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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

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Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

Post  Sebby (Admin) on Thu Feb 03, 2011 8:46 pm

Mum emailed the Royal College of Obstetricians and Gynaecologists to ask if they could suggest a good dr for vulvodynia..see the email below..they dont know..or even care to do the work to find out.. (Barstads!)

Thank you for your email.

I have spoken with my colleagues here at the College and it has been suggested that you contact the Vulval Pain Society website for further information.

We hope this proves of some and help and wish you and your family well.

With kind regards,

Sakinah Takeram
Executive Secretary
Royal College of Obstetricians and Gynaecologists
27 Sussex Place, Regent's Park
London NW1 4RG, UK
Tel: +44 (0)20 7772 6319

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Re: Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

Post  Sarah001 on Thu Feb 03, 2011 8:48 pm

Lazy bastards. The vulval pain society website's pretty crap too, I was given a leaflet about it when I got diagnosed and thought it would be full of excellent information only to find it isn't. I really don't get why doctors aren't interested in this, you'd think because they don't actually know for sure what causes it they'd be curious to try and find out. Evil or Very Mad
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Re: Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

Post  Sebby (Admin) on Thu Feb 03, 2011 9:25 pm


I got a list of vulval clinics off the vulval pain society website so that was ok..will have to see if they are any good.

Oh but it proves that my local hospitals are liars! cos they kept saying 'oh this is a vulval clinic' they were not just normal gynae and they knew sod all about vulvodynia!

Cant believe the Royal College cant even be asked to look for a consultant for me..Im keeping that email in case I ever need to leak it and shame them!!
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Re: Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

Post  Mouse on Fri Feb 04, 2011 1:48 am

I thought medical folk were caring and compassionate. A career looking after cats may seem a better option. Bloody patients asking awkward questions!

There's a NZ based Vulvodynia website. I emailed last year, no reply as yet. I guess that was your lucky day =)

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Re: Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

Post  Sarah001 on Fri Feb 04, 2011 1:42 pm

I was told if I didn't get any joy from the vulvar dermatologist I could go to a vulvar clinic (the one I was told about isn't on that list oddly) but I'm really not sure they could do anything other than what I've already tried as I'm not suitable for surgery and botox tends to be more help with localised pain rather than diffuse pain. I'm not sure it would be worth trekking the few hours to my nearest vulvar clinic to be told they couldn't add anything to my treatment but the option's there if I want it.
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Re: Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

Post  Melanie on Thu Jul 21, 2011 1:31 pm

Aren't they supposed to be vagina doctors? When I was finally diagnose 14 years ago ( about 6 doctors later) Not much helped, now I don't even bother. I took it into my own hands which most women seem to do to try to find my own answers. Then I just told the doctor what i wanted to try. I found that Naturopaths were the ones that helped the most. So much so that I am now Studying it. Doctors are I guess too busy trying to cure cervical cancer that whats our pain got to do with them. They probably just figure that it won't kill us so why bother. Most general doctors haven't even heard of Vulvodynia.

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Re Royal college of obstetricians and Gynaecologist

Post  ria on Fri Jul 22, 2011 3:53 pm



I totally agree waste of time. Seeing the experts just makes me want to cry Crying or Very sad Crying or Very sad Crying or Very sad Crying or Very sad Crying or Very sad they havent a clue , we are on this journey together, so girls we need as much info as possible on what each of us are doing to BEAT THE V.


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Re: Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

Post  Sebby (Admin) on Sun Jul 24, 2011 6:38 pm


When I first got the V (didnt know what it was then) I asked my then GP for a referral to a Gynea

She said "Why do you want to see a gynea?"

I said "cos I hurt and I need to find out why!"

She said "but gynea's dont deal with vaginas"

I was stunned, but after seeing the ones at my local hospital I kinda agree with her now!!

Best dr I saw was at the Vulval Clinic, general gyneas that I have seen dont seem to have a clue!

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Re: Royal College of Obstetricians and Gynaecologists couldnt give a stuff...

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