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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Long time vulvar vestibulitis/vaginismus sufferer

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Long time vulvar vestibulitis/vaginismus sufferer

Post  speechie123 on Sun Dec 11, 2016 3:44 pm

Hi all,
So I have been struggling with vulvar/vaginal pain for a long time now to the point that I've never been able to have intercourse or use a tampon. I am currently seeing a specialist doctor and have gone through physical therapy but it has mostly taken care of the day to day pain and the pain when I work out, still no sign of the pain on contact decreasing. One of the things that annoys me the most is that I am also anorgasmic so I pretty much can only do things *for* a partner during sex which is really one-sided and I can't masturbate. I've brought that up with my doctor but he didn't have any suggestions. My sex drive has also plummeted in the last year or two. Not sure if it's because I associate sex with pain or what. My mom has been wanting me to get my hormone levels tested but I'll have to press for it more with my doctor since he's mostly tried to augment my estrogen using birth control so far.
I'm on:
currently 5 gabapentin a day
topical estrogen and a gabapentin/other drug mixture
stretches which I should be doing daily but haven't been doing as much these days
I'm also trying the anti-oxalate diet and have cut out a bunch of foods for that.

Anyone who can relate/with advice? Neutral

speechie123

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Re: Long time vulvar vestibulitis/vaginismus sufferer

Post  PainBlogger on Tue Dec 13, 2016 7:13 pm

Have you tried acupuncture? What about lidocaine gel/ointment for the contact pain?

PainBlogger

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Re: Long time vulvar vestibulitis/vaginismus sufferer

Post  speechie123 on Thu Dec 15, 2016 9:34 pm

I think I've been given lidocaine at least once. Never tried acupuncture though I'm sure I will at *some* point. There seems to be a lot of different things causing the pain (nerve stuff and muscles and possibly skin irritation or even an estrogen deficiency).

speechie123

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Re: Long time vulvar vestibulitis/vaginismus sufferer

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