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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Wife with Vulvadynia scheduled for surgery

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Wife with Vulvadynia scheduled for surgery

Post  Mitch on Wed Jan 11, 2017 8:31 pm

Hello, I am new to the forum. I live in Florida and I am grateful for the information on this forum. My wife is scheduled for surgery in a few weeks for a vulvar vestibulectomy but received a second opinion today and is obtaining a third opinion next week from a doctor Jay Trabin in West Palm Beach. She has provoked vulvar vestibulitis which she has always had with some pelvic floor muscle spasms and atropic vaginitis (Thinning of the vaginal walls and decreased lubrication likely due to the removal of her ovaries about 5 years ago). She also had a full preventative Mastectomy about 6 years ago and continues to experience pain and numbness so she is naturally wary of another surgery for he vestibulitis. We learned about Dr. Trabin from this site and also from the nva. She is meeting with him on Tuesday next week. She is scheduled for surgery Feb 1st with Dr. Kurt Christopher who is
originally from New York but recently relocated to Florida. He does not have a permanent office and is a little new to Florida due to his relocation but he seems very knowledgeable and experienced with this surgery. He indicated that there is a gamut of things that can be tried but are not likely to help based on her history and said she would really need the surgery. He offered that she try the Capascian ointment which contains a percentage of extrememly hot peppers but we did not want to go that route We are looking for support and advice from anyone willing, especially in Florida as we go through this journey together step by step and decide the best course of action. She saw a Doctor Carugno in Miami today who suggested pelvic floor exercises, oral medications and creams and surgery only as a last resort. She tries some of this on a limited basis years ago with no significant improvement. This sounded like the things Dr Christopher said would probably not work. Dr Carugno said the surgery only had a 50 percent success rate whereas Dr Christopher said it was more like 95 percent with intimacy practically pain free after treatment. As I recall, at least one person from the forum has had surgery with Dr. Trabin who she is seeing for the final opinion next week. We would really appreciate any support and guidance anyone can provide for us. Thank you!

Mitch

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Re: Wife with Vulvadynia scheduled for surgery

Post  ellenb on Tue Mar 28, 2017 10:56 pm

Mitch did she have the surgery? How is she doing. I too have suffered for many years. I'm having 3 mona lisa thearpy treatments had 1 but not much of a difference. My Dr. Suggessted surgery as a last resort but I'm very wary!! I have had some luck with gapapentin orally. Keep us updated

ellenb

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Try Everything First

Post  amyhp on Thu Apr 13, 2017 7:39 pm

Hi, I want to encourage you and your wife to try everything before going for surgery. I tried everything and did not get better, but surgery made me worse. A lot of women get relief from surgery, but a lot of women do not as well. I am so thankful I exhausted every option before surgery because regretting the procedure is absolutely awful. I get that living in regret gets you nowhere, but when you feel the pain constantly those emotions are triggered. Is your wife in constant pain or is it just pain with sex?

amyhp

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Re: Wife with Vulvadynia scheduled for surgery

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