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» New here would very much appreciate advice at the end of my rope
Fri Jan 11, 2019 1:46 am by Jma990o

» Diagnosed Recently
Tue Jan 08, 2019 3:55 pm by flissyg

» Looking for suggestions or encouragement
Thu Jan 03, 2019 11:09 am by Gaby

» Clinical Trial for Vulvodynia Treatment
Wed Dec 19, 2018 7:13 pm by wramirez

» New and need advice and help
Thu Dec 13, 2018 9:48 am by Derry59

» Things that have worked for me
Tue Dec 11, 2018 11:32 am by Amethyst

» Found relief after more than 15 years of pain!
Tue Dec 11, 2018 11:17 am by Amethyst

» I'm new to this forum and would love some advice! :)
Tue Dec 11, 2018 3:06 am by Cin124

» I think I know what causes vulvodynia-it's the memory of pain
Sat Dec 08, 2018 1:24 pm by foxysugarpants

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 2

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 0

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 6

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 4

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 13

Hello. Happy to have found this group.

Fri Dec 07, 2018 9:01 pm by foxysugarpants

I am new here and hope to gain some insight into my vulva pain. I suffered for a long time not realizing that there are ways to feel better. I saw the Dr. yesterday and I am starting P/T pelvic and valium suppositories. queen

Comments: 0

Had this for 5 years, looking for people who understand

Sat Oct 06, 2018 9:46 pm by blackberrie

Hey all. I'm really struggling to find anyone in real life who can really understand what I'm going through. I've had vestibulodynia for 5 years now and I'm single. Obviously it has completely affected how I approach dating and sex and the fact that I can't really talk to people irl about it has made me feel very lonely. I've found that a lot of the women who have this problem are married and …

Comments: 3

Anyone have pain with urination?

Tue Oct 16, 2018 2:35 pm by mertzwl

Hi everyone - I can't believe I've been dealing with this for almost 10 years and an appointment scheduler at a urogyn office is the one to suggest I look into vulvodynia. Honestly, I don't care, I just thankful I might have an answer.

I have pain in one specific spot right around the urethral opening so it always coincides with urinating (it's not a uti). Does anyone else deal with pain …

Comments: 6

Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

Comments: 4


Found something that helps!

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Found something that helps!

Post  Garudapants on Tue Jul 11, 2017 5:48 pm

I'm new to this forum but have been suffering from Vulvodynia for almost five years. I have tried absolutely everything, nothing has really helped all that much, decreased the pain somewhat, but I have worried that I will never have a good and pleasurable sex life again. I recently went to see a cranio-sacral practicioner and she said that my nervous system was so hyperactive that she could barely touch me without causing pain. She said that she thought that some of my pain may be caused by stuff being stuck and blocked in my pelvis. She gave me a mini treatement and said to try to calm down my nervous system and then come see her again.

Since then I have started taking ashwaganda regularly with some body salts spray (Cali Forse) to help calm my nervous system, and that has helped my overall stress and pain level a lot, but sex was still unsaticefying, unwanted, and uncomfortable.

My friend has just started making a product that combines essential oils and crystals. I bought one of her little roller bottles, just to help her out, and chose one called Women's Hormone Balance. I started using it and immediately felt something shift. I started to feel frisky for the first time in years. After 24 hours of rolling this oil onto my temples, wrists, and the bottom of my feet, I have had pleasurable and orgasmic sex with my fiance three times!! It is really blowing my mind. I almost am afraid to believe that this could be happening.

I immediately looked for a place to share this information, because I have struggled for so long alone, and have tried all of the creams and meds and everything just to have things get worse and hopeless. I don't know how or why this is helping, and the idea of essential oils and crystals, CRYSTALS for goodness sake! Being the thing that helps, is challenging me in many ways. But I wanted to share this in case anyone else has gotten to this point, where it is so bad you are willing to try anything. This weird gemoil thing has really changed my world and given me three orgasms already. Plus it smells nice.

I hope that this continues to work, and I hope that everyone, all of us, can find some cure.

In case you want to try out this remedy. Her etsy shop is brand new, but I'm pretty excited about this weird magic stuff she's figured out. I never ever thought that I would be advocating for something like this, but I guess it is what I got when I asked for a miracle.

It is called Sea Berry Gem Oils, from Tatamagouche Nova Scotia, and the remedy that worked for me was Horomone Balance.



Garudapants

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Re: Found something that helps!

Post  mary jane on Sun Jul 16, 2017 12:14 pm

I don't think I've ever read a more boring SPAM post in my entire life.. why not give the link to her "etsy" page too, huh?
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mary jane

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