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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Surgery Update - 5 Week Post-Surgery

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Surgery Update - 5 Week Post-Surgery

Post  jjr23 on Sun Sep 18, 2016 12:26 pm

Hey everyone,

It's been 5 weeks since my vestibulectomy. The outcome is not known yet because I am still recovering. My next appointment with my surgeon is in about 4 weeks, and I will let you guys know how that goes.

The purpose of this post is to share with you my personal experience with the recovery process so far, as there isn't much information about it on the internet! I know some of you are curious about the surgery recovery, so here is a detailed explanation of my experience so far.

The first two weeks were the hardest and most painful. I spent the majority of my waking hours lying down on the couch on my back. I couldn't put any pressure on my bum or around that area, so I definitely couldn't sit down or even lounge back. Walking was also hard. I took little steps, had my knees bent a little, and leaned forward/over a bit. The only walking I did was walking from the couch to the toilet, and from the toilet to the couch. (I slept on the couch in the living room for the first 2 weeks as I live at home with my parents and it was nice being surrounded by them for support and company).

The pain wasn't constant 24/7. The pain medication was very helpful. I used ice packs (frozen peas) a lot for the first few days which also relieved the pain. There were some moments where the pain was very painful.. but I kept telling myself 'short term pain for long term gain'. I had warm salt baths 2 or 3 times a day to keep the area clean. I used baby wipes after going to the toilet, very gently.

I saw my surgeon one week after surgery. This is a standard appointment where he checks that everything is healing as it should and that nothing is sticking together. I used a medical ring/donut cushion to sit on for the car travel. I sat in the front passenger seat and reclined the chair fully back so that pressure would be taken off my bum and more on my back.

The third week was slightly better than the first two weeks. I was still walking weirdly and definitely couldn't sit. The ring/donut cushion didn't give me much relief to sit on, because the areas that touch the cushion (the outside areas of my bum) sort of squish and put pressure on the sore bits. So I was still spending most of my time laying on my back on the couch or bed, or standing to eat and do uni homework. I was walking with little steps. I couldn't take full walking strides as this would be sore and pull on the stitches. A lot of the bruising and swelling had gone down. I was still have warm salt baths twice a day.

I was slowly improving. By the fourth week I could sit on the ring cushion for short periods. The harsh sharp shooting and cutting pain was now more of a sore dull pain. One side was more painful than the other. Bending down and arranging my body was still sore. Until now I could only sleep on my back with a pillow under my knees, but I was now starting to sleep on my side (but with a pillow inbetween my legs to take pressure off the sore area).

Although everyone says not to look in a mirror, I did this everyday. It was hard not to. I wanted to monitor my progress. I even took pictures. I was kind of obsessed. I didn't want anything to go wrong.

In the third/fourth week I noticed a lump on one side, near the opening of my vagina. It was sore to touch and it was that exact spot that was very painful when I tried sitting. I rang my surgeon and he said I could come in to see what it was. I suspected that it was a bartholin cyst, but he said that was very unlikely. He looked at it and prodded around. It was painful for him to touch. He didn't know what it was. He said lumps can be a normal part of the healing process and that it was way too soon for him to say it was something of concern, and that even if it was a cyst of some kind, he wouldn't touch it or treat it while I was still healing. He said to wait until my next appointment.

Although he didn't seem worried about it, it was so hard for me not to stress! I have anxiety and this whole recovery process has been so stressful - not knowing what to expect, now knowing what is normal, now knowing when I should and shouldn't feel pain, etc etc. I've been through so much, and not knowing things is hard for me to deal with. I try to stay positive but my brain has some bad habits.

I've had some really dark moments during my recovery where I have just crawled up in a ball and cried. When will this pain go away?!

I have felt more positive in the past few days (my fifth week post-op). I can now walk almost completely normally without pain (there is more of a discomfort, dry sort of feeling). I can't walk very far yet but I'm definitely making progress. I returned to uni and brought my ring cushion to sit on in class. Apart from that, I haven't left the house much at all. I've only left the house 3 times in the past 5 weeks (twice to see my surgeon and once to my uni class). This has been my decision though. I don't feel ready to return to normal things like catching up with friends. I don't feel comfortable bringing my ring cushion to a cafe/restaurant for example (for three reasons: its sort of embarrassing, I haven't told many friends that I've had surgery, and it isn't even that comfy to sit on). So while I'm at home I'm still spending a lot of my time laying down or standing. It's just more comfy. The ring cushion is kind of annoying and hurts my back.

I'm still having warm baths, just once a day. Baths are not necessary for the stage that I am at but I feel a lot cleaner in the sense that a bath makes sure that water really gets around and in the area, rather than a shower where the water runs down and doesn't really reach the stitches or area where the stitches were.

I knew this recovery process wasn't going to be quick or easy. I knew there were going to be moments where I was frustrated, impatient, upset and stressed. I still feel those emotions at times. The lump (and pain associated with it) are still there. The lump has gone down in size, thank god, and isn't as painful as it was a couple of weeks ago, but it is still there. I'm hoping that it will continue to decrease in size and pain and eventually resolve itself. Other than the lump pain, there isn't much other pain - just general discomfort that is also slowly fading. I still can't sit without discomfort/pain. It's slowly getting better... very slowly.

Obviously I haven't had the q-tip test done in any of the appointments I've had since the surgery, as it was too soon. But I'm sure my surgeon will do this for my next appointment which is in mid-October.

I know that was a very long post but I wanted to share it because it's hard to find something this detailed and of personal experience on the internet. I hope this has been a helpful source of information for you all xx

jjr23

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Re: Surgery Update - 5 Week Post-Surgery

Post  emalita on Sun Sep 18, 2016 10:01 pm

That's great that you're seeing improvement! I hope it will only get better and better for you Very Happy

emalita

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Re: Surgery Update - 5 Week Post-Surgery

Post  qwerty1 on Tue Oct 18, 2016 11:57 am

Do you have any update? No surgery recovery stories on here really:(

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Re: Surgery Update - 5 Week Post-Surgery

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