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» HELP!! Topical cream?
Mon Apr 16, 2018 5:49 pm by Sad

» Please tell me this can get better
Sun Apr 15, 2018 11:31 am by amf329

» Pressure to have sex.
Sun Apr 15, 2018 2:00 am by Sad

» Vulvodynia and other neurological diseases?
Sat Apr 14, 2018 8:00 pm by wuhujen

» I'M NEW - Do I listen to my gyno who I feel has it wrong?
Sat Apr 14, 2018 7:57 pm by wuhujen

» What's next?
Sat Apr 14, 2018 4:28 pm by sally_jane

» I wanted to share a resource that has made a huge difference for me
Wed Apr 11, 2018 9:28 pm by amf329

» Loneliness
Wed Apr 11, 2018 11:36 am by sophiarp

» I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone
Fri Apr 06, 2018 4:06 am by Warrior2010

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 4

I cured myself 100% of vulvodynia twenty years ago--I hope this helps someone

Mon Mar 12, 2018 4:33 pm by totallycured


Every so often I'm reminded of the constant, persistent, horrible pain I was in two decades ago, and I reach out to try to help others who are suffering. If someone had offered me a solution during that terrible time, I'd have jumped at it. I hope this helps someone.

Yes, I did have terrible vulvodynia. It felt like someone poured acid all over my vulva. My doctor confirmed it and was …

Comments: 3

Hi Im from Australia :)

Sat Jan 08, 2011 1:08 am by emma

Hi girls... I live in Australia.
I am currently undergoing a new treatment for vulvodynia. Just wondering if anyone else here has tried it. It's Endep in the form of cream to apply directly on the area. I dont know if anyone else has tried this but so far evidently it has had a 50% success rate.
Anyway i feel at a loss. This new treatment is exciting but at the same time i just dont feel like …

Comments: 35

Somebody please help me...

Fri Nov 24, 2017 8:05 am by Andlag

Hey everyone,

since I started being sexually active i often experienced burning in my vagina which was often worse during sex /around the time of my period or when using lubricants. I was never able to use tampons because the one time i tried putting them in it felt like acid was poured on my skin. Fast forward to 2 months ago when I got a UTI and an allergic reaction in my vagina. I thought it …

Comments: 14

Lidocaine with condoms?

Wed Mar 21, 2018 10:44 pm by AEM1

Hi everyone! My doctor just prescribed me a topical lidocaine to administer before sex, but I forgot to ask if it is okay to use with condoms. Has anyone else used this before and know it is safe to use with condoms? Thanks! Very Happy
Unrelated, but I just started Lyrica a few weeks ago...no changes yet, but I'm hopeful something will come out of it. 3 years with vulvodynia and unable to have sex …

Comments: 1

Constant pain, I want to die.

Fri Jun 02, 2017 4:29 am by Meggiemay

I posted on here a few years ago but my symptoms went away with the inflammation. I didn't get so lucky this time.

For over three months, i've had terrible rawness, burning, soreness in the urethral/vestibule area and pressure/hypersensitivity in the clitoral area. I've also had some lower abdominal pressure and burning on my butt. I can barely walk! My gyno hasn't been much help. I'm on …

Comments: 23

Recently Diagnosed which has motivated my research study

Tue Mar 06, 2018 4:54 pm by ebclose2free

Hi everyone,

My name is Eliza Barach and I was diagnosed with vulvodynia in October of 2017. I'm also PhD student at the State University of New York at Albany. I work several professors at SUNY, but one in particular, Dr. Mitch Earleywine researches marijuana and its possible efficacy as an alternative treatment. Our previous examined cannabis and symptoms of PMS/PMDD and found that women …

Comments: 0


Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist

after having a vestibulectomy with no success, I decided to visit …

Comments: 3

New and desperate for advice

Sat Mar 03, 2018 2:37 pm by srbry

Hi everyone,

I'm new here and was told to find a support group because this is all getting a bit much really...

I lost my virginity when I was 18 and it hurt - that was normal. Loads of women had told me that it hurt so that was fine I didn't question that. I was with the same guy for a couple of months and each time after that it was uncomfortable and not great. I didn't tell him because I …

Comments: 3

Anyone else get this from yeast infections? (new member)

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Anyone else get this from yeast infections? (new member)

Post  jungleclover on Wed Jul 19, 2017 10:37 pm

Year 1: So I immediately started getting yeast infections after I started having sex 3 years ago. Every time my boyfriend would ejaculate inside of me (he has a vasectomy) I would get yeast and it was terrible. Because I was in college and there were no Kaisers up in my college town I saw random doctors at clinics and I saw them at the school clinic. After a year I finally realized this whole thing was tied to the sex and we have been either using condoms or pulling out ever since which has been really helpful for me. I think it is possible I have a semen allergy. It certainly is very irritating to me vaginally.

Year 2:
But after a year of probably at least 9-10 infections, it was too late and I started having symptoms of vulvodynia. I was put on an antidepressant in September but it did nothing to help. I was stuck wearing cotton underwear all of the time and I itched all of the time (no pain yet). Around December I decided to try the smart idea of wearing a tampon. I was always a tampon girl and I still mourn the loss of tampons. So I accidentally fell asleep with it in and the next morning I woke up with the most UNHOLY PAIN. Went to the dr christmas eve and they said I had a yeast infection but this was different. It BURNED and itched. This burning and itching would last for the next 4-5 month. I got a C in my neuroscience class because I couldn't pay attention. Everyday walking back to my car from school I would try to hide my sobs and as soon as I got home I would ice for the next 1-2 hours. Eventually, they found out I had a UTI (I kept getting tested for one but they came back negative and I kept seeing new drs). I got antibitotics and felt better immediately.

