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» Vestibulectory removes 85% of pain, Birth removes 15%
Yesterday at 8:27 pm by pangea

» Recovered! It gets better!
Fri May 26, 2017 9:40 pm by mary jane

» Pain management - what works for me
Fri May 26, 2017 6:21 pm by SinclairSassy

» Vestibulitiis surgery
Mon May 22, 2017 4:18 pm by Gill

» Does it go away?
Mon May 22, 2017 2:12 pm by mary jane

» Amitriptyline and Uribel
Mon May 22, 2017 1:35 pm by SinclairSassy

» Post Full Vestibulectomy - 5 Years Later - Please Read
Mon May 22, 2017 10:12 am by flick001

» Social Security Disability Benefits
Fri May 19, 2017 8:50 pm by SinclairSassy

» Recovered from Vulvodynia
Thu May 18, 2017 4:20 pm by sarahjane1332343

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 9

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 1

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 4


Don't let Vulvodynia win. You are so much stronger than you realize!!!

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Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  BpCookie on Sat Mar 11, 2017 5:11 am

Hello my darlings, I see so many of you who say things like "I feel worthless, I am useless, I am being punished for something I did, I just want to die, there is no hope...........". I want to tell you all that you are somebody special. You are precious. You did nothing wrong. There is hope and life is worth living. I know, I went through all of this, saying the same things, thinking the same things. I became angry at the world. I wanted to die. I would lay in bed and cry. But my depression, my hopelessness, my fears would turn into HOPE! I would spend hours on the computer trying to find a Dr., find meds., find any information that would help. I have had this for over 5 yrs, maybe over 6 yrs, I have lost count. But all that those hours, days, weeks, months of working to find a Dr. and answers paid off. Things are so much better for me now. I am not 100% better but most days I hardly have any pain. I do have my bad days, bad weeks but I know things will get better. Heck, I can even have sex now.

What ever you do, keep fighting. Don't give up. You can beat this thing. Don't let it win. Hold on to hope my darlings. Hold on tight.

Love to all of you
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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  Kezz on Tue Mar 28, 2017 12:44 am

Thanks Cookie, I cried just reading your words! So happy it's working out for you finally, you deserve it so much. Are you in the U.K.? If so, do you mind me asking what doctor you were referred to? I'm currently in the middle of trying to find a good one!

Kezz xx

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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  BpCookie on Tue Mar 28, 2017 6:41 pm

Kezz, Hi hun. No I am not in the UK, so sorry. I am in Arizona in the U.S.A. The Dr. who helped me has retired from gynecology and is now working with mens health issues but he told me that if I ever needed his help, that he would make a special exception for me. Matter of fact I have an apt. to see him on April 5th because the Arizona heat is really causing me problems with my Vulvodynia.

I wish you all the best of luck.

Love to you
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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

Post  overit14 on Thu Apr 06, 2017 11:54 pm

Thank you so much for your kind words of encouragement. I have def had those thoughts, especially being punished for past things I've done. So I appreciate it very much. I'm glad yours has gotten better and I hope your doc visit yields some good results in dealing with that Arizona heat. I love you

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Re: Don't let Vulvodynia win. You are so much stronger than you realize!!!

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