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» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Possible vulvodynia, not yet diagnosed

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Possible vulvodynia, not yet diagnosed

Post  MelissaM on Wed Nov 09, 2016 8:35 pm

Hello everyone!

I am 29 years old and as of August this year i started having this raw/burning feeling around the vulva going sometimes all the way to my anus. At first the feeling was all the time for about 3 weeks. Then it seemed to come and go and it never really was provoked by any thing in particular. Ive seen 4 doctors and 2 gyno's who always seem to think the same...Oh 29 year old female, must be an STD or STI or yeast but every time they test me it comes back negative. Ive also been for a colposcopy (which showed nothing)and now awaiting my appointment for a vaginal ultrasound. Recently the raw feeling turned into an itchy/burning feeling and my vulva swelled slightly and was red (probably due to itching) I've also found in the past month an unusually large amount of discharge, sometimes white sometimes slimmy with a tinge of yellow color which once again the gyno's dismissed as an issue stating it is probably my hormones. I must state that June 25th i had a first shot of Depot Provera that i will not be continuing because i spotted for 1 month after that. Yesterday i saw my familly doctor who is not a specialist in the gyno field but i figured id speak to him about it because this is getting un tolerable. He said being he is not a gyno he could not diagnose me with anything and that i should wait for my ultra sound on the 22nd but in the mean time he prescribed amitriptilyne for the pain. Ive red that many people who suffer from vulvodynia take this anti depressant as it works for people with chronic pain. I feel like my family doctor knows i have Vulvodynia but could not say anything because he is not a specialist in this field. Ive started the medication last night, i am hoping to see results soon. My question to anyone who reads this is does anyone have the same symptoms as me?
-Raw/burning/itching feeling around vulva sometimes reaching the anus
-Irritation around the vulva
-More discharge than usual
-Pelvic pain and lower back pain
-All of these symptoms come and go and are not generally provoked.

Thank you all for listening Smile

MelissaM

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Re: Possible vulvodynia, not yet diagnosed

Post  Sebby (Admin) on Sun Nov 13, 2016 6:27 pm

Hi and welcome,

I hope you don't mind I moved this topic to the your story section.

I have had many different symptoms. I have had itching, rawness, soreness, aches, electrical feeling. I too have had infections etc ruled out.

The consensus is now its a pelvic floor muscle dysfunction. I saw a women's health physio a while ago which confirmed this but I couldn't afford to keep gong private so I am now trying to see someone on the nhs.

Have you looked into the possibility that it could be to do with your pelvic floor?

Sebby
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