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» Vulvadynia
Yesterday at 11:53 pm by Linda Williams

» Will I ever be able to wear jeans?
Wed Jul 19, 2017 11:02 pm by jungleclover

» Looking for a friend IRL; LA/OC
Wed Jul 19, 2017 10:58 pm by jungleclover

» Constant pain, I want to die.
Wed Jul 19, 2017 10:55 pm by jungleclover

» What is Vulvodynia?
Wed Jul 19, 2017 10:42 pm by jungleclover

» Anyone else get this from yeast infections? (new member)
Wed Jul 19, 2017 10:37 pm by jungleclover

» Owner of vulvodyniSuppoet.com
Wed Jul 19, 2017 10:28 pm by LaurenVV

» anyone from southern california in here?
Tue Jul 18, 2017 2:38 am by crypticcalico

» Surgery Success - Still early days, but going well so far!
Sun Jul 16, 2017 8:42 pm by sarahjane1332343

Vulvadynia

Fri Jul 21, 2017 11:53 pm by Linda Williams

I am 68 years old and a year ago was diagnosed with vestibulitis, then vulvadynia. I have a history of chinchilla bladder infections, have had major bladder repair, hysterectomy, mid 30's, an auto immune disease. I take a daily antibiotic to keep UTI's at bay. My doctor has done the Quip test which was uncomfortable but did not test anything. I use Premarin vaginal cream 2 times a week. These …

Comments: 0

Looking for a friend IRL; LA/OC

Tue Jul 18, 2017 2:51 am by crypticcalico

Hello!

I am hoping to find a friend in the LA/OC area that I can meet up with in person. I live in Long Beach, California and I am willing to drive a bit to meet. The only person that I've told about this is my doctor(s) and someone who couldn't wrap their brain around it. It would be nice to be able to talk to someone else who understands.

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 20

Owner of vulvodyniSuppoet.com

Wed Jul 19, 2017 10:28 pm by LaurenVV

Hi, I started vulvodyniasupport.com at the age of 28.
I was a leader when there was no help, no forums etc.

As I went on my path, I found acupuncture, herbs and time helped me recover.
Most never do.

I met a wonderful woman named Hanna. She was a patient and became a support leader. She lived in FLoroda.

I have moved on from the support world and found a career that allowed
Me to bring my …

Comments: 0

anyone from southern california in here?

Tue Jul 12, 2011 6:43 pm by Melissa777

Hi Im just wondering if anyone here is from so cal- USA
I am in san diego- but from LA!!!

Comments: 6

Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Tue Jul 04, 2017 9:01 am by Tired89

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior …

Comments: 2

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3


I just found this site tonight

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I just found this site tonight

Post  surprisemom44 on Mon Feb 20, 2017 8:35 am

Hello all,

I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had horrible discharge, severe itching, could hardly sit, I became depressed and gained 40 pounds in one year. At the age of 12! Later that year I got my first period. Things normalized after that and had no more serious issues until I became sexually active at 19. Then the cycle of bacterial vaginosis, yeast infection started. When I was pregnant at 25 I developed a bartholian cyst. Sometimes the skin in my vagina would split and crack and burn when urine touched it. After my son's birth, I had no problems until I turned 40. At that time I was living in Iran and access to good gynecological care was hard to come by. I had horrible burning, discharge, itching. I was treated with all kinds of medicines and creams even light therapy. Then amazingly got pregnant naturally at 44 and my symptoms abated until 2 years ago when I turned 50. They returned with a vengeance. Doctors wanted to put me on bc pills saying it would help normalize my hormone levels. Made everything worse. Then steroids. WORSE. Then the cycle of yeast infection, bacterial vaginosis, etc started again. In the last year especially it has been so horrible, that I applied for disability. I cannot stand clothing touching the area. I go to the restroom dozens of times throughout the day. I have gained 100 pounds in a little over 12 months. I feel like the only relief I get is when I am asleep. I am on antidepressants, Metformin to reduce blood sugar. I get some relief while taking garlic supplements. I have been taking cranberry pills thinking they would help, but from what I have been reading maybe they are making it worse. It got so bad this past fall, that I contemplated suicide. I was hospitalized for suicidal thoughts. Of course, while I was there I was diagnosed with a UTI and put on antibiotics which only exacerbated teh problem. I also have inverse psoriasis in my groin so the whole area down there is red, raw, itchy, inflamed. I guess this is a rant, sorry about that.

surprisemom44

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living abroad

Post  surprisemom44 on Mon Feb 20, 2017 8:40 am

Reading through posts I have noticed that many sufferers lived abroad at some point, as I did. Could this somehow be a contributing factor? Maybe the water supply had microbes that we had not been exposed to before. Or the medications are different. Or even the food. I don't know but my condition got much worse after living abroad.

surprisemom44

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