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    » New here would very much appreciate advice at the end of my rope
    Fri Jan 11, 2019 1:46 am by Jma990o

    » Diagnosed Recently
    Tue Jan 08, 2019 3:55 pm by flissyg

    » Looking for suggestions or encouragement
    Thu Jan 03, 2019 11:09 am by Gaby

    » Clinical Trial for Vulvodynia Treatment
    Wed Dec 19, 2018 7:13 pm by wramirez

    » New and need advice and help
    Thu Dec 13, 2018 9:48 am by Derry59

    » Things that have worked for me
    Tue Dec 11, 2018 11:32 am by Amethyst

    » Found relief after more than 15 years of pain!
    Tue Dec 11, 2018 11:17 am by Amethyst

    » I'm new to this forum and would love some advice! :)
    Tue Dec 11, 2018 3:06 am by Cin124

    » I think I know what causes vulvodynia-it's the memory of pain
    Sat Dec 08, 2018 1:24 pm by foxysugarpants

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 2

    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 0

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 6

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 4

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 13

    Hello. Happy to have found this group.

    Fri Dec 07, 2018 9:01 pm by foxysugarpants

    I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

    Comments: 0

    Had this for 5 years, looking for people who understand

    Sat Oct 06, 2018 9:46 pm by blackberrie

    Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

    Comments: 3

    Anyone have pain with urination?

    Tue Oct 16, 2018 2:35 pm by mertzwl

    Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

    I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

    Comments: 6

    Diagnosed recently, looking for advice

    Sun Sep 02, 2018 12:51 am by Cloudberry

    Hi everyone,

    I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

    I’m a woman in my late 20s. Before getting diagnosed …

    Comments: 4


    Don't let Vulvodynia win. You are so much stronger than you realize!!!

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    Don't let Vulvodynia win. You are so much stronger than you realize!!!

    Post  BpCookie on Sat Mar 11, 2017 5:11 am

    Hello my darlings, I see so many of you who say things like "I feel worthless, I am useless, I am being punished for something I did, I just want to die, there is no hope...........". I want to tell you all that you are somebody special. You are precious. You did nothing wrong. There is hope and life is worth living. I know, I went through all of this, saying the same things, thinking the same things. I became angry at the world. I wanted to die. I would lay in bed and cry. But my depression, my hopelessness, my fears would turn into HOPE! I would spend hours on the computer trying to find a Dr., find meds., find any information that would help. I have had this for over 5 yrs, maybe over 6 yrs, I have lost count. But all that those hours, days, weeks, months of working to find a Dr. and answers paid off. Things are so much better for me now. I am not 100% better but most days I hardly have any pain. I do have my bad days, bad weeks but I know things will get better. Heck, I can even have sex now.

    What ever you do, keep fighting. Don't give up. You can beat this thing. Don't let it win. Hold on to hope my darlings. Hold on tight.

    Love to all of you
    Cookie
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    BpCookie

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    Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

    Post  Kezz on Tue Mar 28, 2017 12:44 am

    Thanks Cookie, I cried just reading your words! So happy it's working out for you finally, you deserve it so much. Are you in the U.K.? If so, do you mind me asking what doctor you were referred to? I'm currently in the middle of trying to find a good one!

    Kezz xx

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    Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

    Post  BpCookie on Tue Mar 28, 2017 6:41 pm

    Kezz, Hi hun. No I am not in the UK, so sorry. I am in Arizona in the U.S.A. The Dr. who helped me has retired from gynecology and is now working with mens health issues but he told me that if I ever needed his help, that he would make a special exception for me. Matter of fact I have an apt. to see him on April 5th because the Arizona heat is really causing me problems with my Vulvodynia.

    I wish you all the best of luck.

    Love to you
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    BpCookie

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    Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

    Post  overit14 on Thu Apr 06, 2017 11:54 pm

    Thank you so much for your kind words of encouragement. I have def had those thoughts, especially being punished for past things I've done. So I appreciate it very much. I'm glad yours has gotten better and I hope your doc visit yields some good results in dealing with that Arizona heat. I love you

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    Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

    Post  Lc0223 on Thu Jul 27, 2017 11:51 pm

    Hey! What were your symptoms with vulvodynia? I have severe burning some days, other days a stinging on my left side. I'm in alot of discomfort, and I just try to work through it. I'm on Amitriplyline 25 mg at night, and gabapentin 300 mg 3 x a day. I feel so tried and don't know about upping the dose. The sensations In my vagina are so weird and just stay there all day!

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    Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

    Post  Hopeitworks on Fri Aug 04, 2017 10:49 pm

    BPcookie,

    I cries reading your post because you described me. Thank you for your post it made me feel not so alone.

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    Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

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