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» Dating with Vulvodynia and Vaginismus advice
Sun Mar 17, 2019 4:46 pm by Lemonade_lemons

» Lyrica has been classed as a Class C drug in UK
Mon Mar 11, 2019 9:20 pm by mary jane

» Long Time No Talk... What's been going on with my V pain the past few years...
Mon Mar 11, 2019 9:15 pm by mary jane

» An absolute success story- please read!
Fri Mar 08, 2019 10:57 pm by Persevere1990

» I'm sorry im rambling
Fri Mar 08, 2019 7:34 pm by scrumptuous

» New member need advice please
Fri Mar 08, 2019 7:11 pm by scrumptuous

» MonaLisa Touch
Fri Mar 08, 2019 4:46 pm by rl2091

» Diagnosed Recently
Thu Feb 14, 2019 6:35 pm by davesjen

» New and need advice and help
Wed Feb 13, 2019 12:42 pm by feeling desperate

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3

New member desperate need of other vulvadynia sufferers

Fri Feb 08, 2019 6:55 pm by Tfc13

Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

Comments: 5

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 7


Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

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Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

Post  sab24 on Wed May 31, 2017 3:37 am

Hello, all! I am 24 years old and was diagnosed with Vulvodynia after experiencing pain for a long time. In the past few months, the pain has been getting worse and has spread to my lower back. Please, any advice anyone has on dealing with this. I don't have health insurance at the moment. Any methods you all have used for pain management. I will take any advice!!!

sab24

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Re: Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

Post  mary jane on Thu Jun 01, 2017 9:24 pm

hello, really sorry to hear so...

if the pain has spread maybe there is a cycle of nerves and inflammation or muscle tension going on ...
I had some lower back pain at some point and started doing gentle exercises like the child's pose and cat/cow stretch. These and naproxen took the pain away.

what kind of pain do you have? the cheapest medication out there is amitriptyline, although it takes 3-4 months to properly work. I am not familiar with the system in US so I can't advise more in how to deal with insurance but this is a cheap drug almost everywhere.
Can you buy lidocaine 5% ointment over the counter at all? it helps ...if you tell more about your symptoms maybe we can give more advice ....
mary jane
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Re: Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

Post  sab24 on Thu Jun 01, 2017 11:43 pm

Hi,

Thank you for responding. My pain is a lot of sharp, stabbing, throbbing pain in the vaginal region and achey, painful pain in my lower back that radiates through my muscles.

I haven't tried Lidocaine yet, has that worked for you all?

have any of you had trouble sitting long hours? Has anyone used any sort of pillows?

sab24

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Re: Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

Post  mary jane on Fri Jun 02, 2017 10:51 am

Hi, lidocaine helped me, yes. lidocaine works for the vulva nerves, albeit not entirely but it helps take the edge off

it sounds like nerve pain or irritated nerves from what you are saying,. I would recommend you start medication as soon as possible to interrupt the pain signals your brain is sending the nerves...

Also, since pain occurs in the brain, you can really benefit from mindfulness, meditation and anti anxiety medication if the condition is causing a lot of anxiety.

Try the Lyrica, it's the best out there.
another thing, I must be honest with you, yes you will experience side effects from it. I would push through it unless they are life threatening. A lot of people try something for one week, complain, stop the medication and then of course you can't get healed!

I had weight gain, panick attacks, fatigue and dizziness at times and pushed through it and they worked.
mary jane
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Re: Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

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