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» Vestibulectomy
Yesterday at 12:39 pm by Hopeitworks

» Anyone been to see Dr.Claire Bailey in Birmingham?
Tue Aug 15, 2017 6:36 pm by Kezz

» Recently Diagnosed.... Help!
Tue Aug 15, 2017 2:57 pm by amyhp

» Discomfort from my own liquids
Sun Aug 13, 2017 4:27 am by Hopeitworks

» Anyone else have burning on the front of thighs?
Sun Aug 13, 2017 2:20 am by Hopeitworks

» Partial Vestibulectomy
Sun Aug 13, 2017 1:38 am by infinitelywondering

» Anyone being treated by Drexel University???
Sat Aug 12, 2017 8:50 pm by Hopeitworks

» Post Vestibulectomy Pain !!!
Sat Aug 12, 2017 8:00 pm by sj17

» Pain management - what works for me
Sat Aug 12, 2017 9:58 am by sj17

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 1

New to the site and just had a vestibulectomy

Fri Aug 04, 2017 12:19 am by Hopeitworks

Hello Everyone,

I have been suffering from vulvodynia for years! So I decided to go ahead and have vestibulectomy on July 28, 2017. I really wished I would of found this site before I went through with the surgery. Maybe I would have been more prepared to deal with recovering. I just need someone to talk and I dont mind hearing your story.

Comments: 2

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 0

can anyone recommend a good dermatologist in LA?

Thu Jul 27, 2017 4:17 pm by saffron

Hi, I am wondering if anyone knows a vulvar dermatologist in Los Angeles? My problems seem to be external, but I'm having trouble finding a knowledgable doctor. My current dermatologist is pretty cosmetic based and I'm afraid all the products he prescribed actually made my situation so much worse!

I know there a few drs in Orange County/San Diego, but was hoping to stay local as even …

Comments: 3

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 0


Does it go away?

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Does it go away?

Post  cam4221 on Fri Apr 28, 2017 12:16 am

I started having problems in May 2016 and it took seeing 5 doctors to finally get diagnosed after 6 months of pain. I've been taking ami @ 75mg and also taking gabapentin 600 mg multiple times a day. It seems that there are times that this condition just disappears and then comes back at random times. Does anybody go through that? Also does anybody else get infections more often than they did before this condition came on? Also does anybody feel like when they are ovulating that it's extra gunky down there? I'm not sure if maybe I notice my ovulation more because of this condition and it may be the normal amount but I just am unsure on how everyone feels and sometimes it's hard to describe to a doctor when they don't have that condition and it seems that not many doctors know about this condition....

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Re: Does it go away?

Post  SinclairSassy on Mon May 22, 2017 1:55 pm

Hey there!

When I am on my period, I feel completely fine. I can wear jeans, underwear, you name it. But once I am off my period, my symptoms come back at random times. I might have a few days where I don't feel much pain (of course, I take my gabapentin every day, regardless of pain), then bang, I'm back to sitting on an ice pack. Recently, the pain has been gone during the day and around 9:30pm it returns. Just in time to guarantee a sleepless night. My IC is like this, too. I am fine during the day, but once it is about time to go to bed, I start feeling pain. My IC is not affected by diet. About every other year I get a huge flare that lasts a month or two. Sorry, I am rambling. Cool

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Re: Does it go away?

Post  mary jane on Mon May 22, 2017 2:12 pm

yes, it will and the more you believe it the better these chances are.
It can go away forever or come back again after some years but it is still very possible to achieve at least a remission. Don't let anyone tell you it's for life because people are different and don't forget there is also something called spontaneous remission.

Some years ago, I had a very bad nocturnal panic attack and the ambulance was called because I was hysterical and telling everyone I'm dying Shocked l, in an effort to calm me down, one of the ambulance ladies told me she once had cystitis for 6 full months ! and that one day it disappeared the same way it appeared for her...for no obvious reason. So there you go!

Try and read positive stories and maybe buy some positive books on remissions from illness, it helps a lot to stay positive
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Re: Does it go away?

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