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Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6

Post Vestibulectomy

Thu Aug 03, 2017 6:15 pm by infinitelywondering

Heya,

I had my vestibulectomy (full) about a day and a half ago. I was very sick and poorly just after the op and experienced intense pain down there Sad

However, today I came home and have done the following things:

-washed with warm water
-applied manuka honey to the area
-ensured I wash at least 3 times a day and dab the area dry gently
-use frozen peas to stop the swelling

As of now I am …

Comments: 1

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 3

Anyone from the PNW?

Sat Aug 05, 2017 7:54 am by jungleclover

I'm located near Portland and I would be really cool to actually meet someone with this issue. I think my roommate in college technically had this problem. She had an overgrown hymen removed and can't deal with penetration as a result. But she is gay so it seems like it hasn't been a huge problem for her (although we didn't talk about it much so there was possibly more to it than she let on). …

Comments: 0

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 22


Found something that helps!

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Found something that helps!

Post  Garudapants on Tue Jul 11, 2017 5:48 pm

I'm new to this forum but have been suffering from Vulvodynia for almost five years. I have tried absolutely everything, nothing has really helped all that much, decreased the pain somewhat, but I have worried that I will never have a good and pleasurable sex life again. I recently went to see a cranio-sacral practicioner and she said that my nervous system was so hyperactive that she could barely touch me without causing pain. She said that she thought that some of my pain may be caused by stuff being stuck and blocked in my pelvis. She gave me a mini treatement and said to try to calm down my nervous system and then come see her again.

Since then I have started taking ashwaganda regularly with some body salts spray (Cali Forse) to help calm my nervous system, and that has helped my overall stress and pain level a lot, but sex was still unsaticefying, unwanted, and uncomfortable.

My friend has just started making a product that combines essential oils and crystals. I bought one of her little roller bottles, just to help her out, and chose one called Women's Hormone Balance. I started using it and immediately felt something shift. I started to feel frisky for the first time in years. After 24 hours of rolling this oil onto my temples, wrists, and the bottom of my feet, I have had pleasurable and orgasmic sex with my fiance three times!! It is really blowing my mind. I almost am afraid to believe that this could be happening.

I immediately looked for a place to share this information, because I have struggled for so long alone, and have tried all of the creams and meds and everything just to have things get worse and hopeless. I don't know how or why this is helping, and the idea of essential oils and crystals, CRYSTALS for goodness sake! Being the thing that helps, is challenging me in many ways. But I wanted to share this in case anyone else has gotten to this point, where it is so bad you are willing to try anything. This weird gemoil thing has really changed my world and given me three orgasms already. Plus it smells nice.

I hope that this continues to work, and I hope that everyone, all of us, can find some cure.

In case you want to try out this remedy. Her etsy shop is brand new, but I'm pretty excited about this weird magic stuff she's figured out. I never ever thought that I would be advocating for something like this, but I guess it is what I got when I asked for a miracle.

It is called Sea Berry Gem Oils, from Tatamagouche Nova Scotia, and the remedy that worked for me was Horomone Balance.



Garudapants

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Re: Found something that helps!

Post  mary jane on Sun Jul 16, 2017 12:14 pm

I don't think I've ever read a more boring SPAM post in my entire life.. why not give the link to her "etsy" page too, huh?
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mary jane

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