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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Newbie to vulvodynia

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Newbie to vulvodynia

Post  LiiJay on Thu Nov 24, 2016 9:52 am

Hello all!

I'm 26 and I was diagnosed with vulvodynia this week. It's been a hard slog getting to this point but reading posts on this forum is a comfort to know I'm not alone.

My story started in June this year where out of the blue I was struck with this immense pain. Naturally I assumed that it was a water infection as I've had a few of them in the past so off to the GP I went to get antibiotics. A week later the pain came back so it was another trip to the GP. I did a water test there where the doctor concluded that it wasn't a water infection and sent me on my way, still in pain. A few weeks went by where the pain was constant, so after blasting myself with over the counter treatments for UTI and thrush I thought I got rid of whatever it was that was plaguing my nether regions. How wrong I was. It came back with a furious vengeance, so a pleaful phone conversation with the medical receptionist with a superiority complex I managed to get a telephone appointment with another doctor. I told him of my plight, to which he flippantly told me to go to hospital. You know, the place where there are actual serious medical emergencies. I refused not wanting to waste my time in A & E and take room and time away from someone who would actually need it. So disparingly I went on, pain and all. After a while the burning rawness died down, not completely going away but enough for me to get back to normality again. Until the end of August where I had another flare up. I went back to the GP who thought it could be a skin condition and gave me hydrocortisone cream, which made it 100 times worse. A few more weeks went by and another trip to the GP to get a swab to see if there was anything bacterial goining on, to which the results concluded that no nasties were lurking around.I couldn't take it any more. I was in tears. This thing had taken over my life. I didn't want to go out any where because I'd be in agony, I couldn't concentrate at all in work, I stopped going to the gym and it started to effect my relationship. I cracked and told my mum who was furious with what doctors had done (or in some cases neglected to do) and she dragged me to A & E just like the third doctor had suggested. They couldn't do anything for me as their gyno knowledge was limited and sent me to the womens hospital, where a patronising nurse didn't understand why I was so distressed. My mum being the protective mamma bear that she is stuck to her guns and made sure we waited to be seen by the doctor who was miffed as I wasn't doing anything obvious, like bleeding. She told me I needed to go back go my GP to be referred to them so off I went back to the GP to be referred to a specialist with a 2 month wait. The day finally came and she poked and prodded for a bit and took swabs to be sent off for testing. They came back negative of course, just like the previous swabs had. There was a 4 month wait to see her again but there was no way I could wait that long, after already suffering for 5 months. I went to my GP to see if there was anything thet could perscribe in the meantime while I wait, which they were reluctant to do. However they did write off to the specialist to see if I could get an earlier appointment. By sheer luck I managed to get a cancellation and saw her this week. It was a little disappointing to hear there was no miracle cure and that there's no guarantee it will ever go away but at least there's a name for it and reading through your stories I know I'm not alone.

LiiJay

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Re: Newbie to vulvodynia

Post  fairlight10 on Thu Nov 24, 2016 11:02 am

Thank you for telling us your story. I am pleased you have found this forum. I have read all of the posts since the start of this forum. They will help you to cope better with this condition and help you to decide what therapies you want to try. Then with this knowledge you can go back to your doctor and tell them what you need to be prescribed. I get cross when I see a doctor who does not now anything about this condition. Anyway, I know we are here to support you in your journey with this condition.

fairlight10

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Re: Newbie to vulvodynia

Post  PainBlogger on Thu Nov 24, 2016 3:30 pm

It's a common story unfortunately - too many medical professionals lack knowledge about the problem. But it's good that you now have a diagnosis. You're right that there's no miracle cure. But that doesn't mean you'll be suffering forever. Plenty of people do get better from this horrible condition. It can take a lot of persistence and trial and error to find what helps you - or what combination of treatments/lifestyle changes/dietary changes helps - but be stubborn and don't give up. Smile

PainBlogger

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Re: Newbie to vulvodynia

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