Log in

I forgot my password

Latest topics
Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


Wife with Vulvadynia scheduled for surgery

Go down

Wife with Vulvadynia scheduled for surgery

Post  Mitch on Wed Jan 11, 2017 8:31 pm

Hello, I am new to the forum. I live in Florida and I am grateful for the information on this forum. My wife is scheduled for surgery in a few weeks for a vulvar vestibulectomy but received a second opinion today and is obtaining a third opinion next week from a doctor Jay Trabin in West Palm Beach. She has provoked vulvar vestibulitis which she has always had with some pelvic floor muscle spasms and atropic vaginitis (Thinning of the vaginal walls and decreased lubrication likely due to the removal of her ovaries about 5 years ago). She also had a full preventative Mastectomy about 6 years ago and continues to experience pain and numbness so she is naturally wary of another surgery for he vestibulitis. We learned about Dr. Trabin from this site and also from the nva. She is meeting with him on Tuesday next week. She is scheduled for surgery Feb 1st with Dr. Kurt Christopher who is
originally from New York but recently relocated to Florida. He does not have a permanent office and is a little new to Florida due to his relocation but he seems very knowledgeable and experienced with this surgery. He indicated that there is a gamut of things that can be tried but are not likely to help based on her history and said she would really need the surgery. He offered that she try the Capascian ointment which contains a percentage of extrememly hot peppers but we did not want to go that route We are looking for support and advice from anyone willing, especially in Florida as we go through this journey together step by step and decide the best course of action. She saw a Doctor Carugno in Miami today who suggested pelvic floor exercises, oral medications and creams and surgery only as a last resort. She tries some of this on a limited basis years ago with no significant improvement. This sounded like the things Dr Christopher said would probably not work. Dr Carugno said the surgery only had a 50 percent success rate whereas Dr Christopher said it was more like 95 percent with intimacy practically pain free after treatment. As I recall, at least one person from the forum has had surgery with Dr. Trabin who she is seeing for the final opinion next week. We would really appreciate any support and guidance anyone can provide for us. Thank you!

Mitch

Posts : 2
Join date : 2017-01-11

View user profile

Back to top Go down

Re: Wife with Vulvadynia scheduled for surgery

Post  ellenb on Tue Mar 28, 2017 10:56 pm

Mitch did she have the surgery? How is she doing. I too have suffered for many years. I'm having 3 mona lisa thearpy treatments had 1 but not much of a difference. My Dr. Suggessted surgery as a last resort but I'm very wary!! I have had some luck with gapapentin orally. Keep us updated

ellenb

Posts : 2
Join date : 2017-03-28

View user profile

Back to top Go down

Try Everything First

Post  amyhp on Thu Apr 13, 2017 7:39 pm

Hi, I want to encourage you and your wife to try everything before going for surgery. I tried everything and did not get better, but surgery made me worse. A lot of women get relief from surgery, but a lot of women do not as well. I am so thankful I exhausted every option before surgery because regretting the procedure is absolutely awful. I get that living in regret gets you nowhere, but when you feel the pain constantly those emotions are triggered. Is your wife in constant pain or is it just pain with sex?

amyhp

Posts : 34
Join date : 2015-09-22

View user profile

Back to top Go down

Re: Wife with Vulvadynia scheduled for surgery

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum