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I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 1

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 8

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

Comments: 0

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 4

Condoms Less Painful?

Mon May 07, 2018 3:35 am by stillinpain

I'm just curious, has anyone found using condoms to be less abrasive to the skin than without? I just got off birth control and haven't stretched myself out enough post surgery to try sex yet, but when I do I am wondering how trying it with condoms with affect the sensation. I feel like for me the skin to skin sensation creates pain, not just at my entrance but internally, too, since I also have …

Comments: 0

Will there be an end?

Fri Apr 27, 2018 12:06 am by Krista2828

I go in and out of being okay and not being okay with this condition. I question often why me? I am a problem solver by nature and I feel so defeated that after tons of research and trial and error and doctors and tears that there still is no answer.

I am in my 20's.. it shouldn't be this way.

Id love to know what all has worked! I am willing to try anything to get my life back. I am curious …

Comments: 6

you can be healed so easy and quite fast.

Thu Apr 26, 2018 11:46 pm by pussycat

Hello everyone,
i am new to this forum. I wanted to share my personal "journey" with V with you and to give you a real hope you can be totally healed/recovered from V. Many years ago i was struck with V, it was painful and got worst and worst, eventually i could not sit, could not stand, could not walk, could not swim in a swimming pool anymore. I was becoming bedridden, it frightened …

Comments: 4

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35


Desperate for hope. Please help

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Desperate for hope. Please help

Post  Livethegoodlife79 on Thu Jun 15, 2017 11:04 pm

I just discovered this site and am very grateful to have found it. Although I have to admit some of the posts are freaking me out more. I'm literally at my wits ends. I can't sleep, eat or barely function on a day to day basis my anxiety is through the roof because of this. I really need some words of encouragement if anyone can help me see a glimmer of light at the end of the tunnel.
Background:
I have yet to be officially diagnosed but over the past 4 months I've been to multiple doctors and they all keep dismissing me. I've been told I have eczema or some doctors won't even examin me they just write a Rx for yeast treatment.
Approx 4 months ago I took Plan B. Since then it's been a tornado of random vaginal issues. A few days after taking plan B my vagina swelled up and burned so bad. I thought it was a yeast infection so I treated it like such. It didn't help. I went to a dr who didn't examin me and prescribed more yeast treatment. Still no help. I went to my family doctor who examined me and diagnosed it as vaginal eczema. Prescribed a hydrocortisone ointment. A few days later I was back to normal. I was sexually active and had no issues. Then I got my period and 2 days after it ended I got bacterial vaginosis. Was prescribed antibiotics which cleared it up but I started to show signs of a yeast infection so I took a yeast treatment. 2 days later my vagina is burning again. Went back to my doctor and he referred me to a gynaecologist (still waiting for that appointment) and told me to keep using the hydrocortisone ointment.
Fast forward to today and I'm on week 3 of constant burning but no redness or inflammation. Hydrocortisone ointment is doing nothing so I stopped that 2 days ago. During these 3 weeks I had my period and no relief. I went to a walk in clinic and they checked me but couldn't even see any redness or anything.
I have my gynaecologist appointment in 4 days (seems like a lifetime away). Because I haven't been able to get answers from doctors I've resorted to looking online and this is the closest I can find to match my symptoms.
I've been tested for stds-all negative.
I've changed my laundry soap to un scented etc
Changed my diet to remove dairy and egg and gluten
I have celiac-not sure if this is a terrible side effect that comes with it.
I realize my suffering is short in comparison to some of you on here but I can't live like this. I just starting seeing a guy and I can't even tell him what's wrong. I don't know if I should break things off because if this is how I'm going to be for the rest of my life I can't expect him to stay with me.
I can't imagine going weeks or months or more trying to find the best treatment that only lessens the pain and never having a cure or break from this. Providing I even get a diagnosis.
Please tell me how to function through life like this Sad
I live in Winnipeg, Manitoba Canada and I'm frantically searching online for local medical resources or support groups and there's literally nothing. Im on a tight budget so travelling for medical purposes or trying natural alternatives that aren't covered just aren't an option for me.
Please, I need some words of encouragement.

Thank you

Livethegoodlife79

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Re: Desperate for hope. Please help

Post  mary jane on Fri Jun 16, 2017 1:08 pm

Hey, hang in there...

Don't get the impression that Vulvodynia is incurable and forever, each person is different and I know of lots of women who got better. You probably don't have vulvodynia, just an allergic reaction

So, I am not a doctor but to me, it sounds like that Plan B pill gave you an allergic reaction of some sort. Try to not resort to it again, I used it a lot in the past and ended up with adult acne and PCOS. (they're both under control btw).

The best solution at the moment for you is to
1. First of all, calm down. Anxiety to the extreme can only make you feel worse, not better. Did you know anxiety can even cause neurological symptoms? I did this mistake in the past and it didn't help my situation.
2. Try some over the counter antihystamines, there's one called Atarax, it treats anxiety and allergies.
3. Try and get some over the counter lidocaine gel like instillagel for the area, it will soothe it.
4. You might need a few days to let the area recover, you have been throwing everything at it so of course it's not "happy".

