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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

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MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


Treatment ideas for daily provoked pain

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Treatment ideas for daily provoked pain

Post  TMN1994 on Sat Jan 07, 2017 2:02 pm

Hi everyone,
I have had vulvodynia for three and a half years and have other types of peripheral neuropathy, which developed 6 months ago. My neurologist believes that we will never find a black-and-white cause, and that it is best to proceed just addressing and allievating the symptoms. Since last June (when my nervous system completely imploded), my vuvlodynia has been horrendous. Walking and moving around are really painful, so (despite all of the other types of peripheral neuropathy) vulvodynia is my main concern at the moment.

I am seeing a pain consultant who specialises in gynaecological pain. I have seen so many doctors over my lifetime that I have decided I want to go in to appointments with a few solid ideas of treatments instead of solely relying on the doctor to provide ideas. So I was wondering if anyone has any treatments they would recommend for someone with severe daily pain, that is largely provoked by touch or friction? I want to push for injections- I can't keep applying numbing cream every 2 hours for the rest of my life! Would it be possible to get some ideas? I want to compile a list so that I can discuss the pros and cons of each with her. I would be really grateful for any suggestions.

I have never spoken to anyone with vulvodynia before, so really want to hear from people with the same condition, as I feel so isolated at the moment.
Thank you!
Antonia

TMN1994

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Re: Treatment ideas for daily provoked pain

Post  PainBlogger on Sat Jan 07, 2017 2:39 pm

Have you tried any oral medications - such as amitriptyline, nortriptyline, gabapentin, pregabalin, or duloxetine?

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Re: Treatment ideas for daily provoked pain

Post  TMN1994 on Sat Jan 07, 2017 3:26 pm

Hi Painblogger,
I have- I am on amitriptyline 80mg and pregablin 200mg (twice a day). As my problem is global neuropathy I am searching for a medication that will work systemically. However my vulvodynia is so bad that I also want a regional treatment.
Do you have any thoughts? I will use the list of meds that you gave and ask my doctor about each as well so thank you!

TMN1994

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Re: Treatment ideas for daily provoked pain

Post  PainBlogger on Sat Jan 07, 2017 4:46 pm

I also have widespread neuropathic pain (back, neck, hips, shoulders) from fibromyalgia and I've been through all those meds I listed. I'm now on duloxetine 90mg/day and it's the most effective of all I've tried for both the vulvodynia and other body pain. My vulval pain is really minimal now and I'm pain free much of the time. I also take a low dose of tramadol but while that helps my other pain it's never helped with the vulvodynia/bladder pain.

Here's a summary of my vulval pain history: http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement

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Re: Treatment ideas for daily provoked pain

Post  TMN1994 on Sat Jan 07, 2017 10:51 pm

Thank you for your reply! I have read over the main post and I am going to make notes and take they along to my next appointment.

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Re: Treatment ideas for daily provoked pain

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