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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Intestinal permeability (leaky gut)

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Intestinal permeability (leaky gut)

Post  LuLu81 on Mon Sep 19, 2016 6:24 am

Have any of you ladies been tested for Intestinal permeability? I am seeing a Natural Therapist and I recently had a test for it and it came back positive that I have "leaky gut". She feels like it's a really strong lead and feels like it may be connected with my Vestibulodynia. She's now having me tested for gut "candida overgrowth"...

Has anyone found they had Intestinal permeability and fixed it with positive results to their condition?

Thanks,
LuLu

LuLu81

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Re: Intestinal permeability (leaky gut)

Post  emalita on Mon Sep 19, 2016 3:32 pm

Not that I don't believe in natural medicine, because I do, but I'm pretty sure almost all naturopathic tests will find that everyone has some form of "leaky gut", "candida overgrowth" (we need yeast in our bodies to survive Wink ), or "adrenal fatigue".

I spent thousands of dollars on tests from a Functional Medicine Practitioner (blood, stool, & urine tests), and if one test wasn't positive for something, one of the other two tests magically confirmed I was positive for it (leaky gut, candida, adrenal fatigue, etc.). So I spent thousands of more dollars on many months of supplements to fix my gut, and it did absolutely nothing other than waste money and time.

I'm so sorry to sound so negative because I absolutely believe that the foods we consume play a huge role in health, but when most people come back from Naturopaths with the same generic "conditions", I call BS.

If you do truly have digestive issues, improving your diet and moving towards as plant based as possible will do far more for your health than any crud thrown in a supplement. Make sure to Google all the ingredients in the supplements they push at you! Some have horrible side effects. For example, many adrenal fatigue supplements contain adrenal extracts (glands of cows or pigs gathered from slaughterhouses), which have so many negative side effects (do a quick google search for the dangers of adrenal extracts - you will be surprised at the results). And most candida supplements have strong antibacterial properties, and I don't care what they say, they cannot distinguish between good and bad bacteria in the gut! So you could be making your problem worse.

Please make sure to do thorough research before spending tons of money on supplements. Good luck!!

emalita

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Re: Intestinal permeability (leaky gut)

Post  emalita on Mon Sep 19, 2016 8:55 pm

I had just reread my reply and it sounded super negative, and I want to apologize for that. I just don't want what happened to me to happen to someone else.

It wasn't even the wasted money that bothered me so much. It was that my practitioner was so confident that leaky gut and candida was my issue, and she raised my hopes of relief higher than any of the other doctors I had seen...then I was crushed more in the end when none of it worked.

I am currently being treated by a Chinese Medicine dermatologist, and the herbs she has me use in a sitz bath have really pushed me closer and closer to finally being healed (not there yet though). So I do support alternative medicine Very Happy

I really hope leaky gut is causing your issues and you are able to find lasting relief! If you want to chat about the types of tests or my results from the Functional Medicine Practitioner, let me know. I'm an open book Smile

emalita

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Re: Intestinal permeability (leaky gut)

Post  LuLu81 on Tue Sep 20, 2016 6:05 am

AAhhhh sigh... Crying or Very sad Thank you Emalita. I really appreciate you letting me know your experience. It really sounds exactly how I'm feeling. I was the most optimistic about this direction because it seemed to make sense that the issue had to start from within. I seem to have already spent a small fortune on the Natural Therapist already... so I will just need to take all this with a grain of salt and now think of other things to try too. It's actually really good that I've read your post. Thanks so much for responding, and I'm so glad I asked. I really had all my hopes bundled up in this "leaky gut" answer.

I've had Vestibulodynia for about 12 years now and tried many things but new ideas do surface. Your direction sounds interesting... I have an appointment with a dermatologist in a month (not Chinese Medicine though). Will search for a Chinese Medicine dermatologist!

Thank you,
LuLu

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Re: Intestinal permeability (leaky gut)

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