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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Pain has destroyed our sex life

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Pain has destroyed our sex life

Post  Scotland1984 on Thu Mar 16, 2017 8:58 am

Hey, I'm posting as for months now my Wife has been experiencing severe vaginal pain during sex.
We first got together 8 years ago and our sex life was amazing. Over the last couple of years she has experienced pain during sex, she went to see a GP who referred her to a gynocologist who examined her, found nothing but gave her an a numbing cream & diolator kit. This doesn't help at all.
It's got to the stage now that the pain has totally put my Wife off all aspects sex, she doesn't feel sexy at all and dreads having intercourse, which I totally understand. We hardly ever have sex compared to what we did and she said she only does it for me, which is the last thing I want. As much as I appreciate she put herself through the pain, I felt awful during & after sex, it's horrible knowing she is in agony and just wanting it over asap, that's not the sex life I want for both of us.
I got researching on the net & discovered Vulvodynia and it sounds like that is what she has. I'm going to suggest taking pentatrive sex off the table till we sort this out.
She is willing to go see a gyno again but worried that because they can't see anything they won't do anything. It's such a horrible thing to go through this and must be a million times harder for her but end of the day I want to support her, get this fixed and get back to enjoying pain free loving sex!
Reading over a few posts I'm guessing it's going to be a case of trying different pills, pelvic floor excercises, counselling & finding what works for her.

Scotland1984

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Re: Pain has destroyed our sex life

Post  PainBlogger on Thu Mar 16, 2017 5:58 pm

There are some good books on the subject you might want to look at. It can be helpful to inform yourselves as much as possible which it seems like you're already well on the way to doing. Amy Stein - Heal Pelvic Pain, Heather Jeffcoat - Sex Without Pain, are a couple. If you can find a women's health/specialist pelvic pain physiotherapist in your area then that might be very useful too. The physio can advise on the best way to use dilators and relax the pelvic floor muscles.

Does your wife have pain at any other times? i.e. without contact to the area?

PainBlogger

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Re: Pain has destroyed our sex life

Post  Scotland1984 on Thu Mar 16, 2017 7:01 pm

Thanks so much! I'll look into those books. The pain is just during intercourse, worse right at the start

Scotland1984

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Re: Pain has destroyed our sex life

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