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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Has anyone tried Reflexology as a treatment

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Has anyone tried Reflexology as a treatment

Post  Roselilyflower on Wed Nov 30, 2016 8:54 pm

Hi there everyone, I was diagnosed with vulvodynia about 5 months ago. It all started as an allergic reaction to some thrush cream I used to treat a yeast infection which I got agter a heafty load of antibiotics. I have been tested umteen times for herpes etc and I am all clear which is reassuring but still depressing as Inwas not sure what the hell was going on, then finally I was given an official diagnosis of vulvodynia. I was perscribed steroid cream and licodine which burnt and didnt make much difference to the pain. I was then put on nerve blockers such as amitotrypline (forgot how to spell it lol) which have worked but then I decided to try reflexology which was very relaxing. I have only had one session and I have booked another in 2 weeks time. Have any of you lovely people tried this method of treatment if so please tell me your experience and whether there are any other treatment options you have used which have been successful? Thanks for reading :-)

Roselilyflower

Posts : 4
Join date : 2016-11-30
Age : 28
Location : Dorset, Near Dorchester

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Re: Has anyone tried Reflexology as a treatment

Post  LuLu81 on Sat Dec 03, 2016 11:29 am

Hi Roselilyflower,
I know how much you're wanting answers to all of your questions...I too am on the hunt to understanding this. I'm currently trying dietary changes. Nothing working yet ;(
I just wanted to suggest you join the SECRET facebook page run by the lovely ladies who also run this forum. Contact Sebby or Naomi on your private messages. More people on that that can probably give you advice Smile
Good luck with your journey...

LuLu81

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Join date : 2016-09-19
Location : Australia

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Re: Has anyone tried Reflexology as a treatment

Post  Roselilyflower on Sun Dec 04, 2016 10:50 am

Thank you Lulu :-) thats A great help, good luck with yours too x

Roselilyflower

Posts : 4
Join date : 2016-11-30
Age : 28
Location : Dorset, Near Dorchester

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Re: Has anyone tried Reflexology as a treatment

Post  Persevere1990 on Wed Feb 22, 2017 12:34 am

Hello... our experience of getting vulvodynia sounds very similar so I wanted to reach out and see how you are. I just began using lidocaine nightly a week ago... no change yet....

Persevere1990

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Join date : 2017-02-22

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Re: Has anyone tried Reflexology as a treatment

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