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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


spine fracture and pudental neuralgia

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spine fracture and pudental neuralgia

Post  sailor_moon on Mon Oct 31, 2016 10:02 am

Hi ladies,

Its been a long time since I have been on here. But I have some news for you all to share.

For those who have followed my story, you will know the 3 1/2 years of hell i have endured so far. for those who don't, feel free to go back through archives.

Anyway, I went and saw the only Pudental Nerve specialist in Australia. He sent me for a special Pudental Nerve MRI, which shows possible pudental nerve entrapment due to acute angulation at my s3-s4 sacral spine...the S3 S4 area are directly connected to your genital nerves! It showed on my MRI that i have had a fracture to this spinal area that was left untreated [despite me having constant falls and always having lower back pain, I always got ignored by doctors coz I was so young!], and the fracture has supposedly healed since but is angulated and causing likely entrapment of the pudental nerve.

Now unfortunately, I have already been rejected by one physio who rudely dismissed me almost instantly and put me in the too-hard basket, so I havnt had much help in my recovery. I see a new physio next week who will hopefully have a better attitude towards me than the previous cow I had to deal with.

At the end of next month the PN specialist is doing an injection of hyaluronic acid into the affected nerve, which is meant to help heal the nerve and help regenerate it.

Also looking into having acupuncture done as well, just need to find a good one who is willing to help me out!

Just letting everyone know where I'm at currently, and that if nothing else has worked for you, maybe pudental neuralgia could be the cause.

Who would have thought that a bad back could be the cause of your genital problems?

And another thing, please do not give up!!!!!!! If there is hope for me after 3 1/2 years ,I believe there is hope for all of us! Never give up, even if the odds are stacked against you.

Any advice would be much appreciated, and I would love to hear your thoughts and input.

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Re: spine fracture and pudental neuralgia

Post  PainBlogger on Mon Oct 31, 2016 5:04 pm

I'm glad you've finally got some answers to the cause of your problem. And I wholeheartedly agree - never give up. There is hope for us all!

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