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Newly diagnosed

Tue Oct 10, 2017 8:37 pm by Brevispink

Hello everyone. I have recently been diagnosed with unprovoked vulvodynia and would really appreciate some advice and support. I have had a chronic urine infection for 16 months and was on antibiotics for 9 of those months. I have been very uncomfortable for the entire time, but now I have absolutely unbearable stinging and burning all day with itching too. The infection has just about gone, …

Comments: 7

Recent "Poke" Pain - So Confused/Losing My Mind

Thu Oct 12, 2017 9:26 am by kelseybeth23

Long Story, but I am losing my mind and getting really depressed, so if I tell the full story maybe someone can help me.

Back in August I started to get an itch down there. Normally, in the past, when this would happen, I would change the way I wore my clothes, take more baths instead of showers, and use Monistat. This time, after about two weeks of no relief, I started to get concerned. I was …

Comments: 5

Does anyone else experience this?

Sat Oct 14, 2017 5:21 pm by Angelmegs

Hi— im new here. Im incredibly desperate so if anyone has any suggestions i would greatly appreciate it. Im a 20 year old female with vulvodynia and vaginismus. I was on the birth control pill (junel fe lo estrin) from age 13-18 because of severe menstrual pain. I used the xulane patch for a few months when i was 18 but eventually stopped BC altogether because it interferes with my med for …

Comments: 0

Post Full Vestibulectomy - 5 Years Later - Please Read

Tue May 02, 2017 6:18 pm by jen007

Hi All,

It's been awhile since I've written a new topic on the forum. Wondering if any of the same ladies are still here. I've come back to update you all on my post vestibulectomy results. I can't remember if I've done an update on my current state, so forgive me if this is repeated information... I can't remember how to view my old posts! Anyway, let me get on with my update.

For 4 years post …

Comments: 4

Do you ever worry that you're making it up?

Fri May 27, 2016 6:50 am by Lucci

Hello,

I was diagnosed with Vaginismus and Vulvar Vestibulitis 10 years ago. I was 18 and scared and moving across the country for college, but luckily was able to find a doctor who specialized in 'Women's Health' who immediately put me into physical therapy. Long story short, I've been in and out of the system ever since.

A few years into treatment, I had the diagnosis of PTSD added on for …

Comments: 7

Clitoris Issues

Tue Apr 28, 2015 8:17 pm by January

I am going crazyyy trying to figure out what's wrong. Please does anyone else have an issue similar to mine? I'm only 22. So, basically when my clit is lightly rubbed, there is no feeling. However, when rubbed vigorously and directly, the burning and tingling sensations shoot down my legs and feet as if coming to the end of an orgasm but with no good feeling leading up. It's so strange. What …

Comments: 2

Cured of Vulvodynia

Wed Aug 17, 2016 1:39 am by angelique2016

I used to post on this forum a long time ago and told everyone of how I was cured of my vulvodynia by a (Melbourne Australia) female dermatologist, she put me on very low doses of Nortriptyline (Allergron) for pain management about 10mgs I believe it was, and she also had me use Advantan Fatty Ointment (not the cream) (although I saw the cream for sale on ebay from germany) so it might help, as …

Comments: 10

Vulvodynia and IVF? Anyone done this? What does it do to the vulvadynia?

Sun Jul 30, 2017 1:03 am by Carolyn4

Hi everyone,

I have had vulvodynia since age 27--I am now 43 and it has been in pretty good remission.  I control it with acupuncture and herbs, and some cranial sacral therapy.  I have a 5 year old, had a pretty uneventful pregnancy which ended in a c-section.  My VV worsened after that, and I have worked hard to get it back under control (it took over a year to get it back into pretty good …

Comments: 1

Partial Vestibulectomy

Mon Jul 31, 2017 6:44 pm by JGD13

Hi all i am new here.
I had a partial vestibulectomy 21/7 for my provoked vulvodynia.
After a painful few days and feeling quite uncomfortable it seemed to get better. 1 week after i noticed some white stuff and gloopy discharge, it wasnt smelly or itchy but i got a check up at the gp surgery and the doctor said the stitches looked fine and i could just have a touch of thrush. He said this is …

Comments: 6


Anyone else get this from yeast infections? (new member)

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Anyone else get this from yeast infections? (new member)

Post  jungleclover on Wed Jul 19, 2017 10:37 pm

Year 1: So I immediately started getting yeast infections after I started having sex 3 years ago. Every time my boyfriend would ejaculate inside of me (he has a vasectomy) I would get yeast and it was terrible. Because I was in college and there were no Kaisers up in my college town I saw random doctors at clinics and I saw them at the school clinic. After a year I finally realized this whole thing was tied to the sex and we have been either using condoms or pulling out ever since which has been really helpful for me. I think it is possible I have a semen allergy. It certainly is very irritating to me vaginally.

Year 2:
But after a year of probably at least 9-10 infections, it was too late and I started having symptoms of vulvodynia. I was put on an antidepressant in September but it did nothing to help. I was stuck wearing cotton underwear all of the time and I itched all of the time (no pain yet). Around December I decided to try the smart idea of wearing a tampon. I was always a tampon girl and I still mourn the loss of tampons. So I accidentally fell asleep with it in and the next morning I woke up with the most UNHOLY PAIN. Went to the dr christmas eve and they said I had a yeast infection but this was different. It BURNED and itched. This burning and itching would last for the next 4-5 month. I got a C in my neuroscience class because I couldn't pay attention. Everyday walking back to my car from school I would try to hide my sobs and as soon as I got home I would ice for the next 1-2 hours. Eventually, they found out I had a UTI (I kept getting tested for one but they came back negative and I kept seeing new drs). I got antibitotics and felt better immediately.

For the next year, I got off pretty much scott free. I wore synthetic thongs, tight jeans, wet bathing suits. I had so much sex. I WAS ALIVE. My boyfriend was pulling out and everything seemed great. I thought I just had a semen allergy and everything was fine.

Year 3: One terrible January day I got lazy and did not pee within 15 minutes after sex. The next morning I woke up and I had a yeast infection again. But I've graduated college. I'm closer to drs. I thought this would be different. I would get treated and it would be ok. It was not ok. I'm not sure when I finally got the yeast to go away or when the vulvodynia started but it's been 6 months and I am in so much pain. And I itch all of the time. I am afraid I won't be able to keep my job. Last night I woke up at 3AM and never went back to sleep it hurts so bad.

I've probably seen over 30 different doctors over the course of this ordeal. maybe more honestly. I know the entire gynecology department at my kaiser. I have an appointment with a specilist in 6 weeks in Portland and I start PT in 2. I am so terrified. This is the worst thing in the world I wouldn't wish it on anyone. Even tasks like talking out the trash or walking through the grocery store seem like a marathon.
------

Can I just say this is so isolating and miserable. No one else has this problem and since I alientated all of my friends in college by refusing to go out and choosing to stay inside and ice my junk all day I have no one to talk it over with. I'm in pain, I'm lonely, and I don't know how I'll keep my job and pay bills. Worst yet I don't know when/if I'll get better. I could feel this way forever and I'm in my early 20's. This is such a raw deal.


Also does anyone else have a side of itching with their pain? For me it's always been more of an itching problem alouth I have had my fair share of pain too.

jungleclover

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Join date : 2017-07-19

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