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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

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Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

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Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

Post  sab24 on Wed May 31, 2017 3:37 am

Hello, all! I am 24 years old and was diagnosed with Vulvodynia after experiencing pain for a long time. In the past few months, the pain has been getting worse and has spread to my lower back. Please, any advice anyone has on dealing with this. I don't have health insurance at the moment. Any methods you all have used for pain management. I will take any advice!!!

sab24

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Re: Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

Post  mary jane on Thu Jun 01, 2017 9:24 pm

hello, really sorry to hear so...

if the pain has spread maybe there is a cycle of nerves and inflammation or muscle tension going on ...
I had some lower back pain at some point and started doing gentle exercises like the child's pose and cat/cow stretch. These and naproxen took the pain away.

what kind of pain do you have? the cheapest medication out there is amitriptyline, although it takes 3-4 months to properly work. I am not familiar with the system in US so I can't advise more in how to deal with insurance but this is a cheap drug almost everywhere.
Can you buy lidocaine 5% ointment over the counter at all? it helps ...if you tell more about your symptoms maybe we can give more advice ....
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Re: Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

Post  sab24 on Thu Jun 01, 2017 11:43 pm

Hi,

Thank you for responding. My pain is a lot of sharp, stabbing, throbbing pain in the vaginal region and achey, painful pain in my lower back that radiates through my muscles.

I haven't tried Lidocaine yet, has that worked for you all?

have any of you had trouble sitting long hours? Has anyone used any sort of pillows?

sab24

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Re: Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

Post  mary jane on Fri Jun 02, 2017 10:51 am

Hi, lidocaine helped me, yes. lidocaine works for the vulva nerves, albeit not entirely but it helps take the edge off

it sounds like nerve pain or irritated nerves from what you are saying,. I would recommend you start medication as soon as possible to interrupt the pain signals your brain is sending the nerves...

Also, since pain occurs in the brain, you can really benefit from mindfulness, meditation and anti anxiety medication if the condition is causing a lot of anxiety.

Try the Lyrica, it's the best out there.
another thing, I must be honest with you, yes you will experience side effects from it. I would push through it unless they are life threatening. A lot of people try something for one week, complain, stop the medication and then of course you can't get healed!

I had weight gain, panick attacks, fatigue and dizziness at times and pushed through it and they worked.
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Re: Recently diagnosed and in a lot of pain! Any advice is appreciated!!!

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