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    » 7 months since the diagnosis
    Thu Aug 16, 2018 9:09 am by Gaby

    » Did going off antidepressants cause this?
    Wed Aug 15, 2018 2:08 am by ryn207

    » Sex after vulvodynia (husband edition)
    Mon Aug 13, 2018 12:15 pm by emalita

    » burning sensation and small cut? Maybe thrush?
    Sun Aug 12, 2018 8:24 pm by emalita

    » can v return after vestibulectomy?
    Sun Aug 12, 2018 12:01 pm by Alana3

    » Cleveland Clinic - Pain Management, Weston, FL
    Sat Aug 11, 2018 12:37 pm by Alana3

    » Hurting, Burning, Itching, and Worn Out
    Fri Aug 10, 2018 7:55 pm by fairlight10

    » GREATFULL FOR THIS WEBSITE
    Thu Aug 09, 2018 8:37 pm by Nicola Jost

    » Can you guys tell me your experiences with diflucan/Fluconazole?
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    Hurting, Burning, Itching, and Worn Out

    Thu Aug 09, 2018 10:55 pm by donnambr

    This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

    Comments: 1

    Hi girls! New in this forum

    Fri Jul 13, 2018 2:31 pm by Gaby

    Hi everyone!

    Also joining the V club, Here my story:

    It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

    Comments: 1

    Newbie and feeling helpless

    Wed Jul 11, 2018 1:52 pm by Taylor1

    Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

    Comments: 3

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 6

    From a concerned husband

    Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

    Hello everyone,

    This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

    I’m sure a lot …

    Comments: 3

    I'M NEW - Do I listen to my gyno who I feel has it wrong?

    Fri Mar 09, 2018 6:17 pm by Tunes25

    Hello!

    I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

    To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

    Comments: 10

    Gabapentin Gel. or other topical creams

    Thu May 10, 2018 9:43 am by Rosie21

    Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

    Comments: 1

    What has been helping ME (much less pain over time!!)

    Wed May 16, 2018 3:43 am by leoscc

    Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

    1. I …

    Comments: 0

    I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

    Mon Mar 12, 2018 4:33 pm by totallycured

    Hi,

    Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

    Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

    Comments: 4


    Possible vulvodynia, not yet diagnosed

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    Possible vulvodynia, not yet diagnosed

    Post  MelissaM on Wed Nov 09, 2016 8:35 pm

    Hello everyone!

    I am 29 years old and as of August this year i started having this raw/burning feeling around the vulva going sometimes all the way to my anus. At first the feeling was all the time for about 3 weeks. Then it seemed to come and go and it never really was provoked by any thing in particular. Ive seen 4 doctors and 2 gyno's who always seem to think the same...Oh 29 year old female, must be an STD or STI or yeast but every time they test me it comes back negative. Ive also been for a colposcopy (which showed nothing)and now awaiting my appointment for a vaginal ultrasound. Recently the raw feeling turned into an itchy/burning feeling and my vulva swelled slightly and was red (probably due to itching) I've also found in the past month an unusually large amount of discharge, sometimes white sometimes slimmy with a tinge of yellow color which once again the gyno's dismissed as an issue stating it is probably my hormones. I must state that June 25th i had a first shot of Depot Provera that i will not be continuing because i spotted for 1 month after that. Yesterday i saw my familly doctor who is not a specialist in the gyno field but i figured id speak to him about it because this is getting un tolerable. He said being he is not a gyno he could not diagnose me with anything and that i should wait for my ultra sound on the 22nd but in the mean time he prescribed amitriptilyne for the pain. Ive red that many people who suffer from vulvodynia take this anti depressant as it works for people with chronic pain. I feel like my family doctor knows i have Vulvodynia but could not say anything because he is not a specialist in this field. Ive started the medication last night, i am hoping to see results soon. My question to anyone who reads this is does anyone have the same symptoms as me?
    -Raw/burning/itching feeling around vulva sometimes reaching the anus
    -Irritation around the vulva
    -More discharge than usual
    -Pelvic pain and lower back pain
    -All of these symptoms come and go and are not generally provoked.

    Thank you all for listening Smile

    MelissaM

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    Age : 30
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    Re: Possible vulvodynia, not yet diagnosed

    Post  Sebby (Admin) on Sun Nov 13, 2016 6:27 pm

    Hi and welcome,

    I hope you don't mind I moved this topic to the your story section.

    I have had many different symptoms. I have had itching, rawness, soreness, aches, electrical feeling. I too have had infections etc ruled out.

    The consensus is now its a pelvic floor muscle dysfunction. I saw a women's health physio a while ago which confirmed this but I couldn't afford to keep gong private so I am now trying to see someone on the nhs.

    Have you looked into the possibility that it could be to do with your pelvic floor?

    Sebby
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    Sebby (Admin)
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