Vulvodynia Support
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» Hope to all my suffering ladies
Intestinal permeability (leaky gut) EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Intestinal permeability (leaky gut) EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Intestinal permeability (leaky gut) EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Intestinal permeability (leaky gut) EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Intestinal permeability (leaky gut) EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Intestinal permeability (leaky gut) EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Intestinal permeability (leaky gut) EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Intestinal permeability (leaky gut) EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Intestinal permeability (leaky gut) EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Intestinal permeability (leaky gut)

2 posters

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Intestinal permeability (leaky gut) Empty Intestinal permeability (leaky gut)

Post  LuLu81 Mon Sep 19, 2016 6:24 am

Have any of you ladies been tested for Intestinal permeability? I am seeing a Natural Therapist and I recently had a test for it and it came back positive that I have "leaky gut". She feels like it's a really strong lead and feels like it may be connected with my Vestibulodynia. She's now having me tested for gut "candida overgrowth"...

Has anyone found they had Intestinal permeability and fixed it with positive results to their condition?

Thanks,
LuLu

LuLu81

Posts : 5
Join date : 2016-09-19
Location : Australia

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Intestinal permeability (leaky gut) Empty Re: Intestinal permeability (leaky gut)

Post  emalita Mon Sep 19, 2016 3:32 pm

Not that I don't believe in natural medicine, because I do, but I'm pretty sure almost all naturopathic tests will find that everyone has some form of "leaky gut", "candida overgrowth" (we need yeast in our bodies to survive Wink ), or "adrenal fatigue".

I spent thousands of dollars on tests from a Functional Medicine Practitioner (blood, stool, & urine tests), and if one test wasn't positive for something, one of the other two tests magically confirmed I was positive for it (leaky gut, candida, adrenal fatigue, etc.). So I spent thousands of more dollars on many months of supplements to fix my gut, and it did absolutely nothing other than waste money and time.

I'm so sorry to sound so negative because I absolutely believe that the foods we consume play a huge role in health, but when most people come back from Naturopaths with the same generic "conditions", I call BS.

If you do truly have digestive issues, improving your diet and moving towards as plant based as possible will do far more for your health than any crud thrown in a supplement. Make sure to Google all the ingredients in the supplements they push at you! Some have horrible side effects. For example, many adrenal fatigue supplements contain adrenal extracts (glands of cows or pigs gathered from slaughterhouses), which have so many negative side effects (do a quick google search for the dangers of adrenal extracts - you will be surprised at the results). And most candida supplements have strong antibacterial properties, and I don't care what they say, they cannot distinguish between good and bad bacteria in the gut! So you could be making your problem worse.

Please make sure to do thorough research before spending tons of money on supplements. Good luck!!

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Post  emalita Mon Sep 19, 2016 8:55 pm

I had just reread my reply and it sounded super negative, and I want to apologize for that. I just don't want what happened to me to happen to someone else.

It wasn't even the wasted money that bothered me so much. It was that my practitioner was so confident that leaky gut and candida was my issue, and she raised my hopes of relief higher than any of the other doctors I had seen...then I was crushed more in the end when none of it worked.

I am currently being treated by a Chinese Medicine dermatologist, and the herbs she has me use in a sitz bath have really pushed me closer and closer to finally being healed (not there yet though). So I do support alternative medicine Very Happy

I really hope leaky gut is causing your issues and you are able to find lasting relief! If you want to chat about the types of tests or my results from the Functional Medicine Practitioner, let me know. I'm an open book Smile

emalita

Posts : 249
Join date : 2016-03-29
Location : USA

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Intestinal permeability (leaky gut) Empty Re: Intestinal permeability (leaky gut)

Post  LuLu81 Tue Sep 20, 2016 6:05 am

AAhhhh sigh... Crying or Very sad Thank you Emalita. I really appreciate you letting me know your experience. It really sounds exactly how I'm feeling. I was the most optimistic about this direction because it seemed to make sense that the issue had to start from within. I seem to have already spent a small fortune on the Natural Therapist already... so I will just need to take all this with a grain of salt and now think of other things to try too. It's actually really good that I've read your post. Thanks so much for responding, and I'm so glad I asked. I really had all my hopes bundled up in this "leaky gut" answer.

I've had Vestibulodynia for about 12 years now and tried many things but new ideas do surface. Your direction sounds interesting... I have an appointment with a dermatologist in a month (not Chinese Medicine though). Will search for a Chinese Medicine dermatologist!

Thank you,
LuLu

LuLu81

Posts : 5
Join date : 2016-09-19
Location : Australia

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