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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

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I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Pain has destroyed our sex life

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Pain has destroyed our sex life

Post  Scotland1984 on Thu Mar 16, 2017 8:58 am

Hey, I'm posting as for months now my Wife has been experiencing severe vaginal pain during sex.
We first got together 8 years ago and our sex life was amazing. Over the last couple of years she has experienced pain during sex, she went to see a GP who referred her to a gynocologist who examined her, found nothing but gave her an a numbing cream & diolator kit. This doesn't help at all.
It's got to the stage now that the pain has totally put my Wife off all aspects sex, she doesn't feel sexy at all and dreads having intercourse, which I totally understand. We hardly ever have sex compared to what we did and she said she only does it for me, which is the last thing I want. As much as I appreciate she put herself through the pain, I felt awful during & after sex, it's horrible knowing she is in agony and just wanting it over asap, that's not the sex life I want for both of us.
I got researching on the net & discovered Vulvodynia and it sounds like that is what she has. I'm going to suggest taking pentatrive sex off the table till we sort this out.
She is willing to go see a gyno again but worried that because they can't see anything they won't do anything. It's such a horrible thing to go through this and must be a million times harder for her but end of the day I want to support her, get this fixed and get back to enjoying pain free loving sex!
Reading over a few posts I'm guessing it's going to be a case of trying different pills, pelvic floor excercises, counselling & finding what works for her.

Scotland1984

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Re: Pain has destroyed our sex life

Post  PainBlogger on Thu Mar 16, 2017 5:58 pm

There are some good books on the subject you might want to look at. It can be helpful to inform yourselves as much as possible which it seems like you're already well on the way to doing. Amy Stein - Heal Pelvic Pain, Heather Jeffcoat - Sex Without Pain, are a couple. If you can find a women's health/specialist pelvic pain physiotherapist in your area then that might be very useful too. The physio can advise on the best way to use dilators and relax the pelvic floor muscles.

Does your wife have pain at any other times? i.e. without contact to the area?

PainBlogger

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Re: Pain has destroyed our sex life

Post  Scotland1984 on Thu Mar 16, 2017 7:01 pm

Thanks so much! I'll look into those books. The pain is just during intercourse, worse right at the start

Scotland1984

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Re: Pain has destroyed our sex life

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