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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 6

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


spine fracture and pudental neuralgia

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spine fracture and pudental neuralgia

Post  sailor_moon on Mon Oct 31, 2016 10:02 am

Hi ladies,

Its been a long time since I have been on here. But I have some news for you all to share.

For those who have followed my story, you will know the 3 1/2 years of hell i have endured so far. for those who don't, feel free to go back through archives.

Anyway, I went and saw the only Pudental Nerve specialist in Australia. He sent me for a special Pudental Nerve MRI, which shows possible pudental nerve entrapment due to acute angulation at my s3-s4 sacral spine...the S3 S4 area are directly connected to your genital nerves! It showed on my MRI that i have had a fracture to this spinal area that was left untreated [despite me having constant falls and always having lower back pain, I always got ignored by doctors coz I was so young!], and the fracture has supposedly healed since but is angulated and causing likely entrapment of the pudental nerve.

Now unfortunately, I have already been rejected by one physio who rudely dismissed me almost instantly and put me in the too-hard basket, so I havnt had much help in my recovery. I see a new physio next week who will hopefully have a better attitude towards me than the previous cow I had to deal with.

At the end of next month the PN specialist is doing an injection of hyaluronic acid into the affected nerve, which is meant to help heal the nerve and help regenerate it.

Also looking into having acupuncture done as well, just need to find a good one who is willing to help me out!

Just letting everyone know where I'm at currently, and that if nothing else has worked for you, maybe pudental neuralgia could be the cause.

Who would have thought that a bad back could be the cause of your genital problems?

And another thing, please do not give up!!!!!!! If there is hope for me after 3 1/2 years ,I believe there is hope for all of us! Never give up, even if the odds are stacked against you.

Any advice would be much appreciated, and I would love to hear your thoughts and input.

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Re: spine fracture and pudental neuralgia

Post  PainBlogger on Mon Oct 31, 2016 5:04 pm

I'm glad you've finally got some answers to the cause of your problem. And I wholeheartedly agree - never give up. There is hope for us all!

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