Vulvodynia Support
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» Hope to all my suffering ladies
Anyone else get this from yeast infections? (new member) EmptyFri Oct 23, 2020 12:04 am by ringostarr26

» Please tell me this can get better
Anyone else get this from yeast infections? (new member) EmptySat Jul 18, 2020 7:38 pm by sammykramer

» By no means cured, but doing much better!
Anyone else get this from yeast infections? (new member) EmptyMon Mar 16, 2020 1:26 pm by tinkerbelle2

» How I cured my Vulvodynia!
Anyone else get this from yeast infections? (new member) EmptySat Dec 07, 2019 11:54 am by Millie

» 7 months since the diagnosis
Anyone else get this from yeast infections? (new member) EmptyWed Aug 14, 2019 2:38 am by agtoronto

» Gabapentin Gel. or other topical creams
Anyone else get this from yeast infections? (new member) EmptySat Jun 15, 2019 5:22 pm by mary jane

» IMPORTANT FOR UK SUFFERERS
Anyone else get this from yeast infections? (new member) EmptySat Jun 15, 2019 5:21 pm by mary jane

» Help New Diagnosis
Anyone else get this from yeast infections? (new member) EmptySat Jun 15, 2019 5:07 pm by mary jane

» 6 days post Vestibulectomy - Is this normal?? please tell me about your postop healing process!
Anyone else get this from yeast infections? (new member) EmptyTue Jun 11, 2019 12:56 am by VVSSufferer

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 2

Putnams 'bony parts' cushion or Putnams 'Dr Huff' cushion - which is best?

Sat Aug 01, 2015 4:17 pm by Fielder

Hi everyone,

I'm a newbie.  I live in the UK.  

I'm trying to work out the best cushion to get for my vulvodynia.  I suspect that I could have pudendal nerve involvement (the aching and burning pain is from vagina to clitoris) and I have rectocele and some tailbone pain too.

I have seen some good reports on older threads regarding the Putnams pressure relief cushions....with some ladies …

Comments: 11

An absolute success story- please read!

Fri Mar 08, 2019 10:57 pm by Persevere1990

Dear All,

I posted on here back in March 2017 having just got a diagnosis of vulvodynia after a few months of relentless and acute pain. I was desperate, I was hurting, I was scared I would never know life without pain there again.

I tried creams, acupuncture, numbing gels, frozen pads, baths with various internet recommended concoctions- convinced myself I had lichen sclerosus, herpes, thrush- …

Comments: 0

I'm sorry im rambling

Thu Feb 21, 2019 5:49 am by Jet227

hey, im 19, ive been struggling with this almost a year. The first week I became itchy I went in to check about a yeast infection another week later. I have been to 10 different doctors a total of about 15 appointments for this problem for the past 11 months. I have been tested for everything including having a biopsy. I was first told basically to just go home and use hydrocortazone, then I went …

Comments: 1

New member need advice please

Thu Feb 28, 2019 11:33 pm by PANDORA123

Hello, I have just been diagnosed with unprovoked vulvodynia. Im really scared and worried. It burns a lot and it hurts to sit down. I have been prescribed amitriptyle 10mg. Can anyone give me some hope that I can get better from this condition. Feeling low and depressed.

Thanks

Comments: 5

MonaLisa Touch

Fri Feb 08, 2019 7:35 pm by rl2091

Hi All,

I'm wondering if anyone has any experience with the MonaLisa Touch treatment for Vulvodynia? My pain started when I went on HRT(pill) for anxiety mainly and my pain abruntly stopped when I stopped HRT. However, when I started on the HRT patch (at my dr's suggestion), the pain returned and has never left. That was 7 years ago. I found MonaLisa Touch on the internet purely by accident …

Comments: 3

Diagnosed Recently

Tue Jan 08, 2019 3:55 pm by flissyg

Hi All,

I’m so glad I’ve found a place where there are others who understand how I feel!

