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New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 4

6 year sufferer but I’ve found some hope

Wed Oct 10, 2018 1:33 am by Npage14

Hey, ladies! I’m new to this support group, I’ve thought about doing something like this for a while so I wanted to try this out! I’ve had vulvodynia for 6 years now, I am self diagnosed. I’m 20 now and the pain started when I had my first encounter with sexual contact when I was 14(I still remained a virgin though it was fingering). For a couple years the pain was so bad I could hardly …

Comments: 0

Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

Comments: 5


Interesting study

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Interesting study

Post  mary jane on Sat Jun 03, 2017 2:16 pm

I found this study .... I am thinking more and more that V is a brain "malfunction" of some sort, like a shortcircuit or "error" ...

"The researchers tested 17 women with vulvodynia and 23 similar women without pain at 23 sites throughout the vulva and at the deltoid muscle, the shin and the thumbnail to assess pain tolerance. They found the women with vulvodynia had lower tolerance at all sites than the women without vulvodynia.

“Vulvodynia used to be considered a psychological problem or a sexual disorder, and was not treated as a medical problem. Now we know vulvodynia is likely a neuropathic disorder in which the nerves in the area are hypersensitive. We found women with vulvodynia were hypersensitive at the vulva, not only in areas that were clinically tender, but in surrounding areas as well, and at areas not thought to be tender at all – the deltoid, shins and thumb. This study shows there are neurological differences that are not psychosomatic,” says study author Barbara D. Reed, M.D., professor of family medicine at the U-M Medical School.

Vulvodynia causes chronic and potentially severe pain at the outer genital region, or vulva. Currently, few doctors are familiar with vulvar pain disorders, and many women with intense pain are misdiagnosed for years with chronic yeast infections or psychological problems. Women with more mild pain or whose pain comes and goes often think some degree of pain in that area is normal and don’t tell their doctors about it.

In this study, the researchers used a specially designed air-spring device that attaches to a cotton swab to apply a range of pressure to the vulva and nearby areas. This device, a vulvodolorimeter, was designed by the researchers for this study so that varying pressures could be applied at different angles. The Q-tip test used to diagnose vulvodynia did not cause pressure severe enough at the thighs for any woman to rate as painful, but the vulvodolorimeter allowed researchers to apply enough pressure to determine a pain threshold for most women."

Overall increased pain sensitivity has been linked to other pain syndromes such as tension headaches, temporomandibular disorder (TMJ) and low back pain, suggesting a generalized and central underlying cause. The researchers suggest the local irritation in vulvodynia may cause neurological changes that alter the body’s central pain processing, resulting in hypersensitivity to pain throughout the body. Another possibility is that these women have widespread tenderness that predisposes them to vulvodynia.

The idea of a central cause of the pain suggests treatment should be aimed at the entire body, not just the vulvar region – for example, antidepressants, aerobic exercise or cognitive behavioral therapy.

The researchers have applied for a grant to further study sensory processing among women with vulvodynia, including their responses to heat or cold and their brain activity.

“This improved understanding of the neuropathic changes present in women with vulvodynia will allow us to better design studies to treat and manage this disorder,” Reed says. “It will also provide women with vulvodynia the information they need to better understand what is happening in their nervous system, and to know that this is an authentic, treatable disorder.”

The study was funded from the National Institutes of Health and the U.S. Army. In addition to Reed, study authors were Hope Haefner, M.D., associate professor of obstetrics and gynecology; Daniel Clauw, M.D., professor of rheumatology; Richard Gracely, Ph.D., professor of rheumatology and neurology; and Jutta Giesecke, M.D., and Thorsten Giesecke, M.D., research fellows. "


source: http://www.news-medical.net/news/2004/07/13/3295.aspx
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mary jane

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