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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

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I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

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Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

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New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

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New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

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Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

I just found this site tonight

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I just found this site tonight

Post  surprisemom44 on Mon Feb 20, 2017 8:35 am

Hello all,

I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had horrible discharge, severe itching, could hardly sit, I became depressed and gained 40 pounds in one year. At the age of 12! Later that year I got my first period. Things normalized after that and had no more serious issues until I became sexually active at 19. Then the cycle of bacterial vaginosis, yeast infection started. When I was pregnant at 25 I developed a bartholian cyst. Sometimes the skin in my vagina would split and crack and burn when urine touched it. After my son's birth, I had no problems until I turned 40. At that time I was living in Iran and access to good gynecological care was hard to come by. I had horrible burning, discharge, itching. I was treated with all kinds of medicines and creams even light therapy. Then amazingly got pregnant naturally at 44 and my symptoms abated until 2 years ago when I turned 50. They returned with a vengeance. Doctors wanted to put me on bc pills saying it would help normalize my hormone levels. Made everything worse. Then steroids. WORSE. Then the cycle of yeast infection, bacterial vaginosis, etc started again. In the last year especially it has been so horrible, that I applied for disability. I cannot stand clothing touching the area. I go to the restroom dozens of times throughout the day. I have gained 100 pounds in a little over 12 months. I feel like the only relief I get is when I am asleep. I am on antidepressants, Metformin to reduce blood sugar. I get some relief while taking garlic supplements. I have been taking cranberry pills thinking they would help, but from what I have been reading maybe they are making it worse. It got so bad this past fall, that I contemplated suicide. I was hospitalized for suicidal thoughts. Of course, while I was there I was diagnosed with a UTI and put on antibiotics which only exacerbated teh problem. I also have inverse psoriasis in my groin so the whole area down there is red, raw, itchy, inflamed. I guess this is a rant, sorry about that.


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living abroad

Post  surprisemom44 on Mon Feb 20, 2017 8:40 am

Reading through posts I have noticed that many sufferers lived abroad at some point, as I did. Could this somehow be a contributing factor? Maybe the water supply had microbes that we had not been exposed to before. Or the medications are different. Or even the food. I don't know but my condition got much worse after living abroad.


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