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Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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Sat Feb 10, 2018 12:18 am by rockylife


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Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad

Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

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Some words of wisdom?

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Some words of wisdom?

Post  Meg on Sat Feb 27, 2010 10:12 pm

Hi there. I'm new here and thought I'd share some of my experiences.

I was finally diagnosed with Vulvodynia (Provoked Vestibulitis) about 6 months ago, although it took quite a while to get there. My symptoms first started about 2 years ago, and I thought at the beginning that I just had thrush. I'd had thrush a few times before so just used one of the over the counter treatments as usual. When it didn't clear up, and in fact got worse, I went to the GP who diagnosed a further yeast infection of the skin on the vulva, rather than internally, and gave me a prescription for Canseten Hyrdocortisone cream.

Sadly, that didn't help either, so then went for a full STI screening at the GUM clinic. They also came back with nothing, and just gave me stronger oral prescription for thrush. This was about 8 months after the symptoms first began.

A couple of months later, my GP prescribes a corticosteroid cream and Lidocain ointment for pain management. When the steroid cream still didn't help, she referred me to a specialist in Vulva disorders, who diagnosed Vulvodynia and I've been taking Amitriptiline ever since, although I am still trying to find the right dosage.

I've done a lot of my own research, and in addition to the medication am taking quite stringent lifestyle measure to try and prevent any further discomfort, and, now that I know what it is, it seems a lot easier to deal with.

My main problem now is the massive effect it's had on my sexual relationship with my partner. We've been together for four years, and, before the pain started, we had a brilliant sex life. Unfortunately, the pain is absolutely worst for me on intercourse, and, although using the Lidocain before hand does seem to help, I find the planning it involves to be a bit of a mood killer.

My partner is wonderful about the diagnosis, and is very understanding about the issues I face, but he's so anxious not to appear to put any pressure on me that, combined with the fact that my interest has been a bit diminished, our sexual interaction has been reduced to pretty much zero.

This, for me, is one of the hardest things about the condition. I wondered if anyone has any similar experiences, or words of advice on how my partner and I might be able to progress with this?

By the way - I think the start of this forum looks great and it's very encouraging to have the opportunity to talk to other women in the same predicament. Keep up the good work ladies Smile


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thanks for sharing

Post  Sebby (Admin) on Sun Feb 28, 2010 1:08 am

Hi meg, thanks for sharing your story. I too used to get reoccuring thrush before I developed vulvodynia. With regards to the sexual problems I would advise that for the moment take the focus completely off intercourse. I have had to do this in the past when I have been too sore (I'm single at the moment). Just concentrate on light touching, massage, kissing basically everything u two enjoy but without the pressure of intercourse and worrying about it hurting.
The aim of this is to associate sexual acts wiv pleasure rather than pain and to get the sex drive revved up again. Hopefully this can then lead to relaxation and enjoyment which in turn on days where u feel able intercourse will be easier to attempt.
see how this goes and I wish u luck.
Sebby xxx
Sebby (Admin)

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Location : London UK

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