Log in

I forgot my password

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1


Just want a solution for a good quality of life

View previous topic View next topic Go down

Just want a solution for a good quality of life

Post  mariah2558 on Thu Dec 08, 2016 9:49 am

Hi all,
My name is Mariah, I am 19 years old and I was diagnosed with vulvodynia in November of last year 2015. They finally diagnosed me after I've been dealing with this condition for over 12 years. I can remember as far back to being 5 years old complaining to my parents that my pee pee hurt and it just got worse and worse as I grew older. I wasn't in nearly the pain I am now though. I can remember my later childhood years always being uncomfortable when I was wear tight clothing always getting into a warm bath and having these sharpe, burning and uncomfortable pains down in my vagina. When I would go see my doctors they almost kind of blew it off. Said it was a yeast infection and as the problem progressed as I got older they told me it was just bacterial vagininosis. Just prescribed me with Dyflucan gave me topical ointments, some antibiotics when it was "bacterial vaginiosis" told me to use Monistat creams if it came back down the road and sent me on my way. Sometimes those things worked but only for a couple hours and then I was back in pain but after a day or so it would go away and my vaginal area would just be irritated but it always was so it was nothing new for me. Now then I'm entering into my adult years, I'm in my second year of nursing school, I have 2 jobs, and I work for the hospital here in town I can't bare living like this anymore. Some days I'm okay just my normal irritation but these past 3 months have been so extremely awful for me. I've probably been to the ER 20 times because the pain is so excruciating I can't handle it anymore and need something. At some points I've been in so much pain I didn't sleep for 28 hours because I was up pacing myself back and forth, in and out of the bath tub, bawling because the pain is just so awful. The worst part about everything, even worse than the pain, no one understands what you're going through. No one understands how much pain you're in and how badly it affects you and hurts. They thing you just need to tough it out or get a higher pain tolerance. My gynecologist that diagnosed me but me on the nerve blocking medication called amitriptyline we started at 25mg just once a day until my body got used to it and then stayed on 50mg for a month with little problems then every time I got a flare up she would just up my medication i got up to 200mg of amitriptyline before she switched me over to gabapentin 300mg 3x a day. Then she explained to me how she had only seen a couple patients with this diagnosis and wanted to me to get some relief. So she sent me to see a specialist in Omaha. I feel like this doctor doesn't listen to a thing I'm saying. Everytime I call saying I'm in pain her nurse tells me oh take deep breathes it'll go away use cold compressions or get in the bath. She acts like I hadn't already done that. Like I said been dealing with this problem for 12+ years when I start to get my awful flare ups I almost immediately jump in the bath tub. After weeks of hownding them I was in pain they finally did something beside medication. They gave me lidocaine/steroid injections. That ended up making me feel even worse. I currently go to physical therapy to work on not clinching my nerves so much and loosening up my pelvic floor muscles. My specialist has me on gabapentin 300mg 6x times a day and lidocaine 5% topical ointment to put inside my vagina and on the outside of the vulva and vulvlar opening. I have an appointment to see a urogynecologist and an appointment at the Mayo Clinic in Minnesota. I just need some advice on what to do? Did anything work better for anyone? I have heard about the Botox injections and the surgery did any of those significantly help anyone? I'm desperate for advice and need some help. I can't even work or go to school without having a flare up at least twice a week? I just want to live a normal life of a young adult because right now I don't do anything for myself. I don't do anything for fun because the thought of putting anything on besides very big and baggy sweatpants makes me cringes. I'm desperate for answers. Anything helps, thank you and god bless.

mariah2558

Posts : 1
Join date : 2016-12-08

View user profile

Back to top Go down

Re: Just want a solution for a good quality of life

Post  fairlight10 on Thu Dec 08, 2016 11:04 am

I am so sorry you have suffered with this for so long. We all know on this forum what you are going through. Start reading the posts on this forum. They are full of information that may bring you the relief you are searching for. You sound as if you have primary vulvodynia. As you had it when you were so young. Have you any female relation who have suffered similar problems? I am on nortriptyline 20 mgs now. This type of medication is known as antidepressants but in low doses and I emphasis low can give some of us on this forum relief from the symptoms you refer to. Also, you have noticed that urinating causes you problems. Look at the low oxalate diet. Also, some other medications can cause irritation in that area. Omeprazole is one of them.

fairlight10

Posts : 39
Join date : 2016-04-17

View user profile

Back to top Go down

Re: Just want a solution for a good quality of life

Post  PainBlogger on Thu Dec 08, 2016 2:50 pm

A quick summary of what has helped me: duloxetine, acupuncture, physiotherapy/PT (including dilators at home), and mindfulness.

http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement#14400 for the fuller version with some lifestyle changes you might want to try if you haven't already. And, as fairlight says, have a good read through this forum. It may well be that a combination of different treatments/lifestyle changes will help. Finding that combination can take a while but is worth the effort of trying things.

It's a horrible condition, but people do get better. I really hope the specialists you're waiting to see can offer new insights.

PainBlogger

Posts : 214
Join date : 2015-07-27

View user profile

Back to top Go down

Re: Just want a solution for a good quality of life

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum