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Sat May 26, 2018 5:21 pm by Aquaben

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Tue May 22, 2018 7:22 pm by SinclairSassy

» Cleveland Clinic - Pain Management, Weston, FL
Tue May 22, 2018 7:13 pm by SinclairSassy

» Finally found a place for me...
Mon May 21, 2018 4:08 am by mtsp

» UK Vulvodynia Clinics
Sun May 20, 2018 9:58 am by katycrawford

» 8 years and struggling
Thu May 17, 2018 11:22 pm by Kezz

» Vestibulectomy recovery question!
Thu May 17, 2018 11:11 pm by Kezz

» Gabapentin Gel. or other topical creams
Thu May 17, 2018 11:55 am by Rosie21

» What has been helping ME (much less pain over time!!)
Wed May 16, 2018 3:43 am by leoscc

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 5

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14


Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

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Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

Post  Sarah2993 on Sun Jan 01, 2017 9:39 am

Hi, ladies!
I'm 23 and have been dealing with these issues for about 5 years. Like many of you, it took some time, persistence, and several different doctors to finally get diagnoses. I have 3 separate issues that all interact with each other.
1. Pelvic floor tightness: I've been doing physical therapy for about 5 months now with little to no improvement. The next step in PT is dry needling which sounds absolutely awful, but what do I have to lose?
2. Provoked vestibulodynia: I've tried gabapentin, lidocaine, clobetasol, aquaphor, clindamycin (to rule out strep-B) and estrogen. I switched from the pill to an IUD because my doctor said the pill can exacerbate/cause vulvodynia. I'm careful about what substances I come into contact with (for example, I stopped using fabric softener on underwear).
3. Tearing/Fissuring: Every single time I have sex, I tear at the vaginal opening, at/near the posterior fourchette. I also tear (but not as badly) from a speculum being used in an exam. My doctor doesn't know exactly why I tear, but since I've failed all conservative treatments, my only remaining option is surgery. She will do a vestibulectomy to hopefully get rid of the vestibulodynia issue altogether, and then advance some vaginal tissue forward over the posterior fourchette area to address the tearing issue since vaginal tissue is more elastic. And I might have Botox injections during the surgery to help with the muscle tightness, but I'm waiting to decide on that for sure until I can give dry needling a shot.

So here are my questions...does anyone else here tear on a regular basis? Anyone else considering surgery? (Especially the vaginal advancement part). Anyone have experience with/opinions on dry needling vs. Botox for the pelvic floor muscles? Any advice/suggestions?

Thanks!
Sarah

Sarah2993

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Re: Provoked Vestibulodynia + Pelvic Floor Tightness + Tearing/Fissures. Having surgery

Post  PainBlogger on Thu Jan 05, 2017 1:21 pm

I don't have any experience of Botox, surgery, or tearing, so I can't advise on those. I've had dry needling though in the piriformis muscles at the top of the buttocks not in the pelvic floor. I have to say, it was pretty unpleasant and I felt a bit bruised afterwards but did make the muscles relax for a while.

I hope you find something that helps soon.

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