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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Desperate for hope. Please help

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Desperate for hope. Please help

Post  Livethegoodlife79 on Thu Jun 15, 2017 11:04 pm

I just discovered this site and am very grateful to have found it. Although I have to admit some of the posts are freaking me out more. I'm literally at my wits ends. I can't sleep, eat or barely function on a day to day basis my anxiety is through the roof because of this. I really need some words of encouragement if anyone can help me see a glimmer of light at the end of the tunnel.
Background:
I have yet to be officially diagnosed but over the past 4 months I've been to multiple doctors and they all keep dismissing me. I've been told I have eczema or some doctors won't even examin me they just write a Rx for yeast treatment.
Approx 4 months ago I took Plan B. Since then it's been a tornado of random vaginal issues. A few days after taking plan B my vagina swelled up and burned so bad. I thought it was a yeast infection so I treated it like such. It didn't help. I went to a dr who didn't examin me and prescribed more yeast treatment. Still no help. I went to my family doctor who examined me and diagnosed it as vaginal eczema. Prescribed a hydrocortisone ointment. A few days later I was back to normal. I was sexually active and had no issues. Then I got my period and 2 days after it ended I got bacterial vaginosis. Was prescribed antibiotics which cleared it up but I started to show signs of a yeast infection so I took a yeast treatment. 2 days later my vagina is burning again. Went back to my doctor and he referred me to a gynaecologist (still waiting for that appointment) and told me to keep using the hydrocortisone ointment.
Fast forward to today and I'm on week 3 of constant burning but no redness or inflammation. Hydrocortisone ointment is doing nothing so I stopped that 2 days ago. During these 3 weeks I had my period and no relief. I went to a walk in clinic and they checked me but couldn't even see any redness or anything.
I have my gynaecologist appointment in 4 days (seems like a lifetime away). Because I haven't been able to get answers from doctors I've resorted to looking online and this is the closest I can find to match my symptoms.
I've been tested for stds-all negative.
I've changed my laundry soap to un scented etc
Changed my diet to remove dairy and egg and gluten
I have celiac-not sure if this is a terrible side effect that comes with it.
I realize my suffering is short in comparison to some of you on here but I can't live like this. I just starting seeing a guy and I can't even tell him what's wrong. I don't know if I should break things off because if this is how I'm going to be for the rest of my life I can't expect him to stay with me.
I can't imagine going weeks or months or more trying to find the best treatment that only lessens the pain and never having a cure or break from this. Providing I even get a diagnosis.
Please tell me how to function through life like this Sad
I live in Winnipeg, Manitoba Canada and I'm frantically searching online for local medical resources or support groups and there's literally nothing. Im on a tight budget so travelling for medical purposes or trying natural alternatives that aren't covered just aren't an option for me.
Please, I need some words of encouragement.

Thank you

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Re: Desperate for hope. Please help

Post  mary jane on Fri Jun 16, 2017 1:08 pm

Hey, hang in there...

Don't get the impression that Vulvodynia is incurable and forever, each person is different and I know of lots of women who got better. You probably don't have vulvodynia, just an allergic reaction

So, I am not a doctor but to me, it sounds like that Plan B pill gave you an allergic reaction of some sort. Try to not resort to it again, I used it a lot in the past and ended up with adult acne and PCOS. (they're both under control btw).

The best solution at the moment for you is to
1. First of all, calm down. Anxiety to the extreme can only make you feel worse, not better. Did you know anxiety can even cause neurological symptoms? I did this mistake in the past and it didn't help my situation.
2. Try some over the counter antihystamines, there's one called Atarax, it treats anxiety and allergies.
3. Try and get some over the counter lidocaine gel like instillagel for the area, it will soothe it.
4. You might need a few days to let the area recover, you have been throwing everything at it so of course it's not "happy".

Least of all, relax!
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Re: Desperate for hope. Please help

Post  mary jane on Fri Jun 16, 2017 1:10 pm

You're catastrophic right now. Never mind what the guy thinks, focus on healing yourself and then you can worry about him. He can wait for all you care!
No, it's not for life., Not even vulvodynia is for life. most women get better
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Re: Desperate for hope. Please help

Post  Livethegoodlife79 on Sat Jun 17, 2017 12:31 am

Thank you so much for your kind words Mary Jane. I actually had a complete break down this morning and drove myself to the hospital. They did some blood tests for infection/vitamin deficiencies etc but they all came back normal. I should be happy for healthy results (which I am) but I'm still very frustrated not getting any answers. I have to say that's the most anyone's actually assessed me so far (blood test to rule things out) so I'm thankful for that.
It's frustrating getting the run around from doctors and long wait times for appointments. I'm trying to do my own research but it's a catch 22 because I'm reading all these terrible things (and good) but the bad is obviously what sticks. I feel like I'm becoming a hypochondriac or like I'm losing my mind. I was prescribed some pretty strong pain killers by the doctor this morning so I'm going to try those and hopefully I'm able to relax without having to think about the pain.
I wish there were women who lived closer to me that were going through this. It's so hard not having anyone to talk to. So glad I found this site and I'm so grateful that you replied with calming and encouraging words Mary Jane Smile
Thank you to anyone reading this for letting me vent.

