Vulvodynia Support
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» Hope to all my suffering ladies
Curing the Incurable. VLSC now only have Vulvodynia but 75% improved EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Curing the Incurable. VLSC now only have Vulvodynia but 75% improved EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Curing the Incurable. VLSC now only have Vulvodynia but 75% improved EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Curing the Incurable. VLSC now only have Vulvodynia but 75% improved EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Curing the Incurable. VLSC now only have Vulvodynia but 75% improved EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Curing the Incurable. VLSC now only have Vulvodynia but 75% improved EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Curing the Incurable. VLSC now only have Vulvodynia but 75% improved EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Curing the Incurable. VLSC now only have Vulvodynia but 75% improved EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Curing the Incurable. VLSC now only have Vulvodynia but 75% improved EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

4 posters

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Curing the Incurable. VLSC now only have Vulvodynia but 75% improved Empty Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

Post  BpCookie Thu Mar 02, 2017 3:43 pm

Hello all my darling ladies, I was diagnosed with Vulva Lichen Simplex Chronicus over 5 yrs ago (I don't even keep count anymore). I was told that there was no cure for VLSC but it could be treated. All the treatments failed and year after year my pain got worse. I was stuck in bed most of the time, crying and just wanting to die. The burning pain was constant, I walked like I had just gotten off a horse because even my thighs rubbing together caused pain, I had to sleep lying on my back with my legs spread apart and I was constantly sitting on an ice pack. After years of failed treatments, appointments with different Dr.s and never ending research, I ran across a gynecologist who specialized in.........everything to do with the vagina. He wasn't afraid to treat my VLSC aggressively and he wasted no time in doing so. He did two surgeries, one was to clear out the Hymen Crucibles and the second surgery was to remove skin from the areas that were the most painful. Then he did painful alcohol injections to deaden the nerve endings and the last things he did was to put me on Lyrica. OMG!!! Girls, I feel like a normal woman now. I still have pain and I still have to take Lyrica twice a day but my pain has been cut down by 75%. Some days I don't have pain at all. Also, the last test they did came back NORMAL. My VLSC was GONE. I am now left with Vulvodynia but I can live with that since my pain level is so low now. I can even have sex now. I rub on some Lidocaine 5% which numbs the area and then I inject some KY Jelly into the vagina using a syringe to make sure I am good and lubed and *walla* I can have sex. My life is back girl!!!

My advice to you is to due research, never stop trying to find a Dr. who can help you, trust me, there is one out there some where you just have to them and try every treatment thats thrown at you.

You may want to try Lyrica and Lidocaine 5% ointment.

I wish you all the very best luck. Hang in there.

hugs
Cookie
BpCookie
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

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Curing the Incurable. VLSC now only have Vulvodynia but 75% improved Empty Re: Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

Post  mary jane Tue Apr 25, 2017 3:13 pm

Amazing, happy for you !!!!
mary jane
mary jane

Posts : 345
Join date : 2013-10-05
Location : UK

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Curing the Incurable. VLSC now only have Vulvodynia but 75% improved Empty Doctor's Name

Post  amyhp Tue May 02, 2017 3:44 pm

Bpcookie,

Could you PM me the name of the doctor that did the alcohol injections to deaden the nerve endings?

Thanks,
Amy

amyhp

Posts : 34
Join date : 2015-09-22

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Curing the Incurable. VLSC now only have Vulvodynia but 75% improved Empty Re: Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

Post  sj17 Tue May 16, 2017 4:07 pm

Same for me.thanks

sj17

Posts : 32
Join date : 2017-05-06

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Curing the Incurable. VLSC now only have Vulvodynia but 75% improved Empty Re: Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

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