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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Long time vulvar vestibulitis/vaginismus sufferer

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Long time vulvar vestibulitis/vaginismus sufferer

Post  speechie123 on Sun Dec 11, 2016 3:44 pm

Hi all,
So I have been struggling with vulvar/vaginal pain for a long time now to the point that I've never been able to have intercourse or use a tampon. I am currently seeing a specialist doctor and have gone through physical therapy but it has mostly taken care of the day to day pain and the pain when I work out, still no sign of the pain on contact decreasing. One of the things that annoys me the most is that I am also anorgasmic so I pretty much can only do things *for* a partner during sex which is really one-sided and I can't masturbate. I've brought that up with my doctor but he didn't have any suggestions. My sex drive has also plummeted in the last year or two. Not sure if it's because I associate sex with pain or what. My mom has been wanting me to get my hormone levels tested but I'll have to press for it more with my doctor since he's mostly tried to augment my estrogen using birth control so far.
I'm on:
currently 5 gabapentin a day
topical estrogen and a gabapentin/other drug mixture
stretches which I should be doing daily but haven't been doing as much these days
I'm also trying the anti-oxalate diet and have cut out a bunch of foods for that.

Anyone who can relate/with advice? Neutral

speechie123

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Re: Long time vulvar vestibulitis/vaginismus sufferer

Post  PainBlogger on Tue Dec 13, 2016 7:13 pm

Have you tried acupuncture? What about lidocaine gel/ointment for the contact pain?

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Re: Long time vulvar vestibulitis/vaginismus sufferer

Post  speechie123 on Thu Dec 15, 2016 9:34 pm

I think I've been given lidocaine at least once. Never tried acupuncture though I'm sure I will at *some* point. There seems to be a lot of different things causing the pain (nerve stuff and muscles and possibly skin irritation or even an estrogen deficiency).

speechie123

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Re: Long time vulvar vestibulitis/vaginismus sufferer

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