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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Please help me

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Please help me

Post  yeshello on Fri Dec 16, 2016 2:57 am

Hi. This website seems to be a good outlet for people to talk about this with, seeing as everyone I know could never even begin to understand what I have been dealing with.

I turned 20 years old last week, and have been living with what I suspect is vulvodynia for the past 7 years. This horrible condition has robbed me of the sexual exploration I long for, in addition to the burning and rawness I have felt and thought about every single day since I was 13. I constantly feel helpless and misunderstood, which definitely did not help in a pivotal age in my life where kids generally feel out of place to begin with. I constantly drink water (constantly, constantly, constantly), and I try very hard to keep up a good diet, and it just feels very unfair that people get to consume complete s**t and take little to no care of their bodies still get to have a functioning and healthy sex organ. I have gone to 5 or 6 doctors now, and every diagnosis, medication or treatment I have tried has been of no help to me. This condition has caused me so much emotional damage and I feel completely helpless. After reading some entries on this website I am so, so overwhelmed at how varying the causes of vulvodynia can be and I have no idea where to start looking for at home remedies to at least relieve the pain. But I cannot even fathom having to take constant measures to relieve this pain for the rest of my life, and I cannot remember a time in my life when this wasn't an underlying and inescapable problem for me.

I don't know what else to say besides to ask for any treatments or remedies that have been of significant help to anyone reading this. I understand that people say having an outlet to talk about this with helps to better deal with it, but I don't want this to be something that I "learn to deal with" until I die. I want it gone. Thank you

yeshello

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Re: Please help me

Post  Sarah001 on Sat Dec 17, 2016 3:38 pm

I would say to anyone wondering what to try to read the book "When Sex Hurts" to try to figure out the cause, it runs through all known causes and there's a flowchart in it too to help you decide which treatments might be worth a try. I also say to everyone to see a Women's Health Physiotherapist (PT) even if the problem is a primary one as sounds to be the case with yours because any injury to the back, hips, pelvis can contribute or cause the problem so it's always worth seeing one.
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