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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
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Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Possible vulvodynia, not yet diagnosed

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Possible vulvodynia, not yet diagnosed

Post  MelissaM on Wed Nov 09, 2016 8:35 pm

Hello everyone!

I am 29 years old and as of August this year i started having this raw/burning feeling around the vulva going sometimes all the way to my anus. At first the feeling was all the time for about 3 weeks. Then it seemed to come and go and it never really was provoked by any thing in particular. Ive seen 4 doctors and 2 gyno's who always seem to think the same...Oh 29 year old female, must be an STD or STI or yeast but every time they test me it comes back negative. Ive also been for a colposcopy (which showed nothing)and now awaiting my appointment for a vaginal ultrasound. Recently the raw feeling turned into an itchy/burning feeling and my vulva swelled slightly and was red (probably due to itching) I've also found in the past month an unusually large amount of discharge, sometimes white sometimes slimmy with a tinge of yellow color which once again the gyno's dismissed as an issue stating it is probably my hormones. I must state that June 25th i had a first shot of Depot Provera that i will not be continuing because i spotted for 1 month after that. Yesterday i saw my familly doctor who is not a specialist in the gyno field but i figured id speak to him about it because this is getting un tolerable. He said being he is not a gyno he could not diagnose me with anything and that i should wait for my ultra sound on the 22nd but in the mean time he prescribed amitriptilyne for the pain. Ive red that many people who suffer from vulvodynia take this anti depressant as it works for people with chronic pain. I feel like my family doctor knows i have Vulvodynia but could not say anything because he is not a specialist in this field. Ive started the medication last night, i am hoping to see results soon. My question to anyone who reads this is does anyone have the same symptoms as me?
-Raw/burning/itching feeling around vulva sometimes reaching the anus
-Irritation around the vulva
-More discharge than usual
-Pelvic pain and lower back pain
-All of these symptoms come and go and are not generally provoked.

Thank you all for listening Smile

MelissaM

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Age : 30
Location : Montreal

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Re: Possible vulvodynia, not yet diagnosed

Post  Sebby (Admin) on Sun Nov 13, 2016 6:27 pm

Hi and welcome,

I hope you don't mind I moved this topic to the your story section.

I have had many different symptoms. I have had itching, rawness, soreness, aches, electrical feeling. I too have had infections etc ruled out.

The consensus is now its a pelvic floor muscle dysfunction. I saw a women's health physio a while ago which confirmed this but I couldn't afford to keep gong private so I am now trying to see someone on the nhs.

Have you looked into the possibility that it could be to do with your pelvic floor?

Sebby
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Sebby (Admin)
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