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    » VULVODYNIA AND SUICIDE
    Yesterday at 11:20 pm by Faezeh

    » a video for you guys
    Yesterday at 2:53 am by lavrose

    » my rock bottom, psychological effects of vulvodynia, I told him he can leave me
    Yesterday at 2:45 am by lavrose

    » New and need some help
    Fri Feb 23, 2018 1:12 pm by fairlight10

    » Acupuncture gave me my life back!
    Thu Feb 22, 2018 11:25 pm by Bx11

    » Anyone from New Jersey
    Thu Feb 22, 2018 10:47 pm by LindafromNJ

    » vaginal cream
    Thu Feb 22, 2018 10:46 pm by LindafromNJ

    » Acupuncture advice please
    Thu Feb 22, 2018 2:25 am by ryn207

    » Please tell me this can get better
    Mon Feb 19, 2018 2:10 am by anon99

    New and need some help

    Wed Feb 21, 2018 4:30 pm by LindafromNJ

    New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

    Comments: 3

    Anyone from New Jersey

    Thu Feb 22, 2018 10:47 pm by LindafromNJ

    Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

    Comments: 0

    vaginal cream

    Thu Feb 22, 2018 10:46 pm by LindafromNJ

    I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

    Comments: 0

    MAY HAVE FOUND A CURE- PLEASE READ

    Thu Feb 15, 2018 10:04 pm by infinitelywondering

    Dear all,

    Today has been the day I've been waiting for. The day something FINALLY makes sense.
    I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


    after having a vestibulectomy with no success, I decided to visit …

    Comments: 0

    NO PAIN DURING SEX

    Sat Feb 10, 2018 12:18 am by rockylife

    I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

    Comments: 2

    Newby not sure where to turn

    Thu Feb 01, 2018 3:32 pm by Cerjo87

    Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

    Comments: 4

    Looking for a friend..... and new problems

    Sat Jan 06, 2018 11:38 pm by infinitelywondering

    Hi everyone,

    I hope you're doing well.

    I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

    6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



    Comments: 8

    Newbie to the site

    Sun Jul 30, 2017 12:16 am by Ksa

    Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

    Comments: 4

    Vulvodynia from #metoo media coverage

    Thu Jan 25, 2018 9:01 pm by dooleyhornberg

    I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

    Comments: 0


    Possible vulvodynia, not yet diagnosed

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    Possible vulvodynia, not yet diagnosed

    Post  MelissaM on Wed Nov 09, 2016 8:35 pm

    Hello everyone!

    I am 29 years old and as of August this year i started having this raw/burning feeling around the vulva going sometimes all the way to my anus. At first the feeling was all the time for about 3 weeks. Then it seemed to come and go and it never really was provoked by any thing in particular. Ive seen 4 doctors and 2 gyno's who always seem to think the same...Oh 29 year old female, must be an STD or STI or yeast but every time they test me it comes back negative. Ive also been for a colposcopy (which showed nothing)and now awaiting my appointment for a vaginal ultrasound. Recently the raw feeling turned into an itchy/burning feeling and my vulva swelled slightly and was red (probably due to itching) I've also found in the past month an unusually large amount of discharge, sometimes white sometimes slimmy with a tinge of yellow color which once again the gyno's dismissed as an issue stating it is probably my hormones. I must state that June 25th i had a first shot of Depot Provera that i will not be continuing because i spotted for 1 month after that. Yesterday i saw my familly doctor who is not a specialist in the gyno field but i figured id speak to him about it because this is getting un tolerable. He said being he is not a gyno he could not diagnose me with anything and that i should wait for my ultra sound on the 22nd but in the mean time he prescribed amitriptilyne for the pain. Ive red that many people who suffer from vulvodynia take this anti depressant as it works for people with chronic pain. I feel like my family doctor knows i have Vulvodynia but could not say anything because he is not a specialist in this field. Ive started the medication last night, i am hoping to see results soon. My question to anyone who reads this is does anyone have the same symptoms as me?
    -Raw/burning/itching feeling around vulva sometimes reaching the anus
    -Irritation around the vulva
    -More discharge than usual
    -Pelvic pain and lower back pain
    -All of these symptoms come and go and are not generally provoked.

    Thank you all for listening Smile

    MelissaM

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    Re: Possible vulvodynia, not yet diagnosed

    Post  Sebby (Admin) on Sun Nov 13, 2016 6:27 pm

    Hi and welcome,

    I hope you don't mind I moved this topic to the your story section.

    I have had many different symptoms. I have had itching, rawness, soreness, aches, electrical feeling. I too have had infections etc ruled out.

    The consensus is now its a pelvic floor muscle dysfunction. I saw a women's health physio a while ago which confirmed this but I couldn't afford to keep gong private so I am now trying to see someone on the nhs.

    Have you looked into the possibility that it could be to do with your pelvic floor?

    Sebby
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    Sebby (Admin)
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