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    I'm sorry im rambling

    Thu Feb 21, 2019 5:49 am by Jet227

    hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

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    Diagnosed Recently

    Tue Jan 08, 2019 3:55 pm by flissyg

    Hi All,

    I’m so glad I’ve found a place where there are others who understand how I feel!

    So this is my story:-

    I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

    Comments: 4

    New and need advice and help

    Wed Dec 05, 2018 3:26 pm by Cin124

    Hi everyone,

    About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

    Comments: 6

    New here would very much appreciate advice at the end of my rope

    Wed Jan 09, 2019 9:09 pm by Jma990o

    This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
    So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

    Comments: 3

    MonaLisa Touch

    Fri Feb 08, 2019 7:35 pm by rl2091

    Hi All,

    I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

    Comments: 1

    New member desperate need of other vulvadynia sufferers

    Fri Feb 08, 2019 6:55 pm by Tfc13

    Hi there hope some1 reading this is going through the same shit as me!, I'm new to this so don't really know where to start , I'm Teresa , I've just been diagnosed with vestibular vulvadynia , after countless appointments with GPS being misdiagnosed, tested for god knows everything , eventually under my gynochologist ,who done all her necessary tests, I now have been given a diagnosis I'm in …

    Comments: 5

    Looking for suggestions or encouragement

    Sat Jan 13, 2018 12:10 am by ryn207

    Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

    In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

    Comments: 7

    I'm new to this forum and would love some advice! :)

    Tue Jun 05, 2018 4:13 am by anikita

    Hi lovely gals!

    I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

    I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

    Comments: 13

    Hello. Happy to have found this group.

    Fri Dec 07, 2018 9:01 pm by foxysugarpants

    I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

    Comments: 0

    does anyone else have nocturnal itching?

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    does anyone else have nocturnal itching?

    Post  mary jane on Fri Jul 07, 2017 10:03 am

    I keep getting nocturnal itching with my nerve pain, never during the day. It's from the nerves, as I've had swabs and there is no yeast. does anyone else have this symptom? I only had it in 2014..during my remission I never got this symptom.

    thanks xx
    mary jane
    mary jane

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    Re: does anyone else have nocturnal itching?

    Post  aspaceodyssey on Fri Jan 19, 2018 4:57 pm

    have you been diagnosed with lichen sclerosus or ever suspected that might be an underlying cause? just throwing it out there in case it's helpful at all because I know itchiness that gets worse at night is a defining symptom. I have this condition and it didn't present exactly typically (no scaly white patches, just general redness and thin skin, etc.) which prevented me from getting an accurate diagnosis for years.



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    Re: does anyone else have nocturnal itching?

    Post  ryn207 on Fri Feb 02, 2018 11:42 pm

    I was diagnosed with lichen sclerosus. Or at least that's what my dermatologist old me. She never did a biopsy. I don't have the nocturnal itching, but random itching during the day on my vulva and around my anus and then pain during intercourse. I do think the skin is thin; however, I've also been using topical steroids for over a year so that can also cause it. It makes me nervous that while medicine helps it also has it's own symptoms.

    Have you guys had any luck with different medicines/treatments?


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    Re: does anyone else have nocturnal itching?

    Post  CatJones on Sun May 06, 2018 2:54 am

    I had horrible itching for an entire year. It started from a reaction to a latex condom (it was either a latex allergy or my dermatologist suspects I was allergic to a preservative in the condoms because apparently on the shelf has a preservative). Do not steroids shot to the skin. That's what they think stated my vulvodynia. I ended up getting vintage opera gloves and wearing them at night (I was itching sooo much at night I even would take them off, so I had bind the gloves with tight hair ties to not take them off). Wearing gloves really helped. I also so a dermatologist because at that point it was an itch scratch cycle. I was given Protopic which acts like a steroid but not a steroid. I used it as a cream mixed with I can't remember that thing like petroleum jelly. They gave me another cream that didn't really help. I had good luck with organic coconut oil but now I'm told not to use coconut oil because of the sugar in it. i hope this helps! Sending you strength!



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    Re: does anyone else have nocturnal itching?

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