Log in

I forgot my password

Latest topics
I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 0

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0


Newbie to vulvodynia

Go down

Newbie to vulvodynia

Post  LiiJay on Thu Nov 24, 2016 9:52 am

Hello all!

I'm 26 and I was diagnosed with vulvodynia this week. It's been a hard slog getting to this point but reading posts on this forum is a comfort to know I'm not alone.

My story started in June this year where out of the blue I was struck with this immense pain. Naturally I assumed that it was a water infection as I've had a few of them in the past so off to the GP I went to get antibiotics. A week later the pain came back so it was another trip to the GP. I did a water test there where the doctor concluded that it wasn't a water infection and sent me on my way, still in pain. A few weeks went by where the pain was constant, so after blasting myself with over the counter treatments for UTI and thrush I thought I got rid of whatever it was that was plaguing my nether regions. How wrong I was. It came back with a furious vengeance, so a pleaful phone conversation with the medical receptionist with a superiority complex I managed to get a telephone appointment with another doctor. I told him of my plight, to which he flippantly told me to go to hospital. You know, the place where there are actual serious medical emergencies. I refused not wanting to waste my time in A & E and take room and time away from someone who would actually need it. So disparingly I went on, pain and all. After a while the burning rawness died down, not completely going away but enough for me to get back to normality again. Until the end of August where I had another flare up. I went back to the GP who thought it could be a skin condition and gave me hydrocortisone cream, which made it 100 times worse. A few more weeks went by and another trip to the GP to get a swab to see if there was anything bacterial goining on, to which the results concluded that no nasties were lurking around.I couldn't take it any more. I was in tears. This thing had taken over my life. I didn't want to go out any where because I'd be in agony, I couldn't concentrate at all in work, I stopped going to the gym and it started to effect my relationship. I cracked and told my mum who was furious with what doctors had done (or in some cases neglected to do) and she dragged me to A & E just like the third doctor had suggested. They couldn't do anything for me as their gyno knowledge was limited and sent me to the womens hospital, where a patronising nurse didn't understand why I was so distressed. My mum being the protective mamma bear that she is stuck to her guns and made sure we waited to be seen by the doctor who was miffed as I wasn't doing anything obvious, like bleeding. She told me I needed to go back go my GP to be referred to them so off I went back to the GP to be referred to a specialist with a 2 month wait. The day finally came and she poked and prodded for a bit and took swabs to be sent off for testing. They came back negative of course, just like the previous swabs had. There was a 4 month wait to see her again but there was no way I could wait that long, after already suffering for 5 months. I went to my GP to see if there was anything thet could perscribe in the meantime while I wait, which they were reluctant to do. However they did write off to the specialist to see if I could get an earlier appointment. By sheer luck I managed to get a cancellation and saw her this week. It was a little disappointing to hear there was no miracle cure and that there's no guarantee it will ever go away but at least there's a name for it and reading through your stories I know I'm not alone.

LiiJay

Posts : 1
Join date : 2016-11-24

View user profile

Back to top Go down

Re: Newbie to vulvodynia

Post  fairlight10 on Thu Nov 24, 2016 11:02 am

Thank you for telling us your story. I am pleased you have found this forum. I have read all of the posts since the start of this forum. They will help you to cope better with this condition and help you to decide what therapies you want to try. Then with this knowledge you can go back to your doctor and tell them what you need to be prescribed. I get cross when I see a doctor who does not now anything about this condition. Anyway, I know we are here to support you in your journey with this condition.

fairlight10

Posts : 71
Join date : 2016-04-17

View user profile

Back to top Go down

Re: Newbie to vulvodynia

Post  PainBlogger on Thu Nov 24, 2016 3:30 pm

It's a common story unfortunately - too many medical professionals lack knowledge about the problem. But it's good that you now have a diagnosis. You're right that there's no miracle cure. But that doesn't mean you'll be suffering forever. Plenty of people do get better from this horrible condition. It can take a lot of persistence and trial and error to find what helps you - or what combination of treatments/lifestyle changes/dietary changes helps - but be stubborn and don't give up. Smile

PainBlogger

Posts : 219
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Newbie to vulvodynia

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum