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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Desperate for hope. Please help

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Desperate for hope. Please help

Post  Livethegoodlife79 on Thu Jun 15, 2017 11:04 pm

I just discovered this site and am very grateful to have found it. Although I have to admit some of the posts are freaking me out more. I'm literally at my wits ends. I can't sleep, eat or barely function on a day to day basis my anxiety is through the roof because of this. I really need some words of encouragement if anyone can help me see a glimmer of light at the end of the tunnel.
Background:
I have yet to be officially diagnosed but over the past 4 months I've been to multiple doctors and they all keep dismissing me. I've been told I have eczema or some doctors won't even examin me they just write a Rx for yeast treatment.
Approx 4 months ago I took Plan B. Since then it's been a tornado of random vaginal issues. A few days after taking plan B my vagina swelled up and burned so bad. I thought it was a yeast infection so I treated it like such. It didn't help. I went to a dr who didn't examin me and prescribed more yeast treatment. Still no help. I went to my family doctor who examined me and diagnosed it as vaginal eczema. Prescribed a hydrocortisone ointment. A few days later I was back to normal. I was sexually active and had no issues. Then I got my period and 2 days after it ended I got bacterial vaginosis. Was prescribed antibiotics which cleared it up but I started to show signs of a yeast infection so I took a yeast treatment. 2 days later my vagina is burning again. Went back to my doctor and he referred me to a gynaecologist (still waiting for that appointment) and told me to keep using the hydrocortisone ointment.
Fast forward to today and I'm on week 3 of constant burning but no redness or inflammation. Hydrocortisone ointment is doing nothing so I stopped that 2 days ago. During these 3 weeks I had my period and no relief. I went to a walk in clinic and they checked me but couldn't even see any redness or anything.
I have my gynaecologist appointment in 4 days (seems like a lifetime away). Because I haven't been able to get answers from doctors I've resorted to looking online and this is the closest I can find to match my symptoms.
I've been tested for stds-all negative.
I've changed my laundry soap to un scented etc
Changed my diet to remove dairy and egg and gluten
I have celiac-not sure if this is a terrible side effect that comes with it.
I realize my suffering is short in comparison to some of you on here but I can't live like this. I just starting seeing a guy and I can't even tell him what's wrong. I don't know if I should break things off because if this is how I'm going to be for the rest of my life I can't expect him to stay with me.
I can't imagine going weeks or months or more trying to find the best treatment that only lessens the pain and never having a cure or break from this. Providing I even get a diagnosis.
Please tell me how to function through life like this Sad
I live in Winnipeg, Manitoba Canada and I'm frantically searching online for local medical resources or support groups and there's literally nothing. Im on a tight budget so travelling for medical purposes or trying natural alternatives that aren't covered just aren't an option for me.
Please, I need some words of encouragement.

Thank you

Livethegoodlife79

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Re: Desperate for hope. Please help

Post  mary jane on Fri Jun 16, 2017 1:08 pm

Hey, hang in there...

Don't get the impression that Vulvodynia is incurable and forever, each person is different and I know of lots of women who got better. You probably don't have vulvodynia, just an allergic reaction

So, I am not a doctor but to me, it sounds like that Plan B pill gave you an allergic reaction of some sort. Try to not resort to it again, I used it a lot in the past and ended up with adult acne and PCOS. (they're both under control btw).

The best solution at the moment for you is to
1. First of all, calm down. Anxiety to the extreme can only make you feel worse, not better. Did you know anxiety can even cause neurological symptoms? I did this mistake in the past and it didn't help my situation.
2. Try some over the counter antihystamines, there's one called Atarax, it treats anxiety and allergies.
3. Try and get some over the counter lidocaine gel like instillagel for the area, it will soothe it.
4. You might need a few days to let the area recover, you have been throwing everything at it so of course it's not "happy".

Least of all, relax!
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Re: Desperate for hope. Please help

Post  mary jane on Fri Jun 16, 2017 1:10 pm

You're catastrophic right now. Never mind what the guy thinks, focus on healing yourself and then you can worry about him. He can wait for all you care!
No, it's not for life., Not even vulvodynia is for life. most women get better
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Re: Desperate for hope. Please help

Post  Livethegoodlife79 on Sat Jun 17, 2017 12:31 am

Thank you so much for your kind words Mary Jane. I actually had a complete break down this morning and drove myself to the hospital. They did some blood tests for infection/vitamin deficiencies etc but they all came back normal. I should be happy for healthy results (which I am) but I'm still very frustrated not getting any answers. I have to say that's the most anyone's actually assessed me so far (blood test to rule things out) so I'm thankful for that.
It's frustrating getting the run around from doctors and long wait times for appointments. I'm trying to do my own research but it's a catch 22 because I'm reading all these terrible things (and good) but the bad is obviously what sticks. I feel like I'm becoming a hypochondriac or like I'm losing my mind. I was prescribed some pretty strong pain killers by the doctor this morning so I'm going to try those and hopefully I'm able to relax without having to think about the pain.
I wish there were women who lived closer to me that were going through this. It's so hard not having anyone to talk to. So glad I found this site and I'm so grateful that you replied with calming and encouraging words Mary Jane Smile
Thank you to anyone reading this for letting me vent.

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Re: Desperate for hope. Please help

Post  mary jane on Sat Jun 17, 2017 8:42 am

We have a great subforum here in success Stories. If you go through them, you can see that many improve and recover

all the best
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This might help

Post  EverythingIsDifferentNow on Sun Jun 25, 2017 10:39 pm

Livethegoodlife79 wrote:I just discovered this site and am very grateful to have found it. Although I have to admit some of the posts are freaking me out more. I'm literally at my wits ends. I can't sleep, eat or barely function on a day to day basis my anxiety is through the roof because of this. I really need some words of encouragement if anyone can help me see a glimmer of light at the end of the tunnel.
Background:
I have yet to be officially diagnosed but over the past 4 months I've been to multiple doctors and they all keep dismissing me. I've been told I have eczema or some doctors won't even examin me they just write a Rx for yeast treatment.
Approx 4 months ago I took Plan B. Since then it's been a tornado of random vaginal issues. A few days after taking plan B my vagina swelled up and burned so bad. I thought it was a yeast infection so I treated it like such. It didn't help. I went to a dr who didn't examin me and prescribed more yeast treatment. Still no help. I went to my family doctor who examined me and diagnosed it as vaginal eczema. Prescribed a hydrocortisone ointment. A few days later I was back to normal. I was sexually active and had no issues. Then I got my period and 2 days after it ended I got bacterial vaginosis. Was prescribed antibiotics which cleared it up but I started to show signs of a yeast infection so I took a yeast treatment. 2 days later my vagina is burning again. Went back to my doctor and he referred me to a gynaecologist (still waiting for that appointment) and told me to keep using the hydrocortisone ointment.
Fast forward to today and I'm on week 3 of constant burning but no redness or inflammation. Hydrocortisone ointment is doing nothing so I stopped that 2 days ago. During these 3 weeks I had my period and no relief. I went to a walk in clinic and they checked me but couldn't even see any redness or anything.
I have my gynaecologist appointment in 4 days (seems like a lifetime away). Because I haven't been able to get answers from doctors I've resorted to looking online and this is the closest I can find to match my symptoms.
I've been tested for stds-all negative.
I've changed my laundry soap to un scented etc
Changed my diet to remove dairy and egg and gluten
I have celiac-not sure if this is a terrible side effect that comes with it.
I realize my suffering is short in comparison to some of you on here but I can't live like this. I just starting seeing a guy and I can't even tell him what's wrong. I don't know if I should break things off because if this is how I'm going to be for the rest of my life I can't expect him to stay with me.
I can't imagine going weeks or months or more trying to find the best treatment that only lessens the pain and never having a cure or break from this. Providing I even get a diagnosis.
Please tell me how to function through life like this Sad
I live in Winnipeg, Manitoba Canada and I'm frantically searching online for local medical resources or support groups and there's literally nothing. Im on a tight budget so travelling for medical purposes or trying natural alternatives that aren't covered just aren't an option for me.
Please, I need some words of encouragement.

Thank you


Hi there, I hope you're doing okay. This might help. I'm no doctor, but I believe your body is in a huge state of imbalance. You said you have ezcema. Ezcema is an autoimmune illness, which inevitably means there's toxicity in your liver (possibly gallstsones). I know countless of people, especially one guy who had a horrific case of ezcema, who tried liver flushes and healed 90%+ of their skin conditions including ezcema. You can't even tell he has ezcema, and now he works at one of the finest restaurants catering to people Very Happy You tried birth control, and this threw you off because your hormones were already in a state of imbalance prior to even trying it. This means there's something wrong with your thyroid. Don't worry, this is more common than you think. Sooo many people have this it's insane, actually. You have celiac, this means you have leaky gut syndrome. Your gut is in a condition where too much bad bacteria has hosted the area, and there's not enough good bacteria. Try bringing your body back to balance by 1.) maybe reading my posts lol 2.) probiotics/prebiotics to restore your gut flora 3.) liver flushes will immensely help you 4.) coffee enemas 5.) remove gut irritating foods. follow the AIP protocol. There's actually a lot more than this but this is a basis that will make a huge improvement on your health if you actually look into and pursue it. I recommend doing as much research as you can. That's how I got cured - I researched everyday almost every second. Hope you see this and hope this helps sunny

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Re: Desperate for hope. Please help

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