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Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2


Long time vulvar vestibulitis/vaginismus sufferer

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Long time vulvar vestibulitis/vaginismus sufferer

Post  speechie123 on Sun Dec 11, 2016 3:44 pm

Hi all,
So I have been struggling with vulvar/vaginal pain for a long time now to the point that I've never been able to have intercourse or use a tampon. I am currently seeing a specialist doctor and have gone through physical therapy but it has mostly taken care of the day to day pain and the pain when I work out, still no sign of the pain on contact decreasing. One of the things that annoys me the most is that I am also anorgasmic so I pretty much can only do things *for* a partner during sex which is really one-sided and I can't masturbate. I've brought that up with my doctor but he didn't have any suggestions. My sex drive has also plummeted in the last year or two. Not sure if it's because I associate sex with pain or what. My mom has been wanting me to get my hormone levels tested but I'll have to press for it more with my doctor since he's mostly tried to augment my estrogen using birth control so far.
I'm on:
currently 5 gabapentin a day
topical estrogen and a gabapentin/other drug mixture
stretches which I should be doing daily but haven't been doing as much these days
I'm also trying the anti-oxalate diet and have cut out a bunch of foods for that.

Anyone who can relate/with advice? Neutral

speechie123

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Re: Long time vulvar vestibulitis/vaginismus sufferer

Post  PainBlogger on Tue Dec 13, 2016 7:13 pm

Have you tried acupuncture? What about lidocaine gel/ointment for the contact pain?

PainBlogger

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Re: Long time vulvar vestibulitis/vaginismus sufferer

Post  speechie123 on Thu Dec 15, 2016 9:34 pm

I think I've been given lidocaine at least once. Never tried acupuncture though I'm sure I will at *some* point. There seems to be a lot of different things causing the pain (nerve stuff and muscles and possibly skin irritation or even an estrogen deficiency).

speechie123

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Re: Long time vulvar vestibulitis/vaginismus sufferer

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