Log in

I forgot my password

Latest topics
» I don't know what to do anymore
Yesterday at 5:21 pm by Aquaben

» Social Security Disability Benefits
Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Mine is really bad at the moment

Go down

Mine is really bad at the moment

Post  Ceriane on Wed Nov 09, 2016 4:24 pm

I have had vulvodynia for years. I also have vitamin deficiencies which are really bad at the moment B12, D3 and anaemia. I avoid getting into relationships because of it, and have also started avoided even socialising if I know I will be in situations where I will be constantly quizzed over why I'm not in a relationship. It is getting me down so much and making me miserable. I really feel disabled by my condition. At the moment I have a lot of soreness and dryness of the vagina, it is so uncomfortable and I couldn't face even being intimate with anyone at the moment. I have zero sex drive. I also have what feels like a uti...a burning sensation in my bladder, and around my back passage the skin is so sore it is splitting open. I am in so much discomfort and pain, feel like I have a yeast infection I can't get rid of. It makes me feel really horrible...I don't think it is the nerve pain thing (although I think I have that as well) I think it is more infection, skin condition related and linked to my body being very run down by my vitamin deficiencies. I don't think this is something that can be solved by an operation, I worry that if I was with a guy, they would expect me to have the operation....but I don't think my problem is that simple (guys always think there is an easy solution). It's getting me down emotionally and I can't go on avoiding relationships forever (like I have done for years....and people's questions are getting more and more awkward). I just don't know what to do...I am so miserable. Can anyone relate or offer me any advice. Would be appreciated.

Ceriane

Posts : 76
Join date : 2012-02-16

View user profile

Back to top Go down

Re: Mine is really bad at the moment

Post  Sebby (Admin) on Wed Nov 09, 2016 5:17 pm

Hi, I'm sorry to hear you are going through a bad patch.

I had my worst time with it back in 2009 for over 2 years. I had constant pain, rawness, soreness etc.

I have always had provoked and I think it was stress that caused the constant pain. Then suddenly it went! I still do have provoked but not pain 24/7. I wish I could know what helped I was on lyrica but have since come off it with no problems.

It can be such a bloody mystery this condition, feels more like art than science trying to find solutions.

What have you tried so far? physio? meds? diet? there is so much to try and it can feel so overwhelming but different things seem to help different ladies.

Don't rush yourself to feel able to date or feel you have to make excuses. I was single for the 2 years and just said I needed time on my own for me.

I started dating my now husband in the spring of 2011 and was so nervous when I told him about the V but he has been amazing and patient! You never know you may meet someone just as understanding.

including myself two other ladies I met of this forum met someone and got married all whilst struggling and still struggling with V.

There is always hope and healing

Keep us up to date

Sebby
x
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Mine is really bad at the moment

Post  Ceriane on Thu Nov 10, 2016 10:01 pm

Thanks Sebby...That has really helped. You know...I think people underestimate how much stress can be a factor...I know when I'm stressed mine gets a LOT worse...feel a lot more positive now about learning to manage my condition, and that I can still have a great relationship. Wish I hadn't let it put me off for so long.

Ceriane

Posts : 76
Join date : 2012-02-16

View user profile

Back to top Go down

Re: Mine is really bad at the moment

Post  Sebby (Admin) on Sun Nov 13, 2016 6:33 pm

Yes you can have a great relationship as many of us have.

Stress and anxiety definitely makes my condition worse. Its a vicious circle having V and an anxiety disorder as they both feed each other.

I try to practise mindfulness and breathing exercises as well as prioritising self care.

Don't give up searching for a treatment that works for you. Its normal to hit dead ends on many of the roads but at some point you do find something that helps.

Wishing you luck and healing

Sebby
x
avatar
Sebby (Admin)
Admin

Posts : 750
Join date : 2009-12-03
Age : 37
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

Re: Mine is really bad at the moment

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top


 
Permissions in this forum:
You cannot reply to topics in this forum