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Diagnosed recently, looking for advice

Sun Sep 02, 2018 12:51 am by Cloudberry

Hi everyone,

I'm so glad I found this forum! I was diagnosed with vulvodynia/vulvar vestibulitis (still not sure about the difference between all the different terms) a couple of months ago and I could do with some advice. This is probably going to be a lot of text because I just want to get everything off my chest, so please bear with me.

I’m a woman in my late 20s. Before getting diagnosed …

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Hurting, Burning, Itching, and Worn Out

Thu Aug 09, 2018 10:55 pm by donnambr

This vulvodynia that I'm currently suffering with is so cruel. I hurt, I burn, I itch. When I first got this several years ago, before the internet, I though I was the only one with this awful disorder. Doctors couldn't figure it out. I felt so alone and devastated. Somehow it disappeared for a few years and now I'm suffering again. This dreaded V misery is back and I feel like I will be with …

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Hi girls! New in this forum

Fri Jul 13, 2018 2:31 pm by Gaby

Hi everyone!

Also joining the V club, Here my story:

It all started last year in september with a very bad throat infection for which i had to take antibiotics for about a month. This cause several yeast infections (candidia albicans).... one after the other!. I had them every month from october 2017 till march 2018. During this period i use an incredible amount of anti-fungal creams and …

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Newbie and feeling helpless

Wed Jul 11, 2018 1:52 pm by Taylor1

Hi, I found out a few weeks ago that I have this condition, started off at the end of April as a uti took strong antibiotics then got a thrush infection and now this.. My doctor has tried me on amitriptyline and gabipentin and both made me so poorly I couldn't take it plus I have seen what long use of these drugs has done to my mom for pain and its not good. I am using coconut oil which does …

Comments: 3

I'm new to this forum and would love some advice! :)

Tue Jun 05, 2018 4:13 am by anikita

Hi lovely gals!

I'm honestly hoping to get any bit of advice anyone might have to offer. I go from bouts of sobbing hysterically in my boyfriend's arms to feeling confident that I can beat this.

I haven't been actually diagnosed with vulvodynia but EVERYTHING under the sun has come back negative. I started having sex 4 years ago after starting Lo Loestrin, with my first and current boyfriend …

Comments: 6

From a concerned husband

Thu Jul 12, 2018 10:45 pm by ConcernedYorkieHubby

Hello everyone,

This is probably a little unconventional, but I’m a man who is here because his wife has been diagnosed with vulvodynia. The poor girl has been suffering with vulva pain for around 10 years now, and I’ve been by her side through the pain and tears and doctors misunderstandings the whole way, and we’re both exhausted and terrified by the whole experience.

I’m sure a lot …

Comments: 3

I'M NEW - Do I listen to my gyno who I feel has it wrong?

Fri Mar 09, 2018 6:17 pm by Tunes25


I am a 25 year old woman and wanted to share my story here as I feel frustrated by the suggestions of my gyno and am hoping for some advice.

To give the context for this: in September 2016 I moved in with my long term boyfriend after living abroad a year and (nearly) abstaining from sex. Within a few weeks I had got a yeast infection which I treated myself successfully, but then 2 weeks …

Comments: 10

Gabapentin Gel. or other topical creams

Thu May 10, 2018 9:43 am by Rosie21

Hi I have been suffering for some years with this abominable pain. I have tried most of the systemic drugs , I asked specialists and Doctors if I could at least try a topical treatment but because this requires a special prescription have been refused Has anybody had a chance of trying these? Thank you I will try to put a link on to some of the research into Gabapentin Gel. Thanks.

Comments: 1

What has been helping ME (much less pain over time!!)

Wed May 16, 2018 3:43 am by leoscc

Hello everyone! I vanished for quite some time as my life became consumed by not only this but other daily responsibilities as well. Shortly after my diagnosis, my boyfriend f 3 years left me as he did not want to deal with this. It left me broken for a while but also gave me time to figure out what the heck was going on. So, I will write out a quick list of my symptoms and what helped me.

1. I …

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Anyone else get this from yeast infections? (new member)

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Anyone else get this from yeast infections? (new member)

Post  jungleclover on Wed Jul 19, 2017 10:37 pm

Year 1: So I immediately started getting yeast infections after I started having sex 3 years ago. Every time my boyfriend would ejaculate inside of me (he has a vasectomy) I would get yeast and it was terrible. Because I was in college and there were no Kaisers up in my college town I saw random doctors at clinics and I saw them at the school clinic. After a year I finally realized this whole thing was tied to the sex and we have been either using condoms or pulling out ever since which has been really helpful for me. I think it is possible I have a semen allergy. It certainly is very irritating to me vaginally.

Year 2:
But after a year of probably at least 9-10 infections, it was too late and I started having symptoms of vulvodynia. I was put on an antidepressant in September but it did nothing to help. I was stuck wearing cotton underwear all of the time and I itched all of the time (no pain yet). Around December I decided to try the smart idea of wearing a tampon. I was always a tampon girl and I still mourn the loss of tampons. So I accidentally fell asleep with it in and the next morning I woke up with the most UNHOLY PAIN. Went to the dr christmas eve and they said I had a yeast infection but this was different. It BURNED and itched. This burning and itching would last for the next 4-5 month. I got a C in my neuroscience class because I couldn't pay attention. Everyday walking back to my car from school I would try to hide my sobs and as soon as I got home I would ice for the next 1-2 hours. Eventually, they found out I had a UTI (I kept getting tested for one but they came back negative and I kept seeing new drs). I got antibitotics and felt better immediately.

For the next year, I got off pretty much scott free. I wore synthetic thongs, tight jeans, wet bathing suits. I had so much sex. I WAS ALIVE. My boyfriend was pulling out and everything seemed great. I thought I just had a semen allergy and everything was fine.