So this is my story:-

I’m 36,  and 4 months ago, whilst innocently sitting in bed reading I experienced a very sharp stabbing pain in my clitoris. It last only a few minutes and then subsided as quickly as it came on. It put it down to “one of those things”.  The following morning I woke up …

Comments: 4

New and need advice and help

Wed Dec 05, 2018 3:26 pm by Cin124

Hi everyone,

About three months ago, I started having vaginal and vulval itching. Then, about two months ago, my vulva started to feel painful and look swollen, so I went to the doctor. I was tested for herpes, chlamydia, and gonorrhea which all came back negative. I also had to do a vaginal swab test and the only thing that came back positive was yeast infection. I was prescribed hydrozole …

Comments: 6

New here would very much appreciate advice at the end of my rope

Wed Jan 09, 2019 9:09 pm by Jma990o

This might be a little long but it's been such a long time I've even been able to talk about my problems openly thank you in advance for any helpful advice.
So ok I'm 24 I've been having this problem for over two years seen quite a few doctors and obgyns alike and nobody will take me seriously I have had a few utis and yeast infections and even bv once and this all started after one of the utis …

Comments: 3


Anyone else get this from yeast infections? (new member)

4 posters

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Anyone else get this from yeast infections? (new member) Empty Anyone else get this from yeast infections? (new member)

Post  jungleclover Wed Jul 19, 2017 10:37 pm

Year 1: So I immediately started getting yeast infections after I started having sex 3 years ago. Every time my boyfriend would ejaculate inside of me (he has a vasectomy) I would get yeast and it was terrible. Because I was in college and there were no Kaisers up in my college town I saw random doctors at clinics and I saw them at the school clinic. After a year I finally realized this whole thing was tied to the sex and we have been either using condoms or pulling out ever since which has been really helpful for me. I think it is possible I have a semen allergy. It certainly is very irritating to me vaginally.

Year 2:
But after a year of probably at least 9-10 infections, it was too late and I started having symptoms of vulvodynia. I was put on an antidepressant in September but it did nothing to help. I was stuck wearing cotton underwear all of the time and I itched all of the time (no pain yet). Around December I decided to try the smart idea of wearing a tampon. I was always a tampon girl and I still mourn the loss of tampons. So I accidentally fell asleep with it in and the next morning I woke up with the most UNHOLY PAIN. Went to the dr christmas eve and they said I had a yeast infection but this was different. It BURNED and itched. This burning and itching would last for the next 4-5 month. I got a C in my neuroscience class because I couldn't pay attention. Everyday walking back to my car from school I would try to hide my sobs and as soon as I got home I would ice for the next 1-2 hours. Eventually, they found out I had a UTI (I kept getting tested for one but they came back negative and I kept seeing new drs). I got antibitotics and felt better immediately.

For the next year, I got off pretty much scott free. I wore synthetic thongs, tight jeans, wet bathing suits. I had so much sex. I WAS ALIVE. My boyfriend was pulling out and everything seemed great. I thought I just had a semen allergy and everything was fine.

Year 3: One terrible January day I got lazy and did not pee within 15 minutes after sex. The next morning I woke up and I had a yeast infection again. But I've graduated college. I'm closer to drs. I thought this would be different. I would get treated and it would be ok. It was not ok. I'm not sure when I finally got the yeast to go away or when the vulvodynia started but it's been 6 months and I am in so much pain. And I itch all of the time. I am afraid I won't be able to keep my job. Last night I woke up at 3AM and never went back to sleep it hurts so bad.

I've probably seen over 30 different doctors over the course of this ordeal. maybe more honestly. I know the entire gynecology department at my kaiser. I have an appointment with a specilist in 6 weeks in Portland and I start PT in 2. I am so terrified. This is the worst thing in the world I wouldn't wish it on anyone. Even tasks like talking out the trash or walking through the grocery store seem like a marathon.
------

Can I just say this is so isolating and miserable. No one else has this problem and since I alientated all of my friends in college by refusing to go out and choosing to stay inside and ice my junk all day I have no one to talk it over with. I'm in pain, I'm lonely, and I don't know how I'll keep my job and pay bills. Worst yet I don't know when/if I'll get better. I could feel this way forever and I'm in my early 20's. This is such a raw deal.


Also does anyone else have a side of itching with their pain? For me it's always been more of an itching problem alouth I have had my fair share of pain too.

jungleclover

Posts : 14
Join date : 2017-07-19

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Anyone else get this from yeast infections? (new member) Empty I had yeast too

Post  Tunes25 Sat Mar 10, 2018 3:05 am

Hi there!

I too suspect that I have got this from recurrent yeast infections. I had a whole string of them over the course of about 9 months and then was fine for 3 months (except for a quick and easily cured spell of BV). Then in January I started getting some random itching/pain again and my doctor put me on Clindamycin gel (antibiotic) as treatment for DIV (weird because I didn't have any discharge characteristic of DIV) which is inserted into the vagina. Since it was inserted, I didn't use my probiotic suppositories and that caused me to get another yeast infection after I'd been free of them for months! That's since been treated, but now I still have painful sex and slight lingering if itchy sensation intermittently. It's been frustrating because I'm in a pretty new relationship with a guy who has a high sex drive, which the old me would have been totally into. It's so frustrating when you know what it's like to have it feeling good and yet feel so powerless to get back to that!

