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» 7 months since the diagnosis
Today at 9:09 am by Gaby

» Did going off antidepressants cause this?
Yesterday at 2:08 am by ryn207

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

» GREATFULL FOR THIS WEBSITE
Thu Aug 09, 2018 8:37 pm by Nicola Jost

» Can you guys tell me your experiences with diflucan/Fluconazole?
Tue Aug 07, 2018 6:01 am by Guest

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

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Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

Post  BpCookie on Thu Mar 02, 2017 3:43 pm

Hello all my darling ladies, I was diagnosed with Vulva Lichen Simplex Chronicus over 5 yrs ago (I don't even keep count anymore). I was told that there was no cure for VLSC but it could be treated. All the treatments failed and year after year my pain got worse. I was stuck in bed most of the time, crying and just wanting to die. The burning pain was constant, I walked like I had just gotten off a horse because even my thighs rubbing together caused pain, I had to sleep lying on my back with my legs spread apart and I was constantly sitting on an ice pack. After years of failed treatments, appointments with different Dr.s and never ending research, I ran across a gynecologist who specialized in.........everything to do with the vagina. He wasn't afraid to treat my VLSC aggressively and he wasted no time in doing so. He did two surgeries, one was to clear out the Hymen Crucibles and the second surgery was to remove skin from the areas that were the most painful. Then he did painful alcohol injections to deaden the nerve endings and the last things he did was to put me on Lyrica. OMG!!! Girls, I feel like a normal woman now. I still have pain and I still have to take Lyrica twice a day but my pain has been cut down by 75%. Some days I don't have pain at all. Also, the last test they did came back NORMAL. My VLSC was GONE. I am now left with Vulvodynia but I can live with that since my pain level is so low now. I can even have sex now. I rub on some Lidocaine 5% which numbs the area and then I inject some KY Jelly into the vagina using a syringe to make sure I am good and lubed and *walla* I can have sex. My life is back girl!!!

My advice to you is to due research, never stop trying to find a Dr. who can help you, trust me, there is one out there some where you just have to them and try every treatment thats thrown at you.

You may want to try Lyrica and Lidocaine 5% ointment.

I wish you all the very best luck. Hang in there.

hugs
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BpCookie

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Re: Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

Post  mary jane on Tue Apr 25, 2017 3:13 pm

Amazing, happy for you !!!!
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Doctor's Name

Post  amyhp on Tue May 02, 2017 3:44 pm

Bpcookie,

Could you PM me the name of the doctor that did the alcohol injections to deaden the nerve endings?

Thanks,
Amy

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Re: Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

Post  sj17 on Tue May 16, 2017 4:07 pm

Same for me.thanks

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Re: Curing the Incurable. VLSC now only have Vulvodynia but 75% improved

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