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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 3

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5

Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

Comments: 1

Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0


Feeling alone :(

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Feeling alone :(

Post  pr3ston on Wed Apr 26, 2017 4:39 pm

Joined this forum because I just feel so lonely Sad my boyfriend, family and friends are all very sympathetic and doing the best they can for me but no one really understands the physical/emotional pain I'm going through. I just can't see an end to this, but neither can I find a way to live with it either. I don't want to live my life like this. I am 20, my sex life had barely started and now I feel like I'll never enjoy intimacy in a normal way again. I am losing faith that this is treatable.
I realised how alone I was when I updated a friend on the current situation (experiencing a really bad flare.. had seen a degree of improvement up until then). She said "oh right your funky vag?" and asked if it was too tight. I tried to explain that its a problem with the nerves etc. but I'm not sure she quite understood how debilitating this is.
I just wish there was a magical instant cure so I wouldn't have to worry about how long this will continue or if it will ever stop.

pr3ston

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Re: Feeling alone :(

Post  fairlight10 on Wed Apr 26, 2017 5:33 pm

I have been where you are now. Believe me you will improve. I am not familiar with your story and we all have one. I had not found this forum when I was first diagnosed. I found it difficult to understand.. why was this happening to me. I was diagnosed with thrush, then atrophic vaginitis. Given medication for their diagnosis that was making it worse. A private consultation with a gynaecologist gave me a correct diagnosis and he put me on low antidepressants. They started to work within weeks. I had flare ups which was upsetting. I found this forum and read every post. I also had 20 sessions of acupuncture. Stress makes this condition worse. The acupuncture helped to reduce my stress and needles were inserted in areas related to treating my vulvodynia. I actually have vulvar vestibulitis. Slowly after 4 months off work , I was able to go back. Much to the relief of family and friends. I said to myself that if I did not have this condition and someone else did. They were trying to tell me what it was like ,I do not think I would understand it. That is were this forum is invaluable to all of us. Also, the antidepressants will lift your . Which is what you need. I am glad you support from your mum and boyfriend.

fairlight10

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Re: Feeling alone :(

Post  fairlight10 on Wed Apr 26, 2017 5:38 pm

Just read this back. Meant to say the low dose antidepressant will lift your mood.

fairlight10

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Re: Feeling alone :(

Post  PainBlogger on Wed Apr 26, 2017 8:36 pm

There may not be a magic instant cure but there are many different treatments/lifestyle changes to try. I know it's hard but try not to give up hope that you can get better. I am 95% free of my pain in that area now (http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement) . Be stubborn and be open to trying any options you have access to/can afford/are practical for your personal circumstances. I hope you find some relief soon.

PainBlogger

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Re: Feeling alone :(

Post  pr3ston on Fri Apr 28, 2017 6:17 pm

Thank you so much for your kind words, it means a lot. I saw my dermatologist today who recommended acupuncture. She said I should be better in the next year which hasn't filled me with hope and said she was wary of prescribing antidepressants. I'm going to keep trying treatment for now.

pr3ston

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Re: Feeling alone :(

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