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» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Getting broody

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Getting broody

Post  Sebby (Admin) on Sat Nov 05, 2016 2:24 pm

Hi all,

I have become very broody for a baby for the first time! I am 35! I guess dealing with pain and bouts of severe depression just put me off the whole thing but now much to my hubby's surprise I am clucking away!

I no longer have constant pain now, thank god but I don't know why it went? sometimes having this condition makes me feel like is all magic and curses rather than medicine, it is so confusing.

Anyway I have been working with dilators and pelvic floor release techniques and sometimes I can manage penetration.

I am getting there slowly but surely but I am probably more scared of giving birth! anyway we are actually going to try in the new year. This is the first time I would have actually tried and stopped using birth control (mostly birth control has been just not having sex! for the majority of my life) but I am on the mini pill which has helped so much with period pain and pms so I am also nervous coming off it.

Anyway just thought I would update you guys

take care

sebby x
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Sebby (Admin)
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Re: Getting broody

Post  PainBlogger on Sat Nov 05, 2016 10:49 pm

Fingers crossed that you conceive quickly Smile My husband and I are also TTC (I'm a similar age to you). I don't even think about giving birth as I figure there's no point worrying about that unless I manage to conceive and if I do get pregnant then I'll worry about labour and birth much nearer the time! One tip: if you haven't succeeded after six months then don't delay in asking the GP for fertility checks for both of you (or get them done privately if you can afford it). It's best to know ASAP if you might have additional challenges to overcome. Good luck!

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Re: Getting broody

Post  Sebby (Admin) on Wed Nov 09, 2016 5:08 pm

Wow its great to know a fellow sufferer who is my age is also TTC!

I hope you too conceive quickly!

You have a great attitude to the whole giving birth thing, I have been almost phobic of it for years but the broodiness has taken over the fear in the last few months!

I am going to stop my pill after the current packet in 3 weeks. Its a progesterone only and I haven't had a period for the year I have been on it which has been wonderful! so I am not looking forward to the whole period thing again ugh!

A bit worried over flare ups and hormones and stuff but I guess I to had better deal with it when it happens.

Keep me updated! and yes I will certainly ask for tests after 6 months, I know they say a year usually but at 35 I think you can request earlier.

Good luck!!

Sebby
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Re: Getting broody

Post  Mark on Wed Dec 21, 2016 8:57 pm

Hi Sebby,

I've just seen your post. Sorry I'm so slow but don't get the chance to come onto this site often.

Congratulations on your decision! Being a parent is amazing, it really changes your life and you look at everything differently because of it. I think you deserve this hugely, having done so much for so many people on this forum.

You wrote 'sometimes I can manage penetration'. This makes me think conceiving that way could be painful for you and maybe difficult. Have you discussed this with your doctor? He/she should be able to refer you to the assisted conception clinic at your local hospital. They'll start out with the usual 'try conceiving naturally for x months then come back to us'. But if you have a lengthy set of medical records showing vulvodynia they should accept you can't realistically conceive that way and so put you on the programme for their help. If they try to put you off ask if they have a committee that can consider it and get your GP to write a report. We went down that route and got their agreement.

Good luck!

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Re: Getting broody

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