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Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 2

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6


I just found this site tonight

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I just found this site tonight

Post  surprisemom44 on Mon Feb 20, 2017 8:35 am

Hello all,

I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had horrible discharge, severe itching, could hardly sit, I became depressed and gained 40 pounds in one year. At the age of 12! Later that year I got my first period. Things normalized after that and had no more serious issues until I became sexually active at 19. Then the cycle of bacterial vaginosis, yeast infection started. When I was pregnant at 25 I developed a bartholian cyst. Sometimes the skin in my vagina would split and crack and burn when urine touched it. After my son's birth, I had no problems until I turned 40. At that time I was living in Iran and access to good gynecological care was hard to come by. I had horrible burning, discharge, itching. I was treated with all kinds of medicines and creams even light therapy. Then amazingly got pregnant naturally at 44 and my symptoms abated until 2 years ago when I turned 50. They returned with a vengeance. Doctors wanted to put me on bc pills saying it would help normalize my hormone levels. Made everything worse. Then steroids. WORSE. Then the cycle of yeast infection, bacterial vaginosis, etc started again. In the last year especially it has been so horrible, that I applied for disability. I cannot stand clothing touching the area. I go to the restroom dozens of times throughout the day. I have gained 100 pounds in a little over 12 months. I feel like the only relief I get is when I am asleep. I am on antidepressants, Metformin to reduce blood sugar. I get some relief while taking garlic supplements. I have been taking cranberry pills thinking they would help, but from what I have been reading maybe they are making it worse. It got so bad this past fall, that I contemplated suicide. I was hospitalized for suicidal thoughts. Of course, while I was there I was diagnosed with a UTI and put on antibiotics which only exacerbated teh problem. I also have inverse psoriasis in my groin so the whole area down there is red, raw, itchy, inflamed. I guess this is a rant, sorry about that.

surprisemom44

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living abroad

Post  surprisemom44 on Mon Feb 20, 2017 8:40 am

Reading through posts I have noticed that many sufferers lived abroad at some point, as I did. Could this somehow be a contributing factor? Maybe the water supply had microbes that we had not been exposed to before. Or the medications are different. Or even the food. I don't know but my condition got much worse after living abroad.

surprisemom44

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