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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

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Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

Post  Sarah2993 on Sun Jan 01, 2017 9:39 am

Hi, ladies!
I'm 23 and have been dealing with these issues for about 5 years. Like many of you, it took some time, persistence, and several different doctors to finally get diagnoses. I have 3 separate issues that all interact with each other.
1. Pelvic floor tightness: I've been doing physical therapy for about 5 months now with little to no improvement. The next step in PT is dry needling which sounds absolutely awful, but what do I have to lose?
2. Provoked vestibulodynia: I've tried gabapentin, lidocaine, clobetasol, aquaphor, clindamycin (to rule out strep-B) and estrogen. I switched from the pill to an IUD because my doctor said the pill can exacerbate/cause vulvodynia. I'm careful about what substances I come into contact with (for example, I stopped using fabric softener on underwear).
3. Tearing/Fissuring: Every single time I have sex, I tear at the vaginal opening, at/near the posterior fourchette. I also tear (but not as badly) from a speculum being used in an exam. My doctor doesn't know exactly why I tear, but since I've failed all conservative treatments, my only remaining option is surgery. She will do a vestibulectomy to hopefully get rid of the vestibulodynia issue altogether, and then advance some vaginal tissue forward over the posterior fourchette area to address the tearing issue since vaginal tissue is more elastic. And I might have Botox injections during the surgery to help with the muscle tightness, but I'm waiting to decide on that for sure until I can give dry needling a shot.

So here are my questions...does anyone else here tear on a regular basis? Anyone else considering surgery? (Especially the vaginal advancement part). Anyone have experience with/opinions on dry needling vs. Botox for the pelvic floor muscles? Any advice/suggestions?

Thanks!
Sarah

Sarah2993

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Re: Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

Post  PainBlogger on Thu Jan 05, 2017 1:21 pm

I don't have any experience of Botox, surgery, or tearing, so I can't advise on those. I've had dry needling though in the piriformis muscles at the top of the buttocks not in the pelvic floor. I have to say, it was pretty unpleasant and I felt a bit bruised afterwards but did make the muscles relax for a while.

I hope you find something that helps soon.

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