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    Newly diagnosed

    Tue Oct 10, 2017 8:37 pm by Brevispink

    Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

    Comments: 7

    Recent "Poke" Pain - So Confused/Losing My Mind

    Thu Oct 12, 2017 9:26 am by kelseybeth23

    Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

    Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

    Comments: 5

    Does anyone else experience this?

    Sat Oct 14, 2017 5:21 pm by Angelmegs

    Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

    Comments: 0

    Post Full Vestibulectomy - 5 Years Later - Please Read

    Tue May 02, 2017 6:18 pm by jen007

    Hi All,

    It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

    For 4 years post …

    Comments: 4

    Do you ever worry that you're making it up?

    Fri May 27, 2016 6:50 am by Lucci

    Hello,

    I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

    A few years into treatment, I had the diagnosis of PTSD added on for …

    Comments: 7

    Clitoris Issues

    Tue Apr 28, 2015 8:17 pm by January

    I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

    Comments: 2

    Cured of Vulvodynia

    Wed Aug 17, 2016 1:39 am by angelique2016

    I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

    Comments: 10

    Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

    Sun Jul 30, 2017 1:03 am by Carolyn4

    Hi everyone,

    I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

    Comments: 1

    Partial Vestibulectomy

    Mon Jul 31, 2017 6:44 pm by JGD13

    Hi all i am new here.
    I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
    After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

    Comments: 6


    Possible vulvodynia, not yet diagnosed

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    Possible vulvodynia, not yet diagnosed

    Post  MelissaM on Wed Nov 09, 2016 8:35 pm

    Hello everyone!

    I am 29 years old and as of August this year i started having this raw/burning feeling around the vulva going sometimes all the way to my anus. At first the feeling was all the time for about 3 weeks. Then it seemed to come and go and it never really was provoked by any thing in particular. Ive seen 4 doctors and 2 gyno's who always seem to think the same...Oh 29 year old female, must be an STD or STI or yeast but every time they test me it comes back negative. Ive also been for a colposcopy (which showed nothing)and now awaiting my appointment for a vaginal ultrasound. Recently the raw feeling turned into an itchy/burning feeling and my vulva swelled slightly and was red (probably due to itching) I've also found in the past month an unusually large amount of discharge, sometimes white sometimes slimmy with a tinge of yellow color which once again the gyno's dismissed as an issue stating it is probably my hormones. I must state that June 25th i had a first shot of Depot Provera that i will not be continuing because i spotted for 1 month after that. Yesterday i saw my familly doctor who is not a specialist in the gyno field but i figured id speak to him about it because this is getting un tolerable. He said being he is not a gyno he could not diagnose me with anything and that i should wait for my ultra sound on the 22nd but in the mean time he prescribed amitriptilyne for the pain. Ive red that many people who suffer from vulvodynia take this anti depressant as it works for people with chronic pain. I feel like my family doctor knows i have Vulvodynia but could not say anything because he is not a specialist in this field. Ive started the medication last night, i am hoping to see results soon. My question to anyone who reads this is does anyone have the same symptoms as me?
    -Raw/burning/itching feeling around vulva sometimes reaching the anus
    -Irritation around the vulva
    -More discharge than usual
    -Pelvic pain and lower back pain
    -All of these symptoms come and go and are not generally provoked.

    Thank you all for listening Smile

    MelissaM

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    Age : 30
    Location : Montreal

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    Re: Possible vulvodynia, not yet diagnosed

    Post  Sebby (Admin) on Sun Nov 13, 2016 6:27 pm

    Hi and welcome,

    I hope you don't mind I moved this topic to the your story section.

    I have had many different symptoms. I have had itching, rawness, soreness, aches, electrical feeling. I too have had infections etc ruled out.

    The consensus is now its a pelvic floor muscle dysfunction. I saw a women's health physio a while ago which confirmed this but I couldn't afford to keep gong private so I am now trying to see someone on the nhs.

    Have you looked into the possibility that it could be to do with your pelvic floor?

    Sebby
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    Sebby (Admin)
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