Least of all, relax!
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Re: Desperate for hope. Please help

Post  mary jane on Fri Jun 16, 2017 1:10 pm

You're catastrophic right now. Never mind what the guy thinks, focus on healing yourself and then you can worry about him. He can wait for all you care!
No, it's not for life., Not even vulvodynia is for life. most women get better
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Re: Desperate for hope. Please help

Post  Livethegoodlife79 on Sat Jun 17, 2017 12:31 am

Thank you so much for your kind words Mary Jane. I actually had a complete break down this morning and drove myself to the hospital. They did some blood tests for infection/vitamin deficiencies etc but they all came back normal. I should be happy for healthy results (which I am) but I'm still very frustrated not getting any answers. I have to say that's the most anyone's actually assessed me so far (blood test to rule things out) so I'm thankful for that.
It's frustrating getting the run around from doctors and long wait times for appointments. I'm trying to do my own research but it's a catch 22 because I'm reading all these terrible things (and good) but the bad is obviously what sticks. I feel like I'm becoming a hypochondriac or like I'm losing my mind. I was prescribed some pretty strong pain killers by the doctor this morning so I'm going to try those and hopefully I'm able to relax without having to think about the pain.
I wish there were women who lived closer to me that were going through this. It's so hard not having anyone to talk to. So glad I found this site and I'm so grateful that you replied with calming and encouraging words Mary Jane Smile
Thank you to anyone reading this for letting me vent.

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Re: Desperate for hope. Please help

Post  mary jane on Sat Jun 17, 2017 8:42 am

We have a great subforum here in success Stories. If you go through them, you can see that many improve and recover

all the best
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This might help

Post  EverythingIsDifferentNow on Sun Jun 25, 2017 10:39 pm

Livethegoodlife79 wrote:I just discovered this site and am very grateful to have found it. Although I have to admit some of the posts are freaking me out more. I'm literally at my wits ends. I can't sleep, eat or barely function on a day to day basis my anxiety is through the roof because of this. I really need some words of encouragement if anyone can help me see a glimmer of light at the end of the tunnel.
Background:
I have yet to be officially diagnosed but over the past 4 months I've been to multiple doctors and they all keep dismissing me. I've been told I have eczema or some doctors won't even examin me they just write a Rx for yeast treatment.
Approx 4 months ago I took Plan B. Since then it's been a tornado of random vaginal issues. A few days after taking plan B my vagina swelled up and burned so bad. I thought it was a yeast infection so I treated it like such. It didn't help. I went to a dr who didn't examin me and prescribed more yeast treatment. Still no help. I went to my family doctor who examined me and diagnosed it as vaginal eczema. Prescribed a hydrocortisone ointment. A few days later I was back to normal. I was sexually active and had no issues. Then I got my period and 2 days after it ended I got bacterial vaginosis. Was prescribed antibiotics which cleared it up but I started to show signs of a yeast infection so I took a yeast treatment. 2 days later my vagina is burning again. Went back to my doctor and he referred me to a gynaecologist (still waiting for that appointment) and told me to keep using the hydrocortisone ointment.
Fast forward to today and I'm on week 3 of constant burning but no redness or inflammation. Hydrocortisone ointment is doing nothing so I stopped that 2 days ago. During these 3 weeks I had my period and no relief. I went to a walk in clinic and they checked me but couldn't even see any redness or anything.
I have my gynaecologist appointment in 4 days (seems like a lifetime away). Because I haven't been able to get answers from doctors I've resorted to looking online and this is the closest I can find to match my symptoms.
I've been tested for stds-all negative.
I've changed my laundry soap to un scented etc
Changed my diet to remove dairy and egg and gluten
I have celiac-not sure if this is a terrible side effect that comes with it.
I realize my suffering is short in comparison to some of you on here but I can't live like this. I just starting seeing a guy and I can't even tell him what's wrong. I don't know if I should break things off because if this is how I'm going to be for the rest of my life I can't expect him to stay with me.
I can't imagine going weeks or months or more trying to find the best treatment that only lessens the pain and never having a cure or break from this. Providing I even get a diagnosis.
Please tell me how to function through life like this Sad
I live in Winnipeg, Manitoba Canada and I'm frantically searching online for local medical resources or support groups and there's literally nothing. Im on a tight budget so travelling for medical purposes or trying natural alternatives that aren't covered just aren't an option for me.
Please, I need some words of encouragement.

Thank you


Hi there, I hope you're doing okay. This might help. I'm no doctor, but I believe your body is in a huge state of imbalance. You said you have ezcema. Ezcema is an autoimmune illness, which inevitably means there's toxicity in your liver (possibly gallstsones). I know countless of people, especially one guy who had a horrific case of ezcema, who tried liver flushes and healed 90%+ of their skin conditions including ezcema. You can't even tell he has ezcema, and now he works at one of the finest restaurants catering to people Very Happy You tried birth control, and this threw you off because your hormones were already in a state of imbalance prior to even trying it. This means there's something wrong with your thyroid. Don't worry, this is more common than you think. Sooo many people have this it's insane, actually. You have celiac, this means you have leaky gut syndrome. Your gut is in a condition where too much bad bacteria has hosted the area, and there's not enough good bacteria. Try bringing your body back to balance by 1.) maybe reading my posts lol 2.) probiotics/prebiotics to restore your gut flora 3.) liver flushes will immensely help you 4.) coffee enemas 5.) remove gut irritating foods. follow the AIP protocol. There's actually a lot more than this but this is a basis that will make a huge improvement on your health if you actually look into and pursue it. I recommend doing as much research as you can. That's how I got cured - I researched everyday almost every second. Hope you see this and hope this helps sunny

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Re: Desperate for hope. Please help

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