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» First post and recommendations for acupuncture in the UK?
Wed Apr 19, 2017 9:28 am by pr3ston

» Does Vulvodynia affect your sexual partner?
Mon Apr 17, 2017 9:48 pm by amyhp

» Internal anal fissures and VVS, somebody kill me please!
Sat Apr 15, 2017 4:04 pm by Kezz

» Wife with Vulvadynia scheduled for surgery
Thu Apr 13, 2017 7:39 pm by amyhp

» Male visitor
Tue Apr 11, 2017 8:56 pm by emalita

» New member
Mon Apr 10, 2017 4:08 pm by Lisa1627

» Don't let Vulvodynia win. You are so much stronger than you realize!!!
Thu Apr 06, 2017 11:54 pm by overit14

» New Here: Question/My Story
Thu Apr 06, 2017 11:44 pm by overit14

» Post Vestibulectomy: Any tips
Tue Apr 04, 2017 10:43 pm by SummerMalone

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 2

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 1

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 4

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 9

Has anyone tried Reflexology as a treatment

Wed Nov 30, 2016 8:54 pm by Roselilyflower

Hi there everyone, I was diagnosed with vulvodynia about 5 months ago. It all started as an allergic reaction to some thrush cream I used to treat a yeast infection which I got agter a heafty load of antibiotics. I have been tested umteen times for herpes etc and I am all clear which is reassuring but still depressing as Inwas not sure what the hell was going on, then finally I was given an …

Comments: 3

I just found this site tonight

Mon Feb 20, 2017 8:35 am by surprisemom44

Hello all,

I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had …

Comments: 1

Pain following a vaginal cyst procedure a year ago.

Sat Feb 11, 2017 11:22 pm by crackleberry

Hi everyone, I'm sorry this is going to be long, but please listen and help if you can. I am a 17 year old girl. In february of 2016 I had a mass protruding from my vagina, I went to the er, they didn't know what kind of cyst it was but they did an incision and drainage and put a word catheter in to help the cyst drain. During the procedure I had a sharp pain from where she cut me, but once it …

Comments: 0


Don't let Vulvodynia win. You are so much stronger than you realize!!!

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Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  BpCookie on Sat Mar 11, 2017 5:11 am

Hello my darlings, I see so many of you who say things like "I feel worthless, I am useless, I am being punished for something I did, I just want to die, there is no hope...........". I want to tell you all that you are somebody special. You are precious. You did nothing wrong. There is hope and life is worth living. I know, I went through all of this, saying the same things, thinking the same things. I became angry at the world. I wanted to die. I would lay in bed and cry. But my depression, my hopelessness, my fears would turn into HOPE! I would spend hours on the computer trying to find a Dr., find meds., find any information that would help. I have had this for over 5 yrs, maybe over 6 yrs, I have lost count. But all that those hours, days, weeks, months of working to find a Dr. and answers paid off. Things are so much better for me now. I am not 100% better but most days I hardly have any pain. I do have my bad days, bad weeks but I know things will get better. Heck, I can even have sex now.

What ever you do, keep fighting. Don't give up. You can beat this thing. Don't let it win. Hold on to hope my darlings. Hold on tight.

Love to all of you
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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  Kezz on Tue Mar 28, 2017 12:44 am

Thanks Cookie, I cried just reading your words! So happy it's working out for you finally, you deserve it so much. Are you in the U.K.? If so, do you mind me asking what doctor you were referred to? I'm currently in the middle of trying to find a good one!

Kezz xx

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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  BpCookie on Tue Mar 28, 2017 6:41 pm

Kezz, Hi hun. No I am not in the UK, so sorry. I am in Arizona in the U.S.A. The Dr. who helped me has retired from gynecology and is now working with mens health issues but he told me that if I ever needed his help, that he would make a special exception for me. Matter of fact I have an apt. to see him on April 5th because the Arizona heat is really causing me problems with my Vulvodynia.

I wish you all the best of luck.

Love to you
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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  overit14 on Thu Apr 06, 2017 11:54 pm

Thank you so much for your kind words of encouragement. I have def had those thoughts, especially being punished for past things I've done. So I appreciate it very much. I'm glad yours has gotten better and I hope your doc visit yields some good results in dealing with that Arizona heat. I love you

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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

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