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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Diagnosed and Humiliated

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Diagnosed and Humiliated

Post  Valkywrite on Thu Sep 15, 2016 4:19 pm

When I was with my boyfriend a few months ago, we decided to eventually try to have sex (both virgins, believe it or not). I'm 25, and it was my first attempt (grew up in a super religious family--I've been gradually moving away from that), so I decided to go to a gynecologist to get a check up and get on birth control.

I've never found tampons comfortable or possible to wear, so I've always stuck to pads. I thought this had something to do with me being a virgin, but the more I thought about it, the more I realized that my first sexual experience would probably require me to be under the influence of something to relax me.

Instinct led me to investigate, I guess.

The first time the boyfriend got intimate with me (fingerplay), it was ecstasy, but I was also in extreme pain. I thought it was just because I wasn't used to anything like...that. I'm a good actress, though so I just endured it.

I decided to go to the gynecologist after that, and they couldn't use a speculum or really perform a pelvic exam--it felt like acid was being poured on a certain spot on my vagina anytime they tried to get something to enter, and getting anything entered was also difficult. They managed to perform a pap smear with a needle. That was a trip and a half.

They eventually gave me lidocaine and birth control--said that I needed to practice entering things like dildos and to use the lidocaine to dull the specific spot (near the perineum or base). I basically screamed anytime they touched that area. They finally diagnosed me with vulvodynia and possibly vaginismus. Thankfully, the pain is very localized, so if worse comes to worse--surgery.
The birth control, unfortunately, made me ill (I started having panic attacks from increased anxiety as a result of the birth control) and the doctor said it was because my liver couldn't handle the artificial hormone. It was bad, but it wasn't terrible--the only thing I requested of my boyfriend during this time was for him to call me every day. I've heard of much worse issues and I was hiding my mood swings and anxiety attacks fairly well, comparatively (compared to other women I've known who had this problem).

I tried discussing these issues with my boyfriend, but in the end, he said this (the vulvodynia and the birth control problems) made him lose some attraction to me, and we split under the pretense of him simply needing to complete nursing school before getting into a relationship (oh the irony).

Honestly, I've never been more humiliated and upset in my life. I was being the honest and upfront adult...and instead of being supportive, he turned into an absolute child.

He wants to eventually reconcile and try dating again, but honestly, I expressed medical concerns in a way that I thought would ease his anxieties, and he was unbelievably immature about it. Not sure if I want to put myself through that again.

I loved him, love him still, but the fact that he said, "You became unattractive to me when you got ill" --this coming from a nursing student--was unconscionable.

So, for now, I am still dating around, but clearly, sex isn't really an option right now. I'm hoping to find some solace in these forums, hopefully on the road to recovery. I've bought a dilator kit, a journal kit for recording the issues...and honestly, I'm hoping things will look up so I can eventually have sex and have sex without pain too.

That would be nice.

Valkywrite

Posts : 3
Join date : 2016-09-15
Age : 26
Location : Mississippi

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Re: Diagnosed and Humiliated

Post  emalita on Thu Sep 15, 2016 11:16 pm

Hi Valkywrite,

Being honest was absolutely the right choice, and I'm sorry that he reacted in the way he did. Just know that's HIS insecurity and selfishness and does not reflect on you. You deserve to be loved through the good times and the bad.

Have you thought about seeing a pelvic floor physical therapist? You may have better results that way than using dialators on your own without guidance.

emalita

Posts : 216
Join date : 2016-03-29
Location : USA

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Re: Diagnosed and Humiliated

Post  Valkywrite on Fri Sep 16, 2016 5:53 pm

If I knew where to find a pelvic floor physical therapist, I probably would. I live in an area where "sex is sinful and gynos--or anything in relation to them--are sinful" therefore, finding one in-state is going be extremely difficult. I'll try the dilators first and if they don't or if I feel that I'm not making progress, I will definitely search out of state if necessary because getting on top of this is a priority goal.

Valkywrite

Posts : 3
Join date : 2016-09-15
Age : 26
Location : Mississippi

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Re: Diagnosed and Humiliated

Post  emalita on Fri Sep 16, 2016 7:17 pm

I did a quick search on google for pelvic floor physical therapists in Mississippi, and I was able to find a few right away. So they are available in your state.

Good luck with the dialators!

emalita

Posts : 216
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Location : USA

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Re: Diagnosed and Humiliated

Post  lindsey_taylor on Tue Sep 20, 2016 12:20 am

You have every right to be upset. I am a nurse and if he is wanting to be a nurse himself, I would advise that he try to be more understanding and sympathetic. He reacted childishly and without compassion. Please do not believe this says anything about you. I do hope you start to feel better soon.

lindsey_taylor

Posts : 50
Join date : 2016-06-06
Age : 31
Location : Georgia, United States

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Re: Diagnosed and Humiliated

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