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» VULVODYNIA AND SUICIDE
Yesterday at 11:20 pm by Faezeh

» a video for you guys
Yesterday at 2:53 am by lavrose

» my rock bottom, psychological effects of vulvodynia, I told him he can leave me
Yesterday at 2:45 am by lavrose

» New and need some help
Fri Feb 23, 2018 1:12 pm by fairlight10

» Acupuncture gave me my life back!
Thu Feb 22, 2018 11:25 pm by Bx11

» Anyone from New Jersey
Thu Feb 22, 2018 10:47 pm by LindafromNJ

» vaginal cream
Thu Feb 22, 2018 10:46 pm by LindafromNJ

» Acupuncture advice please
Thu Feb 22, 2018 2:25 am by ryn207

» Please tell me this can get better
Mon Feb 19, 2018 2:10 am by anon99

New and need some help

Wed Feb 21, 2018 4:30 pm by LindafromNJ

New to this site ad trying to figure out how it works.  I am trying to post as a new member so I am hoping this goes thru.  I am a senior adult and have just been diagnosed by the Drexil Vaginitis Center to have vulvodynia along with Vestibulitis (not sure if spelled correctly).  My symptoms are vaginal burning, itching, soreness around the vaginal opening with one spot in particular.  Some …

Comments: 3

Anyone from New Jersey

Thu Feb 22, 2018 10:47 pm by LindafromNJ

Looking to maybe talk to someone from NJ to see if there are any support groups in this state.

Comments: 0

vaginal cream

Thu Feb 22, 2018 10:46 pm by LindafromNJ

I have been given ABC cream to start using for my condition. This is gabapentin, amitriptyline and baclofen cream. Has anyone tried this. Also has anyone used lidocaine. My doctor told me not to use it. It is so sore at the vaginal opening. Has anyone used it there. Please respond!!

Comments: 0

MAY HAVE FOUND A CURE- PLEASE READ

Thu Feb 15, 2018 10:04 pm by infinitelywondering

Dear all,

Today has been the day I've been waiting for. The day something FINALLY makes sense.
I've been told countless times that I've got nerve damage or a muscular condition, yet none of the specific treatments have helped me. My GP suggested attacking this from a different angle so referred me to a dermatologist specialist


after having a vestibulectomy with no success, I decided to visit …

Comments: 0

NO PAIN DURING SEX

Sat Feb 10, 2018 12:18 am by rockylife

I HAVE NO PAIN DURING SEX, BUT I FEEL THIS BURNING SENSATION ALL DAY JUST BESIDE THE VAGINAL OPENING. DO I REALLY HAVE A VULVODYNIA? I'M CONFUSED.

Comments: 2

Newby not sure where to turn

Thu Feb 01, 2018 3:32 pm by Cerjo87

Hi this is all very new to me , well the talking about it bit is , the pain while having sex and also the uncomfortable feelings after and feeling like I have  sistitus most of the time I’m very used to , I’ve suffered for 7 years now I’m only 30 . Finally after all this time the doctors or should I say my gp has said I have Vulvodynia and have givin me gabapentin to try .i told her I’d …

Comments: 4

Looking for a friend..... and new problems

Sat Jan 06, 2018 11:38 pm by infinitelywondering

Hi everyone,

I hope you're doing well.

I hate to say this, but I feel beaten down and terribly alone. I had a vestibulectomy surgery about 6 months ago and I was absolutely praying it would work. It didn't.

6 months later and here I am, sitting on my bedroom floor crying my eyes out because I know I'll never be able to have painfree sex. I don't know what to do and just need a friend Sad



Comments: 8

Newbie to the site

Sun Jul 30, 2017 12:16 am by Ksa

Hello. Thank you for this wonderful site. I'm currently under the care of a dr in Phoenix that specializes in vaginal disorders. I will probably be on a suppository of estridol the rest of my life and I am currently on medications for a rare form of vaginitis that's pretty unheard of for my age. My vagina literally hates me. I've struggled with vulvadynia for 20 years, the duration of my …

Comments: 4

Vulvodynia from #metoo media coverage

Thu Jan 25, 2018 9:01 pm by dooleyhornberg

I am wondering if anyone else in this forum has experience an increase or flare up in their vulvodynia as a result of the coverage of the sexual abuse scandals in Hollywood, DC, and the recent gymnastics scandal. I have definitely had a flare up.

Comments: 0


Anyone else get this from yeast infections? (new member)

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Anyone else get this from yeast infections? (new member)

Post  jungleclover on Wed Jul 19, 2017 10:37 pm

Year 1: So I immediately started getting yeast infections after I started having sex 3 years ago. Every time my boyfriend would ejaculate inside of me (he has a vasectomy) I would get yeast and it was terrible. Because I was in college and there were no Kaisers up in my college town I saw random doctors at clinics and I saw them at the school clinic. After a year I finally realized this whole thing was tied to the sex and we have been either using condoms or pulling out ever since which has been really helpful for me. I think it is possible I have a semen allergy. It certainly is very irritating to me vaginally.

Year 2:
But after a year of probably at least 9-10 infections, it was too late and I started having symptoms of vulvodynia. I was put on an antidepressant in September but it did nothing to help. I was stuck wearing cotton underwear all of the time and I itched all of the time (no pain yet). Around December I decided to try the smart idea of wearing a tampon. I was always a tampon girl and I still mourn the loss of tampons. So I accidentally fell asleep with it in and the next morning I woke up with the most UNHOLY PAIN. Went to the dr christmas eve and they said I had a yeast infection but this was different. It BURNED and itched. This burning and itching would last for the next 4-5 month. I got a C in my neuroscience class because I couldn't pay attention. Everyday walking back to my car from school I would try to hide my sobs and as soon as I got home I would ice for the next 1-2 hours. Eventually, they found out I had a UTI (I kept getting tested for one but they came back negative and I kept seeing new drs). I got antibitotics and felt better immediately.

For the next year, I got off pretty much scott free. I wore synthetic thongs, tight jeans, wet bathing suits. I had so much sex. I WAS ALIVE. My boyfriend was pulling out and everything seemed great. I thought I just had a semen allergy and everything was fine.

Year 3: One terrible January day I got lazy and did not pee within 15 minutes after sex. The next morning I woke up and I had a yeast infection again. But I've graduated college. I'm closer to drs. I thought this would be different. I would get treated and it would be ok. It was not ok. I'm not sure when I finally got the yeast to go away or when the vulvodynia started but it's been 6 months and I am in so much pain. And I itch all of the time. I am afraid I won't be able to keep my job. Last night I woke up at 3AM and never went back to sleep it hurts so bad.

I've probably seen over 30 different doctors over the course of this ordeal. maybe more honestly. I know the entire gynecology department at my kaiser. I have an appointment with a specilist in 6 weeks in Portland and I start PT in 2. I am so terrified. This is the worst thing in the world I wouldn't wish it on anyone. Even tasks like talking out the trash or walking through the grocery store seem like a marathon.
------

Can I just say this is so isolating and miserable. No one else has this problem and since I alientated all of my friends in college by refusing to go out and choosing to stay inside and ice my junk all day I have no one to talk it over with. I'm in pain, I'm lonely, and I don't know how I'll keep my job and pay bills. Worst yet I don't know when/if I'll get better. I could feel this way forever and I'm in my early 20's. This is such a raw deal.


Also does anyone else have a side of itching with their pain? For me it's always been more of an itching problem alouth I have had my fair share of pain too.

jungleclover

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Join date : 2017-07-19

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