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New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

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Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 2

Vulvodynia help

Tue Nov 14, 2017 4:27 pm by Katiej

Hi guys new here and newly diagnosed. So I had bv and then after alot of antibiotics and home remedies I still continued to have weird symptoms despite swabs being negative. Two seperate gynes have told me I have vulvodynia as a result of the area being overwhelmed. So first gave me lidocaine which xidnt do much. No I am on amitriptyline for the past 5 days. Seems to be kicking in a little (im a …

Comments: 3

New w/ Secondary Provoked Vestibuldynia

Wed Apr 26, 2017 11:46 pm by Birdy

Hi everyone,

I'm here because I'm pretty sure I have secondary provoked vestibuldynia, even though my gyno is still "optimistic" it is not.  My problem started six months ago when I got my second UTI in as many months (after going 25 years of life without one) and then ended up with a bad yeast infection (also my first one ever) thanks to the antibiotics.  Ever since the yeast …

Comments: 4

Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 9

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7


Found something that helps!

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Found something that helps!

Post  Garudapants on Tue Jul 11, 2017 5:48 pm

I'm new to this forum but have been suffering from Vulvodynia for almost five years. I have tried absolutely everything, nothing has really helped all that much, decreased the pain somewhat, but I have worried that I will never have a good and pleasurable sex life again. I recently went to see a cranio-sacral practicioner and she said that my nervous system was so hyperactive that she could barely touch me without causing pain. She said that she thought that some of my pain may be caused by stuff being stuck and blocked in my pelvis. She gave me a mini treatement and said to try to calm down my nervous system and then come see her again.

Since then I have started taking ashwaganda regularly with some body salts spray (Cali Forse) to help calm my nervous system, and that has helped my overall stress and pain level a lot, but sex was still unsaticefying, unwanted, and uncomfortable.

My friend has just started making a product that combines essential oils and crystals. I bought one of her little roller bottles, just to help her out, and chose one called Women's Hormone Balance. I started using it and immediately felt something shift. I started to feel frisky for the first time in years. After 24 hours of rolling this oil onto my temples, wrists, and the bottom of my feet, I have had pleasurable and orgasmic sex with my fiance three times!! It is really blowing my mind. I almost am afraid to believe that this could be happening.

I immediately looked for a place to share this information, because I have struggled for so long alone, and have tried all of the creams and meds and everything just to have things get worse and hopeless. I don't know how or why this is helping, and the idea of essential oils and crystals, CRYSTALS for goodness sake! Being the thing that helps, is challenging me in many ways. But I wanted to share this in case anyone else has gotten to this point, where it is so bad you are willing to try anything. This weird gemoil thing has really changed my world and given me three orgasms already. Plus it smells nice.

I hope that this continues to work, and I hope that everyone, all of us, can find some cure.

In case you want to try out this remedy. Her etsy shop is brand new, but I'm pretty excited about this weird magic stuff she's figured out. I never ever thought that I would be advocating for something like this, but I guess it is what I got when I asked for a miracle.

It is called Sea Berry Gem Oils, from Tatamagouche Nova Scotia, and the remedy that worked for me was Horomone Balance.



Garudapants

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Re: Found something that helps!

Post  mary jane on Sun Jul 16, 2017 12:14 pm

I don't think I've ever read a more boring SPAM post in my entire life.. why not give the link to her "etsy" page too, huh?
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mary jane

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