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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

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Newlywed and newlydiagnosed- help!

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Newlywed and newlydiagnosed- help!

Post  hollync on Sun Dec 18, 2016 9:06 am

Hello, I am 24 and had pain-free sex with my new husband for 3 years before starting to have this pain about 2 years ago. It started after a course of antibiotics, and although I have been on hormonal birth control for over 10 years, I changed to a similar, but different birth control around that time as well. It generally stings and burns, mostly after intercourse.

I finally saw someone about 9 months ago and was first given gabapentin, which I had too many problems taking 3 times a day (I'm currently a graduate student and my schedule is very inconsistent) and was having a lot of fatigue during the day. I now take amitriptyline 50 mg a day and am having troubles with fatigue and grogginess in the morning as well, and I'm hoping to change to something else- I just can't deal with the grogginess I get from the amitriptyline. It has improved the pain some, but definitely not all the way. I also have topical lidocaine that I use for breakthrough pain.

I am hoping some of you have advice for what to try next, what to talk to my doctor about, and anything else! My husband has been SO understanding, but I would love to get this under control for the both of us!


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Re: Newlywed and newlydiagnosed- help!

Post  PainBlogger on Sun Dec 18, 2016 9:29 am

You could ask to try duloxetine. I get zero grogginess from it - in fact, I have more energy since I've been on it. I don't know if that's because I have so much less pain (and pain is tiring) or because I'm getting a slight stimulant effect from it. Acupuncture may help - it's not cheap (at least here in the UK), but it's helped me (in conjunction with the duloxetine).

Do you feel like you have muscle tightness? If so, physical therapy with a PT that specialises in pelvic pain/women's health may be useful. Dilators at home for stretching exercises.

Are you doing all the common sense things like avoiding fragranced products in that area (and fragranced detergent on underwear/towels)? I'd suggest drinking plenty of non-caffeinated, non-acidic drinks to keep your urine as dilute as possible so you don't have concentrated urine in contact with your skin down there.

I hope some of that helps. Smile


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