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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Getting broody

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Getting broody

Post  Sebby (Admin) on Sat Nov 05, 2016 2:24 pm

Hi all,

I have become very broody for a baby for the first time! I am 35! I guess dealing with pain and bouts of severe depression just put me off the whole thing but now much to my hubby's surprise I am clucking away!

I no longer have constant pain now, thank god but I don't know why it went? sometimes having this condition makes me feel like is all magic and curses rather than medicine, it is so confusing.

Anyway I have been working with dilators and pelvic floor release techniques and sometimes I can manage penetration.

I am getting there slowly but surely but I am probably more scared of giving birth! anyway we are actually going to try in the new year. This is the first time I would have actually tried and stopped using birth control (mostly birth control has been just not having sex! for the majority of my life) but I am on the mini pill which has helped so much with period pain and pms so I am also nervous coming off it.

Anyway just thought I would update you guys

take care

sebby x
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Re: Getting broody

Post  PainBlogger on Sat Nov 05, 2016 10:49 pm

Fingers crossed that you conceive quickly Smile My husband and I are also TTC (I'm a similar age to you). I don't even think about giving birth as I figure there's no point worrying about that unless I manage to conceive and if I do get pregnant then I'll worry about labour and birth much nearer the time! One tip: if you haven't succeeded after six months then don't delay in asking the GP for fertility checks for both of you (or get them done privately if you can afford it). It's best to know ASAP if you might have additional challenges to overcome. Good luck!

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Re: Getting broody

Post  Sebby (Admin) on Wed Nov 09, 2016 5:08 pm

Wow its great to know a fellow sufferer who is my age is also TTC!

I hope you too conceive quickly!

You have a great attitude to the whole giving birth thing, I have been almost phobic of it for years but the broodiness has taken over the fear in the last few months!

I am going to stop my pill after the current packet in 3 weeks. Its a progesterone only and I haven't had a period for the year I have been on it which has been wonderful! so I am not looking forward to the whole period thing again ugh!

A bit worried over flare ups and hormones and stuff but I guess I to had better deal with it when it happens.

Keep me updated! and yes I will certainly ask for tests after 6 months, I know they say a year usually but at 35 I think you can request earlier.

Good luck!!

Sebby
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Re: Getting broody

Post  Mark on Wed Dec 21, 2016 8:57 pm

Hi Sebby,

I've just seen your post. Sorry I'm so slow but don't get the chance to come onto this site often.

Congratulations on your decision! Being a parent is amazing, it really changes your life and you look at everything differently because of it. I think you deserve this hugely, having done so much for so many people on this forum.

You wrote 'sometimes I can manage penetration'. This makes me think conceiving that way could be painful for you and maybe difficult. Have you discussed this with your doctor? He/she should be able to refer you to the assisted conception clinic at your local hospital. They'll start out with the usual 'try conceiving naturally for x months then come back to us'. But if you have a lengthy set of medical records showing vulvodynia they should accept you can't realistically conceive that way and so put you on the programme for their help. If they try to put you off ask if they have a committee that can consider it and get your GP to write a report. We went down that route and got their agreement.

Good luck!

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Re: Getting broody

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