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» Vulvadynia
Yesterday at 11:53 pm by Linda Williams

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Constant pain, I want to die.
Wed Jul 19, 2017 10:55 pm by jungleclover

» What is Vulvodynia?
Wed Jul 19, 2017 10:42 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

» Surgery Success - Still early days, but going well so far!
Sun Jul 16, 2017 8:42 pm by sarahjane1332343

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 0

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3


Newlywed and newlydiagnosed- help!

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Newlywed and newlydiagnosed- help!

Post  hollync on Sun Dec 18, 2016 9:06 am

Hello, I am 24 and had pain-free sex with my new husband for 3 years before starting to have this pain about 2 years ago. It started after a course of antibiotics, and although I have been on hormonal birth control for over 10 years, I changed to a similar, but different birth control around that time as well. It generally stings and burns, mostly after intercourse.

I finally saw someone about 9 months ago and was first given gabapentin, which I had too many problems taking 3 times a day (I'm currently a graduate student and my schedule is very inconsistent) and was having a lot of fatigue during the day. I now take amitriptyline 50 mg a day and am having troubles with fatigue and grogginess in the morning as well, and I'm hoping to change to something else- I just can't deal with the grogginess I get from the amitriptyline. It has improved the pain some, but definitely not all the way. I also have topical lidocaine that I use for breakthrough pain.

I am hoping some of you have advice for what to try next, what to talk to my doctor about, and anything else! My husband has been SO understanding, but I would love to get this under control for the both of us!

hollync

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Join date : 2016-10-04
Location : USA

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Re: Newlywed and newlydiagnosed- help!

Post  PainBlogger on Sun Dec 18, 2016 9:29 am

You could ask to try duloxetine. I get zero grogginess from it - in fact, I have more energy since I've been on it. I don't know if that's because I have so much less pain (and pain is tiring) or because I'm getting a slight stimulant effect from it. Acupuncture may help - it's not cheap (at least here in the UK), but it's helped me (in conjunction with the duloxetine).

Do you feel like you have muscle tightness? If so, physical therapy with a PT that specialises in pelvic pain/women's health may be useful. Dilators at home for stretching exercises.

Are you doing all the common sense things like avoiding fragranced products in that area (and fragranced detergent on underwear/towels)? I'd suggest drinking plenty of non-caffeinated, non-acidic drinks to keep your urine as dilute as possible so you don't have concentrated urine in contact with your skin down there.

I hope some of that helps. Smile

PainBlogger

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