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    » Dating with Vulvodynia and Vaginismus advice
    Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

    » Lyrica has been classed as a Class C drug in UK
    Mon Mar 11, 2019 9:20 pm by mary jane

    » Long Time No Talk... What's been going on with my V pain the past few years...
    Mon Mar 11, 2019 9:15 pm by mary jane

    » An absolute success story- please read!
    Fri Mar 08, 2019 10:57 pm by Persevere1990

    » I'm sorry im rambling
    Fri Mar 08, 2019 7:34 pm by scrumptuous

    » New member need advice please
    Fri Mar 08, 2019 7:11 pm by scrumptuous

    » MonaLisa Touch
    Fri Mar 08, 2019 4:46 pm by rl2091

    » Diagnosed Recently
    Thu Feb 14, 2019 6:35 pm by davesjen

    » New and need advice and help
    Wed Feb 13, 2019 12:42 pm by feeling desperate

    An absolute success story- please read!

    Fri Mar 08, 2019 10:57 pm by Persevere1990

    Dear All,

    I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

    I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

    Comments: 0

    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

    Comments: 1

    New member need advice please

    Thu Feb 28, 2019 11:33 pm by PANDORA123

    Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.


    Comments: 5

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 3

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3

    New member desperate need of other vulvadynia sufferers

    Fri Feb 08, 2019 6:55 pm by Tfc13

    Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

    Comments: 5

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 7

    Diagnosed and Humiliated

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    Diagnosed and Humiliated

    Post  Valkywrite on Thu Sep 15, 2016 4:19 pm

    When I was with my boyfriend a few months ago, we decided to eventually try to have sex (both virgins, believe it or not). I'm 25, and it was my first attempt (grew up in a super religious family--I've been gradually moving away from that), so I decided to go to a gynecologist to get a check up and get on birth control.

    I've never found tampons comfortable or possible to wear, so I've always stuck to pads. I thought this had something to do with me being a virgin, but the more I thought about it, the more I realized that my first sexual experience would probably require me to be under the influence of something to relax me.

    Instinct led me to investigate, I guess.

    The first time the boyfriend got intimate with me (fingerplay), it was ecstasy, but I was also in extreme pain. I thought it was just because I wasn't used to anything like...that. I'm a good actress, though so I just endured it.

    I decided to go to the gynecologist after that, and they couldn't use a speculum or really perform a pelvic exam--it felt like acid was being poured on a certain spot on my vagina anytime they tried to get something to enter, and getting anything entered was also difficult. They managed to perform a pap smear with a needle. That was a trip and a half.

    They eventually gave me lidocaine and birth control--said that I needed to practice entering things like dildos and to use the lidocaine to dull the specific spot (near the perineum or base). I basically screamed anytime they touched that area. They finally diagnosed me with vulvodynia and possibly vaginismus. Thankfully, the pain is very localized, so if worse comes to worse--surgery.
    The birth control, unfortunately, made me ill (I started having panic attacks from increased anxiety as a result of the birth control) and the doctor said it was because my liver couldn't handle the artificial hormone. It was bad, but it wasn't terrible--the only thing I requested of my boyfriend during this time was for him to call me every day. I've heard of much worse issues and I was hiding my mood swings and anxiety attacks fairly well, comparatively (compared to other women I've known who had this problem).

    I tried discussing these issues with my boyfriend, but in the end, he said this (the vulvodynia and the birth control problems) made him lose some attraction to me, and we split under the pretense of him simply needing to complete nursing school before getting into a relationship (oh the irony).

    Honestly, I've never been more humiliated and upset in my life. I was being the honest and upfront adult...and instead of being supportive, he turned into an absolute child.

    He wants to eventually reconcile and try dating again, but honestly, I expressed medical concerns in a way that I thought would ease his anxieties, and he was unbelievably immature about it. Not sure if I want to put myself through that again.

    I loved him, love him still, but the fact that he said, "You became unattractive to me when you got ill" --this coming from a nursing student--was unconscionable.

    So, for now, I am still dating around, but clearly, sex isn't really an option right now. I'm hoping to find some solace in these forums, hopefully on the road to recovery. I've bought a dilator kit, a journal kit for recording the issues...and honestly, I'm hoping things will look up so I can eventually have sex and have sex without pain too.

    That would be nice.


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    Age : 28
    Location : Mississippi

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    Re: Diagnosed and Humiliated

    Post  emalita on Thu Sep 15, 2016 11:16 pm

    Hi Valkywrite,

    Being honest was absolutely the right choice, and I'm sorry that he reacted in the way he did. Just know that's HIS insecurity and selfishness and does not reflect on you. You deserve to be loved through the good times and the bad.

    Have you thought about seeing a pelvic floor physical therapist? You may have better results that way than using dialators on your own without guidance.


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    Re: Diagnosed and Humiliated

    Post  Valkywrite on Fri Sep 16, 2016 5:53 pm

    If I knew where to find a pelvic floor physical therapist, I probably would. I live in an area where "sex is sinful and gynos--or anything in relation to them--are sinful" therefore, finding one in-state is going be extremely difficult. I'll try the dilators first and if they don't or if I feel that I'm not making progress, I will definitely search out of state if necessary because getting on top of this is a priority goal.


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    Age : 28
    Location : Mississippi

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    Re: Diagnosed and Humiliated

    Post  emalita on Fri Sep 16, 2016 7:17 pm

    I did a quick search on google for pelvic floor physical therapists in Mississippi, and I was able to find a few right away. So they are available in your state.

    Good luck with the dialators!


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    Re: Diagnosed and Humiliated

    Post  lindsey_taylor on Tue Sep 20, 2016 12:20 am

    You have every right to be upset. I am a nurse and if he is wanting to be a nurse himself, I would advise that he try to be more understanding and sympathetic. He reacted childishly and without compassion. Please do not believe this says anything about you. I do hope you start to feel better soon.


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    Re: Diagnosed and Humiliated

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