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» Pain management - what works for me
Mon May 22, 2017 8:05 pm by SinclairSassy

» Vestibulitiis surgery
Mon May 22, 2017 4:18 pm by Gill

» Does it go away?
Mon May 22, 2017 2:12 pm by mary jane

» Amitriptyline and Uribel
Mon May 22, 2017 1:35 pm by SinclairSassy

» Post Full Vestibulectomy - 5 Years Later - Please Read
Mon May 22, 2017 10:12 am by flick001

» Social Security Disability Benefits
Fri May 19, 2017 8:50 pm by SinclairSassy

» Recovered from Vulvodynia
Thu May 18, 2017 4:20 pm by sarahjane1332343

» Curing the Incurable. VLSC now only have Vulvodynia but 75% improved
Tue May 16, 2017 4:07 pm by sarahjane1332343

» Post-vestibulectomy (partial) recovery- going back to work?
Tue May 16, 2017 4:04 pm by sarahjane1332343

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 9

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 1

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 4


Pain has destroyed our sex life

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Pain has destroyed our sex life

Post  Scotland1984 on Thu Mar 16, 2017 8:58 am

Hey, I'm posting as for months now my Wife has been experiencing severe vaginal pain during sex.
We first got together 8 years ago and our sex life was amazing. Over the last couple of years she has experienced pain during sex, she went to see a GP who referred her to a gynocologist who examined her, found nothing but gave her an a numbing cream & diolator kit. This doesn't help at all.
It's got to the stage now that the pain has totally put my Wife off all aspects sex, she doesn't feel sexy at all and dreads having intercourse, which I totally understand. We hardly ever have sex compared to what we did and she said she only does it for me, which is the last thing I want. As much as I appreciate she put herself through the pain, I felt awful during & after sex, it's horrible knowing she is in agony and just wanting it over asap, that's not the sex life I want for both of us.
I got researching on the net & discovered Vulvodynia and it sounds like that is what she has. I'm going to suggest taking pentatrive sex off the table till we sort this out.
She is willing to go see a gyno again but worried that because they can't see anything they won't do anything. It's such a horrible thing to go through this and must be a million times harder for her but end of the day I want to support her, get this fixed and get back to enjoying pain free loving sex!
Reading over a few posts I'm guessing it's going to be a case of trying different pills, pelvic floor excercises, counselling & finding what works for her.

Scotland1984

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Re: Pain has destroyed our sex life

Post  PainBlogger on Thu Mar 16, 2017 5:58 pm

There are some good books on the subject you might want to look at. It can be helpful to inform yourselves as much as possible which it seems like you're already well on the way to doing. Amy Stein - Heal Pelvic Pain, Heather Jeffcoat - Sex Without Pain, are a couple. If you can find a women's health/specialist pelvic pain physiotherapist in your area then that might be very useful too. The physio can advise on the best way to use dilators and relax the pelvic floor muscles.

Does your wife have pain at any other times? i.e. without contact to the area?

PainBlogger

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Re: Pain has destroyed our sex life

Post  Scotland1984 on Thu Mar 16, 2017 7:01 pm

Thanks so much! I'll look into those books. The pain is just during intercourse, worse right at the start

Scotland1984

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Re: Pain has destroyed our sex life

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