Tunes25

Posts : 2
Join date : 2018-03-09

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Post  ryn207 Sun Mar 11, 2018 9:28 pm

Hi there!

I also believe that mine started from a yeast infection. I had a yeast infection that didn't go away after using Monistat so I went to my gyno who prescribed me Diflucan. That worked, but then I got a bacterial infection. After taking medicine to cure that I was still itchy and sex was uncomfortable or painful. I eventually went to a derm who said it was Linchen Sclerosus. We've tried multiple medicines and steroids, but I still haven't found the right combination. I know a lot of people get the pain, but not the itch. It's so annoying and when I walk it feels like pins are poking me.

I would say Amitriptyline and Pelvic Floor PT has helped me the most.

Hang in there!

ryn207

Posts : 22
Join date : 2018-01-11

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Anyone else get this from yeast infections? (new member) Empty One really bad yeast infection

Post  Guest Wed Mar 14, 2018 9:09 pm

My V started from a yeast too. I got my very first yeast infection last may (2017), but thought I had an UTI. It never itched. It only burned on the left side, but I did have some rectal itching. It took the doctors over a month to figure out I had a yeast infection. I ended up having to do 2 rounds of diflucan and the second time I had clotrimazole. Both times it improved but the pain was still terrible. The doctors convinced me that my pain was due to skin tags so they convinced me to get cryotherapy which only made it worse. I eventually convinced my np to prescribe daily diflucan and have been on it for about 6 months. I also did a round of oral nystatin for yeast overgrowth in the intestine. I'm now weaning off daily diflucan to weekly diflucan because of how much I have improved. Sex is not painful and most of my pain is at a 2. However, the yeast infection damaged my labia and thats the very last part of my pain so my doctor suggested a labiaplasty to remove the damaged tissue. She I can decide in 3 months when I see her again. Hope this helps.

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Post  sarisbaris Thu Mar 15, 2018 3:42 am

I am so so sorry! Vulvodynia was responsible for the worst times in my life. Ok first... I had all the symptoms you mention and I am cured. Yes, I also saw 20+ western docs and countless alternative ones.

First... I followed the protocol by Anthony William and his protocol cured me. According to him, yeast isn't the problem. Yeast is just a reaction to your body fighting an infection. Vaginal burning can be caused by a strep or shingles viruses. Don't worry about getting tested they currently can't detect it.

If it currently itches I recommend douching with sovereign silver. Just use a baby syringe. Links are below. This would always relieve the itching.

https://www.amazon.com/gp/product/B01LSNF3Y0/ref=as_li_qf_sp_asin_il_tl?ie=UTF8&tag=wwwmedicalmed-20&camp=1789&creative=9325&linkCode=as2&creativeASIN=B01LSNF3Y0&linkId=ef82a575c6835957dd3c8b9d01ff02da

https://www.amazon.com/Calibrated-Medicine-Syringe-Bottle-Adapter/dp/B0040HH7VO/ref=sr_1_3_a_it?ie=UTF8&qid=1521084945&sr=8-3&keywords=baby+syringe

Next, start on your green drinks to bring down the burning/inflammation. Once in the morning and once in the evening and once whenever you are burning. Celery, cucumber, parsley, cilantro, lemon. Omit the lemon if that is too detoxing.

How to juice:
http://www.medicalmedium.com/blog/celery-juice-two-ways

Here is my blog. Check it out. My email is listed on the bottom. I am completely healed now and in my spare time I help other women cure themselves. Email me if you wanna chat and I can help you start on the protocol.
http://myvulvodyniacure.blogspot.com/2016/12/if-you-are-in-pain.html

Don't give up!

sarisbaris

Posts : 69
Join date : 2014-02-17

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Post  jungleclover Mon Jun 04, 2018 11:01 pm

Hey guys I just wanted to let you know that I ended up getting better. A month after this I found out that I had an undiagnosed UTI. It took me another few months to get over my vulvodynia and nerve damage but I am a new woman. For me, boric acid was the answer since it treats both BV and yeast. I still get probably an infection every 6 weeks but I just pop a boric acid tablet and it kills everything before they can take root. I am so thankful and so happy. I don't know if you could tell but I was in extreme pain and was planning to kill myself August 20th (so I had a month left after I made this post). Thank you for all of your support and to anyone reading this I got better and you will too!

jungleclover

Posts : 14
Join date : 2017-07-19

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