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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


travelling woes

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travelling woes

Post  Penny prickles on Sat Mar 18, 2017 3:22 pm

I have had vulvodynia for about 10 years, it was a long uphill battle but I am feeling alot better due to a family dr willing to listen and subscrib me elival for my pain. I previously saw two gyno's who couldn't really help me and went to a number of clinics just trying to stop the intense pain I had.  I am feeling so much better now on 20-25 mg of elival, I don't know what would have happened if my family dr wasn't so understanding.  I am able to wear pants and even jeans now (the stretchy kind). my sex life is still not back to normal but fortunately my husband is very understanding about that.
My main issue now is one that is causing us alot of problems, I have developed a fear of traveling.  My husband loves to travel and I used to also before I got vulvadynia. Now every trip is marred with much anxiety and I end up cancelling at the last minute sometimes, like today.
I still think back to how I was years ago when I was feeling my worst and we traveled, I would end up in extreme pain, not able to even sit for one hr for dinner and would end up lying in bed with an icepack on my painful vagina just trying to sleep and wishing I was at home.  Now a days when I can get myself to travel, (usually this involves alot of talking into by my husband) I am usually ok, a bit sore due to sitting but nothing like before, I am usually happy that I went but it's just so hard to talk myself into going, I have that fear in the back of my head what if it does get bad again...
This is an irrational fear but is causing alot of problems in my marriage, at the time I just think, I just don't want to deal with having a sore vagina, it's not worth it, but when I look a my husbands sad face when he leaves I know I have to change this somehow.
I am going to try counseling maybe bahavioural or some anxiety reducing techniques...my life is almost back to normal, I don't want this terrible condition to run my life anymore. How do you guys cope with traveling issues? have any of you tried going to therapy to deal with issues related to your vulvodynia?

Penny prickles

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Join date : 2016-03-29

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