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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Please help me

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Please help me

Post  yeshello on Fri Dec 16, 2016 2:57 am

Hi. This website seems to be a good outlet for people to talk about this with, seeing as everyone I know could never even begin to understand what I have been dealing with.

I turned 20 years old last week, and have been living with what I suspect is vulvodynia for the past 7 years. This horrible condition has robbed me of the sexual exploration I long for, in addition to the burning and rawness I have felt and thought about every single day since I was 13. I constantly feel helpless and misunderstood, which definitely did not help in a pivotal age in my life where kids generally feel out of place to begin with. I constantly drink water (constantly, constantly, constantly), and I try very hard to keep up a good diet, and it just feels very unfair that people get to consume complete s**t and take little to no care of their bodies still get to have a functioning and healthy sex organ. I have gone to 5 or 6 doctors now, and every diagnosis, medication or treatment I have tried has been of no help to me. This condition has caused me so much emotional damage and I feel completely helpless. After reading some entries on this website I am so, so overwhelmed at how varying the causes of vulvodynia can be and I have no idea where to start looking for at home remedies to at least relieve the pain. But I cannot even fathom having to take constant measures to relieve this pain for the rest of my life, and I cannot remember a time in my life when this wasn't an underlying and inescapable problem for me.

I don't know what else to say besides to ask for any treatments or remedies that have been of significant help to anyone reading this. I understand that people say having an outlet to talk about this with helps to better deal with it, but I don't want this to be something that I "learn to deal with" until I die. I want it gone. Thank you

yeshello

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Re: Please help me

Post  Sarah001 on Sat Dec 17, 2016 3:38 pm

I would say to anyone wondering what to try to read the book "When Sex Hurts" to try to figure out the cause, it runs through all known causes and there's a flowchart in it too to help you decide which treatments might be worth a try. I also say to everyone to see a Women's Health Physiotherapist (PT) even if the problem is a primary one as sounds to be the case with yours because any injury to the back, hips, pelvis can contribute or cause the problem so it's always worth seeing one.
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