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    » New here would very much appreciate advice at the end of my rope
    Fri Jan 11, 2019 1:46 am by Jma990o

    » Diagnosed Recently
    Tue Jan 08, 2019 3:55 pm by flissyg

    » Looking for suggestions or encouragement
    Thu Jan 03, 2019 11:09 am by Gaby

    » Clinical Trial for Vulvodynia Treatment
    Wed Dec 19, 2018 7:13 pm by wramirez

    » New and need advice and help
    Thu Dec 13, 2018 9:48 am by Derry59

    » Things that have worked for me
    Tue Dec 11, 2018 11:32 am by Amethyst

    » Found relief after more than 15 years of pain!
    Tue Dec 11, 2018 11:17 am by Amethyst

    » I'm new to this forum and would love some advice! :)
    Tue Dec 11, 2018 3:06 am by Cin124

    » I think I know what causes vulvodynia-it's the memory of pain
    Sat Dec 08, 2018 1:24 pm by foxysugarpants

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 2

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 0

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 6

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 4

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 13

    Hello. Happy to have found this group.

    Fri Dec 07, 2018 9:01 pm by foxysugarpants

    I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

    Comments: 0

    Had this for 5 years, looking for people who understand

    Sat Oct 06, 2018 9:46 pm by blackberrie

    Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

    Comments: 3

    Anyone have pain with urination?

    Tue Oct 16, 2018 2:35 pm by mertzwl

    Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

    I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

    Comments: 6

    Diagnosed recently, looking for advice

    Sun Sep 02, 2018 12:51 am by Cloudberry

    Hi everyone,

    I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

    I’m a woman in my late 20s. Before getting diagnosed …

    Comments: 4


    Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

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    Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

    Post  BpCookie on Thu Mar 02, 2017 3:43 pm

    Hello all my darling ladies, I was diagnosed with Vulva Lichen Simplex Chronicus over 5 yrs ago (I don't even keep count anymore). I was told that there was no cure for VLSC but it could be treated. All the treatments failed and year after year my pain got worse. I was stuck in bed most of the time, crying and just wanting to die. The burning pain was constant, I walked like I had just gotten off a horse because even my thighs rubbing together caused pain, I had to sleep lying on my back with my legs spread apart and I was constantly sitting on an ice pack. After years of failed treatments, appointments with different Dr.s and never ending research, I ran across a gynecologist who specialized in.........everything to do with the vagina. He wasn't afraid to treat my VLSC aggressively and he wasted no time in doing so. He did two surgeries, one was to clear out the Hymen Crucibles and the second surgery was to remove skin from the areas that were the most painful. Then he did painful alcohol injections to deaden the nerve endings and the last things he did was to put me on Lyrica. OMG!!! Girls, I feel like a normal woman now. I still have pain and I still have to take Lyrica twice a day but my pain has been cut down by 75%. Some days I don't have pain at all. Also, the last test they did came back NORMAL. My VLSC was GONE. I am now left with Vulvodynia but I can live with that since my pain level is so low now. I can even have sex now. I rub on some Lidocaine 5% which numbs the area and then I inject some KY Jelly into the vagina using a syringe to make sure I am good and lubed and *walla* I can have sex. My life is back girl!!!

    My advice to you is to due research, never stop trying to find a Dr. who can help you, trust me, there is one out there some where you just have to them and try every treatment thats thrown at you.

    You may want to try Lyrica and Lidocaine 5% ointment.

    I wish you all the very best luck. Hang in there.

    hugs
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    BpCookie

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    Re: Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

    Post  mary jane on Tue Apr 25, 2017 3:13 pm

    Amazing, happy for you !!!!
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    Doctor's Name

    Post  amyhp on Tue May 02, 2017 3:44 pm

    Bpcookie,

    Could you PM me the name of the doctor that did the alcohol injections to deaden the nerve endings?

    Thanks,
    Amy

    amyhp

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    Re: Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

    Post  sj17 on Tue May 16, 2017 4:07 pm

    Same for me.thanks

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    Re: Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

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