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I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

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MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Post  infinitelywondering on Sat Jan 21, 2017 11:26 pm

Hi everyone,

Today I was diagnosed with Vestibulitis. After being dismissed and ignored by numerous GPs and NHS gynaes, I finally visited Mrs Gabrielle Downey in Birmingham. Not only was her manner so reassuring and kind but she efficiently diagnosed me in the space of about ten minutes. She was as frustrated as we all are about the lack of understanding of vulval pain within the medical community.

She prescribed me diflucan to remove any sort of infection if it exists, tetracaine (a numbing gel) which was incredibly effective for day to day management and a steroid cream to use day and nightly. We have arranged for a vestibulectomy if these treatments show no improvement- I am feeling so much more positive and happy now Smile

Mrs Downey has immense knowledge about all sorts of different types of vulval pain and she assured me I will get better very soon Smile She is at the Edgebaston Hospital (private) in Birmingham and I would absolutely recommend if you are in the UK that you go and see her. Around 90% of the women that she has operated on have made a complete recovery after so there is definitely hope!

Please do not lose hope. It may sound stupid but positive energy is one of the best things possible when battling this awful condition; we will all get better one day Smile

Good Luck everyone x


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Post  fairlight10 on Sun Jan 22, 2017 9:41 am

Thank you for posting this very useful information.I have made a note of her name etc. I think this lady was often on the tv programme Embarrassing Bodies.


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Post  srbry on Sat Mar 03, 2018 2:29 pm

Thank you for this, I've read a bit about this woman and might try and get a referral down to see her if nothing comes of my appointments in the north of England. Glad to hear you've finally got your diagnosis. xxx


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Post  HedvigB on Sun Nov 18, 2018 8:15 pm

Hi infinitelywondering

Any updates on your vulvodynia recovery? did the treatments help or did you have vestibulectomy in the end? I'm booked in for vestibulectomy in January and I don't really know what to expect...I'm freaking out. Would love to hear more about others experiences!


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Post  srbry on Sun Nov 18, 2018 8:42 pm

I've private messaged you Smile


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