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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Treatment ideas for daily provoked pain

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Treatment ideas for daily provoked pain

Post  TMN1994 on Sat Jan 07, 2017 2:02 pm

Hi everyone,
I have had vulvodynia for three and a half years and have other types of peripheral neuropathy, which developed 6 months ago. My neurologist believes that we will never find a black-and-white cause, and that it is best to proceed just addressing and allievating the symptoms. Since last June (when my nervous system completely imploded), my vuvlodynia has been horrendous. Walking and moving around are really painful, so (despite all of the other types of peripheral neuropathy) vulvodynia is my main concern at the moment.

I am seeing a pain consultant who specialises in gynaecological pain. I have seen so many doctors over my lifetime that I have decided I want to go in to appointments with a few solid ideas of treatments instead of solely relying on the doctor to provide ideas. So I was wondering if anyone has any treatments they would recommend for someone with severe daily pain, that is largely provoked by touch or friction? I want to push for injections- I can't keep applying numbing cream every 2 hours for the rest of my life! Would it be possible to get some ideas? I want to compile a list so that I can discuss the pros and cons of each with her. I would be really grateful for any suggestions.

I have never spoken to anyone with vulvodynia before, so really want to hear from people with the same condition, as I feel so isolated at the moment.
Thank you!
Antonia

TMN1994

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Re: Treatment ideas for daily provoked pain

Post  PainBlogger on Sat Jan 07, 2017 2:39 pm

Have you tried any oral medications - such as amitriptyline, nortriptyline, gabapentin, pregabalin, or duloxetine?

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Re: Treatment ideas for daily provoked pain

Post  TMN1994 on Sat Jan 07, 2017 3:26 pm

Hi Painblogger,
I have- I am on amitriptyline 80mg and pregablin 200mg (twice a day). As my problem is global neuropathy I am searching for a medication that will work systemically. However my vulvodynia is so bad that I also want a regional treatment.
Do you have any thoughts? I will use the list of meds that you gave and ask my doctor about each as well so thank you!

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Re: Treatment ideas for daily provoked pain

Post  PainBlogger on Sat Jan 07, 2017 4:46 pm

I also have widespread neuropathic pain (back, neck, hips, shoulders) from fibromyalgia and I've been through all those meds I listed. I'm now on duloxetine 90mg/day and it's the most effective of all I've tried for both the vulvodynia and other body pain. My vulval pain is really minimal now and I'm pain free much of the time. I also take a low dose of tramadol but while that helps my other pain it's never helped with the vulvodynia/bladder pain.

Here's a summary of my vulval pain history: http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement

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Re: Treatment ideas for daily provoked pain

Post  TMN1994 on Sat Jan 07, 2017 10:51 pm

Thank you for your reply! I have read over the main post and I am going to make notes and take they along to my next appointment.

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