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Re: Desperate for hope. Please help

Post  mary jane on Sat Jun 17, 2017 8:42 am

We have a great subforum here in success Stories. If you go through them, you can see that many improve and recover

all the best
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This might help

Post  EverythingIsDifferentNow on Sun Jun 25, 2017 10:39 pm

Livethegoodlife79 wrote:I just discovered this site and am very grateful to have found it. Although I have to admit some of the posts are freaking me out more. I'm literally at my wits ends. I can't sleep, eat or barely function on a day to day basis my anxiety is through the roof because of this. I really need some words of encouragement if anyone can help me see a glimmer of light at the end of the tunnel.
Background:
I have yet to be officially diagnosed but over the past 4 months I've been to multiple doctors and they all keep dismissing me. I've been told I have eczema or some doctors won't even examin me they just write a Rx for yeast treatment.
Approx 4 months ago I took Plan B. Since then it's been a tornado of random vaginal issues. A few days after taking plan B my vagina swelled up and burned so bad. I thought it was a yeast infection so I treated it like such. It didn't help. I went to a dr who didn't examin me and prescribed more yeast treatment. Still no help. I went to my family doctor who examined me and diagnosed it as vaginal eczema. Prescribed a hydrocortisone ointment. A few days later I was back to normal. I was sexually active and had no issues. Then I got my period and 2 days after it ended I got bacterial vaginosis. Was prescribed antibiotics which cleared it up but I started to show signs of a yeast infection so I took a yeast treatment. 2 days later my vagina is burning again. Went back to my doctor and he referred me to a gynaecologist (still waiting for that appointment) and told me to keep using the hydrocortisone ointment.
Fast forward to today and I'm on week 3 of constant burning but no redness or inflammation. Hydrocortisone ointment is doing nothing so I stopped that 2 days ago. During these 3 weeks I had my period and no relief. I went to a walk in clinic and they checked me but couldn't even see any redness or anything.
I have my gynaecologist appointment in 4 days (seems like a lifetime away). Because I haven't been able to get answers from doctors I've resorted to looking online and this is the closest I can find to match my symptoms.
I've been tested for stds-all negative.
I've changed my laundry soap to un scented etc
Changed my diet to remove dairy and egg and gluten
I have celiac-not sure if this is a terrible side effect that comes with it.
I realize my suffering is short in comparison to some of you on here but I can't live like this. I just starting seeing a guy and I can't even tell him what's wrong. I don't know if I should break things off because if this is how I'm going to be for the rest of my life I can't expect him to stay with me.
I can't imagine going weeks or months or more trying to find the best treatment that only lessens the pain and never having a cure or break from this. Providing I even get a diagnosis.
Please tell me how to function through life like this Sad
I live in Winnipeg, Manitoba Canada and I'm frantically searching online for local medical resources or support groups and there's literally nothing. Im on a tight budget so travelling for medical purposes or trying natural alternatives that aren't covered just aren't an option for me.
Please, I need some words of encouragement.

Thank you


Hi there, I hope you're doing okay. This might help. I'm no doctor, but I believe your body is in a huge state of imbalance. You said you have ezcema. Ezcema is an autoimmune illness, which inevitably means there's toxicity in your liver (possibly gallstsones). I know countless of people, especially one guy who had a horrific case of ezcema, who tried liver flushes and healed 90%+ of their skin conditions including ezcema. You can't even tell he has ezcema, and now he works at one of the finest restaurants catering to people Very Happy You tried birth control, and this threw you off because your hormones were already in a state of imbalance prior to even trying it. This means there's something wrong with your thyroid. Don't worry, this is more common than you think. Sooo many people have this it's insane, actually. You have celiac, this means you have leaky gut syndrome. Your gut is in a condition where too much bad bacteria has hosted the area, and there's not enough good bacteria. Try bringing your body back to balance by 1.) maybe reading my posts lol 2.) probiotics/prebiotics to restore your gut flora 3.) liver flushes will immensely help you 4.) coffee enemas 5.) remove gut irritating foods. follow the AIP protocol. There's actually a lot more than this but this is a basis that will make a huge improvement on your health if you actually look into and pursue it. I recommend doing as much research as you can. That's how I got cured - I researched everyday almost every second. Hope you see this and hope this helps sunny

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Re: Desperate for hope. Please help

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