Log in

I forgot my password

Latest topics
» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Go down

Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Post  sgw11 on Tue Feb 21, 2017 5:08 am

Hi everyone,

I just thought I'd share my experience with pudendal nerve blocks and botox for my provoked vulvodynia. For those who haven't seen some of my other posts, I've had vulvodynia for about 3 years now, and have tried many different treatments - amitriptyline cream, lyrica and amitriptyline oral medication, mona lisa laser, physio, cupping, chinese herbs...and I think that's about it. I was recommended surgery, but I told my gynaecologist I wanted to exhaust all options before I went down that path. She referred me to Professor Theirry Vancaille in Sydney, Australia (I'm originally from Melbourne) for pudendal nerve blocks and botox. First he examined me to see if I was a candidate and told me I was, then I had the procedures done the next day.

I had my first one done in April last year and it changed my life, I can now have pain free sex, although I still get the irritation for a day or two afterwards most of the time, although sometimes I don't! I do still have some bad days, which are usually exacerbated by drinking alcohol the night before. The effects of the procedure is supposed to last around 6 months, but it lasted longer for me. Towards the end of last year I noticed the pain started getting worse again, so I re-booked in with Theirry and he did the procedure again in January this year. Once again I pretty much instantaneously experienced the benefits of the nerve blocks and botox.

I know that everyone is different, but may I suggest for those looking for other avenues to explore to ask your gynaecologist about these procedures. It costs about $1500 all up including the anaesthetists fees. Feel free to message me with any questions!

Steph x

sgw11

Posts : 46
Join date : 2015-02-18

View user profile

Back to top Go down

Re: Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Post  mary jane on Thu Jun 08, 2017 12:27 pm

pretty cool and glad it worked !
what were your symptoms ?
avatar
mary jane

Posts : 335
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Post  Hopeitworks on Fri Aug 04, 2017 7:14 pm

sgw11,

I am so HAPPY for you! I have been thinking my vulvodynia is caused by nerve but no one will listen to me. So I had a Vestibulectomy a week ago because I felt I was out of options. Thank you so much for sharing your experience and if I need to I will figure out a way to get a nerve block.

Hopeitworks

Posts : 36
Join date : 2017-08-01
Location : United States

View user profile

Back to top Go down

Re: Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum