Vulvodynia Support
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Vulvodynia Support

Does life feel like one huge pain in the Vulva??? I have created this forum so that women living with Vulvodynia (Vulva Pain) can have a place to share, chat and support each other.


The link to my research project is in the Announcements forum, please participate if you can!!
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Latest topics
» Hope to all my suffering ladies
travelling woes EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
travelling woes EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
travelling woes EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
travelling woes EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
travelling woes EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
travelling woes EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
travelling woes EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
travelling woes EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
travelling woes EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


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Vulvodynia Support :: Support and Advice

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Post  Penny prickles Sat Mar 18, 2017 3:22 pm

I have had vulvodynia for about 10 years, it was a long uphill battle but I am feeling alot better due to a family dr willing to listen and subscrib me elival for my pain. I previously saw two gyno's who couldn't really help me and went to a number of clinics just trying to stop the intense pain I had.  I am feeling so much better now on 20-25 mg of elival, I don't know what would have happened if my family dr wasn't so understanding.  I am able to wear pants and even jeans now (the stretchy kind). my sex life is still not back to normal but fortunately my husband is very understanding about that.
My main issue now is one that is causing us alot of problems, I have developed a fear of traveling.  My husband loves to travel and I used to also before I got vulvadynia. Now every trip is marred with much anxiety and I end up cancelling at the last minute sometimes, like today.
I still think back to how I was years ago when I was feeling my worst and we traveled, I would end up in extreme pain, not able to even sit for one hr for dinner and would end up lying in bed with an icepack on my painful vagina just trying to sleep and wishing I was at home.  Now a days when I can get myself to travel, (usually this involves alot of talking into by my husband) I am usually ok, a bit sore due to sitting but nothing like before, I am usually happy that I went but it's just so hard to talk myself into going, I have that fear in the back of my head what if it does get bad again...
This is an irrational fear but is causing alot of problems in my marriage, at the time I just think, I just don't want to deal with having a sore vagina, it's not worth it, but when I look a my husbands sad face when he leaves I know I have to change this somehow.
I am going to try counseling maybe bahavioural or some anxiety reducing techniques...my life is almost back to normal, I don't want this terrible condition to run my life anymore. How do you guys cope with traveling issues? have any of you tried going to therapy to deal with issues related to your vulvodynia?

Penny prickles

Posts : 3
Join date : 2016-03-29

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