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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

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Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

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New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Anyone else have this?

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Anyone else have this?

Post  Sarah001 on Sun Feb 06, 2011 1:54 pm

Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?
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Re: Anyone else have this?

Post  Mouse on Sun Feb 06, 2011 7:34 pm

Sarah, my muscles feel like they are pulling and sometimes it feels like there is a massive bulldog clip (do you have those?) attached. Very ouch!

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Re: Anyone else have this?

Post  Sarah001 on Sun Feb 06, 2011 8:11 pm

Yes, I do! Quite alot of the time too and if I stretch my adductors it often makes them pull worse while I'm doing it. I'm trying an experiment of massaging the twangy bits on one side only to see if it helps. I was really wary of massaging the area because it's already very painful (hence only treating one side so if it makes it worse it isn't all over) but if twangy muscles are contributing I'm going to have to grin and bear it to get any relief. I've done it once on one side only so far and the muscles were very sore to the touch too. I'm not sure which muscles are under there either, can't seem to find out online.
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Re: Anyone else have this?

Post  noni on Mon Feb 07, 2011 4:07 am

Does anyone get very irritating pinching sensations on buttocks and thighs? Ouch.
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Re: Anyone else have this?

Post  Sarah001 on Mon Feb 07, 2011 7:49 pm

No but I do get burning down the front of the thighs sometimes and other times down the inner thighs. My glute area is a problem anyway because my hip rotators have lots of trigger points and of course my SI joints are problematic and painful too.
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Re: Anyone else have this?

Post  Mouse on Tue Feb 08, 2011 7:59 pm

Noni,

I went to physio yesterday and she's identified the pain that I get in backside and thighs to be an aggravated sciatic nerve. I think this is self inflicted as I sit with my feet under me a lot of the time because I can't close my legs comfortably. Physio on that was less than pleasant! I have a fairly handsome bruise! I now can't sit down either.

Google the sciatic nerve and see if that's where your pain is. It makes sense that when you overcompensate to accommodate one pain it can put pressure on something else. Fuck it!

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Re: Anyone else have this?

Post  Sebby (Admin) on Tue Feb 08, 2011 8:26 pm


LOL I like the Fuck it at the end Laughing

I get a sore and tender tail bone especially when I sit back cos I cant lean forward when I have a flare up as it puts pressure on the vulva....Fuck it!
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Re: Anyone else have this?

Post  Mouse on Tue Feb 08, 2011 9:22 pm

I do the tailbone sitting as well, thought that was working quite nicely until yesterday! Fuck it! Owww we have a new motto! I like it!

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Re: Anyone else have this?

Post  Sarah001 on Wed Feb 23, 2011 7:50 pm

Ok, after lots of research I'm fairly sure my twangy muscles are the ischiocavernosus and looking into what they do I found they prevent blood from draining from the area if they contract so it probably stands to reason if they're tight and twangy like mine are they will be stopping proper blood flow as that's what they do. This is very interesting as the inflamed skin I have in the area could well be due to this lack of draining which of course will prevent normal blood circulation in the area which is what Dr Glazer mentions. I was very surprised and interested to find that this is their function and am now attempting to remove the numerous trigger points in them.
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i wanted to know if anyone has this i only have problems at night i sting after i urinate and then i cant sleep it is a mystery to many doctors and we dont know whats going on i am taking elevil and estrace cream at night it only happens i could use some

Post  hawkss on Mon Mar 21, 2011 5:04 pm

Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?

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i could use some insight on this thanks

Post  hawkss on Mon Mar 21, 2011 5:06 pm

hawkss wrote:
Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?

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Re: Anyone else have this?

Post  Aussie on Fri Mar 25, 2011 4:39 am

I get the buldog clip feeling and the twangy muscles towards my groin area. I had these points massaged about 3 times over a 3 week period wiht deep tissue massage to realease the tightness it hurt like hell and bruised but not had the twangy pain since. Smile

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Re: Anyone else have this?

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