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» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

» New here would very much appreciate advice at the end of my rope
Wed Feb 13, 2019 12:33 pm by feeling desperate

» MonaLisa Touch
Sat Feb 09, 2019 3:46 pm by Julquint

» New member desperate need of other vulvadynia sufferers
Sat Feb 09, 2019 10:09 am by Tfc13

» The pain CAN get better - What's worked for me
Sat Feb 09, 2019 8:17 am by Ginger

» Remission and relapse and again and again
Thu Feb 07, 2019 1:10 pm by mary jane

» Long term pain after partial vestibulectomy?
Wed Feb 06, 2019 1:56 pm by mary jane

» Recovery story please read !!
Fri Feb 01, 2019 1:33 pm by mary jane

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 1

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3


Please Help. Almost 10 weeks post vestibulectomy and still in pain

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Please Help. Almost 10 weeks post vestibulectomy and still in pain

Post  Summer1 on Tue May 30, 2017 2:15 am

I had a vestibulectomy with vaginal advancement performed on March 24th for my provoked vestibulodynia. My surgeon told me she had only performed 15 vestibulectomy, but as a urogynecologist that performs many pelvic reconstructive surgeries a vestibulectomy was a piece of cake. Thererfore, I had her perform the surgery and now almost 10-weeks later I regret having the surgery because I feel worse than pre-surgery.

I initially had the burning and cutting feeling only when I had penetration. Now, without any penetration I am experiencing a hot/burning feeling along with a pricking feeling (like tooth picks stabbing me or little cuts) on my vestibule. I occasionally have this feeling like I have something stuck in my vagina (almost like a compact dry tampon) and I can't wear tight clothes without irritation. Also, I am able to sit, but I still have to position myself to a degree where my vagina isn't completely on my seat, as it causes soreness and a dull pain. And when I have been sexually aroused the pain is unbearable.

I am terrified by what I am experiencing and have been crying the last week because I have read that by week 8, your pain should be gone and week 8 determines if your surgery was a success. Yet, here I go on 9 1/2 weeks and it feels like I just had surgery. Because my doctor hasn't performed many vestibulectomy, I wasn't given detailed post-op instructions, so a few days ago, I tried inserting my dialtor and was in extreme pain and I don't know if I made things worse by using my dialtor. I also resumed exercising at week 7  (i.e. burpees, squats, mountain climbing)

Should I be in panic mode? Has anyone experienced pain at this point post-surgery or does it sound like I got a botch job and I should make an appointment with Dr. Goldstein to see if he can correct my problem. My doctor is nice, but because she hasn't done many vestibulectomy she hasn't given me that best post-op instructions. I even told her I was dry down there and did she cover my bratholin gland and she wasn't sure. (Yikes) At my 6 week post-surgery check up she said everything looked good, I still had stitches that needed to dissolve and follow up with her after week 10.

I don't know what to do. Any advice or input I would greatly appreciate. I feel like pulling my hair out because I feel like I am in a worse position than before. At 10-weeks can what I am experiencing be normal? Or is my panicking justified? Should I make an appointment with a more seasoned surgeon (like Dr. Goldstein) or once you have this surgery there is no way to correct a problem?


Thank you

Summer1

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Re: Please Help. Almost 10 weeks post vestibulectomy and still in pain

Post  mary jane on Thu Jun 01, 2017 9:30 pm

Summer1 wrote:I had a vestibulectomy with vaginal advancement performed on March 24th for my provoked vestibulodynia. My surgeon told me she had only performed 15 vestibulectomy, but as a urogynecologist that performs many pelvic reconstructive surgeries a vestibulectomy was a piece of cake. Thererfore, I had her perform the surgery and now almost 10-weeks later I regret having the surgery because I feel worse than pre-surgery.

I initially had the burning and cutting feeling only when I had penetration. Now, without any penetration I am experiencing a hot/burning feeling along with a pricking feeling (like tooth picks stabbing me or little cuts) on my vestibule. I occasionally have this feeling like I have something stuck in my vagina (almost like a compact dry tampon) and I can't wear tight clothes without irritation. Also, I am able to sit, but I still have to position myself to a degree where my vagina isn't completely on my seat, as it causes soreness and a dull pain. And when I have been sexually aroused the pain is unbearable.

I am terrified by what I am experiencing and have been crying the last week because I have read that by week 8, your pain should be gone and week 8 determines if your surgery was a success. Yet, here I go on 9 1/2 weeks and it feels like I just had surgery. Because my doctor hasn't performed many vestibulectomy, I wasn't given detailed post-op instructions, so a few days ago, I tried inserting my dialtor and was in extreme pain and I don't know if I made things worse by using my dialtor. I also resumed exercising at week 7  (i.e. burpees, squats, mountain climbing)

Should I be in panic mode? Has anyone experienced pain at this point post-surgery or does it sound like I got a botch job and I should make an appointment with Dr. Goldstein to see if he can correct my problem. My doctor is nice, but because she hasn't done many vestibulectomy she hasn't given me that best post-op instructions. I even told her I was dry down there and did she cover my bratholin gland and she wasn't sure. (Yikes) At my 6 week post-surgery check up she said everything looked good, I still had stitches that needed to dissolve and follow up with her after week 10.

I don't know what to do. Any advice or input I would greatly appreciate. I feel like pulling my hair out because I feel like I am in a worse position than before. At 10-weeks can what I am experiencing be normal? Or is my panicking justified? Should I make an appointment with a more seasoned surgeon (like Dr. Goldstein) or once you have this surgery there is no way to correct a problem?


Thank you


Hello,

I have never had a vestibulectomy, however what you are describing is what I had a long time ago.. it's just nerves being irritated or maybe some minor nerve damage in one of the areas. I would not panic, stay calm and ask for nerve pain medication to control the symptoms. In time you will be able to wean off them and you should go back to normal. Lyrica is considered to be the best. It has been over 2 months and you shouldn't feel this pain. I doubt the surgery was poorly done, it;s just that any type of surgery can have a minor risk of nerve damage. Even labiaplasty. Nerves do grow back at a rate of 1 mm per day so in time you should be healed. I have had countless surgeries for my bartholin glands and even with my most invasive one in 8 weeks I was back to normal. Can you also apply some topical lidocaine 5% ointment ?
the feeling of tampon stuck or inflammation when there is none is nerves sending wrong signals.
Again, this can sometimes happen and is no cause for panic. the solution lies in medication, pelvic therapy and topical numbing gels.

mary jane
mary jane

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Re: Please Help. Almost 10 weeks post vestibulectomy and still in pain

Post  mary jane on Thu Jun 01, 2017 9:33 pm

I doubt it was a botch job. Do NOT under any circumstance have any other surgeries just yet.
ANY surgery on the face of the planet has a very small tiny risk of nerve damage. Nerves do grow back or stop sending pain signals. You can act now and do gradual desensitiziation, take medication and when ready, you can try pelvic therapy.
mary jane
mary jane

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Re: Please Help. Almost 10 weeks post vestibulectomy and still in pain

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