Vulvodynia Support
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» Hope to all my suffering ladies
Feeling alone :( EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Feeling alone :( EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Feeling alone :( EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Feeling alone :( EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Feeling alone :( EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Feeling alone :( EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Feeling alone :( EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Feeling alone :( EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Feeling alone :( EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Feeling alone :(

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Post  pr3ston Wed Apr 26, 2017 4:39 pm

Joined this forum because I just feel so lonely Sad my boyfriend, family and friends are all very sympathetic and doing the best they can for me but no one really understands the physical/emotional pain I'm going through. I just can't see an end to this, but neither can I find a way to live with it either. I don't want to live my life like this. I am 20, my sex life had barely started and now I feel like I'll never enjoy intimacy in a normal way again. I am losing faith that this is treatable.
I realised how alone I was when I updated a friend on the current situation (experiencing a really bad flare.. had seen a degree of improvement up until then). She said "oh right your funky vag?" and asked if it was too tight. I tried to explain that its a problem with the nerves etc. but I'm not sure she quite understood how debilitating this is.
I just wish there was a magical instant cure so I wouldn't have to worry about how long this will continue or if it will ever stop.

pr3ston

Posts : 5
Join date : 2017-04-19

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Post  fairlight10 Wed Apr 26, 2017 5:33 pm

I have been where you are now. Believe me you will improve. I am not familiar with your story and we all have one. I had not found this forum when I was first diagnosed. I found it difficult to understand.. why was this happening to me. I was diagnosed with thrush, then atrophic vaginitis. Given medication for their diagnosis that was making it worse. A private consultation with a gynaecologist gave me a correct diagnosis and he put me on low antidepressants. They started to work within weeks. I had flare ups which was upsetting. I found this forum and read every post. I also had 20 sessions of acupuncture. Stress makes this condition worse. The acupuncture helped to reduce my stress and needles were inserted in areas related to treating my vulvodynia. I actually have vulvar vestibulitis. Slowly after 4 months off work , I was able to go back. Much to the relief of family and friends. I said to myself that if I did not have this condition and someone else did. They were trying to tell me what it was like ,I do not think I would understand it. That is were this forum is invaluable to all of us. Also, the antidepressants will lift your . Which is what you need. I am glad you support from your mum and boyfriend.

fairlight10

Posts : 72
Join date : 2016-04-17

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Post  fairlight10 Wed Apr 26, 2017 5:38 pm

Just read this back. Meant to say the low dose antidepressant will lift your mood.

fairlight10

Posts : 72
Join date : 2016-04-17

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Post  PainBlogger Wed Apr 26, 2017 8:36 pm

There may not be a magic instant cure but there are many different treatments/lifestyle changes to try. I know it's hard but try not to give up hope that you can get better. I am 95% free of my pain in that area now (https://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement) . Be stubborn and be open to trying any options you have access to/can afford/are practical for your personal circumstances. I hope you find some relief soon.

PainBlogger

Posts : 219
Join date : 2015-07-27

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Post  pr3ston Fri Apr 28, 2017 6:17 pm

Thank you so much for your kind words, it means a lot. I saw my dermatologist today who recommended acupuncture. She said I should be better in the next year which hasn't filled me with hope and said she was wary of prescribing antidepressants. I'm going to keep trying treatment for now.

pr3ston

Posts : 5
Join date : 2017-04-19

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Post  blackberrie Sat Oct 06, 2018 10:19 pm

i feel you. the people i have told about this just don't understand at all. when i talk about it to them i get the equivalent of a blank stare. my mom is all like how come you dont have a boyfriend even though she knows i have this problem. my friends will sometimes make references to me having sex and when im like dude.. i can't.. they're like oh right. it bothers me that it's something they constantly forget. it's like telling a blind person that they need to take a look at this. in that situation people would be like "oh shit i'm sorry" and feel ashamed that they forgot, but with this they don't seem to have that attitude at all. they think it's totally chill that they forgot and it just bothers me because it makes me feel like they don't care. sure it's hard to truly understand the struggle we deal with, but i do feel like if the situation was reversed i would try harder to get it and be more empathetic than my friends seem to be. maybe i'm wrong but i don't think so. sex is a huge part of life and even in like tv/media when two characters can't have sex it's this whole big deal. why can't they understand that this is really hard mentally?

blackberrie

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Join date : 2018-10-06

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