For the next year, I got off pretty much scott free. I wore synthetic thongs, tight jeans, wet bathing suits. I had so much sex. I WAS ALIVE. My boyfriend was pulling out and everything seemed great. I thought I just had a semen allergy and everything was fine.

Year 3: One terrible January day I got lazy and did not pee within 15 minutes after sex. The next morning I woke up and I had a yeast infection again. But I've graduated college. I'm closer to drs. I thought this would be different. I would get treated and it would be ok. It was not ok. I'm not sure when I finally got the yeast to go away or when the vulvodynia started but it's been 6 months and I am in so much pain. And I itch all of the time. I am afraid I won't be able to keep my job. Last night I woke up at 3AM and never went back to sleep it hurts so bad.

I've probably seen over 30 different doctors over the course of this ordeal. maybe more honestly. I know the entire gynecology department at my kaiser. I have an appointment with a specilist in 6 weeks in Portland and I start PT in 2. I am so terrified. This is the worst thing in the world I wouldn't wish it on anyone. Even tasks like talking out the trash or walking through the grocery store seem like a marathon.

Can I just say this is so isolating and miserable. No one else has this problem and since I alientated all of my friends in college by refusing to go out and choosing to stay inside and ice my junk all day I have no one to talk it over with. I'm in pain, I'm lonely, and I don't know how I'll keep my job and pay bills. Worst yet I don't know when/if I'll get better. I could feel this way forever and I'm in my early 20's. This is such a raw deal.

Also does anyone else have a side of itching with their pain? For me it's always been more of an itching problem alouth I have had my fair share of pain too.


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I had yeast too

Post  Tunes25 on Sat Mar 10, 2018 3:05 am

Hi there!

I too suspect that I have got this from recurrent yeast infections. I had a whole string of them over the course of about 9 months and then was fine for 3 months (except for a quick and easily cured spell of BV). Then in January I started getting some random itching/pain again and my doctor put me on Clindamycin gel (antibiotic) as treatment for DIV (weird because I didn't have any discharge characteristic of DIV) which is inserted into the vagina. Since it was inserted, I didn't use my probiotic suppositories and that caused me to get another yeast infection after I'd been free of them for months! That's since been treated, but now I still have painful sex and slight lingering if itchy sensation intermittently. It's been frustrating because I'm in a pretty new relationship with a guy who has a high sex drive, which the old me would have been totally into. It's so frustrating when you know what it's like to have it feeling good and yet feel so powerless to get back to that!


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Re: Anyone else get this from yeast infections? (new member)

Post  ryn207 on Sun Mar 11, 2018 9:28 pm

Hi there!

I also believe that mine started from a yeast infection. I had a yeast infection that didn't go away after using Monistat so I went to my gyno who prescribed me Diflucan. That worked, but then I got a bacterial infection. After taking medicine to cure that I was still itchy and sex was uncomfortable or painful. I eventually went to a derm who said it was Linchen Sclerosus. We've tried multiple medicines and steroids, but I still haven't found the right combination. I know a lot of people get the pain, but not the itch. It's so annoying and when I walk it feels like pins are poking me.

I would say Amitriptyline and Pelvic Floor PT has helped me the most.

Hang in there!


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One really bad yeast infection

Post  ebclose2free on Wed Mar 14, 2018 9:09 pm

My V started from a yeast too. I got my very first yeast infection last may (2017), but thought I had an UTI. It never itched. It only burned on the left side, but I did have some rectal itching. It took the doctors over a month to figure out I had a yeast infection. I ended up having to do 2 rounds of diflucan and the second time I had clotrimazole. Both times it improved but the pain was still terrible. The doctors convinced me that my pain was due to skin tags so they convinced me to get cryotherapy which only made it worse. I eventually convinced my np to prescribe daily diflucan and have been on it for about 6 months. I also did a round of oral nystatin for yeast overgrowth in the intestine. I'm now weaning off daily diflucan to weekly diflucan because of how much I have improved. Sex is not painful and most of my pain is at a 2. However, the yeast infection damaged my labia and thats the very last part of my pain so my doctor suggested a labiaplasty to remove the damaged tissue. She I can decide in 3 months when I see her again. Hope this helps.


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Re: Anyone else get this from yeast infections? (new member)

Post  sarisbaris on Thu Mar 15, 2018 3:42 am

I am so so sorry! Vulvodynia was responsible for the worst times in my life. Ok first... I had all the symptoms you mention and I am cured. Yes, I also saw 20+ western docs and countless alternative ones.

First... I followed the protocol by Anthony William and his protocol cured me. According to him, yeast isn't the problem. Yeast is just a reaction to your body fighting an infection. Vaginal burning can be caused by a strep or shingles viruses. Don't worry about getting tested they currently can't detect it.

If it currently itches I recommend douching with sovereign silver. Just use a baby syringe. Links are below. This would always relieve the itching.



Next, start on your green drinks to bring down the burning/inflammation. Once in the morning and once in the evening and once whenever you are burning. Celery, cucumber, parsley, cilantro, lemon. Omit the lemon if that is too detoxing.

How to juice:

Here is my blog. Check it out. My email is listed on the bottom. I am completely healed now and in my spare time I help other women cure themselves. Email me if you wanna chat and I can help you start on the protocol.

Don't give up!


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Re: Anyone else get this from yeast infections? (new member)

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