Vulvodynia Support
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» Hope to all my suffering ladies
How dare he make me feel this way! EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
How dare he make me feel this way! EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
How dare he make me feel this way! EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
How dare he make me feel this way! EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
How dare he make me feel this way! EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
How dare he make me feel this way! EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
How dare he make me feel this way! EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
How dare he make me feel this way! EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
How dare he make me feel this way! EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


How dare he make me feel this way!

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How dare he make me feel this way! Empty How dare he make me feel this way!

Post  emalita Fri Sep 16, 2016 11:42 pm

About a week ago my fiancé (12 year relationship) came home pretty quiet and seemed to be silently crabby. I asked him what was wrong several times, and of course he responded that nothing was wrong. So after a few days of this, I gave up asking and went about my days. So this resulted in us not saying much more than a few sentences to each other each day this week. I stayed upstairs after work and he stayed downstairs. I went to bed alone, and he came to bed usually after I was asleep.

He had already made it pretty clear several weeks ago, if not months ago, that he was sick of hearing about my vulvar issues. So, for the last 2-3 months, I haven't talked to him about it at all (the good or the bad). The only person I can talk to about this is an online friend, and he knows this.

Anyway, tonight was the last of my silence on the issue because before leaving to go to his sister's he didn't even come upstairs to say goodbye. When I asked him if this was how our life was going to be now, he just responded that he was tired and annoyed thinking that we will never go out and do anything together ever again. Although I understand that this does impact him greatly, and I've generally tried to be so apologetic to him for HIM having to deal with this, tonight I'd had enough!

How dare he be so cold towards ME?
How dare he make ME feel guilty for being in pain?
How dare he not ask me at least once in a while how I'M feeling?
I'm so sorry for how much pain this must be causing HIM!
I'm so sorry for how much of an inconvenience this is for HIM!
Next time I will be sure to have a condition like cancer so he can talk to the world about HIS suffering!

Yes, I said all this to him. I truly believe that if I had a condition that could be openly discussed like cancer, and he was treating me like this, his family would SCREAM at him. But no...he gets to go on telling everyone at family events whatever he wants to make me look like the horrible fiancé who won't spend time with everyone.

What a horrible woman I am because I clearly must have chosen this pain for him to think treating me this way and making me feel guilty was the appropriate thing to do. The worst thing is that I'm sure he still feels that he is the victim in all of this even after I said all those things to him.

So he left tonight to be with family, and I am home alone with my thoughts and my tears...again Crying or Very sad

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Post  PainBlogger Sat Sep 17, 2016 2:18 pm

Sad That is horrible for you, emalita. I don't know if I can offer any helpful advice but I hope your situation - physical symptoms and emotional/relationship situation will improve soon.

PainBlogger

Posts : 219
Join date : 2015-07-27

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Post  fairlight10 Sat Sep 17, 2016 5:59 pm

Hi emalita I read your post this morning. It made me sad. You have been kind and supportive to so many of the sufferers on this forum. This is such a cruel condition and can cause many a relationship to suffer. When I developed this condition I told my husband I was no good anymore and to find someone else. Fortunately he didn't. I hope by time you read this you are back in his arms.

fairlight10

Posts : 72
Join date : 2016-04-17

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Post  jjr23 Sun Sep 18, 2016 11:18 am

Hi emalita,

How dare our partners make us feel like that!!! They have no idea what we are going through. They play the victim and act like they are at a disadvantage. They are so selfish. They focus on how they are affected by it and how they are negatively impacted, AND on top of this they make us feel guilty for putting them in that position. They don't think about us and what we are going through. It's horrible and really REALLY unfair. This pain condition is out of our control. Don't they understand that? It's so frustrating. Men don't seem to put themselves in our shoes. They don't understand that we are suffering just as much as them.. and so much more! We have to live with this issue and carry the burden of sharing it with out partner. We are suffering enough already. And then to have their selfish attitude added to the situation.. well that's just fucking shit. I completely empathize with you. Having this condition has been the hardest mental/emotionally struggle I've ever dealt with and I can't imagine what it would feel like for your long-term relationship.

I'm sorry to say this but I don't know how long I could put up with that for. I understand it's a tough situation for you because you have been together for so many years and you probably have a deep love for each other.

I don't know what else to say. I don't have any specific advice. I was going to say communicate openly with him but it sounds like you are way past that point and talking about it seems to annoy him. Just wanted to respond and let you know that a lot of us (me, at least), know exactly what you're talking about and have felt those emotions.

I hope things work out and improve for you!

jjr23

Posts : 13
Join date : 2016-08-23
Location : Australia

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Post  lindsey_taylor Tue Sep 20, 2016 12:17 am

You are one of the absolutely most kind and helpful people I have had the pleasure of meeting, and I do not limit that to this forum. I am so very sorry that you are having to go through this with your significant other. I know he has his frustrations for sure and I can understand that... but he needs to talk these things out with you instead of acting the way he is acting. I'm so sorry. I sometimes wonder if, when our partners get like this... if they have forotten the pain and frustration we deal with daily. I do hope things get better for you very soon.

lindsey_taylor

Posts : 58
Join date : 2016-06-06
Age : 38
Location : Georgia, United States

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Post  emalita Tue Sep 20, 2016 2:17 am

Thank you all so much for your kind words. I'm glad to at least have this forum to share my pain with (emotionally and physically).

Unfortunately I can't say that my fiancé and I are any better. However, I have noticed a slight shift in his tone that is less cold, but I'm still disappointed in him and will need some time to move beyond the hurt he has caused. Most of my energy is put into healing these days.

Thank you all again. Hopefully one day we will have better things to fight over with our significant others Wink

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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