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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Intestinal permeability (leaky gut)

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Intestinal permeability (leaky gut)

Post  LuLu81 on Mon Sep 19, 2016 6:24 am

Have any of you ladies been tested for Intestinal permeability? I am seeing a Natural Therapist and I recently had a test for it and it came back positive that I have "leaky gut". She feels like it's a really strong lead and feels like it may be connected with my Vestibulodynia. She's now having me tested for gut "candida overgrowth"...

Has anyone found they had Intestinal permeability and fixed it with positive results to their condition?

Thanks,
LuLu

LuLu81

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Re: Intestinal permeability (leaky gut)

Post  emalita on Mon Sep 19, 2016 3:32 pm

Not that I don't believe in natural medicine, because I do, but I'm pretty sure almost all naturopathic tests will find that everyone has some form of "leaky gut", "candida overgrowth" (we need yeast in our bodies to survive Wink ), or "adrenal fatigue".

I spent thousands of dollars on tests from a Functional Medicine Practitioner (blood, stool, & urine tests), and if one test wasn't positive for something, one of the other two tests magically confirmed I was positive for it (leaky gut, candida, adrenal fatigue, etc.). So I spent thousands of more dollars on many months of supplements to fix my gut, and it did absolutely nothing other than waste money and time.

I'm so sorry to sound so negative because I absolutely believe that the foods we consume play a huge role in health, but when most people come back from Naturopaths with the same generic "conditions", I call BS.

If you do truly have digestive issues, improving your diet and moving towards as plant based as possible will do far more for your health than any crud thrown in a supplement. Make sure to Google all the ingredients in the supplements they push at you! Some have horrible side effects. For example, many adrenal fatigue supplements contain adrenal extracts (glands of cows or pigs gathered from slaughterhouses), which have so many negative side effects (do a quick google search for the dangers of adrenal extracts - you will be surprised at the results). And most candida supplements have strong antibacterial properties, and I don't care what they say, they cannot distinguish between good and bad bacteria in the gut! So you could be making your problem worse.

Please make sure to do thorough research before spending tons of money on supplements. Good luck!!

emalita

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Re: Intestinal permeability (leaky gut)

Post  emalita on Mon Sep 19, 2016 8:55 pm

I had just reread my reply and it sounded super negative, and I want to apologize for that. I just don't want what happened to me to happen to someone else.

It wasn't even the wasted money that bothered me so much. It was that my practitioner was so confident that leaky gut and candida was my issue, and she raised my hopes of relief higher than any of the other doctors I had seen...then I was crushed more in the end when none of it worked.

I am currently being treated by a Chinese Medicine dermatologist, and the herbs she has me use in a sitz bath have really pushed me closer and closer to finally being healed (not there yet though). So I do support alternative medicine Very Happy

I really hope leaky gut is causing your issues and you are able to find lasting relief! If you want to chat about the types of tests or my results from the Functional Medicine Practitioner, let me know. I'm an open book Smile

emalita

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Re: Intestinal permeability (leaky gut)

Post  LuLu81 on Tue Sep 20, 2016 6:05 am

AAhhhh sigh... Crying or Very sad Thank you Emalita. I really appreciate you letting me know your experience. It really sounds exactly how I'm feeling. I was the most optimistic about this direction because it seemed to make sense that the issue had to start from within. I seem to have already spent a small fortune on the Natural Therapist already... so I will just need to take all this with a grain of salt and now think of other things to try too. It's actually really good that I've read your post. Thanks so much for responding, and I'm so glad I asked. I really had all my hopes bundled up in this "leaky gut" answer.

I've had Vestibulodynia for about 12 years now and tried many things but new ideas do surface. Your direction sounds interesting... I have an appointment with a dermatologist in a month (not Chinese Medicine though). Will search for a Chinese Medicine dermatologist!

Thank you,
LuLu

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Re: Intestinal permeability (leaky gut)

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