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» I think I've developed vulvodynia?? Please help!
Yesterday at 9:10 pm by Necromeowncer

» MY STORY & Vestibulectomy 2/8/17
Yesterday at 12:38 pm by Mel T

» New w/ Secondary Provoked Vestibuldynia
Sun Oct 22, 2017 3:47 am by Birdy

» Newly diagnosed
Sat Oct 21, 2017 9:50 pm by sarisbaris

» Prednisone Injections?
Wed Oct 18, 2017 5:07 am by sarisbaris

» Has anyone had continued success with gabapentin or Botox injections?
Wed Oct 18, 2017 4:47 am by sarisbaris

» Recent "Poke" Pain - So Confused/Losing My Mind
Wed Oct 18, 2017 2:37 am by sarisbaris

» What is Vulvodynia?
Tue Oct 17, 2017 11:57 pm by Jenjen

» CURED FROM VULVODYNIA - PAIN FREE FOR 2 YEARS
Mon Oct 16, 2017 2:22 am by Sagewoman

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1


Is (light) bleeding a normal symptom of Vulvodynia?

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Is (light) bleeding a normal symptom of Vulvodynia?

Post  Worriedhusband on Sat Jul 08, 2017 9:07 am

Hi all,

My wife was diagnosed with Vulvodynia approx. a year ago, and we have seen some improvement since, but not much. We have met with three gynecologists, two of them experts on Vulvodynia. She cannot sit or function normally due to tenderness and pain. She is now too tired of it all to actively seek out any new information herself, hence I am asking this question for her.  

Is it normal for this condition to have some light bleeding every now and then (2-3 times times a week)?

The gynecologists say the mucous membrane (right term?) is irritated and red (and therefore the bleeding), but should heal with time. However, if there is bleeding every now and then even after a year, it doesn't seem to heal, right? The only treatment they recommend is amitriptyline, which she do not want to take due to bad experiences with such medications in the past. And we also don't understand how antidepressants will heal the underlying problem that causes the light bleeding. Amitriptyline can help with nerve pain, yes, but has nothing to do with the irritated tissue damage that is causing the bleeding, and probably some of, if not most of, the pain.

So, is irritation down there to the point of light bleeding even a symptom of Vulvodynia? Or is Vulvodynia purely nerve pain/sensitization? And might this actually be something else? Like some skin condition or something? One of the gynecologists mentioned Lichen as a possible alternative diagnosis, but still believed it was a case of typical Vulvodynia, and said antidepressants must be tested as first line of treatment.  

Thankful for any input as we are quite frustrated at this point!

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This might help

Post  EverythingIsDifferentNow on Sun Jul 09, 2017 3:57 pm

I've heard parasites can do a world of havoc on any person's body, especially on a women's reproductive organs. Maybe she should try a parasite cleanse or a parasite cleanse tincture (you can get it on Amazon). I say this because I don't think bleeding is normal for vulvodynia or common.

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Re: Is (light) bleeding a normal symptom of Vulvodynia?

Post  mary jane on Sun Jul 09, 2017 4:36 pm

Worriedhusband wrote:Hi all,

My wife was diagnosed with Vulvodynia approx. a year ago, and we have seen some improvement since, but not much. We have met with three gynecologists, two of them experts on Vulvodynia. She cannot sit or function normally due to tenderness and pain. She is now too tired of it all to actively seek out any new information herself, hence I am asking this question for her.  

Is it normal for this condition to have some light bleeding every now and then (2-3 times times a week)?

The gynecologists say the mucous membrane (right term?) is irritated and red (and therefore the bleeding), but should heal with time. However, if there is bleeding every now and then even after a year, it doesn't seem to heal, right? The only treatment they recommend is amitriptyline, which she do not want to take due to bad experiences with such medications in the past. And we also don't understand how antidepressants will heal the underlying problem that causes the light bleeding. Amitriptyline can help with nerve pain, yes, but has nothing to do with the irritated tissue damage that is causing the bleeding, and probably some of, if not most of, the pain.

So, is irritation down there to the point of light bleeding even a symptom of Vulvodynia? Or is Vulvodynia purely nerve pain/sensitization? And might this actually be something else? Like some skin condition or something? One of the gynecologists mentioned Lichen as a possible alternative diagnosis, but still believed it was a case of typical Vulvodynia, and said antidepressants must be tested as first line of treatment.  

