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Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 19

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 1

New member

Sat Mar 18, 2017 7:37 pm by Lisa1627

Hi ladies. I am new to the forum. I have had what I think is vulvodynia caused from hsv 2. So not only do I have the burning vag but the constant feeling of being contagious. I can honestly say that I hate my life and myself right now. There are days when I think I would rather be dead. I tried the amitryptline and it helped but if it's only making my brain think I don't have pain then it's …

Comments: 12

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 3

Recovered from Vulvodynia

Thu May 04, 2017 9:42 pm by chancesunny

Hey everyone,

Im a new member on this forum and wanted to share my story so I can help anyone who is feeling helpless. Maybe what worked for me can work for you. I'll try to make this short so you can go get better!

I had vulvodynia for about 3-4 years. In the beginning, it started with pain that I thought was just a yeast infection and then I thought it was a urinary tract infection or …

Comments: 2

New here, my story and looking for advice

Wed Apr 26, 2017 9:02 am by rachiecakes

Hi All!

I was really hoping to get some feedback from everyone here - it's very hard dealing with an issue like this because no one really understands what I'm going through!

Im 28 years old I've had interstitial cystitis for 3 years - but never an vaginal issues. About 6 months ago I got a yeast infection following a course of antibiotics - similarly I developed IC after a bad UTI. The itching …

Comments: 4

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 2

Male visitor

Wed Jan 18, 2017 11:19 pm by outsider

Hello!

I am a 25 year old guy who has erectile dysfunction following an injury a few years ago. I am here because I think that men and women with sexual dysfunction could benefit from dating each other. My experience has been that women have lost interest when they found out that penetrative sex was not possible with me.
So I am interested in learning more about female sexual disorders. Do young …

Comments: 3

New Here: Question/My Story

Mon Apr 03, 2017 2:00 am by overit14

Hi everyone. I came across this site by Googling "vulvar pain support". I feel like my case is different than most I read about so I was wondering if anyone else here experiences this in the way that I do.

This started in 2012 and has happened off and on since. I get really, really red and it's very painful, swollen and burns. Sometimes it may be a little itchy, but mostly it just …

Comments: 6


Vestibulectory removes 85% of pain, Birth removes 15%

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Vestibulectory removes 85% of pain, Birth removes 15%

Post  pangea on Sat May 27, 2017 8:27 pm

I was diagnosed in 1999, at 21 years old, right when my sexual life was starting.  I'm pretty sure it started after a reaction to spermicide on a condom, which I thought was a yeast infection, so I treated with a lot of creams. It was too much for my skin. It is strange to write these words now, at 40, and revisit what was a very depressing, painful part of my life.  To get to the point, after years of trying everything under the sun and the redness and papercuts getting progressively worse, I decided to get a vestibulectomy after 10 years of VV.  The surgery removed 85% of the pain, which is a great success.  I could have sex, and for the first time enjoy it without needing a lot of alcohol to numb the pain.  After a year of good sex, it was time to make babies, I've made two!  Because of the lack of skin to stretch, I tore significantly, but that was like booster surgeries each time when getting stitched back up.  These free 'booster' surgeriges 'reorganized the skin again, and actually removed the remaining 15% of pain, and now I actually have trouble NOT orgasming.  It all seems so normal now, that I forget to terrible 10 years of my 20's.  So that's the short version, here's additional information.

Though I live in Phoenix where a vuvlar specialist lives, I opted to fly to Portland and get the surgery done by a very experienced female doctor at the teaching university there.  She has been doing these surgeries longer than most any other gyn, and I liked that she probed me gently as I feel a good surgeon should, and was a female. I kindof like that, emotionally.  Even after flight and hotel it was cheaper than doing it locally.  I stayed at a hotel there one week with my mom as I recovered

Equally important in my recovery is the associated intolerance of wheat, milk, and eggs, which if I eat for two weeks continuously will make me go down in a ball of pain on the floor after urinating and for the next 5 hours, even if I'm at a mall, I discovered.  Just like the scene with Tom Hanks in the move The Green Mile.

Well, my babies are home so I have to run! But isn't that nice to read!? My babies that I made by having sex without pain and whose birth led to an even better sex life are home!  

It took me a long time, but it gets better. Keep at it, keep researching, and it'll happen for you, too!

Be strong and stay away from negativity.

Love,

S.R.

pangea

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Join date : 2017-05-27

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