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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Getting broody

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Getting broody

Post  Sebby (Admin) on Sat Nov 05, 2016 2:24 pm

Hi all,

I have become very broody for a baby for the first time! I am 35! I guess dealing with pain and bouts of severe depression just put me off the whole thing but now much to my hubby's surprise I am clucking away!

I no longer have constant pain now, thank god but I don't know why it went? sometimes having this condition makes me feel like is all magic and curses rather than medicine, it is so confusing.

Anyway I have been working with dilators and pelvic floor release techniques and sometimes I can manage penetration.

I am getting there slowly but surely but I am probably more scared of giving birth! anyway we are actually going to try in the new year. This is the first time I would have actually tried and stopped using birth control (mostly birth control has been just not having sex! for the majority of my life) but I am on the mini pill which has helped so much with period pain and pms so I am also nervous coming off it.

Anyway just thought I would update you guys

take care

sebby x
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Sebby (Admin)
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Re: Getting broody

Post  PainBlogger on Sat Nov 05, 2016 10:49 pm

Fingers crossed that you conceive quickly Smile My husband and I are also TTC (I'm a similar age to you). I don't even think about giving birth as I figure there's no point worrying about that unless I manage to conceive and if I do get pregnant then I'll worry about labour and birth much nearer the time! One tip: if you haven't succeeded after six months then don't delay in asking the GP for fertility checks for both of you (or get them done privately if you can afford it). It's best to know ASAP if you might have additional challenges to overcome. Good luck!

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Re: Getting broody

Post  Sebby (Admin) on Wed Nov 09, 2016 5:08 pm

Wow its great to know a fellow sufferer who is my age is also TTC!

I hope you too conceive quickly!

You have a great attitude to the whole giving birth thing, I have been almost phobic of it for years but the broodiness has taken over the fear in the last few months!

I am going to stop my pill after the current packet in 3 weeks. Its a progesterone only and I haven't had a period for the year I have been on it which has been wonderful! so I am not looking forward to the whole period thing again ugh!

A bit worried over flare ups and hormones and stuff but I guess I to had better deal with it when it happens.

Keep me updated! and yes I will certainly ask for tests after 6 months, I know they say a year usually but at 35 I think you can request earlier.

Good luck!!

Sebby
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Re: Getting broody

Post  Mark on Wed Dec 21, 2016 8:57 pm

Hi Sebby,

I've just seen your post. Sorry I'm so slow but don't get the chance to come onto this site often.

Congratulations on your decision! Being a parent is amazing, it really changes your life and you look at everything differently because of it. I think you deserve this hugely, having done so much for so many people on this forum.

You wrote 'sometimes I can manage penetration'. This makes me think conceiving that way could be painful for you and maybe difficult. Have you discussed this with your doctor? He/she should be able to refer you to the assisted conception clinic at your local hospital. They'll start out with the usual 'try conceiving naturally for x months then come back to us'. But if you have a lengthy set of medical records showing vulvodynia they should accept you can't realistically conceive that way and so put you on the programme for their help. If they try to put you off ask if they have a committee that can consider it and get your GP to write a report. We went down that route and got their agreement.

Good luck!

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Re: Getting broody

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