Log in

I forgot my password

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 3

Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Go down

Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Post  sgw11 on Tue Feb 21, 2017 5:08 am

Hi everyone,

I just thought I'd share my experience with pudendal nerve blocks and botox for my provoked vulvodynia. For those who haven't seen some of my other posts, I've had vulvodynia for about 3 years now, and have tried many different treatments - amitriptyline cream, lyrica and amitriptyline oral medication, mona lisa laser, physio, cupping, chinese herbs...and I think that's about it. I was recommended surgery, but I told my gynaecologist I wanted to exhaust all options before I went down that path. She referred me to Professor Theirry Vancaille in Sydney, Australia (I'm originally from Melbourne) for pudendal nerve blocks and botox. First he examined me to see if I was a candidate and told me I was, then I had the procedures done the next day.

I had my first one done in April last year and it changed my life, I can now have pain free sex, although I still get the irritation for a day or two afterwards most of the time, although sometimes I don't! I do still have some bad days, which are usually exacerbated by drinking alcohol the night before. The effects of the procedure is supposed to last around 6 months, but it lasted longer for me. Towards the end of last year I noticed the pain started getting worse again, so I re-booked in with Theirry and he did the procedure again in January this year. Once again I pretty much instantaneously experienced the benefits of the nerve blocks and botox.

I know that everyone is different, but may I suggest for those looking for other avenues to explore to ask your gynaecologist about these procedures. It costs about $1500 all up including the anaesthetists fees. Feel free to message me with any questions!

Steph x


Posts : 46
Join date : 2015-02-18

View user profile

Back to top Go down

Re: Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Post  mary jane on Thu Jun 08, 2017 12:27 pm

pretty cool and glad it worked !
what were your symptoms ?
mary jane

Posts : 328
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Post  Hopeitworks on Fri Aug 04, 2017 7:14 pm


I am so HAPPY for you! I have been thinking my vulvodynia is caused by nerve but no one will listen to me. So I had a Vestibulectomy a week ago because I felt I was out of options. Thank you so much for sharing your experience and if I need to I will figure out a way to get a nerve block.


Posts : 36
Join date : 2017-08-01
Location : United States

View user profile

Back to top Go down

Re: Pudendal Nerve Blocks and Botox for Vulvodynia - Round 2

Post  Sponsored content

Sponsored content

Back to top Go down

Back to top

- Similar topics

Permissions in this forum:
You cannot reply to topics in this forum