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» What helped (and practically cured) my Vulvodynia
Today at 4:43 pm by Katiej

» How I cured my Vulvodynia!
Today at 8:24 am by Katiej

» Amitriptyline given for vulvodyina pain
Sat Nov 18, 2017 11:33 pm by WVR00

» Needing some reassurance
Sat Nov 18, 2017 12:28 pm by Katiej

» Amitriptyline Success and new-found love
Sat Nov 18, 2017 12:24 pm by Katiej

» New diagnosis, any advice whilst I wait for a specialist
Sat Nov 18, 2017 3:57 am by jungleclover

» Vestibulectomy today and no pain
Fri Nov 17, 2017 3:28 pm by Dsrt16

» vestibulectomy success
Thu Nov 16, 2017 12:41 am by Hopeitworks

» MY STORY & Vestibulectomy 2/8/17
Thu Nov 16, 2017 12:06 am by Jgreen81

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 3

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

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Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Post  Tired89 on Tue Jul 04, 2017 9:01 am

Hello everyone. It's been quite a long time since I've posted. I've been extremely depressed and bottling it all up. I've been seeing a pelvic floor therapist (it's only been 4 visits) for my provoked vestibulodynia and the only reason she can get inside of me to do myofascial release and to use the dilators is because I use BLT (benzocaine, lidocaine, tetracaine) ointment on my vestibule prior which numbs my entrance completely. Without the ointment, insertion of anything would be impossible. I also use a compounded cream of 5% lidocaine, 5% baclofen, 5% gabapentin and 4% valium internally to try to relax the muscles. Recently, what has started happening is after therapy, or inserting my meds and after the blt ointment wears off, my vestibule starts to burn, itch, swell and throb worse than I've ever experienced and it last longer and gets worse after every time I insert anything. My therapist wants me to take a break from therapy and she's asked if I'd considered vestibulectomy. I am horrified of that word, let alone of trying the surgery. One thing that gave me hope was another procedure with a laser a woman on this forum had done that she had great success with. It's called cold laser therapy or low level laser therapy (LLLT). I messaged her, but i don't know if she visits the forum anymore and she posted about her procedure back in 2011. Has anyone else ever heard of this or tried it? I'd like to know where I could get it done or at least speak to a doctor about it. My physical therapist doesn't know anything about it and I can't seem to find out anything else about it other than articles and trials that discuss the success rate and how the procedure is non invasive and does not negatively alter or disfigure the vestibule like vestibulectomy can.
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Tired89

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Re: Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Post  mary jane on Wed Jul 05, 2017 5:34 pm

I wouldn't jump into doing surgery just yet, the cold laser therapy sounds very promising! I can recommend (well, half-heartedly since we all have different symptoms) Amitriptyline or Lyrica for painful intercourse, I take amitriptyline right now for general pain and I noticed I have stopped having painful intercourse as well (a bonus option) ..I take 50 mg right now...ah, it also helped me achieve some remission from painful intercourse for about a year in the past
I wish someone had an idea why we get these problems, I read a theory on central sensitization, but it's just a theory and not a diagnosis
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Re: Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

Post  Tired89 on Wed Jul 05, 2017 5:54 pm

Hi Mary Jane. Thank you for your reply and suggestion. I'm always glad to see when someone has tried SOMETHING for this issue and has had success with relieving their pain. I've heard of amitriptyline many times now on the forum, but my doctor never suggested any meds to me besides the creams. I've heard between amitriptyline and nortriptyline, one is better? What side effects do you experience on it and do you have to take it for life? How long were you on it until you started seeing a decrease in your pain with penetration? I'm also curious about the drug Cymbalta. I've been reading up on it and apparently some have success with it for their pain as well as any depression this awful condition can cause. Have you heard of it or ever tried it? So far, I've tried vaginal estrogen (Vagifem, which made me gain boat loads of weight, lose my hair, and get horrid acne everywhere), hydrocortisone suppositories at another doctor's suggestion, clindamycin cream and birth control. I no longer see the doctors who suggested these "remedies," especially because not only did they not work, they made me feel terrible. I saw a pelvic surgeon who told me what this is and he gave me the script to do physical therapy. I only recently began considering surgery because I didn't want to have to be on meds for the rest of my life to control this problem. I'm not sure about the life long side effects and things like that.
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Re: Anyone else try Cold Laser therapy/ Low Level Laser Therapy for their vestibulodynia?

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