Thankful for any input as we are quite frustrated at this point!

does she really want to get better? than she should take the medication and suck it up. Unless she gets life threatening side effects from the Amitriptyline she needs to start taking medication, because there are few other alternative treatments out there. Parasites don't cause vulvodynia, for crying out loud, ignore the user above me. The side effects go away in 2-3 months anyway.

the light bleeding sounds like PCOS, it can go away with time....it could also be HPV related, when did she have her last swab ?

vulvodynia doesn't come with bleeding.

I feel for your wife because doctors are retarded and useless and it can be exhausting having to deal with idiots on a frequent basis.  The irritated tissue.. it's something I have from time to time .. it's hard to say what causes it ..can you try seeing a urogyn instead of a "normal! gyn? Or the clinic in Rochester if you're in US, they are the best I've heard.

I was able to achieve remission from pain using medication ..right now I am controlling the nerve pain very well with medication and lidocaine ointment.

For painful intercourse one can try dilators, it gets the muscles and tissues used to pressure again.

so all the treatments out there: at least 2 3 different medications, lidocaine, pelvic physiotherapy, the dilators, CBT, or sexual sounselling, gabapentin cream, nerve blocks....


Last edited by mary jane on Sun Jul 09, 2017 4:38 pm; edited 1 time in total
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Re: Is (light) bleeding a normal symptom of Vulvodynia?

Post  mary jane on Sun Jul 09, 2017 4:37 pm

Amitriptyline works because pain is an output of the brain, it can, in lucky cases, "reset" the nervous system to stop sending pain messages
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Re: Is (light) bleeding a normal symptom of Vulvodynia?

Post  Worriedhusband on Mon Jul 10, 2017 4:40 pm

Ok, many thanks for the replies and information!

We suspected that bleeding (even light bleeding) isn't a typical symptom of Vulvodynia, and hence that something else might be going on as well. I guess she has nerve pain (Vulvodynia) because she is really sensitive down there, and for that Amitriptyline is probably the best or even only idea. But as said, I think the bleeding indicates that something else must go on in addition and that could probably reinforce the nerve pain. We tried to introduce the idea to the latest gyn, but she kind of scoffed it off and said that Vulvodynia can "cause some irritation, but that tissue irritation should heal with time".

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Re: Is (light) bleeding a normal symptom of Vulvodynia?

Post  Hopeitworks on Fri Aug 04, 2017 12:37 pm

With my experience no bleeding or any type of skin change is not normal. Vulvodynia has no skin symptoms for most. She needs to see a specialist. Ampitripline works a little for nerve pain, but the side effects cause constipation and it will make her tired!

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Mona Lisa Touch

Post  amyhp on Fri Aug 04, 2017 5:21 pm

Your wife should look into the treatment called Mona Lisa Touch. It's a fairly new treatment discovered in Paris and there are active clinical trials being done in the U.S now. They are having good results for women with vulvodynia if done by the right doctor. With all the redness, irritation, and bleeding it sounds like there is a major skin component. The Mona Lisa Touch really helps with those kinds of symptoms. Do some google research on it!

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Re: Is (light) bleeding a normal symptom of Vulvodynia?

Post  Worriedhusband on Fri Sep 01, 2017 8:24 am

Many thanks for the additional replies! Yes, we have also understood that Vulvodynia normally do not come with any obvious skin symptoms, tissue irritation, bleeding etc. Will look into the Mona Lisa Touch treatment, thanks for the tip!

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I can relate

Post  leoscc on Fri Sep 01, 2017 3:48 pm

I can see why your wife is worried about antidepressants due to past experiences. Also, she is so lucky to have a husband so concerned about her position that he joins a support group in attempts to help her! Sadly, I do not have much great advice. I've noticed for myself personally, when I have bad flare ups, taking epsom salt baths help a lot in terms of soothing the aggravated tissue. Light bleeding however is not normal, unless it occurs after sex. I wish you luck!

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Re: Is (light) bleeding a normal symptom of Vulvodynia?

Post  Worriedhusband on Sat Sep 09, 2017 10:01 am

leoscc wrote:I can see why your wife is worried about antidepressants due to past experiences. Also, she is so lucky to have a husband so concerned about her position that he joins a support group in attempts to help her! Sadly, I do not have much great advice. I've noticed for myself personally, when I have bad flare ups, taking epsom salt baths help a lot in terms of soothing the aggravated tissue. Light bleeding however is not normal, unless it occurs after sex. I wish you luck!

Thanks for your reply and epsom salt recommendation! The light bleeding occurs every few days (some drops on the toilet paper ) without any particular reason (such as sex).

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Re: Is (light) bleeding a normal symptom of Vulvodynia?

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