold I met a new partner at 31 I might add, so there's been a big gap of not doing anything sexual and we managed to have sex on two separate occasions. I was so happy to actually feel normal for once. I'm sure many of us can relate, it was literally so lovely, I could have cried. I just thought that was it for me....and then we actually managed to do something everyone else takes for granted!
Everything was fine at first because we used organic lubricant and condoms but after 2 weeks I've developed awful thrush that just won't clear. It's making me really depressed. Surely it would have developed sooner if it was realated to me having sex? Anyone have any ideas?

Graceface

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Re: A sort of success story and then not

Post  emalita on Sun Sep 11, 2016 10:43 pm

Hi,

Are you completely sure it's thrush? A test at the doctor's office came back positive?

The reason I ask is that a lot of women with vulvovaginal issues think they have an incurable yeast infection when that's not the case, and yeast creams will just make the issue worse.

I hope you find relief soon sunny

emalita

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Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 12:58 am

Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

Graceface

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Re: A sort of success story and then not

Post  emalita on Mon Sep 12, 2016 2:05 am

Unfortunately just because something looks or feels like thrush, it doesn't mean that it is thrush, but if you're convinced it is, I would highly recommend only using the anti yeast/thrush pill for treatment and not creams/vaginal products. They are horribly irritating, and many of us, including myself, have had lasting pain from the creams.

Vulvodynia is different for everyone. Depending on your symptoms, it could be anything from a product sensitivity (e.g. condoms, soap, lube, laundry detergent, shampoo, etc.) to overactive nerves. Even if some women have similar symptoms, the cause could vary greatly.

What are your specific symptoms (internal burning, vulvar itching, vulvar swelling, etc.)?
Are they worse at any particular time (e.g. penetration, urination, before your period, etc.)?
What have you tried so far to find relief either vaginally, on the vulva, or orally?
What have you actually been tested for (e.g. BV, yeast, STDs, etc.)?

I'm not a doctor, but my best advice is to stop everything, especially if you are still using vaginal treatments. I've found that I've made the most significant progress when I stopped adding irritating products to my vulva and vagina.

emalita

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Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 8:09 am

Hi
Wow thanks so much for trying to help, it's very kind of you. Yeah, I think I'm going to wait and see what the swab results are, the DR said she was reluctant to put me through anything else until she gets the results of those back. To be honest, I've had this for a long time now (probably always had it) and so it hadn't flared for a long time. There is a bit of soreness inside my vagina but mostly its external it itching and soreness...including just this weekend my inner thighs :-/ ....I don't think it was the penetration that made it flare because it about 2 weeks later that this started and afterwards I was sore (I could tell something had been inside)but then it settled down. I do feel better since taking the second oral pill. Thanks for the advice about the cream - I'll stop using that.

Graceface

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Re: A sort of success story and then not

Post  Coop on Mon Sep 12, 2016 5:23 pm

Graceface wrote:Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

I have had a gp carry out a swab and tell me she was so sure I had thrush she wasn't even going to send it off, and yet it came back negative - it seems to be a symptom for some of us, that we get a thrush-like discharge. I would stop treatment until you get your results, or only take an oral thrush treatment.

Silly as it sounds, but could you be allergic to his shower gel or hand soap? Maybe ask him to use bbrands you know you're alright with?

Coop

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Re: A sort of success story and then not

Post  Graceface on Mon Sep 12, 2016 6:03 pm

Coop wrote:
Graceface wrote:Hey, thanks for replying. Well, I had a swab taken on Saturday and the DR said it very much looks like thrush...apart from STIs is there something vulvudynia related it could be then?

I have had a gp carry out a swab and tell me she was so sure I had thrush she wasn't even going to send it off, and yet it came back negative - it seems to be a symptom for some of us, that we get a thrush-like discharge. I would stop treatment until you get your results, or only take an oral thrush treatment.

Silly as it sounds, but could you be allergic to his shower gel or hand soap? Maybe ask him to use bbrands you know you're alright with?

Hello Smile

That is very interesting as I've been sure I've had thrush before and have it come back negative, but that was with a self test, so I assumed I'd done it wrong...Hmmm, maybe it is that then? I am also super stressed out with other stuff at the moment and so I'm going to wait and see what the test said but maybe it's all causing a massive flare up Sad Sad Rolling Eyes

Yeah, I guess I could be, anything is worth a shot isn't it...I'm doing the Candida diet again now...ie: no sugar at all and hardly anything you can eat (not even peas!! - peas?!) so going to see if that helps....

Graceface

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Re: A sort of success story and then not

Post  emalita on Mon Sep 12, 2016 6:17 pm

I know how horribly stressful this can all be. Try to be kind to yourself while healing. Sometimes we just need to get out of our own way to find lasting relief. I know that my issue was extremely exacerbated because of the treatments my doctor and I threw at it.

Soaking in a nice warm epsom salt bath can help provide temporary relief, but avoid the scented epsom salts!

emalita

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Re: A sort of success story and then not

Post  Coop on Tue Sep 13, 2016 6:44 am

Graceface wrote:

That is very interesting as I've been sure I've had thrush before and have it come back negative, but that was with a self test, so I assumed I'd done it wrong...Hmmm, maybe it is that then? I am also super stressed out with other stuff at the moment and so I'm going to wait and see what the test said but maybe it's all causing a massive flare up  Sad Sad Rolling Eyes

Yeah, I guess I could be, anything is worth a shot isn't it...I'm doing the Candida diet again now...ie: no sugar at all and hardly anything you can eat (not even peas!! - peas?!) so going to see if that helps....

The interesting bit was that about 4 years later, I went to a new gynae, she also said I had thrush and told me to use a treatment, only for the test to come back negative again.... I don't think there is harm in a candida diet or the epsom salt suggestion - there are no chemicals to cause any side-effect!

Coop

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Re: A sort of success story and then not

Post  WaahwaahUK on Wed Sep 14, 2016 6:45 pm

I would agree on being very cautious using thrush creams! I had various ointments thrown at me which all exacerbated the problem! If in doubt, take the oral thrush pill, and then be gentle with yourself. I'm sure mine was never thrush and my skin reacted so badly to the creams.

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Re: A sort of success story and then not

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