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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Anyone else have this?

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Anyone else have this?

Post  Sarah001 on Sun Feb 06, 2011 1:54 pm

Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?
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Re: Anyone else have this?

Post  Mouse on Sun Feb 06, 2011 7:34 pm

Sarah, my muscles feel like they are pulling and sometimes it feels like there is a massive bulldog clip (do you have those?) attached. Very ouch!

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Re: Anyone else have this?

Post  Sarah001 on Sun Feb 06, 2011 8:11 pm

Yes, I do! Quite alot of the time too and if I stretch my adductors it often makes them pull worse while I'm doing it. I'm trying an experiment of massaging the twangy bits on one side only to see if it helps. I was really wary of massaging the area because it's already very painful (hence only treating one side so if it makes it worse it isn't all over) but if twangy muscles are contributing I'm going to have to grin and bear it to get any relief. I've done it once on one side only so far and the muscles were very sore to the touch too. I'm not sure which muscles are under there either, can't seem to find out online.
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Re: Anyone else have this?

Post  noni on Mon Feb 07, 2011 4:07 am

Does anyone get very irritating pinching sensations on buttocks and thighs? Ouch.
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Re: Anyone else have this?

Post  Sarah001 on Mon Feb 07, 2011 7:49 pm

No but I do get burning down the front of the thighs sometimes and other times down the inner thighs. My glute area is a problem anyway because my hip rotators have lots of trigger points and of course my SI joints are problematic and painful too.
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Re: Anyone else have this?

Post  Mouse on Tue Feb 08, 2011 7:59 pm

Noni,

I went to physio yesterday and she's identified the pain that I get in backside and thighs to be an aggravated sciatic nerve. I think this is self inflicted as I sit with my feet under me a lot of the time because I can't close my legs comfortably. Physio on that was less than pleasant! I have a fairly handsome bruise! I now can't sit down either.

Google the sciatic nerve and see if that's where your pain is. It makes sense that when you overcompensate to accommodate one pain it can put pressure on something else. Fuck it!

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Re: Anyone else have this?

Post  Sebby (Admin) on Tue Feb 08, 2011 8:26 pm


LOL I like the Fuck it at the end Laughing

I get a sore and tender tail bone especially when I sit back cos I cant lean forward when I have a flare up as it puts pressure on the vulva....Fuck it!
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Re: Anyone else have this?

Post  Mouse on Tue Feb 08, 2011 9:22 pm

I do the tailbone sitting as well, thought that was working quite nicely until yesterday! Fuck it! Owww we have a new motto! I like it!

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Re: Anyone else have this?

Post  Sarah001 on Wed Feb 23, 2011 7:50 pm

Ok, after lots of research I'm fairly sure my twangy muscles are the ischiocavernosus and looking into what they do I found they prevent blood from draining from the area if they contract so it probably stands to reason if they're tight and twangy like mine are they will be stopping proper blood flow as that's what they do. This is very interesting as the inflamed skin I have in the area could well be due to this lack of draining which of course will prevent normal blood circulation in the area which is what Dr Glazer mentions. I was very surprised and interested to find that this is their function and am now attempting to remove the numerous trigger points in them.
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i wanted to know if anyone has this i only have problems at night i sting after i urinate and then i cant sleep it is a mystery to many doctors and we dont know whats going on i am taking elevil and estrace cream at night it only happens i could use some

Post  hawkss on Mon Mar 21, 2011 5:04 pm

Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?

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i could use some insight on this thanks

Post  hawkss on Mon Mar 21, 2011 5:06 pm

hawkss wrote:
Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?

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Re: Anyone else have this?

Post  Aussie on Fri Mar 25, 2011 4:39 am

I get the buldog clip feeling and the twangy muscles towards my groin area. I had these points massaged about 3 times over a 3 week period wiht deep tissue massage to realease the tightness it hurt like hell and bruised but not had the twangy pain since. Smile

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Re: Anyone else have this?

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