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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

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Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

Post  Sarah2993 on Sun Jan 01, 2017 9:39 am

Hi, ladies!
I'm 23 and have been dealing with these issues for about 5 years. Like many of you, it took some time, persistence, and several different doctors to finally get diagnoses. I have 3 separate issues that all interact with each other.
1. Pelvic floor tightness: I've been doing physical therapy for about 5 months now with little to no improvement. The next step in PT is dry needling which sounds absolutely awful, but what do I have to lose?
2. Provoked vestibulodynia: I've tried gabapentin, lidocaine, clobetasol, aquaphor, clindamycin (to rule out strep-B) and estrogen. I switched from the pill to an IUD because my doctor said the pill can exacerbate/cause vulvodynia. I'm careful about what substances I come into contact with (for example, I stopped using fabric softener on underwear).
3. Tearing/Fissuring: Every single time I have sex, I tear at the vaginal opening, at/near the posterior fourchette. I also tear (but not as badly) from a speculum being used in an exam. My doctor doesn't know exactly why I tear, but since I've failed all conservative treatments, my only remaining option is surgery. She will do a vestibulectomy to hopefully get rid of the vestibulodynia issue altogether, and then advance some vaginal tissue forward over the posterior fourchette area to address the tearing issue since vaginal tissue is more elastic. And I might have Botox injections during the surgery to help with the muscle tightness, but I'm waiting to decide on that for sure until I can give dry needling a shot.

So here are my questions...does anyone else here tear on a regular basis? Anyone else considering surgery? (Especially the vaginal advancement part). Anyone have experience with/opinions on dry needling vs. Botox for the pelvic floor muscles? Any advice/suggestions?

Thanks!
Sarah

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Re: Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

Post  PainBlogger on Thu Jan 05, 2017 1:21 pm

I don't have any experience of Botox, surgery, or tearing, so I can't advise on those. I've had dry needling though in the piriformis muscles at the top of the buttocks not in the pelvic floor. I have to say, it was pretty unpleasant and I felt a bit bruised afterwards but did make the muscles relax for a while.

I hope you find something that helps soon.

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