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Yesterday at 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Getting broody

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Getting broody

Post  Sebby (Admin) on Sat Nov 05, 2016 2:24 pm

Hi all,

I have become very broody for a baby for the first time! I am 35! I guess dealing with pain and bouts of severe depression just put me off the whole thing but now much to my hubby's surprise I am clucking away!

I no longer have constant pain now, thank god but I don't know why it went? sometimes having this condition makes me feel like is all magic and curses rather than medicine, it is so confusing.

Anyway I have been working with dilators and pelvic floor release techniques and sometimes I can manage penetration.

I am getting there slowly but surely but I am probably more scared of giving birth! anyway we are actually going to try in the new year. This is the first time I would have actually tried and stopped using birth control (mostly birth control has been just not having sex! for the majority of my life) but I am on the mini pill which has helped so much with period pain and pms so I am also nervous coming off it.

Anyway just thought I would update you guys

take care

sebby x
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Sebby (Admin)
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Re: Getting broody

Post  PainBlogger on Sat Nov 05, 2016 10:49 pm

Fingers crossed that you conceive quickly Smile My husband and I are also TTC (I'm a similar age to you). I don't even think about giving birth as I figure there's no point worrying about that unless I manage to conceive and if I do get pregnant then I'll worry about labour and birth much nearer the time! One tip: if you haven't succeeded after six months then don't delay in asking the GP for fertility checks for both of you (or get them done privately if you can afford it). It's best to know ASAP if you might have additional challenges to overcome. Good luck!

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Re: Getting broody

Post  Sebby (Admin) on Wed Nov 09, 2016 5:08 pm

Wow its great to know a fellow sufferer who is my age is also TTC!

I hope you too conceive quickly!

You have a great attitude to the whole giving birth thing, I have been almost phobic of it for years but the broodiness has taken over the fear in the last few months!

I am going to stop my pill after the current packet in 3 weeks. Its a progesterone only and I haven't had a period for the year I have been on it which has been wonderful! so I am not looking forward to the whole period thing again ugh!

A bit worried over flare ups and hormones and stuff but I guess I to had better deal with it when it happens.

Keep me updated! and yes I will certainly ask for tests after 6 months, I know they say a year usually but at 35 I think you can request earlier.

Good luck!!

Sebby
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Re: Getting broody

Post  Mark on Wed Dec 21, 2016 8:57 pm

Hi Sebby,

I've just seen your post. Sorry I'm so slow but don't get the chance to come onto this site often.

Congratulations on your decision! Being a parent is amazing, it really changes your life and you look at everything differently because of it. I think you deserve this hugely, having done so much for so many people on this forum.

You wrote 'sometimes I can manage penetration'. This makes me think conceiving that way could be painful for you and maybe difficult. Have you discussed this with your doctor? He/she should be able to refer you to the assisted conception clinic at your local hospital. They'll start out with the usual 'try conceiving naturally for x months then come back to us'. But if you have a lengthy set of medical records showing vulvodynia they should accept you can't realistically conceive that way and so put you on the programme for their help. If they try to put you off ask if they have a committee that can consider it and get your GP to write a report. We went down that route and got their agreement.

Good luck!

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Re: Getting broody

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