Log in

I forgot my password

Latest topics
Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci


I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Some words of wisdom?

View previous topic View next topic Go down

Some words of wisdom?

Post  Meg on Sat Feb 27, 2010 10:12 pm

Hi there. I'm new here and thought I'd share some of my experiences.

I was finally diagnosed with Vulvodynia (Provoked Vestibulitis) about 6 months ago, although it took quite a while to get there. My symptoms first started about 2 years ago, and I thought at the beginning that I just had thrush. I'd had thrush a few times before so just used one of the over the counter treatments as usual. When it didn't clear up, and in fact got worse, I went to the GP who diagnosed a further yeast infection of the skin on the vulva, rather than internally, and gave me a prescription for Canseten Hyrdocortisone cream.

Sadly, that didn't help either, so then went for a full STI screening at the GUM clinic. They also came back with nothing, and just gave me stronger oral prescription for thrush. This was about 8 months after the symptoms first began.

A couple of months later, my GP prescribes a corticosteroid cream and Lidocain ointment for pain management. When the steroid cream still didn't help, she referred me to a specialist in Vulva disorders, who diagnosed Vulvodynia and I've been taking Amitriptiline ever since, although I am still trying to find the right dosage.

I've done a lot of my own research, and in addition to the medication am taking quite stringent lifestyle measure to try and prevent any further discomfort, and, now that I know what it is, it seems a lot easier to deal with.

My main problem now is the massive effect it's had on my sexual relationship with my partner. We've been together for four years, and, before the pain started, we had a brilliant sex life. Unfortunately, the pain is absolutely worst for me on intercourse, and, although using the Lidocain before hand does seem to help, I find the planning it involves to be a bit of a mood killer.

My partner is wonderful about the diagnosis, and is very understanding about the issues I face, but he's so anxious not to appear to put any pressure on me that, combined with the fact that my interest has been a bit diminished, our sexual interaction has been reduced to pretty much zero.

This, for me, is one of the hardest things about the condition. I wondered if anyone has any similar experiences, or words of advice on how my partner and I might be able to progress with this?

By the way - I think the start of this forum looks great and it's very encouraging to have the opportunity to talk to other women in the same predicament. Keep up the good work ladies Smile


Posts : 2
Join date : 2010-02-27
Location : Leicester, UK

View user profile

Back to top Go down

thanks for sharing

Post  Sebby (Admin) on Sun Feb 28, 2010 1:08 am

Hi meg, thanks for sharing your story. I too used to get reoccuring thrush before I developed vulvodynia. With regards to the sexual problems I would advise that for the moment take the focus completely off intercourse. I have had to do this in the past when I have been too sore (I'm single at the moment). Just concentrate on light touching, massage, kissing basically everything u two enjoy but without the pressure of intercourse and worrying about it hurting.
The aim of this is to associate sexual acts wiv pleasure rather than pain and to get the sex drive revved up again. Hopefully this can then lead to relaxation and enjoyment which in turn on days where u feel able intercourse will be easier to attempt.
see how this goes and I wish u luck.
Sebby xxx
Sebby (Admin)

Posts : 750
Join date : 2009-12-03
Age : 36
Location : London UK

View user profile http://vulvodyniasupport.forumotion.net

Back to top Go down

View previous topic View next topic Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum