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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4


Please help me

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Please help me

Post  yeshello on Fri Dec 16, 2016 2:57 am

Hi. This website seems to be a good outlet for people to talk about this with, seeing as everyone I know could never even begin to understand what I have been dealing with.

I turned 20 years old last week, and have been living with what I suspect is vulvodynia for the past 7 years. This horrible condition has robbed me of the sexual exploration I long for, in addition to the burning and rawness I have felt and thought about every single day since I was 13. I constantly feel helpless and misunderstood, which definitely did not help in a pivotal age in my life where kids generally feel out of place to begin with. I constantly drink water (constantly, constantly, constantly), and I try very hard to keep up a good diet, and it just feels very unfair that people get to consume complete s**t and take little to no care of their bodies still get to have a functioning and healthy sex organ. I have gone to 5 or 6 doctors now, and every diagnosis, medication or treatment I have tried has been of no help to me. This condition has caused me so much emotional damage and I feel completely helpless. After reading some entries on this website I am so, so overwhelmed at how varying the causes of vulvodynia can be and I have no idea where to start looking for at home remedies to at least relieve the pain. But I cannot even fathom having to take constant measures to relieve this pain for the rest of my life, and I cannot remember a time in my life when this wasn't an underlying and inescapable problem for me.

I don't know what else to say besides to ask for any treatments or remedies that have been of significant help to anyone reading this. I understand that people say having an outlet to talk about this with helps to better deal with it, but I don't want this to be something that I "learn to deal with" until I die. I want it gone. Thank you

yeshello

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Re: Please help me

Post  Sarah001 on Sat Dec 17, 2016 3:38 pm

I would say to anyone wondering what to try to read the book "When Sex Hurts" to try to figure out the cause, it runs through all known causes and there's a flowchart in it too to help you decide which treatments might be worth a try. I also say to everyone to see a Women's Health Physiotherapist (PT) even if the problem is a primary one as sounds to be the case with yours because any injury to the back, hips, pelvis can contribute or cause the problem so it's always worth seeing one.
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