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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

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7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

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Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Post-vestibulectomy (partial) recovery- going back to work?

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Post-vestibulectomy (partial) recovery- going back to work?

Post  Gill on Wed Jan 18, 2017 7:25 pm

Hi,

I have a partial vestibulectomy and hymenectomy scheduled for Monday. My doctor has said that I will need about a week to recover, but I haven't seen anything less than two weeks on Internet forums, and I've seen one comment that said you shouldn't go back to work before six weeks!

I know that some of the comments have been for full vestibulectomies; if you've had a partial, how long was it before you went back to work? I've seen people say that doing too much too soon can make the surgery less likely to work, so don't want to get it wrong, but have to try to convince my Dr, so wanted to know what people's experiences are of recovery from partial...?

Thank you!

Gill

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Re: Post-vestibulectomy (partial) recovery- going back to work?

Post  sj17 on Sat May 06, 2017 5:50 pm

Hi! I don't really have much to add in terms of your questions but I have suffered from Vulvodynia from the age of 15 and I'm now 21. I'm looking into getting surgery and I was wondering which is the doc / hospital you are hoping to get the surgery from?

Thanks, Sarah

sj17

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Dr

Post  Gill on Sat May 06, 2017 6:18 pm

Hi Sarah, I saw Dr Hutchon at Solihull Hospital. As far as I understood I was her first vestibulodynia vestibulectomy. Surgery and recovery were fine, and the area she operated on massively improved.

My pain was all primary provoked. I still have a lot of pain in other surrounding areas of the vestibule that weren't removed.

I would also recommend the Face book group 'vestibulectomy surgery and vestibulodynia support group'. If you look through the historical posts ppl also recommend Dr Gabrielle Downey in bham.

Gill

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Re: Post-vestibulectomy (partial) recovery- going back to work?

Post  sj17 on Sat May 06, 2017 7:14 pm

Hi Gill,

Thank you for your very speedy response. I have found the one in Birmingham you suggested, she seems to be very experienced. Was your surgery on the NHS? How did your surgery go as I know you had it in January? I have unprovoked vulvodynia as it just burns constantly, do you think she would be likely to operate on me?

Thanks

sj17

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Re: Post-vestibulectomy (partial) recovery- going back to work?

Post  Gill on Sat May 06, 2017 9:05 pm

Hi, I haven't seen her, and as mine is provoked I don't know whether surgery is a viable option for unprovoked, sorry. I just know that provoked is ideal.

My surgery was on the NHS. It was partial, 3pm to 9pm on the clock face. Surgery was smooth. Done in the morning, over by mid morning, went home the next morning (some ppl go home the same day), recovery for 2 weeks at home. The pain was never as bad as it was from vv! It just got itchy when the skin started to knit together between days 4-11ish. There's a lot of advice about how to deal w surgery on the Fb page I mentioned.

Spoke to dr recently and she said I'll need to wait a few more months before we know completely how well it's worked, but I have had massive improvement in the area that was removed. The tissue on either side (1-3pm and 9-10pm) is still a serious problem but not as bad as the tissue that was removed, and the surgeon said this can happen in the short-medium term with vaginal tissue. She said there may be further improvements over the next few months.

Gill

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Re: Post-vestibulectomy (partial) recovery- going back to work?

Post  sj17 on Sat May 06, 2017 9:43 pm

I truly hope you make a full recovery x

sj17

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RE

Post  Gill on Sat May 06, 2017 10:14 pm

Thank you. Same to you! Smile

Gill

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Surgery

Post  infinitelywondering on Sun May 07, 2017 9:26 am

Hi there,

I am having surgery in about 2 months by Dr Gabrielle Downey. I originally saw her privately but my operation will be on the NHS (You don't have to initially see her privately, I was just tired of waiting). I haven't had the surgery yet but she is brilliant and very knowledgeable. She assured me that she has an 80% success rate of being totally cured; the worst she said would be that my pain would just remain the same.

I'm hoping it all goes well! And I would definitely recommend her!

infinitelywondering

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Re: Post-vestibulectomy (partial) recovery- going back to work?

Post  sj17 on Mon May 08, 2017 8:53 am

Hiya! I have requested an appointment with her! How long did it take for your first appointment to now? Also do you have provoked or unprovoked vulvodynia if you don't mind me asking? I hope your surgery goes well and that you get the results you want.

sj17

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Re: Post-vestibulectomy (partial) recovery- going back to work?

Post  Kezz on Sat May 13, 2017 1:27 am

Hi girls! Such promising news of an experienced surgeon in England. Infinitelywondering, how much was the private appointment? I think I want to go down this route too. I've literally been waiting years and im sick of it now. After your private appointment did she suggest that you then go public for the operation? Also are you girls from Birmingham? My gp told me she couldn't refer me to anyone outside London on the nhs (i live in London) but I feel like she's wrong. I want the surgery so bad, i have provoked pain during sex.

Thanks gals xxx

Kezz

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Re: Post-vestibulectomy (partial) recovery- going back to work?

Post  sj17 on Tue May 16, 2017 4:04 pm

Hiya Kezz. I rung up the BMI hospital yesterday where the expert consultant is supposed to be at. It costs £180 for an initial consultation and I've had to wait around 2 and a half weeks (so still not that fab). It is a load of bollocks that your GP can't refer you to anybody outside of London. Demand it. Not sure how long you will be waiting for though - perhaps ask for an urgent referral or if you can afford it see her privately. I'm from Manchester and will be travelling down specially to see her. I will probably be going on the NHS for any procedures after that as it will cost thousands -- again each to their own though and depends what treatment she offers you. If you need any more info or help or advice PM me and I'll be happy to help Smile xx She will definitely be able to help you for your provoked pain.

sj17

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Re: Post-vestibulectomy (partial) recovery- going back to work?

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