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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Diagnosed and Humiliated

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Diagnosed and Humiliated

Post  Valkywrite on Thu Sep 15, 2016 4:19 pm

When I was with my boyfriend a few months ago, we decided to eventually try to have sex (both virgins, believe it or not). I'm 25, and it was my first attempt (grew up in a super religious family--I've been gradually moving away from that), so I decided to go to a gynecologist to get a check up and get on birth control.

I've never found tampons comfortable or possible to wear, so I've always stuck to pads. I thought this had something to do with me being a virgin, but the more I thought about it, the more I realized that my first sexual experience would probably require me to be under the influence of something to relax me.

Instinct led me to investigate, I guess.

The first time the boyfriend got intimate with me (fingerplay), it was ecstasy, but I was also in extreme pain. I thought it was just because I wasn't used to anything like...that. I'm a good actress, though so I just endured it.

I decided to go to the gynecologist after that, and they couldn't use a speculum or really perform a pelvic exam--it felt like acid was being poured on a certain spot on my vagina anytime they tried to get something to enter, and getting anything entered was also difficult. They managed to perform a pap smear with a needle. That was a trip and a half.

They eventually gave me lidocaine and birth control--said that I needed to practice entering things like dildos and to use the lidocaine to dull the specific spot (near the perineum or base). I basically screamed anytime they touched that area. They finally diagnosed me with vulvodynia and possibly vaginismus. Thankfully, the pain is very localized, so if worse comes to worse--surgery.
The birth control, unfortunately, made me ill (I started having panic attacks from increased anxiety as a result of the birth control) and the doctor said it was because my liver couldn't handle the artificial hormone. It was bad, but it wasn't terrible--the only thing I requested of my boyfriend during this time was for him to call me every day. I've heard of much worse issues and I was hiding my mood swings and anxiety attacks fairly well, comparatively (compared to other women I've known who had this problem).

I tried discussing these issues with my boyfriend, but in the end, he said this (the vulvodynia and the birth control problems) made him lose some attraction to me, and we split under the pretense of him simply needing to complete nursing school before getting into a relationship (oh the irony).

Honestly, I've never been more humiliated and upset in my life. I was being the honest and upfront adult...and instead of being supportive, he turned into an absolute child.

He wants to eventually reconcile and try dating again, but honestly, I expressed medical concerns in a way that I thought would ease his anxieties, and he was unbelievably immature about it. Not sure if I want to put myself through that again.

I loved him, love him still, but the fact that he said, "You became unattractive to me when you got ill" --this coming from a nursing student--was unconscionable.

So, for now, I am still dating around, but clearly, sex isn't really an option right now. I'm hoping to find some solace in these forums, hopefully on the road to recovery. I've bought a dilator kit, a journal kit for recording the issues...and honestly, I'm hoping things will look up so I can eventually have sex and have sex without pain too.

That would be nice.

Valkywrite

Posts : 3
Join date : 2016-09-15
Age : 28
Location : Mississippi

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Re: Diagnosed and Humiliated

Post  emalita on Thu Sep 15, 2016 11:16 pm

Hi Valkywrite,

Being honest was absolutely the right choice, and I'm sorry that he reacted in the way he did. Just know that's HIS insecurity and selfishness and does not reflect on you. You deserve to be loved through the good times and the bad.

Have you thought about seeing a pelvic floor physical therapist? You may have better results that way than using dialators on your own without guidance.

emalita

Posts : 246
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Location : USA

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Re: Diagnosed and Humiliated

Post  Valkywrite on Fri Sep 16, 2016 5:53 pm

If I knew where to find a pelvic floor physical therapist, I probably would. I live in an area where "sex is sinful and gynos--or anything in relation to them--are sinful" therefore, finding one in-state is going be extremely difficult. I'll try the dilators first and if they don't or if I feel that I'm not making progress, I will definitely search out of state if necessary because getting on top of this is a priority goal.

Valkywrite

Posts : 3
Join date : 2016-09-15
Age : 28
Location : Mississippi

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Re: Diagnosed and Humiliated

Post  emalita on Fri Sep 16, 2016 7:17 pm

I did a quick search on google for pelvic floor physical therapists in Mississippi, and I was able to find a few right away. So they are available in your state.

Good luck with the dialators!

emalita

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Re: Diagnosed and Humiliated

Post  lindsey_taylor on Tue Sep 20, 2016 12:20 am

You have every right to be upset. I am a nurse and if he is wanting to be a nurse himself, I would advise that he try to be more understanding and sympathetic. He reacted childishly and without compassion. Please do not believe this says anything about you. I do hope you start to feel better soon.

lindsey_taylor

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Join date : 2016-06-06
Age : 33
Location : Georgia, United States

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Re: Diagnosed and Humiliated

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