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» What's next?
Yesterday at 4:01 pm by jennyk2

» Pain management - what works for me
Yesterday at 3:41 pm by Jo44

» Share your Vulvodynia Story and become a member of the Global Anthology!
Mon Apr 23, 2018 10:44 pm by smyerskelley

» If it helps anyone else
Mon Apr 23, 2018 6:36 pm by VH7797

» Cured, cyst in foot
Mon Apr 23, 2018 4:06 pm by Guest

» HELP!! Topical cream?
Sun Apr 22, 2018 5:44 pm by emalita

» The pain CAN get better - What's worked for me
Sun Apr 22, 2018 5:32 pm by emalita

» Custom made leggings?
Sun Apr 22, 2018 4:52 am by CatJones

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25

Hello!

I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured

Hi,

Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3


Found something that helps!

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Found something that helps!

Post  Garudapants on Tue Jul 11, 2017 5:48 pm

I'm new to this forum but have been suffering from Vulvodynia for almost five years. I have tried absolutely everything, nothing has really helped all that much, decreased the pain somewhat, but I have worried that I will never have a good and pleasurable sex life again. I recently went to see a cranio-sacral practicioner and she said that my nervous system was so hyperactive that she could barely touch me without causing pain. She said that she thought that some of my pain may be caused by stuff being stuck and blocked in my pelvis. She gave me a mini treatement and said to try to calm down my nervous system and then come see her again.

Since then I have started taking ashwaganda regularly with some body salts spray (Cali Forse) to help calm my nervous system, and that has helped my overall stress and pain level a lot, but sex was still unsaticefying, unwanted, and uncomfortable.

My friend has just started making a product that combines essential oils and crystals. I bought one of her little roller bottles, just to help her out, and chose one called Women's Hormone Balance. I started using it and immediately felt something shift. I started to feel frisky for the first time in years. After 24 hours of rolling this oil onto my temples, wrists, and the bottom of my feet, I have had pleasurable and orgasmic sex with my fiance three times!! It is really blowing my mind. I almost am afraid to believe that this could be happening.

I immediately looked for a place to share this information, because I have struggled for so long alone, and have tried all of the creams and meds and everything just to have things get worse and hopeless. I don't know how or why this is helping, and the idea of essential oils and crystals, CRYSTALS for goodness sake! Being the thing that helps, is challenging me in many ways. But I wanted to share this in case anyone else has gotten to this point, where it is so bad you are willing to try anything. This weird gemoil thing has really changed my world and given me three orgasms already. Plus it smells nice.

I hope that this continues to work, and I hope that everyone, all of us, can find some cure.

In case you want to try out this remedy. Her etsy shop is brand new, but I'm pretty excited about this weird magic stuff she's figured out. I never ever thought that I would be advocating for something like this, but I guess it is what I got when I asked for a miracle.

It is called Sea Berry Gem Oils, from Tatamagouche Nova Scotia, and the remedy that worked for me was Horomone Balance.



Garudapants

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Re: Found something that helps!

Post  mary jane on Sun Jul 16, 2017 12:14 pm

I don't think I've ever read a more boring SPAM post in my entire life.. why not give the link to her "etsy" page too, huh?
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mary jane

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