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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Feeling alone :(

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Feeling alone :(

Post  pr3ston on Wed Apr 26, 2017 4:39 pm

Joined this forum because I just feel so lonely Sad my boyfriend, family and friends are all very sympathetic and doing the best they can for me but no one really understands the physical/emotional pain I'm going through. I just can't see an end to this, but neither can I find a way to live with it either. I don't want to live my life like this. I am 20, my sex life had barely started and now I feel like I'll never enjoy intimacy in a normal way again. I am losing faith that this is treatable.
I realised how alone I was when I updated a friend on the current situation (experiencing a really bad flare.. had seen a degree of improvement up until then). She said "oh right your funky vag?" and asked if it was too tight. I tried to explain that its a problem with the nerves etc. but I'm not sure she quite understood how debilitating this is.
I just wish there was a magical instant cure so I wouldn't have to worry about how long this will continue or if it will ever stop.

pr3ston

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Re: Feeling alone :(

Post  fairlight10 on Wed Apr 26, 2017 5:33 pm

I have been where you are now. Believe me you will improve. I am not familiar with your story and we all have one. I had not found this forum when I was first diagnosed. I found it difficult to understand.. why was this happening to me. I was diagnosed with thrush, then atrophic vaginitis. Given medication for their diagnosis that was making it worse. A private consultation with a gynaecologist gave me a correct diagnosis and he put me on low antidepressants. They started to work within weeks. I had flare ups which was upsetting. I found this forum and read every post. I also had 20 sessions of acupuncture. Stress makes this condition worse. The acupuncture helped to reduce my stress and needles were inserted in areas related to treating my vulvodynia. I actually have vulvar vestibulitis. Slowly after 4 months off work , I was able to go back. Much to the relief of family and friends. I said to myself that if I did not have this condition and someone else did. They were trying to tell me what it was like ,I do not think I would understand it. That is were this forum is invaluable to all of us. Also, the antidepressants will lift your . Which is what you need. I am glad you support from your mum and boyfriend.

fairlight10

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Re: Feeling alone :(

Post  fairlight10 on Wed Apr 26, 2017 5:38 pm

Just read this back. Meant to say the low dose antidepressant will lift your mood.

fairlight10

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Re: Feeling alone :(

Post  PainBlogger on Wed Apr 26, 2017 8:36 pm

There may not be a magic instant cure but there are many different treatments/lifestyle changes to try. I know it's hard but try not to give up hope that you can get better. I am 95% free of my pain in that area now (http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement) . Be stubborn and be open to trying any options you have access to/can afford/are practical for your personal circumstances. I hope you find some relief soon.

PainBlogger

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Re: Feeling alone :(

Post  pr3ston on Fri Apr 28, 2017 6:17 pm

Thank you so much for your kind words, it means a lot. I saw my dermatologist today who recommended acupuncture. She said I should be better in the next year which hasn't filled me with hope and said she was wary of prescribing antidepressants. I'm going to keep trying treatment for now.

pr3ston

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Re: Feeling alone :(

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