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» First post and recommendations for acupuncture in the UK?
Wed Apr 19, 2017 9:28 am by pr3ston

» Does Vulvodynia affect your sexual partner?
Mon Apr 17, 2017 9:48 pm by amyhp

» Internal anal fissures and VVS, somebody kill me please!
Sat Apr 15, 2017 4:04 pm by Kezz

» Wife with Vulvadynia scheduled for surgery
Thu Apr 13, 2017 7:39 pm by amyhp

» Male visitor
Tue Apr 11, 2017 8:56 pm by emalita

» New member
Mon Apr 10, 2017 4:08 pm by Lisa1627

» Don't let Vulvodynia win. You are so much stronger than you realize!!!
Thu Apr 06, 2017 11:54 pm by overit14

» New Here: Question/My Story
Thu Apr 06, 2017 11:44 pm by overit14

» Post Vestibulectomy: Any tips
Tue Apr 04, 2017 10:43 pm by SummerMalone

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 2

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 1

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 4

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 9

Has anyone tried Reflexology as a treatment

Wed Nov 30, 2016 8:54 pm by Roselilyflower

Hi there everyone, I was diagnosed with vulvodynia about 5 months ago. It all started as an allergic reaction to some thrush cream I used to treat a yeast infection which I got agter a heafty load of antibiotics. I have been tested umteen times for herpes etc and I am all clear which is reassuring but still depressing as Inwas not sure what the hell was going on, then finally I was given an …

Comments: 3

I just found this site tonight

Mon Feb 20, 2017 8:35 am by surprisemom44

Hello all,

I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had …

Comments: 1

Pain following a vaginal cyst procedure a year ago.

Sat Feb 11, 2017 11:22 pm by crackleberry

Hi everyone, I'm sorry this is going to be long, but please listen and help if you can. I am a 17 year old girl. In february of 2016 I had a mass protruding from my vagina, I went to the er, they didn't know what kind of cyst it was but they did an incision and drainage and put a word catheter in to help the cyst drain. During the procedure I had a sharp pain from where she cut me, but once it …

Comments: 0


Here again ......

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Here again ......

Post  Jacky51 on Sat Jan 07, 2017 10:10 am

Six years ago I had vulvodynia and finally treated it by seeing a pain consultant who prescribed Lyrica.  It was a life saver within 48 hours the pain was gone!  I stayed on it for a couple of years and then successfully weaned off it and the pain did not come back.  My pain is totally neuropathic, I don't have any skin issues, tight muscles etc.

Fast forward to now and the pain has come back ..... I had a melt down over a Christmas and know that this has again been triggered by my nerves.  I am in agony.  I have been to the drs and am again on 2 x 75mgs of pregabalin.  I have been taking it for just over 3 days with no reduction in pain.  I am getting myself in a real state, I am worried sick that the mess won't work this time round.  I have got an appt with my old pain consultant next Weds (paying privately).  I can't believe I am back where I started, I'm bereft

Has anyone else come off Lyrica and gone back on it. Did it work a second time?

Jacky51

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Join date : 2010-11-15
Location : East London

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hang in there

Post  Penny prickles on Sat Mar 18, 2017 3:28 pm

you will get better, we all have had set backs with this terrible condition, I know I have. It's very scary thinking you will be in pain again, but maybe an adjustment in your medication is all you'll need, like me. Or maybe to try a different one. you were able to get better before, hang in there you well be better again.

Penny prickles

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