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» Vitamin E? Olive oil?
Mon Mar 20, 2017 7:02 pm by let's kick this

» New member
Sat Mar 18, 2017 7:37 pm by Lisa1627

» Will I ever be able to wear jeans?
Sat Mar 18, 2017 3:48 pm by Penny prickles

» Here again ......
Sat Mar 18, 2017 3:28 pm by Penny prickles

» travelling woes
Sat Mar 18, 2017 3:22 pm by Penny prickles

» Cured of Vulvodynia
Sat Mar 18, 2017 4:15 am by Silvergirl

» New to the group
Fri Mar 17, 2017 9:52 pm by canuck girl

» Pain has destroyed our sex life
Thu Mar 16, 2017 7:01 pm by Scotland1984

» Four months of significant improvement
Thu Mar 16, 2017 6:08 pm by PainBlogger

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 0

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 9

New to the group

Fri Mar 17, 2017 9:52 pm by canuck girl

Hi Everyone
I found the site tonight, and am so pleased I did, I hadn't realised it was such  a problem, and I for one am grateful that the group exists. I recently had a really awful , well the worst one I had ever had UTI, after 4 days of antibiotics it should have cleared though. i now had this awful feeling, and sensations, very sore, burning, some strange sensations I have  that  are hard …

Comments: 0

How do you live with this?

Wed Feb 22, 2017 12:15 am by Persevere1990

Hi everyone,

It's great to see there is a support network here... I was diagnosed a few weeks ago and have started nightly treatment with lidocaine cream one week ago. Not noticing any difference yet.

I notice I get flare ups throughout the day, typically after peeing, showering, walking and when I'm stressed. I'm pretty sure my vulvodynia was caused by nerve damage due to a bad case of thrush …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 1

Has anyone tried Reflexology as a treatment

Wed Nov 30, 2016 8:54 pm by Roselilyflower

Hi there everyone, I was diagnosed with vulvodynia about 5 months ago. It all started as an allergic reaction to some thrush cream I used to treat a yeast infection which I got agter a heafty load of antibiotics. I have been tested umteen times for herpes etc and I am all clear which is reassuring but still depressing as Inwas not sure what the hell was going on, then finally I was given an …

Comments: 3

I just found this site tonight

Mon Feb 20, 2017 8:35 am by surprisemom44

Hello all,

I just found this site tonight. I am on my fourth round of antibiotics in a row since Nov. But honestly, have been having the pain, itching, burning for years. I had never heard of this condition until tonight and have not been diagnosed but I feel it has to be what I have. I had my first encounter with burning, itching, pain when I was 12! My mom tried to get me to douche! I had …

Comments: 1

Pain following a vaginal cyst procedure a year ago.

Sat Feb 11, 2017 11:22 pm by crackleberry

Hi everyone, I'm sorry this is going to be long, but please listen and help if you can. I am a 17 year old girl. In february of 2016 I had a mass protruding from my vagina, I went to the er, they didn't know what kind of cyst it was but they did an incision and drainage and put a word catheter in to help the cyst drain. During the procedure I had a sharp pain from where she cut me, but once it …

Comments: 0

New here- please help

Mon Dec 12, 2016 1:49 am by 1989SBSC

I've been reading these forums for the past year or more and have never posted anything online like this before. I'm overwhelmed and don't even know where to start. Up until a couple years ago, I never had any urinary tract/vaginal problems. Sex (intercourse) always felt good, and I didn't notice any burning feelings in my vagina or urethra. Then, I lived abroad for a year in a hot, tropical …

Comments: 2


travelling woes

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travelling woes

Post  Penny prickles on Sat Mar 18, 2017 3:22 pm

I have had vulvodynia for about 10 years, it was a long uphill battle but I am feeling alot better due to a family dr willing to listen and subscrib me elival for my pain. I previously saw two gyno's who couldn't really help me and went to a number of clinics just trying to stop the intense pain I had.  I am feeling so much better now on 20-25 mg of elival, I don't know what would have happened if my family dr wasn't so understanding.  I am able to wear pants and even jeans now (the stretchy kind). my sex life is still not back to normal but fortunately my husband is very understanding about that.
My main issue now is one that is causing us alot of problems, I have developed a fear of traveling.  My husband loves to travel and I used to also before I got vulvadynia. Now every trip is marred with much anxiety and I end up cancelling at the last minute sometimes, like today.
I still think back to how I was years ago when I was feeling my worst and we traveled, I would end up in extreme pain, not able to even sit for one hr for dinner and would end up lying in bed with an icepack on my painful vagina just trying to sleep and wishing I was at home.  Now a days when I can get myself to travel, (usually this involves alot of talking into by my husband) I am usually ok, a bit sore due to sitting but nothing like before, I am usually happy that I went but it's just so hard to talk myself into going, I have that fear in the back of my head what if it does get bad again...
This is an irrational fear but is causing alot of problems in my marriage, at the time I just think, I just don't want to deal with having a sore vagina, it's not worth it, but when I look a my husbands sad face when he leaves I know I have to change this somehow.
I am going to try counseling maybe bahavioural or some anxiety reducing techniques...my life is almost back to normal, I don't want this terrible condition to run my life anymore. How do you guys cope with traveling issues? have any of you tried going to therapy to deal with issues related to your vulvodynia?

Penny prickles

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Join date : 2016-03-29

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