Vulvodynia Support
Would you like to react to this message? Create an account in a few clicks or log in to continue.
Log in

I forgot my password

Latest topics
» Hope to all my suffering ladies
spine fracture and pudental neuralgia EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
spine fracture and pudental neuralgia EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
spine fracture and pudental neuralgia EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
spine fracture and pudental neuralgia EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
spine fracture and pudental neuralgia EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
spine fracture and pudental neuralgia EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
spine fracture and pudental neuralgia EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
spine fracture and pudental neuralgia EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
spine fracture and pudental neuralgia EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


spine fracture and pudental neuralgia

2 posters

Go down

spine fracture and pudental neuralgia Empty spine fracture and pudental neuralgia

Post  sailor_moon Mon Oct 31, 2016 10:02 am

Hi ladies,

Its been a long time since I have been on here. But I have some news for you all to share.

For those who have followed my story, you will know the 3 1/2 years of hell i have endured so far. for those who don't, feel free to go back through archives.

Anyway, I went and saw the only Pudental Nerve specialist in Australia. He sent me for a special Pudental Nerve MRI, which shows possible pudental nerve entrapment due to acute angulation at my s3-s4 sacral spine...the S3 S4 area are directly connected to your genital nerves! It showed on my MRI that i have had a fracture to this spinal area that was left untreated [despite me having constant falls and always having lower back pain, I always got ignored by doctors coz I was so young!], and the fracture has supposedly healed since but is angulated and causing likely entrapment of the pudental nerve.

Now unfortunately, I have already been rejected by one physio who rudely dismissed me almost instantly and put me in the too-hard basket, so I havnt had much help in my recovery. I see a new physio next week who will hopefully have a better attitude towards me than the previous cow I had to deal with.

At the end of next month the PN specialist is doing an injection of hyaluronic acid into the affected nerve, which is meant to help heal the nerve and help regenerate it.

Also looking into having acupuncture done as well, just need to find a good one who is willing to help me out!

Just letting everyone know where I'm at currently, and that if nothing else has worked for you, maybe pudental neuralgia could be the cause.

Who would have thought that a bad back could be the cause of your genital problems?

And another thing, please do not give up!!!!!!! If there is hope for me after 3 1/2 years ,I believe there is hope for all of us! Never give up, even if the odds are stacked against you.

Any advice would be much appreciated, and I would love to hear your thoughts and input.

sailor_moon
sailor_moon

Posts : 222
Join date : 2014-07-06
Location : Australia

Back to top Go down

spine fracture and pudental neuralgia Empty Re: spine fracture and pudental neuralgia

Post  PainBlogger Mon Oct 31, 2016 5:04 pm

I'm glad you've finally got some answers to the cause of your problem. And I wholeheartedly agree - never give up. There is hope for us all!

PainBlogger

Posts : 219
Join date : 2015-07-27

Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum