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» Vulvodynia is a secret
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» Looking for a friend..... and new problems
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Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 6

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Anyone else have this?

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Anyone else have this?

Post  Sarah001 on Sun Feb 06, 2011 1:54 pm

Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?
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Re: Anyone else have this?

Post  Mouse on Sun Feb 06, 2011 7:34 pm

Sarah, my muscles feel like they are pulling and sometimes it feels like there is a massive bulldog clip (do you have those?) attached. Very ouch!

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Re: Anyone else have this?

Post  Sarah001 on Sun Feb 06, 2011 8:11 pm

Yes, I do! Quite alot of the time too and if I stretch my adductors it often makes them pull worse while I'm doing it. I'm trying an experiment of massaging the twangy bits on one side only to see if it helps. I was really wary of massaging the area because it's already very painful (hence only treating one side so if it makes it worse it isn't all over) but if twangy muscles are contributing I'm going to have to grin and bear it to get any relief. I've done it once on one side only so far and the muscles were very sore to the touch too. I'm not sure which muscles are under there either, can't seem to find out online.
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Re: Anyone else have this?

Post  noni on Mon Feb 07, 2011 4:07 am

Does anyone get very irritating pinching sensations on buttocks and thighs? Ouch.
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Re: Anyone else have this?

Post  Sarah001 on Mon Feb 07, 2011 7:49 pm

No but I do get burning down the front of the thighs sometimes and other times down the inner thighs. My glute area is a problem anyway because my hip rotators have lots of trigger points and of course my SI joints are problematic and painful too.
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Re: Anyone else have this?

Post  Mouse on Tue Feb 08, 2011 7:59 pm

Noni,

I went to physio yesterday and she's identified the pain that I get in backside and thighs to be an aggravated sciatic nerve. I think this is self inflicted as I sit with my feet under me a lot of the time because I can't close my legs comfortably. Physio on that was less than pleasant! I have a fairly handsome bruise! I now can't sit down either.

Google the sciatic nerve and see if that's where your pain is. It makes sense that when you overcompensate to accommodate one pain it can put pressure on something else. Fuck it!

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Re: Anyone else have this?

Post  Sebby (Admin) on Tue Feb 08, 2011 8:26 pm


LOL I like the Fuck it at the end Laughing

I get a sore and tender tail bone especially when I sit back cos I cant lean forward when I have a flare up as it puts pressure on the vulva....Fuck it!
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Re: Anyone else have this?

Post  Mouse on Tue Feb 08, 2011 9:22 pm

I do the tailbone sitting as well, thought that was working quite nicely until yesterday! Fuck it! Owww we have a new motto! I like it!

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Re: Anyone else have this?

Post  Sarah001 on Wed Feb 23, 2011 7:50 pm

Ok, after lots of research I'm fairly sure my twangy muscles are the ischiocavernosus and looking into what they do I found they prevent blood from draining from the area if they contract so it probably stands to reason if they're tight and twangy like mine are they will be stopping proper blood flow as that's what they do. This is very interesting as the inflamed skin I have in the area could well be due to this lack of draining which of course will prevent normal blood circulation in the area which is what Dr Glazer mentions. I was very surprised and interested to find that this is their function and am now attempting to remove the numerous trigger points in them.
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i wanted to know if anyone has this i only have problems at night i sting after i urinate and then i cant sleep it is a mystery to many doctors and we dont know whats going on i am taking elevil and estrace cream at night it only happens i could use some

Post  hawkss on Mon Mar 21, 2011 5:04 pm

Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?

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i could use some insight on this thanks

Post  hawkss on Mon Mar 21, 2011 5:06 pm

hawkss wrote:
Sarah001 wrote:Does anyone else seem to have twangy muscles under the outer vulval area? If I press either side on the outer skin and feel the tissue underneath it feels like twangy bands of tissue over the bone, I'm pretty sure it isn't meant to feel this way and wondered if anyone else has this? Especially you ladies with unprovoked general vulvodynia like me?

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Re: Anyone else have this?

Post  Aussie on Fri Mar 25, 2011 4:39 am

I get the buldog clip feeling and the twangy muscles towards my groin area. I had these points massaged about 3 times over a 3 week period wiht deep tissue massage to realease the tightness it hurt like hell and bruised but not had the twangy pain since. Smile

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Re: Anyone else have this?

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