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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules


I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Some words of wisdom?

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Some words of wisdom?

Post  Meg on Sat Feb 27, 2010 10:12 pm

Hi there. I'm new here and thought I'd share some of my experiences.

I was finally diagnosed with Vulvodynia (Provoked Vestibulitis) about 6 months ago, although it took quite a while to get there. My symptoms first started about 2 years ago, and I thought at the beginning that I just had thrush. I'd had thrush a few times before so just used one of the over the counter treatments as usual. When it didn't clear up, and in fact got worse, I went to the GP who diagnosed a further yeast infection of the skin on the vulva, rather than internally, and gave me a prescription for Canseten Hyrdocortisone cream.

Sadly, that didn't help either, so then went for a full STI screening at the GUM clinic. They also came back with nothing, and just gave me stronger oral prescription for thrush. This was about 8 months after the symptoms first began.

A couple of months later, my GP prescribes a corticosteroid cream and Lidocain ointment for pain management. When the steroid cream still didn't help, she referred me to a specialist in Vulva disorders, who diagnosed Vulvodynia and I've been taking Amitriptiline ever since, although I am still trying to find the right dosage.

I've done a lot of my own research, and in addition to the medication am taking quite stringent lifestyle measure to try and prevent any further discomfort, and, now that I know what it is, it seems a lot easier to deal with.

My main problem now is the massive effect it's had on my sexual relationship with my partner. We've been together for four years, and, before the pain started, we had a brilliant sex life. Unfortunately, the pain is absolutely worst for me on intercourse, and, although using the Lidocain before hand does seem to help, I find the planning it involves to be a bit of a mood killer.

My partner is wonderful about the diagnosis, and is very understanding about the issues I face, but he's so anxious not to appear to put any pressure on me that, combined with the fact that my interest has been a bit diminished, our sexual interaction has been reduced to pretty much zero.

This, for me, is one of the hardest things about the condition. I wondered if anyone has any similar experiences, or words of advice on how my partner and I might be able to progress with this?

By the way - I think the start of this forum looks great and it's very encouraging to have the opportunity to talk to other women in the same predicament. Keep up the good work ladies Smile


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thanks for sharing

Post  Sebby (Admin) on Sun Feb 28, 2010 1:08 am

Hi meg, thanks for sharing your story. I too used to get reoccuring thrush before I developed vulvodynia. With regards to the sexual problems I would advise that for the moment take the focus completely off intercourse. I have had to do this in the past when I have been too sore (I'm single at the moment). Just concentrate on light touching, massage, kissing basically everything u two enjoy but without the pressure of intercourse and worrying about it hurting.
The aim of this is to associate sexual acts wiv pleasure rather than pain and to get the sex drive revved up again. Hopefully this can then lead to relaxation and enjoyment which in turn on days where u feel able intercourse will be easier to attempt.
see how this goes and I wish u luck.
Sebby xxx
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