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» Amitriptyline given for vulvodyina pain
Yesterday at 11:33 pm by WVR00

» Needing some reassurance
Yesterday at 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Yesterday at 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Yesterday at 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

» Pain aftee vestibulectimy
Thu Nov 16, 2017 12:03 am by Jgreen81

» Freaking out because I don't think surgery worked HELP!!!!
Thu Nov 16, 2017 12:01 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Anyone else have this?

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Anyone else have this?

Post  Sarah001 on Sun Feb 06, 2011 1:54 pm

Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?
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Re: Anyone else have this?

Post  Mouse on Sun Feb 06, 2011 7:34 pm

Sarah, my muscles feel like they are pulling and sometimes it feels like there is a massive bulldog clip (do you have those?) attached. Very ouch!

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Re: Anyone else have this?

Post  Sarah001 on Sun Feb 06, 2011 8:11 pm

Yes, I do! Quite alot of the time too and if I stretch my adductors it often makes them pull worse while I'm doing it. I'm trying an experiment of massaging the twangy bits on one side only to see if it helps. I was really wary of massaging the area because it's already very painful (hence only treating one side so if it makes it worse it isn't all over) but if twangy muscles are contributing I'm going to have to grin and bear it to get any relief. I've done it once on one side only so far and the muscles were very sore to the touch too. I'm not sure which muscles are under there either, can't seem to find out online.
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Re: Anyone else have this?

Post  noni on Mon Feb 07, 2011 4:07 am

Does anyone get very irritating pinching sensations on buttocks and thighs? Ouch.
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Re: Anyone else have this?

Post  Sarah001 on Mon Feb 07, 2011 7:49 pm

No but I do get burning down the front of the thighs sometimes and other times down the inner thighs. My glute area is a problem anyway because my hip rotators have lots of trigger points and of course my SI joints are problematic and painful too.
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Re: Anyone else have this?

Post  Mouse on Tue Feb 08, 2011 7:59 pm

Noni,

I went to physio yesterday and she's identified the pain that I get in backside and thighs to be an aggravated sciatic nerve. I think this is self inflicted as I sit with my feet under me a lot of the time because I can't close my legs comfortably. Physio on that was less than pleasant! I have a fairly handsome bruise! I now can't sit down either.

Google the sciatic nerve and see if that's where your pain is. It makes sense that when you overcompensate to accommodate one pain it can put pressure on something else. Fuck it!

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Re: Anyone else have this?

Post  Sebby (Admin) on Tue Feb 08, 2011 8:26 pm


LOL I like the Fuck it at the end Laughing

I get a sore and tender tail bone especially when I sit back cos I cant lean forward when I have a flare up as it puts pressure on the vulva....Fuck it!
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Re: Anyone else have this?

Post  Mouse on Tue Feb 08, 2011 9:22 pm

I do the tailbone sitting as well, thought that was working quite nicely until yesterday! Fuck it! Owww we have a new motto! I like it!

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Re: Anyone else have this?

Post  Sarah001 on Wed Feb 23, 2011 7:50 pm

Ok, after lots of research I'm fairly sure my twangy muscles are the ischiocavernosus and looking into what they do I found they prevent blood from draining from the area if they contract so it probably stands to reason if they're tight and twangy like mine are they will be stopping proper blood flow as that's what they do. This is very interesting as the inflamed skin I have in the area could well be due to this lack of draining which of course will prevent normal blood circulation in the area which is what Dr Glazer mentions. I was very surprised and interested to find that this is their function and am now attempting to remove the numerous trigger points in them.
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i wanted to know if anyone has this i only have problems at night i sting after i urinate and then i cant sleep it is a mystery to many doctors and we dont know whats going on i am taking elevil and estrace cream at night it only happens i could use some

Post  hawkss on Mon Mar 21, 2011 5:04 pm

Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?

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i could use some insight on this thanks

Post  hawkss on Mon Mar 21, 2011 5:06 pm

hawkss wrote:
Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?

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Re: Anyone else have this?

Post  Aussie on Fri Mar 25, 2011 4:39 am

I get the buldog clip feeling and the twangy muscles towards my groin area. I had these points massaged about 3 times over a 3 week period wiht deep tissue massage to realease the tightness it hurt like hell and bruised but not had the twangy pain since. Smile

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Re: Anyone else have this?

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