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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

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Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

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New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Don't let Vulvodynia win. You are so much stronger than you realize!!!

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Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  BpCookie on Sat Mar 11, 2017 5:11 am

Hello my darlings, I see so many of you who say things like "I feel worthless, I am useless, I am being punished for something I did, I just want to die, there is no hope...........". I want to tell you all that you are somebody special. You are precious. You did nothing wrong. There is hope and life is worth living. I know, I went through all of this, saying the same things, thinking the same things. I became angry at the world. I wanted to die. I would lay in bed and cry. But my depression, my hopelessness, my fears would turn into HOPE! I would spend hours on the computer trying to find a Dr., find meds., find any information that would help. I have had this for over 5 yrs, maybe over 6 yrs, I have lost count. But all that those hours, days, weeks, months of working to find a Dr. and answers paid off. Things are so much better for me now. I am not 100% better but most days I hardly have any pain. I do have my bad days, bad weeks but I know things will get better. Heck, I can even have sex now.

What ever you do, keep fighting. Don't give up. You can beat this thing. Don't let it win. Hold on to hope my darlings. Hold on tight.

Love to all of you
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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  Kezz on Tue Mar 28, 2017 12:44 am

Thanks Cookie, I cried just reading your words! So happy it's working out for you finally, you deserve it so much. Are you in the U.K.? If so, do you mind me asking what doctor you were referred to? I'm currently in the middle of trying to find a good one!

Kezz xx

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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  BpCookie on Tue Mar 28, 2017 6:41 pm

Kezz, Hi hun. No I am not in the UK, so sorry. I am in Arizona in the U.S.A. The Dr. who helped me has retired from gynecology and is now working with mens health issues but he told me that if I ever needed his help, that he would make a special exception for me. Matter of fact I have an apt. to see him on April 5th because the Arizona heat is really causing me problems with my Vulvodynia.

I wish you all the best of luck.

Love to you
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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  overit14 on Thu Apr 06, 2017 11:54 pm

Thank you so much for your kind words of encouragement. I have def had those thoughts, especially being punished for past things I've done. So I appreciate it very much. I'm glad yours has gotten better and I hope your doc visit yields some good results in dealing with that Arizona heat. I love you

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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  Lc0223 on Thu Jul 27, 2017 11:51 pm

Hey! What were your symptoms with vulvodynia? I have severe burning some days, other days a stinging on my left side. I'm in alot of discomfort, and I just try to work through it. I'm on Amitriplyline 25 mg at night, and gabapentin 300 mg 3 x a day. I feel so tried and don't know about upping the dose. The sensations In my vagina are so weird and just stay there all day!

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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  Hopeitworks on Fri Aug 04, 2017 10:49 pm

BPcookie,

I cries reading your post because you described me. Thank you for your post it made me feel not so alone.

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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

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