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» It feels like I’m going to have pain forever
Yesterday at 12:11 pm by mhhh

» It feels like I’m going to have pain forever
Yesterday at 10:01 am by dunkelma

» It feels like I’m going to have pain forever
Yesterday at 8:51 am by dunkelma

» Honey decreased my pain considerably!
Sun Jul 15, 2018 12:53 pm by mhhh

» Birth control pills can cause vestibulitis
Sun Jul 15, 2018 1:15 am by MDias

» Gabapentin gel and pregnancy
Sat Jul 14, 2018 4:15 pm by Georgie 121212

» From a concerned husband
Fri Jul 13, 2018 6:02 pm by emalita

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Fri Jul 13, 2018 2:58 pm by Gaby

» Hi girls! New in this forum
Fri Jul 13, 2018 2:31 pm by Gaby

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 9

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 0

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 1

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 5

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Some words of wisdom?

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Some words of wisdom?

Post  Meg on Sat Feb 27, 2010 10:12 pm

Hi there. I'm new here and thought I'd share some of my experiences.

I was finally diagnosed with Vulvodynia (Provoked Vestibulitis) about 6 months ago, although it took quite a while to get there. My symptoms first started about 2 years ago, and I thought at the beginning that I just had thrush. I'd had thrush a few times before so just used one of the over the counter treatments as usual. When it didn't clear up, and in fact got worse, I went to the GP who diagnosed a further yeast infection of the skin on the vulva, rather than internally, and gave me a prescription for Canseten Hyrdocortisone cream.

Sadly, that didn't help either, so then went for a full STI screening at the GUM clinic. They also came back with nothing, and just gave me stronger oral prescription for thrush. This was about 8 months after the symptoms first began.

A couple of months later, my GP prescribes a corticosteroid cream and Lidocain ointment for pain management. When the steroid cream still didn't help, she referred me to a specialist in Vulva disorders, who diagnosed Vulvodynia and I've been taking Amitriptiline ever since, although I am still trying to find the right dosage.

I've done a lot of my own research, and in addition to the medication am taking quite stringent lifestyle measure to try and prevent any further discomfort, and, now that I know what it is, it seems a lot easier to deal with.

My main problem now is the massive effect it's had on my sexual relationship with my partner. We've been together for four years, and, before the pain started, we had a brilliant sex life. Unfortunately, the pain is absolutely worst for me on intercourse, and, although using the Lidocain before hand does seem to help, I find the planning it involves to be a bit of a mood killer.

My partner is wonderful about the diagnosis, and is very understanding about the issues I face, but he's so anxious not to appear to put any pressure on me that, combined with the fact that my interest has been a bit diminished, our sexual interaction has been reduced to pretty much zero.

This, for me, is one of the hardest things about the condition. I wondered if anyone has any similar experiences, or words of advice on how my partner and I might be able to progress with this?

By the way - I think the start of this forum looks great and it's very encouraging to have the opportunity to talk to other women in the same predicament. Keep up the good work ladies Smile


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thanks for sharing

Post  Sebby (Admin) on Sun Feb 28, 2010 1:08 am

Hi meg, thanks for sharing your story. I too used to get reoccuring thrush before I developed vulvodynia. With regards to the sexual problems I would advise that for the moment take the focus completely off intercourse. I have had to do this in the past when I have been too sore (I'm single at the moment). Just concentrate on light touching, massage, kissing basically everything u two enjoy but without the pressure of intercourse and worrying about it hurting.
The aim of this is to associate sexual acts wiv pleasure rather than pain and to get the sex drive revved up again. Hopefully this can then lead to relaxation and enjoyment which in turn on days where u feel able intercourse will be easier to attempt.
see how this goes and I wish u luck.
Sebby xxx
Sebby (Admin)

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