Vulvodynia Support
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» Hope to all my suffering ladies
TREAT THE UNDERLYING PROBLEM (still cured btw)  EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
TREAT THE UNDERLYING PROBLEM (still cured btw)  EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
TREAT THE UNDERLYING PROBLEM (still cured btw)  EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
TREAT THE UNDERLYING PROBLEM (still cured btw)  EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
TREAT THE UNDERLYING PROBLEM (still cured btw)  EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
TREAT THE UNDERLYING PROBLEM (still cured btw)  EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
TREAT THE UNDERLYING PROBLEM (still cured btw)  EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
TREAT THE UNDERLYING PROBLEM (still cured btw)  EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
TREAT THE UNDERLYING PROBLEM (still cured btw)  EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


TREAT THE UNDERLYING PROBLEM (still cured btw)

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Post  EverythingIsDifferentNow Sun Jun 25, 2017 10:11 pm

This mostly revolves around unprovoked vulvodynia (since I had it and I'm talking from experience), but it might work for provoked. Not everyone with unprovoked vulvodynia may feel this applies to them.
Hi guys, I've been cured for more than a year now. I've done everything holistically and through months of research. I am confident the majority (if not all) cases of vulvodynia victims have kidney issues/sensitivities and may have an underlying chronic disease they don't know about. Chronic illnesses include diverticulitis, celiac, ezcema, any autoimmune condition, and so much more. If you don't know, look at the simple things. Do you get dandruff a lot, do you have bad body odor, do you have a lot of gas, are you lactose intolerant?  Why do I say this? Everything is connected. If there's even one organ of your body that contains high levels of toxicity, chances are 3 other organs and probably your whole body is affected. This sets off imbalance, and imbalance is everything vulvodynia stands for.  If you have chronic illness, that means your body is in a state of toxicity/acidity, and is more unable to get rid of the toxins that have accumulated in your body since you were born/started to develop the illness. Since curing vulvodynia, I learned I had MANY different diseases going on in my body (almost all chronic illnesses). Don't worry, this is probably not the case for you. What I have is rare, but I just wanted to give you some background info. on me.


When the body is unable to get rid of the toxins that accumulate in your body (in this case, the toxins found in western diet food - processed, GMO, not organic, etc.), then the kidneys aren't fully able to break down the oxalates found even in simple foods like spinach or other high level oxalate foods. Not just that, but acidic foods definitely don't help either (coffee is a biggie). Combine acidic foods in your already acidic body, and high level oxalate foods (or even medium oxalate foods that build up oxalate crystals over time in your body- then BOOM, suddenly you wake up and get a horrible acidic feeling down there -happened to me) and you get the worst disease I myself have ever experienced. The other 7 diseases I have are absolutely fine compared to this nightmare and that says a lot, and that's the only reason why I STILL go on here once in a blue moon to give insight to women/girls out there who were in my terrible shoes long ago.


Solutions? First and foremost, get rid of those oxalate crystals (which are basically acidic crystals) through calcium citrate or calcium/magnesium supplement. Take it EVERYDAY. You will not feel cured immediately, especially if you have a bad case of vulvodynia. For me it took maybe 2 weeks to see improvement, then a month in I felt a lot better. However, take it continually at least for 3 months. In conjunction with this, stop taking acidic foods/beverages like coffee, try to cut out high caffeine drinks like black tea, eat organic as much as possible (with all the research and books I've read, I'm convinced the food in western society is poison and responsible for most diseases today), eat a mainly alkaline diet (this diet greatly soothes the body) and DESTRESS. I didn't think stress was a big deal and dismissed it first coming here, but lemme tell you, it's a pillar of health. It can literally save you from death. Yoga helped me a lot, especially ab workouts.


Recommendations include enemas, liver tonics, prebiotics/probiotics, yoga/saunas, and removal of gut irritating foods. This changed my world around. My mind feels more at peace than ever.


Most western doctors aren't trained in vulvodynia. They are trained in giving patients pharmaceutical drugs to treat the symptom of the problem, which literally makes no sense, since the symptom is the body's natural way of healing itself. This absurd thinking usually ends up making the problem worse/causes confusion and stress in patients. Been there, done that. Been called "crazy...it's just a yeast infection. Here's a $500 cream that doesn't even work. affraid "...ya right. Don't worry, nature is here to help (and cheaper  Razz ).


If you are not your own doctor, you're a fool. -Hippocrates


While you're at it, you might want to address if you have any other health problems. Anything is impossible. The word impossible has "I'm possible". Hope this helps. sunny sunny sunny


Last edited by EverythingIsDifferentNow on Sun Jul 09, 2017 3:54 pm; edited 1 time in total

EverythingIsDifferentNow

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Join date : 2014-09-13

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Post  mary jane Fri Jun 30, 2017 7:55 pm

I really like your approach to this, I do think STRESS can cause inflammation and a million other diseases. ALso doing Yoga is very clever to add to this. I've read that if you have central sensitization (meaning nerve pain, IBS, TMJ and other pain) then doing sports is considered one of the treatments.

I have read a lot of books on this topic, I do agree that a low oxalate diet and supplements can help or cure vulvodynia.

However western medicine CAN help and without it we would be dead. For me, medication works, and it works very well. I do add mindfulness, magnesium supplements and probiotics to the mix and they do help, however for NEUROPATHY  it's unlikely that one can be cured through detoxes and supplements. Pain occurs in the brain, that is why we need to take these medications. If you search for some users here, they have had remission from vulvodynia using Lyrica or others. Myself included. They don't mask the symptoms, their point is to interrupt pain signals so they don't become permanent.  you can research this theory. It's about nerve memory. Medications do work for some, as vulvodynia can have very different symptoms from one person to another. I don't know how much GMO is present in UK foods, I've never heard of GMOs cause burning pain or nerve symptoms, maybe it can happen, but to say that your solution works for everyone is sending the wrong message.
mary jane
mary jane

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Join date : 2013-10-05
Location : UK

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