Year 3: One terrible January day I got lazy and did not pee within 15 minutes after sex. The next morning I woke up and I had a yeast infection again. But I've graduated college. I'm closer to drs. I thought this would be different. I would get treated and it would be ok. It was not ok. I'm not sure when I finally got the yeast to go away or when the vulvodynia started but it's been 6 months and I am in so much pain. And I itch all of the time. I am afraid I won't be able to keep my job. Last night I woke up at 3AM and never went back to sleep it hurts so bad.

I've probably seen over 30 different doctors over the course of this ordeal. maybe more honestly. I know the entire gynecology department at my kaiser. I have an appointment with a specilist in 6 weeks in Portland and I start PT in 2. I am so terrified. This is the worst thing in the world I wouldn't wish it on anyone. Even tasks like talking out the trash or walking through the grocery store seem like a marathon.

Can I just say this is so isolating and miserable. No one else has this problem and since I alientated all of my friends in college by refusing to go out and choosing to stay inside and ice my junk all day I have no one to talk it over with. I'm in pain, I'm lonely, and I don't know how I'll keep my job and pay bills. Worst yet I don't know when/if I'll get better. I could feel this way forever and I'm in my early 20's. This is such a raw deal.

Also does anyone else have a side of itching with their pain? For me it's always been more of an itching problem alouth I have had my fair share of pain too.


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I had yeast too

Post  Tunes25 on Sat Mar 10, 2018 3:05 am

Hi there!

I too suspect that I have got this from recurrent yeast infections. I had a whole string of them over the course of about 9 months and then was fine for 3 months (except for a quick and easily cured spell of BV). Then in January I started getting some random itching/pain again and my doctor put me on Clindamycin gel (antibiotic) as treatment for DIV (weird because I didn't have any discharge characteristic of DIV) which is inserted into the vagina. Since it was inserted, I didn't use my probiotic suppositories and that caused me to get another yeast infection after I'd been free of them for months! That's since been treated, but now I still have painful sex and slight lingering if itchy sensation intermittently. It's been frustrating because I'm in a pretty new relationship with a guy who has a high sex drive, which the old me would have been totally into. It's so frustrating when you know what it's like to have it feeling good and yet feel so powerless to get back to that!


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Re: Anyone else get this from yeast infections? (new member)

Post  ryn207 on Sun Mar 11, 2018 9:28 pm

Hi there!

I also believe that mine started from a yeast infection. I had a yeast infection that didn't go away after using Monistat so I went to my gyno who prescribed me Diflucan. That worked, but then I got a bacterial infection. After taking medicine to cure that I was still itchy and sex was uncomfortable or painful. I eventually went to a derm who said it was Linchen Sclerosus. We've tried multiple medicines and steroids, but I still haven't found the right combination. I know a lot of people get the pain, but not the itch. It's so annoying and when I walk it feels like pins are poking me.

I would say Amitriptyline and Pelvic Floor PT has helped me the most.

Hang in there!


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One really bad yeast infection

Post  Guest on Wed Mar 14, 2018 9:09 pm

My V started from a yeast too. I got my very first yeast infection last may (2017), but thought I had an UTI. It never itched. It only burned on the left side, but I did have some rectal itching. It took the doctors over a month to figure out I had a yeast infection. I ended up having to do 2 rounds of diflucan and the second time I had clotrimazole. Both times it improved but the pain was still terrible. The doctors convinced me that my pain was due to skin tags so they convinced me to get cryotherapy which only made it worse. I eventually convinced my np to prescribe daily diflucan and have been on it for about 6 months. I also did a round of oral nystatin for yeast overgrowth in the intestine. I'm now weaning off daily diflucan to weekly diflucan because of how much I have improved. Sex is not painful and most of my pain is at a 2. However, the yeast infection damaged my labia and thats the very last part of my pain so my doctor suggested a labiaplasty to remove the damaged tissue. She I can decide in 3 months when I see her again. Hope this helps.


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Re: Anyone else get this from yeast infections? (new member)

Post  sarisbaris on Thu Mar 15, 2018 3:42 am

I am so so sorry! Vulvodynia was responsible for the worst times in my life. Ok first... I had all the symptoms you mention and I am cured. Yes, I also saw 20+ western docs and countless alternative ones.

First... I followed the protocol by Anthony William and his protocol cured me. According to him, yeast isn't the problem. Yeast is just a reaction to your body fighting an infection. Vaginal burning can be caused by a strep or shingles viruses. Don't worry about getting tested they currently can't detect it.

If it currently itches I recommend douching with sovereign silver. Just use a baby syringe. Links are below. This would always relieve the itching.



Next, start on your green drinks to bring down the burning/inflammation. Once in the morning and once in the evening and once whenever you are burning. Celery, cucumber, parsley, cilantro, lemon. Omit the lemon if that is too detoxing.

How to juice:

Here is my blog. Check it out. My email is listed on the bottom. I am completely healed now and in my spare time I help other women cure themselves. Email me if you wanna chat and I can help you start on the protocol.

Don't give up!


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Re: Anyone else get this from yeast infections? (new member)

Post  jungleclover on Mon Jun 04, 2018 11:01 pm

Hey guys I just wanted to let you know that I ended up getting better. A month after this I found out that I had an undiagnosed UTI. It took me another few months to get over my vulvodynia and nerve damage but I am a new woman. For me, boric acid was the answer since it treats both BV and yeast. I still get probably an infection every 6 weeks but I just pop a boric acid tablet and it kills everything before they can take root. I am so thankful and so happy. I don't know if you could tell but I was in extreme pain and was planning to kill myself August 20th (so I had a month left after I made this post). Thank you for all of your support and to anyone reading this I got better and you will too!


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Re: Anyone else get this from yeast infections? (new member)

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