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» Vestibulectomy
Sun Aug 13, 2017 9:54 am by infinitelywondering

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» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
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Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

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Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

Post  Sarah2993 on Sun Jan 01, 2017 9:39 am

Hi, ladies!
I'm 23 and have been dealing with these issues for about 5 years. Like many of you, it took some time, persistence, and several different doctors to finally get diagnoses. I have 3 separate issues that all interact with each other.
1. Pelvic floor tightness: I've been doing physical therapy for about 5 months now with little to no improvement. The next step in PT is dry needling which sounds absolutely awful, but what do I have to lose?
2. Provoked vestibulodynia: I've tried gabapentin, lidocaine, clobetasol, aquaphor, clindamycin (to rule out strep-B) and estrogen. I switched from the pill to an IUD because my doctor said the pill can exacerbate/cause vulvodynia. I'm careful about what substances I come into contact with (for example, I stopped using fabric softener on underwear).
3. Tearing/Fissuring: Every single time I have sex, I tear at the vaginal opening, at/near the posterior fourchette. I also tear (but not as badly) from a speculum being used in an exam. My doctor doesn't know exactly why I tear, but since I've failed all conservative treatments, my only remaining option is surgery. She will do a vestibulectomy to hopefully get rid of the vestibulodynia issue altogether, and then advance some vaginal tissue forward over the posterior fourchette area to address the tearing issue since vaginal tissue is more elastic. And I might have Botox injections during the surgery to help with the muscle tightness, but I'm waiting to decide on that for sure until I can give dry needling a shot.

So here are my questions...does anyone else here tear on a regular basis? Anyone else considering surgery? (Especially the vaginal advancement part). Anyone have experience with/opinions on dry needling vs. Botox for the pelvic floor muscles? Any advice/suggestions?

Thanks!
Sarah

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Re: Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

Post  PainBlogger on Thu Jan 05, 2017 1:21 pm

I don't have any experience of Botox, surgery, or tearing, so I can't advise on those. I've had dry needling though in the piriformis muscles at the top of the buttocks not in the pelvic floor. I have to say, it was pretty unpleasant and I felt a bit bruised afterwards but did make the muscles relax for a while.

I hope you find something that helps soon.

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