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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

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Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

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Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Change in vulvodynia symptoms

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Change in vulvodynia symptoms

Post  Annmaria on Sun Mar 05, 2017 2:49 pm

Hello everyone

If anyone could help me with this symptom change I would welcome any advice.
Most of my pain used to be on my vulva on the left side at the labia majora and I have had this consistently for 2 years. Just recently it has shifted to my right which (apart from the odd feeling of discomfort now and then) was not really painful till this happened. It also seems to affect a wider radius too and I'm getting fold cuts on my labia minora which bleed where the skin is becoming sore and reddened.
Weirdly I first noticed that my right thigh has an itchy area (with no evidence of a sore or a spot) which doesn't go away and this was followed by the increased labia pain.
Has anyone experienced anything similar with it suddenly changing from one area to another?

I started amitryptiline 10mg about 5 weeks ago and thought I was doing OK but now I feel it is worse. Neutral
I asked my GP if some oestrogen cream might help the skin but they say not. I'm 57 and well through menopause

Thank you for any advice you can offer me

Annmaria

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Re: Change in vulvodynia symptoms

Post  Coop on Sun Mar 05, 2017 10:14 pm

With a change in symptoms, I'd suggest you go for another examination. Dry and cracked skin and itchiness could point to eczema though. I have seborrheic eczema as well as my vulvodynia and I was prescribed a steroid ointment (ointment - not cream, as cream has more ingredients that could irritate) for it. I'm not a big fan of using steroid creams there, so after a while of feeling like my ointment wasn't working, instead I applied coconut oil each day - it worked quite well. Sorry if TMI, but I'd break off a lump of the coconut oil and insert it like a pessary, and also rub a little around the outer parts too. It's just about keeping moisturised, but making sure you use as few unnatural ingredients as possible.

It's only one suggestion, but it won't hurt to use the coconut oil until you can be seen by your Dr.

Coop

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Re: Change in vulvodynia symptoms

Post  Annmaria on Tue Mar 07, 2017 12:22 pm

Thank you so much!

I hadn't thought of 'inserting the coconut oil but that seems that it would help.

Annmaria

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Re: Change in vulvodynia symptoms

Post  mary jane on Tue Apr 25, 2017 3:18 pm

yes, I had this years ago when it started. It's simply because (I think) nerves communicate with one another...they "signal" "there is pain, you should be hurting." hence the other area hurting too.
You need to start some lidocaine creme or gel, like Posterisan or instillagel, desentitization therapy ( you can do this yourself) as well as more medication, ami doesn't work until at least 30 mg..it also takes forever to start working, like 2 months
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mary jane

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