Log in

I forgot my password

Latest topics
I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 10

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


FB secret Vestibulodynia/vulvodynia groups

Go down

FB secret Vestibulodynia/vulvodynia groups

Post  LuLu81 on Mon Sep 19, 2016 6:13 am

Hi all,

I'm new here and was searching for 'secret' FB page for Vestibulodynia. I've seen a few mentioned on threads here but I am unable to PM anyone until I have been a member of the forum for a week. So will contact someone next week Smile

Second to this though... does anyone know of any support FB groups for our partners? I found one here (facebook.com/groups/partnersofvulvodynia/) ....that's a CLOSED group, but closed groups still show up on your friends 'suggested pages' and I don't think my husband would be keen on joining one that may potentially display that to his mates. Would love to know if there are any secret support groups for men.

Thank you all...
LuLu Smile

LuLu81

Posts : 5
Join date : 2016-09-19
Location : Australia

View user profile

Back to top Go down

Re: FB secret Vestibulodynia/vulvodynia groups

Post  Suzie on Wed Sep 21, 2016 3:41 am

Hi l'm new to the group and have been diagnosed with Vulvonydia and Vestibulodynia. I need some serious advice on how to manage this.. can you help please?

Suzie

Posts : 5
Join date : 2016-06-29

View user profile

Back to top Go down

Re: FB secret Vestibulodynia/vulvodynia groups

Post  LuLu81 on Thu Sep 22, 2016 6:19 am

Hi Suzy,

I'm new to this forum too but unfortunately I have no solid advice yet (even after having Vestibulodynia for 12 years)! Still trying to figure it all out myself. There was a huge portion of that 12 years that I just gave up trying anything, had kids (painfully)... but now it's really affecting my marriage so I need to get this issue sorted.

I have just started looking through the topic posts in "Vulvodynia Support :: Celebrating the Positive" on this forum. You may find advice here. There are a lot of success stories! So many causes of this awful condition mean such a varied response to try different things. I'm currently on a low oxalate diet, taking probiotics, fixing 'leaky gut' etc... seeing if mine is 'gut' related. But I think I'm going to overhaul my shampoo/conditioner/body wash now.

All the best for you finding a result soon!

LuLu81

Posts : 5
Join date : 2016-09-19
Location : Australia

View user profile

Back to top Go down

Re: FB secret Vestibulodynia/vulvodynia groups

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum