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» Can you guys tell me your experiences with diflucan/Fluconazole?
Today at 1:29 am by ryn207

» So frustrating!!
Today at 1:25 am by ryn207

» Looking for suggestions or encouragement
Today at 1:19 am by ryn207

» Looking for a friend..... and new problems
Yesterday at 10:00 pm by VVSSufferer

» Vestibulectomy recovery question!
Sun Jan 14, 2018 11:37 pm by Kezz

» Prescription creams that work!
Sun Jan 14, 2018 4:46 am by Mintaherb

» Struggling
Sun Jan 14, 2018 4:29 am by Mintaherb

» Went Away and Came Back
Sat Jan 13, 2018 10:56 am by mary jane

» Amitriptyline given for vulvodyina pain
Sat Jan 13, 2018 1:39 am by ryn207

So frustrating!!

Thu Jan 04, 2018 1:15 am by Hannah77

Well I'm back in pain after 7 years of pain free days.
I was diagnosed with vulvodynia when I was 17. I suffered for three years with horrible burning all day, painful sex with my boyfriend and just pure misery Sad I went into a spontaneous remission when I was 20. I'm still not sure how the pain stopped but all the sudden I could go an entire day without thinking of my vagina, sex started to …

Comments: 3

Looking for suggestions or encouragement

Sat Jan 13, 2018 12:10 am by ryn207

Hi there. I'm 25 and have been dealing with this for over a year and a half and I'm really starting to lose hope this will ever stop.

In July of 2016 I had a yeast infection. When Monistat didn't work I went to my gynecologist who prescribed Diflucan. When the itching didn't stop she retested me and found that my yeast infection was gone, but I now had a bacterial infection. After taking the …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 5

Amitriptyline given for vulvodyina pain

Tue Oct 24, 2017 2:46 pm by katycrawford

Hi there,

After years of being misdiagnosed etc as most women have on this forum I have finally been diagnosed with vulvodynia (yay) and have been given the lowest dose of an antidepressant called Amitriptyline. Has anyone been on this before and has any positive (or negative) news to give me? Im feeling down already and I've only been taking it for a few days, I don't have much hope of it …

Comments: 11

7 years later and life looks bleak :(

Wed Dec 06, 2017 2:50 am by RainyShay77

So 7 years ago I had a case of BV...the antibiotic caused a horrible yeast infection which took 5 months to 'get rid of'. During this time I had allergic reactions to 2 of the yeast infection creams which magnified the pain. Over the past 7 years I've tried multiple rounds of physical therapy (they only slightly helped), chiropractic, nerve blocks, medications to target nerve pain (amitriptyline, …

Comments: 7

Newly diagnosed - and prescribed amitriptyline cream/physio/psychology

Sun Jan 07, 2018 9:38 am by sophiarp

Hi everyone,

I'm so happy to have stumbled across this forum. I have just been diagnosed and am really struggling emotionally. It's nice to find this forum and feel a little less alone.

I've been prescribed amitriptyline cream. Has anyone had success with this? I was happy to have avoided the amitriptyline tablets. I'm also participating in physio and have been told I need to see a psychologist …

Comments: 2

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 11

Amtriptyline, baclofen, gabapentin cream for provoked vestibuldynia

Mon Nov 20, 2017 8:15 pm by WVR00

Hello,
Has anyone had success with this cream in helping their vulvodynia? How long has it taken to help? I’ve had some success with it, but not completely better. I’ve been on it for a month. I️ was hoping to hear from some ladies who have had major success with this cream. I’m hoping for some encouragement here. This condition is so frustrating. I’m lucky enough to have access to two …

Comments: 1

New diagnosis, any advice whilst I wait for a specialist

Wed Oct 25, 2017 1:47 pm by Julesyjules

Hi,

I'm new here and wanted to ask for some advice whilst I wait to see a specialist nurse.

