Log in

I forgot my password

Latest topics
» Lichen Sclerosus
Yesterday at 2:47 am by ryn207

» MAY HAVE FOUND A CURE- PLEASE READ
Thu Feb 15, 2018 10:04 pm by infinitelywondering

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Wed Feb 14, 2018 6:43 am by renegade_magdalena

» Some interesting information about nerve pain in general
Wed Feb 14, 2018 3:58 am by Athena

» Sore after using dilator for first time in a year
Wed Feb 14, 2018 3:45 am by Athena

» What helped me
Wed Feb 14, 2018 3:38 am by Athena

» NO PAIN DURING SEX
Wed Feb 14, 2018 3:33 am by Athena

» Coping with Vulvodynia
Tue Feb 13, 2018 3:55 pm by NaughtyNanny

» Newby not sure where to turn
Tue Feb 13, 2018 2:10 pm by sarisbaris

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11


Change in vulvodynia symptoms

Go down

Change in vulvodynia symptoms

Post  Annmaria on Sun Mar 05, 2017 2:49 pm

Hello everyone

If anyone could help me with this symptom change I would welcome any advice.
Most of my pain used to be on my vulva on the left side at the labia majora and I have had this consistently for 2 years. Just recently it has shifted to my right which (apart from the odd feeling of discomfort now and then) was not really painful till this happened. It also seems to affect a wider radius too and I'm getting fold cuts on my labia minora which bleed where the skin is becoming sore and reddened.
Weirdly I first noticed that my right thigh has an itchy area (with no evidence of a sore or a spot) which doesn't go away and this was followed by the increased labia pain.
Has anyone experienced anything similar with it suddenly changing from one area to another?

I started amitryptiline 10mg about 5 weeks ago and thought I was doing OK but now I feel it is worse. Neutral
I asked my GP if some oestrogen cream might help the skin but they say not. I'm 57 and well through menopause

Thank you for any advice you can offer me

Annmaria

Posts : 7
Join date : 2016-05-01

View user profile

Back to top Go down

Re: Change in vulvodynia symptoms

Post  Coop on Sun Mar 05, 2017 10:14 pm

With a change in symptoms, I'd suggest you go for another examination. Dry and cracked skin and itchiness could point to eczema though. I have seborrheic eczema as well as my vulvodynia and I was prescribed a steroid ointment (ointment - not cream, as cream has more ingredients that could irritate) for it. I'm not a big fan of using steroid creams there, so after a while of feeling like my ointment wasn't working, instead I applied coconut oil each day - it worked quite well. Sorry if TMI, but I'd break off a lump of the coconut oil and insert it like a pessary, and also rub a little around the outer parts too. It's just about keeping moisturised, but making sure you use as few unnatural ingredients as possible.

It's only one suggestion, but it won't hurt to use the coconut oil until you can be seen by your Dr.

Coop

Posts : 10
Join date : 2016-08-28

View user profile

Back to top Go down

Re: Change in vulvodynia symptoms

Post  Annmaria on Tue Mar 07, 2017 12:22 pm

Thank you so much!

I hadn't thought of 'inserting the coconut oil but that seems that it would help.

Annmaria

Posts : 7
Join date : 2016-05-01

View user profile

Back to top Go down

Re: Change in vulvodynia symptoms

Post  mary jane on Tue Apr 25, 2017 3:18 pm

yes, I had this years ago when it started. It's simply because (I think) nerves communicate with one another...they "signal" "there is pain, you should be hurting." hence the other area hurting too.
You need to start some lidocaine creme or gel, like Posterisan or instillagel, desentitization therapy ( you can do this yourself) as well as more medication, ami doesn't work until at least 30 mg..it also takes forever to start working, like 2 months
avatar
mary jane

Posts : 328
Join date : 2013-10-05
Location : UK

View user profile

Back to top Go down

Re: Change in vulvodynia symptoms

Post  Sponsored content


Sponsored content


Back to top Go down

Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum