Log in

I forgot my password

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Don't let Vulvodynia win. You are so much stronger than you realize!!!

View previous topic View next topic Go down

Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  BpCookie on Sat Mar 11, 2017 5:11 am

Hello my darlings, I see so many of you who say things like "I feel worthless, I am useless, I am being punished for something I did, I just want to die, there is no hope...........". I want to tell you all that you are somebody special. You are precious. You did nothing wrong. There is hope and life is worth living. I know, I went through all of this, saying the same things, thinking the same things. I became angry at the world. I wanted to die. I would lay in bed and cry. But my depression, my hopelessness, my fears would turn into HOPE! I would spend hours on the computer trying to find a Dr., find meds., find any information that would help. I have had this for over 5 yrs, maybe over 6 yrs, I have lost count. But all that those hours, days, weeks, months of working to find a Dr. and answers paid off. Things are so much better for me now. I am not 100% better but most days I hardly have any pain. I do have my bad days, bad weeks but I know things will get better. Heck, I can even have sex now.

What ever you do, keep fighting. Don't give up. You can beat this thing. Don't let it win. Hold on to hope my darlings. Hold on tight.

Love to all of you
Cookie
avatar
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

View user profile

Back to top Go down

Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  Kezz on Tue Mar 28, 2017 12:44 am

Thanks Cookie, I cried just reading your words! So happy it's working out for you finally, you deserve it so much. Are you in the U.K.? If so, do you mind me asking what doctor you were referred to? I'm currently in the middle of trying to find a good one!

Kezz xx

Kezz

Posts : 11
Join date : 2017-03-28
Location : London, England

View user profile

Back to top Go down

Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  BpCookie on Tue Mar 28, 2017 6:41 pm

Kezz, Hi hun. No I am not in the UK, so sorry. I am in Arizona in the U.S.A. The Dr. who helped me has retired from gynecology and is now working with mens health issues but he told me that if I ever needed his help, that he would make a special exception for me. Matter of fact I have an apt. to see him on April 5th because the Arizona heat is really causing me problems with my Vulvodynia.

I wish you all the best of luck.

Love to you
Cookie
avatar
BpCookie

Posts : 209
Join date : 2012-01-25
Location : Arizona

View user profile

Back to top Go down

Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  overit14 on Thu Apr 06, 2017 11:54 pm

Thank you so much for your kind words of encouragement. I have def had those thoughts, especially being punished for past things I've done. So I appreciate it very much. I'm glad yours has gotten better and I hope your doc visit yields some good results in dealing with that Arizona heat. I love you

overit14

Posts : 6
Join date : 2017-04-03

View user profile

Back to top Go down

Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  Lc0223 on Thu Jul 27, 2017 11:51 pm

Hey! What were your symptoms with vulvodynia? I have severe burning some days, other days a stinging on my left side. I'm in alot of discomfort, and I just try to work through it. I'm on Amitriplyline 25 mg at night, and gabapentin 300 mg 3 x a day. I feel so tried and don't know about upping the dose. The sensations In my vagina are so weird and just stay there all day!

Lc0223

Posts : 2
Join date : 2017-07-26

View user profile

Back to top Go down

Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  Hopeitworks on Fri Aug 04, 2017 10:49 pm

BPcookie,

I cries reading your post because you described me. Thank you for your post it made me feel not so alone.

Hopeitworks

Posts : 34
Join date : 2017-08-01
Location : United States

View user profile

Back to top Go down

Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  Sponsored content


Sponsored content


Back to top Go down

View previous topic View next topic Back to top

- Similar topics

 
Permissions in this forum:
You cannot reply to topics in this forum