After urinary problems which lasted 7 weeks, I finally saw a urologist, who on examination discovered significant inflammation and called in a gynaecologist, who diagnosed vestibulitis. They referred me to a nurse who specialises in vulvar skin issues. That was 5 weeks ago, and I'm still waiting for the …

Comments: 1


Looking for community and maybe some words of encouragemenr

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Looking for community and maybe some words of encouragemenr

Post  sophstew24 on Wed Jul 12, 2017 2:35 pm

Hi there!
I just joined this morning and wanted to share my journey. I am 24 years old and have had vulvodynia for about 2 years now. I was put on 80mg of amytryptiline and pelvic floor therapy which did reduce the pain, but a full vestibulectomy was recommended. This past December, I had Dr. Wang in Greenville, SC perform the surgery so I guess that puts me 6 months out. I am now down to 20mg of the pills and back to PT. I have also started using dilators as well. I am still having pain although much less, however I was hoping for a 100% recovery! I have been told by my new doctor that I have no scar tissue and the only portion of damage that still remains is near the opening of my vagina. Pain scores of the rest of the skin have been cut in half, which is great news. She tells me not to lose hope, as I can be healing for upwards of a year with how much was taken and the area of the surgery. I was just hoping to hear from anyone whose story sounds similar to mine? I have a wonderfully supportive boyfriend who isn't concerned at all about sex, but eventually I would love to achieve a somewhat normal sex life. Any advice?? Or maybe other things I can try?

Thanks,
Sophie

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Re: Looking for community and maybe some words of encouragemenr

Post  PainBlogger on Fri Jul 14, 2017 7:57 am

I haven't had surgery but do have experience of needing to use dilators and PT. Time and patience is the key but they definitely helped me. If you want to read my history you can do so here to avoid me retyping: http://vulvodyniasupport.forumotion.net/t2291-four-months-of-significant-improvement

It's great that you have a supportive boyfriend. My husband has been patient throughout and that's been invaluable to me. Certainly try to stay positive that you can achieve a normal sex life. Don't try to rush the dilator exercises/PT. Listen to your body and also it can help to record your progress in a diary so you can look back and see how you're doing. Good luck.


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Re: Looking for community and maybe some words of encouragemenr

Post  sj17 on Sat Aug 26, 2017 3:54 pm

Hi Sophie,

Just wondering what your recovery was like after the op. Did you still have flares of pain for a few days and so forth? How did it feel?

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Re: Looking for community and maybe some words of encouragemenr

Post  tinkerbelle2 on Sat Sep 16, 2017 1:34 pm

sophstew24 wrote:Hi there!
I just joined this morning and wanted to share my journey. I am 24 years old and have had vulvodynia for about 2 years now. I was put on 80mg of amytryptiline and pelvic floor therapy which did reduce the pain, but a full vestibulectomy was recommended. This past December, I had Dr. Wang in Greenville, SC perform the surgery so I guess that puts me 6 months out. I am now down to 20mg of the pills and back to PT. I have also started using dilators as well. I am still having pain although much less, however I was hoping for a 100% recovery! I have been told by my new doctor that I have no scar tissue and the only portion of damage that still remains is near the opening of my vagina. Pain scores of the rest of the skin have been cut in half, which is great news. She tells me not to lose hope, as I can be healing for upwards of a year with how much was taken and the area of the surgery. I was just hoping to hear from anyone whose story sounds similar to mine? I have a wonderfully supportive boyfriend who isn't concerned at all about sex, but eventually I would love to achieve a somewhat normal sex life. Any advice?? Or maybe other things I can try?

Thanks,
Sophie

Hi Sophie, and welcome! Smile I am the same age as you but from the UK.. I have also suffered for years. Have tried amitryptline too though I gave up with it too soon to know whether it would've been helpful to me. I had some weird side effects on it that I couldn't persevere with like blurred vision (but nobody reading this and be discouraged by that as one person may have side effects on a medication that someone else doesn't experience at all so please don't rule anything out!!) Well done on going ahead with the surgery, it sounds as if it has gone well! Great to hear. Even if the pain is not fully gone but greatly reduced that is still a victory. And you are still in early days, healing can take time. I would also love to achieve a somewhat normal sex life too! My best advice would just be to not put pressure on yourself. If you feel ready to give it a go, try and relax and not put too much expectation on it, just see what happens. Have a couple drinks beforehand if that may ease any anxiety and make sure you are - sorry haha - well lubricated! I have used a good gel called Sylk which helps if you need extra. I think the dilators and seeing the PT hopefully should help you to relax the muscles also. I'm still on my own journey and quite inexperienced in all this when it comes to the medical side of it all.... But just do what feels right for you Smile
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Re: Looking for community and maybe some words of encouragemenr

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