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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 1

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 1

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

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Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 9

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 12

Can A Cut In Vestibule cause Vulvodynia?

Thu Mar 01, 2018 1:07 am by rockylife

Can a cut in the vestibule area cause vulvodynia? Is it possible that some nerve a were damaged that’s why I feel this pain in my area without visible lesions?

Comments: 0

travelling woes

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travelling woes

Post  Penny prickles on Sat Mar 18, 2017 3:22 pm

I have had vulvodynia for about 10 years, it was a long uphill battle but I am feeling alot better due to a family dr willing to listen and subscrib me elival for my pain. I previously saw two gyno's who couldn't really help me and went to a number of clinics just trying to stop the intense pain I had.  I am feeling so much better now on 20-25 mg of elival, I don't know what would have happened if my family dr wasn't so understanding.  I am able to wear pants and even jeans now (the stretchy kind). my sex life is still not back to normal but fortunately my husband is very understanding about that.
My main issue now is one that is causing us alot of problems, I have developed a fear of traveling.  My husband loves to travel and I used to also before I got vulvadynia. Now every trip is marred with much anxiety and I end up cancelling at the last minute sometimes, like today.
I still think back to how I was years ago when I was feeling my worst and we traveled, I would end up in extreme pain, not able to even sit for one hr for dinner and would end up lying in bed with an icepack on my painful vagina just trying to sleep and wishing I was at home.  Now a days when I can get myself to travel, (usually this involves alot of talking into by my husband) I am usually ok, a bit sore due to sitting but nothing like before, I am usually happy that I went but it's just so hard to talk myself into going, I have that fear in the back of my head what if it does get bad again...
This is an irrational fear but is causing alot of problems in my marriage, at the time I just think, I just don't want to deal with having a sore vagina, it's not worth it, but when I look a my husbands sad face when he leaves I know I have to change this somehow.
I am going to try counseling maybe bahavioural or some anxiety reducing techniques...my life is almost back to normal, I don't want this terrible condition to run my life anymore. How do you guys cope with traveling issues? have any of you tried going to therapy to deal with issues related to your vulvodynia?

Penny prickles

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Join date : 2016-03-29

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