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» Did going off antidepressants cause this?
Today at 2:08 am by ryn207

» 7 months since the diagnosis
Yesterday at 11:43 pm by agtoronto

» Sex after vulvodynia (husband edition)
Mon Aug 13, 2018 12:15 pm by emalita

» burning sensation and small cut? Maybe thrush?
Sun Aug 12, 2018 8:24 pm by emalita

» can v return after vestibulectomy?
Sun Aug 12, 2018 12:01 pm by Alana3

» Cleveland Clinic - Pain Management, Weston, FL
Sat Aug 11, 2018 12:37 pm by Alana3

» Hurting, Burning, Itching, and Worn Out
Fri Aug 10, 2018 7:55 pm by fairlight10

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» Can you guys tell me your experiences with diflucan/Fluconazole?
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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 1

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4


Change in vulvodynia symptoms

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Change in vulvodynia symptoms

Post  Annmaria on Sun Mar 05, 2017 2:49 pm

Hello everyone

If anyone could help me with this symptom change I would welcome any advice.
Most of my pain used to be on my vulva on the left side at the labia majora and I have had this consistently for 2 years. Just recently it has shifted to my right which (apart from the odd feeling of discomfort now and then) was not really painful till this happened. It also seems to affect a wider radius too and I'm getting fold cuts on my labia minora which bleed where the skin is becoming sore and reddened.
Weirdly I first noticed that my right thigh has an itchy area (with no evidence of a sore or a spot) which doesn't go away and this was followed by the increased labia pain.
Has anyone experienced anything similar with it suddenly changing from one area to another?

I started amitryptiline 10mg about 5 weeks ago and thought I was doing OK but now I feel it is worse. Neutral
I asked my GP if some oestrogen cream might help the skin but they say not. I'm 57 and well through menopause

Thank you for any advice you can offer me

Annmaria

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Re: Change in vulvodynia symptoms

Post  Coop on Sun Mar 05, 2017 10:14 pm

With a change in symptoms, I'd suggest you go for another examination. Dry and cracked skin and itchiness could point to eczema though. I have seborrheic eczema as well as my vulvodynia and I was prescribed a steroid ointment (ointment - not cream, as cream has more ingredients that could irritate) for it. I'm not a big fan of using steroid creams there, so after a while of feeling like my ointment wasn't working, instead I applied coconut oil each day - it worked quite well. Sorry if TMI, but I'd break off a lump of the coconut oil and insert it like a pessary, and also rub a little around the outer parts too. It's just about keeping moisturised, but making sure you use as few unnatural ingredients as possible.

It's only one suggestion, but it won't hurt to use the coconut oil until you can be seen by your Dr.

Coop

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Re: Change in vulvodynia symptoms

Post  Annmaria on Tue Mar 07, 2017 12:22 pm

Thank you so much!

I hadn't thought of 'inserting the coconut oil but that seems that it would help.

Annmaria

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Re: Change in vulvodynia symptoms

Post  mary jane on Tue Apr 25, 2017 3:18 pm

yes, I had this years ago when it started. It's simply because (I think) nerves communicate with one another...they "signal" "there is pain, you should be hurting." hence the other area hurting too.
You need to start some lidocaine creme or gel, like Posterisan or instillagel, desentitization therapy ( you can do this yourself) as well as more medication, ami doesn't work until at least 30 mg..it also takes forever to start working, like 2 months
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mary jane

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Re: Change in vulvodynia symptoms

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