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» Vestibulectory removes 85% of pain, Birth removes 15%
Yesterday at 8:27 pm by pangea

» Recovered! It gets better!
Fri May 26, 2017 9:40 pm by mary jane

» Pain management - what works for me
Fri May 26, 2017 6:21 pm by SinclairSassy

» Vestibulitiis surgery
Mon May 22, 2017 4:18 pm by Gill

» Does it go away?
Mon May 22, 2017 2:12 pm by mary jane

» Amitriptyline and Uribel
Mon May 22, 2017 1:35 pm by SinclairSassy

» Post Full Vestibulectomy - 5 Years Later - Please Read
Mon May 22, 2017 10:12 am by flick001

» Social Security Disability Benefits
Fri May 19, 2017 8:50 pm by SinclairSassy

» Recovered from Vulvodynia
Thu May 18, 2017 4:20 pm by sarahjane1332343

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 9

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 1

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 4


Wife with Vulvadynia scheduled for surgery

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Wife with Vulvadynia scheduled for surgery

Post  Mitch on Wed Jan 11, 2017 8:31 pm

Hello, I am new to the forum. I live in Florida and I am grateful for the information on this forum. My wife is scheduled for surgery in a few weeks for a vulvar vestibulectomy but received a second opinion today and is obtaining a third opinion next week from a doctor Jay Trabin in West Palm Beach. She has provoked vulvar vestibulitis which she has always had with some pelvic floor muscle spasms and atropic vaginitis (Thinning of the vaginal walls and decreased lubrication likely due to the removal of her ovaries about 5 years ago). She also had a full preventative Mastectomy about 6 years ago and continues to experience pain and numbness so she is naturally wary of another surgery for he vestibulitis. We learned about Dr. Trabin from this site and also from the nva. She is meeting with him on Tuesday next week. She is scheduled for surgery Feb 1st with Dr. Kurt Christopher who is
originally from New York but recently relocated to Florida. He does not have a permanent office and is a little new to Florida due to his relocation but he seems very knowledgeable and experienced with this surgery. He indicated that there is a gamut of things that can be tried but are not likely to help based on her history and said she would really need the surgery. He offered that she try the Capascian ointment which contains a percentage of extrememly hot peppers but we did not want to go that route We are looking for support and advice from anyone willing, especially in Florida as we go through this journey together step by step and decide the best course of action. She saw a Doctor Carugno in Miami today who suggested pelvic floor exercises, oral medications and creams and surgery only as a last resort. She tries some of this on a limited basis years ago with no significant improvement. This sounded like the things Dr Christopher said would probably not work. Dr Carugno said the surgery only had a 50 percent success rate whereas Dr Christopher said it was more like 95 percent with intimacy practically pain free after treatment. As I recall, at least one person from the forum has had surgery with Dr. Trabin who she is seeing for the final opinion next week. We would really appreciate any support and guidance anyone can provide for us. Thank you!

Mitch

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Re: Wife with Vulvadynia scheduled for surgery

Post  ellenb on Tue Mar 28, 2017 10:56 pm

Mitch did she have the surgery? How is she doing. I too have suffered for many years. I'm having 3 mona lisa thearpy treatments had 1 but not much of a difference. My Dr. Suggessted surgery as a last resort but I'm very wary!! I have had some luck with gapapentin orally. Keep us updated

ellenb

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Try Everything First

Post  amyhp on Thu Apr 13, 2017 7:39 pm

Hi, I want to encourage you and your wife to try everything before going for surgery. I tried everything and did not get better, but surgery made me worse. A lot of women get relief from surgery, but a lot of women do not as well. I am so thankful I exhausted every option before surgery because regretting the procedure is absolutely awful. I get that living in regret gets you nowhere, but when you feel the pain constantly those emotions are triggered. Is your wife in constant pain or is it just pain with sex?

amyhp

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Re: Wife with Vulvadynia scheduled for surgery

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