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Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 4

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5


Does it go away?

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Does it go away?

Post  cam4221 on Fri Apr 28, 2017 12:16 am

I started having problems in May 2016 and it took seeing 5 doctors to finally get diagnosed after 6 months of pain. I've been taking ami @ 75mg and also taking gabapentin 600 mg multiple times a day. It seems that there are times that this condition just disappears and then comes back at random times. Does anybody go through that? Also does anybody else get infections more often than they did before this condition came on? Also does anybody feel like when they are ovulating that it's extra gunky down there? I'm not sure if maybe I notice my ovulation more because of this condition and it may be the normal amount but I just am unsure on how everyone feels and sometimes it's hard to describe to a doctor when they don't have that condition and it seems that not many doctors know about this condition....

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Re: Does it go away?

Post  SinclairSassy on Mon May 22, 2017 1:55 pm

Hey there!

When I am on my period, I feel completely fine. I can wear jeans, underwear, you name it. But once I am off my period, my symptoms come back at random times. I might have a few days where I don't feel much pain (of course, I take my gabapentin every day, regardless of pain), then bang, I'm back to sitting on an ice pack. Recently, the pain has been gone during the day and around 9:30pm it returns. Just in time to guarantee a sleepless night. My IC is like this, too. I am fine during the day, but once it is about time to go to bed, I start feeling pain. My IC is not affected by diet. About every other year I get a huge flare that lasts a month or two. Sorry, I am rambling. Cool

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Re: Does it go away?

Post  mary jane on Mon May 22, 2017 2:12 pm

yes, it will and the more you believe it the better these chances are.
It can go away forever or come back again after some years but it is still very possible to achieve at least a remission. Don't let anyone tell you it's for life because people are different and don't forget there is also something called spontaneous remission.

Some years ago, I had a very bad nocturnal panic attack and the ambulance was called because I was hysterical and telling everyone I'm dying Shocked l, in an effort to calm me down, one of the ambulance ladies told me she once had cystitis for 6 full months ! and that one day it disappeared the same way it appeared for her...for no obvious reason. So there you go!

Try and read positive stories and maybe buy some positive books on remissions from illness, it helps a lot to stay positive
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Re: Does it go away?

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