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» Amitriptyline given for vulvodyina pain
Today at 11:33 pm by WVR00

» Needing some reassurance
Today at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Today at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Today at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Yesterday at 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


I just found this site tonight

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I just found this site tonight

Post  surprisemom44 on Mon Feb 20, 2017 8:35 am

Hello all,

I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had horrible discharge, severe itching, could hardly sit, I became depressed and gained 40 pounds in one year. At the age of 12! Later that year I got my first period. Things normalized after that and had no more serious issues until I became sexually active at 19. Then the cycle of bacterial vaginosis, yeast infection started. When I was pregnant at 25 I developed a bartholian cyst. Sometimes the skin in my vagina would split and crack and burn when urine touched it. After my son's birth, I had no problems until I turned 40. At that time I was living in Iran and access to good gynecological care was hard to come by. I had horrible burning, discharge, itching. I was treated with all kinds of medicines and creams even light therapy. Then amazingly got pregnant naturally at 44 and my symptoms abated until 2 years ago when I turned 50. They returned with a vengeance. Doctors wanted to put me on bc pills saying it would help normalize my hormone levels. Made everything worse. Then steroids. WORSE. Then the cycle of yeast infection, bacterial vaginosis, etc started again. In the last year especially it has been so horrible, that I applied for disability. I cannot stand clothing touching the area. I go to the restroom dozens of times throughout the day. I have gained 100 pounds in a little over 12 months. I feel like the only relief I get is when I am asleep. I am on antidepressants, Metformin to reduce blood sugar. I get some relief while taking garlic supplements. I have been taking cranberry pills thinking they would help, but from what I have been reading maybe they are making it worse. It got so bad this past fall, that I contemplated suicide. I was hospitalized for suicidal thoughts. Of course, while I was there I was diagnosed with a UTI and put on antibiotics which only exacerbated teh problem. I also have inverse psoriasis in my groin so the whole area down there is red, raw, itchy, inflamed. I guess this is a rant, sorry about that.

surprisemom44

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living abroad

Post  surprisemom44 on Mon Feb 20, 2017 8:40 am

Reading through posts I have noticed that many sufferers lived abroad at some point, as I did. Could this somehow be a contributing factor? Maybe the water supply had microbes that we had not been exposed to before. Or the medications are different. Or even the food. I don't know but my condition got much worse after living abroad.

surprisemom44

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