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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

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Problems with Masturbation/Anorgasmia?

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Problems with Masturbation/Anorgasmia?

Post  speechie123 on Thu Dec 15, 2016 9:41 pm

Hi,
I was wondering if anyone else has experienced problems with anorgasmia/inability to masturbate or become aroused/maintain arousal along with vulvar vestibulitis/vaginismus. I have had both for almost as long as I can remember (the vaginismus probably stems from the vestibular pain) and one of my biggest pet peeves besides day-to-day and pain after I work out is that I can't really masturbate. I've tried to discuss this with my doctor but it's pretty awkward and he is more concerned about my ability to have intercourse (I don't have a boyfriend or husband so I have few opportunities for that anyway). I've heard of some people with vaginismus who can "only" masturbate, but not being able to really sucks. It basically closes off any possibility of a reciprocal sexual relationship for me. I'd also be up for discussing the suckiness of dating with this-- I am bisexual so I can at least focus on women, but since it's still an issue I am constantly on edge on dates because I'll have to explain this whole mess eventually and I won't be able to give an estimated "fixed by" date. Just "my vagina is broken, no idea when or if it will get fixed".

speechie123

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Re: Problems with Masturbation/Anorgasmia?

Post  Mark on Wed Dec 21, 2016 9:12 pm

Hi Speechie,

I'm male so don't have vulvodynia, but I'm the husband of someone who does. So maybe our experience will help.

She doesn't agree with female masturbation but she does have a normal to high sex drive.

When she has her pain, she has no interest in any type of intimacy, just to be cuddled and supported.

Sometimes she doesn't have the pain but instead gets an itch/slight irritation. When that happens she has a strong desire for orgasms and wants me to give her oral sex. Woe betide me if I'm not available! She gets very irritable. If the irritation is bad but not yet the full-on v pain, she wants massages. I don't know whether all women are like this but with the right techniques she can orgasm without any direct touching of her clitoris, mostly from me carressing her breasts and thighs.

When she doesn't have either then she has just a normal sex drive, enjoys mainly oral sex and has multiple orgasms pretty easily. Unfortunately despite trying pretty much everything vaginal sex is very painful for her and leaves her with an intense burning pain that lasts 2-3 days, sometimes more.

From what I've read about v, everyone's experience of it is different. But if you're anything like my wife, if you have the burning pain, it might not be a good idea to masturbate, as you could make things worse. You could try giving yourself a sensuous massage possibly, or get a boyfriend and have him do it (or a girl, as you said you're bi).

Also without being too graphic I don't know whether you're just using your fingers or a sex toy but if it's a toy then maybe some types that are more on the outside like a tongue would be better than ones that go inside more like a penis. So really it's probably about working out what triggers or worsens your condition and pleasuring yourself in a way that doesn't bring it on.

As regards dating, I can't comment on what it'd be like with another bisexual or lesbian woman but with men I think if you're upfront about it you'll be fine. Most of us when you set aside the machismo are mostly into our partners' orgasms as they're so much more intense than anything we're capable of, so we can live without vaginal sex as long as the woman still has a sex drive and the ability to climax. Obviously some men are more focused on their penises but if you're honest with them about your condition you'll filter them out early on and be left with a huge choice of potential partners who won't be fussed about your condition, just sorry for you and keen to show you their love in other ways tongue

Mark

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Re: Problems with Masturbation/Anorgasmia?

Post  speechie123 on Thu Dec 22, 2016 9:49 pm

Hi,
I am pretty much anorgasmic (I had a former girlfriend try to figure out "nipple orgasms" to her great frustration and disappointment) since there aren't really any forms of masturbation that don't hurt me and my pain-on-contact doesn't come and go (the pain flare ups I get that aren't related to contact do come and go thankfully and are semi-manageable with medication so far). I only really enjoy giving oral to women, so right now the sexual activity I can do is mostly confined to women (either with oral or to be a bit graphic using a strap-on). I guess I might consider oral for the right guy, but it's still basically pretty much one-sided oral only for an indetermined length of time since there's no real way of predicting when or if I will figure out a solution that makes intercourse enjoyable. I suppose if there was a guy who liked pegging that would be a second option but that's not exactly a common preference among guys. Generally, I just have a hard time figuring out when and how to give "the talk" since most partners from my experience (and my experience is not very comprehensive- I rarely even get to a sex talk with people when I date) want to be able to give their partners orgasms.

speechie123

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Re: Problems with Masturbation/Anorgasmia?

Post  Mark on Fri Dec 23, 2016 2:07 pm

Hi Speechie,

If all types of masturbation hurt you I assume that also includes a partner doing it for you (be that oral or handjobs, from a guy or a girl)? If so, that really must be frustrating for you.

Do you feel sexual urges? If so, could it be worth having another go at climaxing without genital contact? You can Google lots of advice and videos on how to do it. Maybe try when you're ovulating so at maximum horniness and sensitivity.

I'm not sure what pegging is but on the basis I'm a fairly normal straight guy who had a reasonable number of partners before meeting my wife and most of my friends are straight males who sometimes talk about what they've done I would probably have heard of it if it was commonplace. But I bet you could find a guy who liked it if you went onto the right kind of website.

My wife's condition is different to yours because her pain is intermittent and when it isn't on it isn't triggered by me playing with her clitoris. So me going down on her is our main indeed only form of sex and we do it probably as often as any couple both working full time with two young kids can manage it. Like you, I enjoy going down on a woman a lot Very Happy . OK, in a way it's one sided, but actually I think the pleasure I get from it is so much more intense than from any other kind of sex that I don't miss the other stuff. Could I live without giving her orgasms if her condition was like yours? Yes if I had to, because I love her. But it'd be hard. I think the problem is that we men have quite small orgasms compared to women so when we get with a woman we're attracted to we get a very strong desire to help her climax.

So I guess your options other than getting cured from vuvodynia are cracking orgasm without genital contact, going down on girls or finding a man who likes pegging, whatever that is. Good luck with whichever you choose!

Mark

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Re: Problems with Masturbation/Anorgasmia?

Post  speechie123 on Sun Dec 25, 2016 4:56 am

Thanks for trying to help-- hopefully I'll hear from a woman on the forum since they might have a little bit more experience with it (I even just wanted to figure out how common it was to go along with the vulvodynia and hear from other women who have a similarly difficult time with arousal-- I feel like I would already know if I could orgasm without touch?). I really would be fine with just sticking to dating women unless I get cured, I like them just as much or more than men -- the biggest problems with that is that I *still* need to tell them about it, women also generally want to be able to bring their partner to orgasm, and there are just fewer lesbian/bi women to date.


(P.S.-- pegging is when a woman uses a strap-on on a man. So, basically reverse heterosexual sex.)

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Re: Problems with Masturbation/Anorgasmia?

Post  Kezz on Tue Mar 28, 2017 12:40 am

Hi Mark,

I just wanted to say your comments really cheered me up coming from a man. It's comforting to know that not all men are just obsessed with vaginal sex. It's really easy to fall into that way of thinking as a woman with vulvodynia and that just makes it all the more depressing and unbearable... so your comments helped to pull me out if train of thought which is half the battle.

Hope all is well with yourself and your wife. Thanks again.

Kezz. Xx

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Re: Problems with Masturbation/Anorgasmia?

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