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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Feeling alone :(

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Feeling alone :(

Post  pr3ston on Wed Apr 26, 2017 4:39 pm

Joined this forum because I just feel so lonely Sad my boyfriend, family and friends are all very sympathetic and doing the best they can for me but no one really understands the physical/emotional pain I'm going through. I just can't see an end to this, but neither can I find a way to live with it either. I don't want to live my life like this. I am 20, my sex life had barely started and now I feel like I'll never enjoy intimacy in a normal way again. I am losing faith that this is treatable.
I realised how alone I was when I updated a friend on the current situation (experiencing a really bad flare.. had seen a degree of improvement up until then). She said "oh right your funky vag?" and asked if it was too tight. I tried to explain that its a problem with the nerves etc. but I'm not sure she quite understood how debilitating this is.
I just wish there was a magical instant cure so I wouldn't have to worry about how long this will continue or if it will ever stop.

pr3ston

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Re: Feeling alone :(

Post  fairlight10 on Wed Apr 26, 2017 5:33 pm

I have been where you are now. Believe me you will improve. I am not familiar with your story and we all have one. I had not found this forum when I was first diagnosed. I found it difficult to understand.. why was this happening to me. I was diagnosed with thrush, then atrophic vaginitis. Given medication for their diagnosis that was making it worse. A private consultation with a gynaecologist gave me a correct diagnosis and he put me on low antidepressants. They started to work within weeks. I had flare ups which was upsetting. I found this forum and read every post. I also had 20 sessions of acupuncture. Stress makes this condition worse. The acupuncture helped to reduce my stress and needles were inserted in areas related to treating my vulvodynia. I actually have vulvar vestibulitis. Slowly after 4 months off work , I was able to go back. Much to the relief of family and friends. I said to myself that if I did not have this condition and someone else did. They were trying to tell me what it was like ,I do not think I would understand it. That is were this forum is invaluable to all of us. Also, the antidepressants will lift your . Which is what you need. I am glad you support from your mum and boyfriend.

fairlight10

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Re: Feeling alone :(

Post  fairlight10 on Wed Apr 26, 2017 5:38 pm

Just read this back. Meant to say the low dose antidepressant will lift your mood.

fairlight10

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Re: Feeling alone :(

Post  PainBlogger on Wed Apr 26, 2017 8:36 pm

There may not be a magic instant cure but there are many different treatments/lifestyle changes to try. I know it's hard but try not to give up hope that you can get better. I am 95% free of my pain in that area now (http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement) . Be stubborn and be open to trying any options you have access to/can afford/are practical for your personal circumstances. I hope you find some relief soon.

PainBlogger

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Re: Feeling alone :(

Post  pr3ston on Fri Apr 28, 2017 6:17 pm

Thank you so much for your kind words, it means a lot. I saw my dermatologist today who recommended acupuncture. She said I should be better in the next year which hasn't filled me with hope and said she was wary of prescribing antidepressants. I'm going to keep trying treatment for now.

pr3ston

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Re: Feeling alone :(

Post  blackberrie on Sat Oct 06, 2018 10:19 pm

i feel you. the people i have told about this just don't understand at all. when i talk about it to them i get the equivalent of a blank stare. my mom is all like how come you dont have a boyfriend even though she knows i have this problem. my friends will sometimes make references to me having sex and when im like dude.. i can't.. they're like oh right. it bothers me that it's something they constantly forget. it's like telling a blind person that they need to take a look at this. in that situation people would be like "oh shit i'm sorry" and feel ashamed that they forgot, but with this they don't seem to have that attitude at all. they think it's totally chill that they forgot and it just bothers me because it makes me feel like they don't care. sure it's hard to truly understand the struggle we deal with, but i do feel like if the situation was reversed i would try harder to get it and be more empathetic than my friends seem to be. maybe i'm wrong but i don't think so. sex is a huge part of life and even in like tv/media when two characters can't have sex it's this whole big deal. why can't they understand that this is really hard mentally?

blackberrie

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Re: Feeling alone :(

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