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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Getting broody

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Getting broody

Post  Sebby (Admin) on Sat Nov 05, 2016 2:24 pm

Hi all,

I have become very broody for a baby for the first time! I am 35! I guess dealing with pain and bouts of severe depression just put me off the whole thing but now much to my hubby's surprise I am clucking away!

I no longer have constant pain now, thank god but I don't know why it went? sometimes having this condition makes me feel like is all magic and curses rather than medicine, it is so confusing.

Anyway I have been working with dilators and pelvic floor release techniques and sometimes I can manage penetration.

I am getting there slowly but surely but I am probably more scared of giving birth! anyway we are actually going to try in the new year. This is the first time I would have actually tried and stopped using birth control (mostly birth control has been just not having sex! for the majority of my life) but I am on the mini pill which has helped so much with period pain and pms so I am also nervous coming off it.

Anyway just thought I would update you guys

take care

sebby x
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Sebby (Admin)
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Re: Getting broody

Post  PainBlogger on Sat Nov 05, 2016 10:49 pm

Fingers crossed that you conceive quickly Smile My husband and I are also TTC (I'm a similar age to you). I don't even think about giving birth as I figure there's no point worrying about that unless I manage to conceive and if I do get pregnant then I'll worry about labour and birth much nearer the time! One tip: if you haven't succeeded after six months then don't delay in asking the GP for fertility checks for both of you (or get them done privately if you can afford it). It's best to know ASAP if you might have additional challenges to overcome. Good luck!

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Re: Getting broody

Post  Sebby (Admin) on Wed Nov 09, 2016 5:08 pm

Wow its great to know a fellow sufferer who is my age is also TTC!

I hope you too conceive quickly!

You have a great attitude to the whole giving birth thing, I have been almost phobic of it for years but the broodiness has taken over the fear in the last few months!

I am going to stop my pill after the current packet in 3 weeks. Its a progesterone only and I haven't had a period for the year I have been on it which has been wonderful! so I am not looking forward to the whole period thing again ugh!

A bit worried over flare ups and hormones and stuff but I guess I to had better deal with it when it happens.

Keep me updated! and yes I will certainly ask for tests after 6 months, I know they say a year usually but at 35 I think you can request earlier.

Good luck!!

Sebby
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Re: Getting broody

Post  Mark on Wed Dec 21, 2016 8:57 pm

Hi Sebby,

I've just seen your post. Sorry I'm so slow but don't get the chance to come onto this site often.

Congratulations on your decision! Being a parent is amazing, it really changes your life and you look at everything differently because of it. I think you deserve this hugely, having done so much for so many people on this forum.

You wrote 'sometimes I can manage penetration'. This makes me think conceiving that way could be painful for you and maybe difficult. Have you discussed this with your doctor? He/she should be able to refer you to the assisted conception clinic at your local hospital. They'll start out with the usual 'try conceiving naturally for x months then come back to us'. But if you have a lengthy set of medical records showing vulvodynia they should accept you can't realistically conceive that way and so put you on the programme for their help. If they try to put you off ask if they have a committee that can consider it and get your GP to write a report. We went down that route and got their agreement.

Good luck!

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Re: Getting broody

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